ACR Meeting Abstracts

ACR Meeting Abstracts

Abstract Number: 2632

Development and Validation of a Questionnaire Assessing the Fears and Beliefs of Patients Suffering from Chronic Rheumatic Diseases

Laure Gossec1,2, Alain Saraux3, Christophe Hudry4, Florence Mathoret-Philibert5, Maud Poussière6, Thibault de Chalus7, Francoise Russo-Marie8, Jean-Michel Joubert7, Pierre Chauvin9 and Francis Berenbaum1,10, 1Rheumatology Department, Sorbonne Universités, Université Pierre et Marie Curie, Paris, France, 2Rheumatology Department, AP-HP, Hôpital Pitié Salpêtrière, Paris, France, 3Rheumatology Department, CHU de la Cavale Blanche, Brest Cedex, France, 4Rheumatology, AP-HP, Hôpital Cochin, Paris, France, 5Clinical Psychology Department, AP-HP, Hôpital Cochin, Paris, France, 6Independent Researcher, Paris, France, 7UCB Pharma, Colombes, France, 8Arthritis Foundation Courtin, Neuilly-sur-Seine, France, 9Department of Social Epidemiology, Sorbonne Universités, Université Pierre et Marie Curie, Paris, France, 10Rheumatology Department, Hôpital Saint-Antoine, Paris, France

Meeting: ACR/ARHP Annual Meeting 2015

Date of first publication: September 29, 2015

Keywords: , , ,

Session Information

Date: Tuesday, November 10, 2015

Title: Rheumatoid Arthritis - Clinical Aspects Poster Session III

Session Type: ACR Poster Session C

Session Time: 9:00AM-11:00AM

Background/Purpose: Questionnaires assessing the beliefs of patients with chronic rheumatic diseases mainly focus on medications.1A validated questionnaire evaluating patients’ fears and beliefs towards their disease and therapeutic strategy could improve specific counseling and educational programs. The purpose of this study was to develop and validate a patient-reported questionnaire to assess the fears and beliefs of patients suffering from rheumatoid arthritis (RA) or spondyloarthritis (SpA).

Methods: Step 1: qualitative research (individual patient interviews: 25 RA, 25 axial SpA [axSpA]).2 Step 2: all fears and beliefs appearing in more than 10% of interviews rephrased as questions by an expert group including a patient-partner. Each question scored 0–10 (10=higher fears/beliefs). Step 3: preliminary questionnaire tested by cognitive debriefing (5 RA and 5 axSpA patients), and reproducibility through a test-retest procedure among 28 patients (13 RA, 15 axSpA). Step 4: psychometric validation through a cross-sectional study of 226 patients. Internal consistency assessed by Cronbach’s alpha, principal components analysis and descending hierarchical classification. Step 5: scoring results: descriptive presentation of the number of patients with scores ≥7/10, for ≥50% of the questions for a given domain, based on the psychometric validation.3

Results: Steps 1–3: development and adaptation of a self-reported 44-item questionnaire on a 0–10 scale of fears and beliefs. Step 4: in the study of 226 patients (161 RA, 65 axSpA), mean DAS28 was 2.5/10 (RA patients) and the mean BASDAI was 25.9/100 (axSpA patients). Based on the psychometric validation, the following domains were identified: fears of the disease progression or consequences (18 items), fears about treatment (5), beliefs related to: psychological influence (2), genetic influence (2), physical influence (4), diet influence (4), lifestyle (3) and diverse opinions (4). Step 5: the 3 domains with the highest number of patients with scores ≥7/10, for ≥50% of the questions for a given domain were: fears of the disease progression or consequences (55.3%), beliefs related to psychological influence (48.2%) and fears about treatment (46.9%).

Conclusion: This analysis indicates the internal consistency of the questionnaire developed. The questionnaire and the scoring results by domain should help physicians to better understand their patients’ perceptions of their disease, thus improving the patient-physician dialogue and eventually leading to a better adherence to treatment. 

References:

1. Gossec L. Rheumatology 2014;53(7):1274-8;

2. Berenbaum F. PLoS One 2014;9(12) [Epub];

3. McDowell I. (2006). Oxford University Press

Disclosure: L. Gossec, None; A. Saraux, None; C. Hudry, None; F. Mathoret-Philibert, None; M. Poussière, None; T. de Chalus, UCB Pharma, 3; F. Russo-Marie, None; J. M. Joubert, UCB Pharma, 3; P. Chauvin, UCB Pharma, 5; F. Berenbaum, None.

To cite this abstract in AMA style:

Gossec L, Saraux A, Hudry C, Mathoret-Philibert F, Poussière M, de Chalus T, Russo-Marie F, Joubert JM, Chauvin P, Berenbaum F. Development and Validation of a Questionnaire Assessing the Fears and Beliefs of Patients Suffering from Chronic Rheumatic Diseases [abstract]. Arthritis Rheumatol. 2015; 67 (suppl 10). https://acrabstracts.org/abstract/development-and-validation-of-a-questionnaire-assessing-the-fears-and-beliefs-of-patients-suffering-from-chronic-rheumatic-diseases/. Accessed .

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