Abstracts tagged "Surveys"

Abstract Number: 2082 • ACR Convergence 2023
Delivery of Rheumatology Education to Internal Medicine Residents in Rwanda: Evaluation of a New Virtual Rheumatology Course Supplemented by On-site Clinical Teaching
Carol Hitchon¹, Becky Abdissa Adugna², Richard Akintayo³, Paul Caldron⁴, Ines Colmegna⁵, Ida Dey⁶, Paul McGill⁷, Andres Ponce⁸, Rosie Scuccimarri⁹, Mohammed Tikly¹⁰, Girish Mody¹¹ and Michele Meltzer¹², ¹University of Manitoba, Winnipeg, MB, Canada, ²Addis Ababa University, Addis Ababa, Ethiopia, ³Dumfries and Galloway Royal Infirmary, Edinburgh, United Kingdom, ⁴Arizona Arthritis & Rheumatology Associates, P.C. - Emeritus (no longer in patient care role), Depoe Bay, OR, ⁵The Research Institute of the McGill University Health Centre, Montréal, QC, Canada, ⁶University of Ghana Medical School, Accra, Ghana, ⁷Department of Rheumatology Stobhill Hospital, Glasgow, United Kingdom, ⁸Jefferson, Philadelphia, PA, ⁹McGill University/Montreal Children's Hospital, Montréal, QC, Canada, ¹⁰Wits University, Johannesburg, South Africa, ¹¹University of KwaZulu-Natal, Durban, South Africa, ¹²Thomas Jefferson University/Rheumatology for All,Inc., Philadelphia, PA
Background/Purpose: There exists a critical lack of rheumatology resources in many parts of the world including sub-Saharan African countries. As a result, in these countries,…
Abstract Number: 1026 • ACR Convergence 2023
Patients’ Barriers to Total Joint Arthroplasty: Associations with the Orthopedic Consultation
Insa Mannstadt¹, J. Alex Gibbons², Troy Amen¹, Mangala Rajan³, Sarah Young⁴, Michael Parks¹, Mark Figgie¹, Anne Bass⁵, Linda Russell¹, Bella Mehta⁵, iris Navarro-Millán¹ and Susan Goodman¹, ¹Hospital for Special Surgery, New York, NY, ²Columbia University Vagelos College of Physicians & Surgeons, New York, NY, ³Weill Cornell Medicine, New York, NY, ⁴Binghamton University, Binghamton, NY, ⁵Hospital for Special Surgery, Weill Cornell Medicine, New York, NY
Background/Purpose: While racial/ethnic disparities in total joint arthroplasty (TJA) utilization are well-documented, the impact of orthopedic specialists on patients' perceptions of TJA is poorly understood.…
Abstract Number: 2207 • ACR Convergence 2023
Knowledge, Awareness, and Attitudes Regarding Inflammatory Back Pain Among Non-Rheumatology Physicians in the United States
William Odell¹, Swetha Ann Alexander², Nicolas Page³, Narinder Maheshwari⁴ and Abhijeet Danve⁵, ¹Yale University, Wethersfield, CT, ²University of Utah Health, Salt Lake City, UT, ³Yale University, New Haven, CT, ⁴UCONN Health, Farmington, CT, ⁵Yale University School of Medicine, Glastonbury, CT
Background/Purpose: Inflammatory back pain (IBP) is the defining feature of axial spondyloarthritis (axSpA). However, it may be difficult for non-rheumatology physicians (non-rheums) to distinguish between…
Abstract Number: 006 • 2023 Pediatric Rheumatology Symposium
Implementation of Automated Depression Screening in Patients with Lupus in a Tertiary Pediatric Rheumatology Clinic
Lauren Harper¹, Alana Goldstein-Leever¹, James Gallup¹, Vidya Sivaraman², Stacy Ardoin¹, Kyla Driest¹, Evan Mulvhihill³ and Alysha Taxter⁴, ¹Nationwide Children's Hospital, Columbus, OH, ²Nationwide Children's Hospital/ The Ohio State University, Columbus, OH, ³Nemours Children's Hospital, ⁴Nationwide Children's Hospital, Columbus, OH

Background/Purpose: Patients with chronic rheumatic conditions, particularly lupus, have higher rates of depression, which significantly impacts their lives and can lead to poor medication compliance…
Abstract Number: 022 • 2023 Pediatric Rheumatology Symposium
Narrative Medicine and Pediatric Rheumatology: Addressing Burnout and Bias
aviya lanis, Natalie Rosenwasser and Esi Morgan, Seattle Children's Hospital, Seattle, WA
Background/Purpose: Burnout, a syndrome of emotional exhaustion and depersonalization, adversely impacts healthcare. This can result in mood disturbances, poor patient and provider satisfaction and high…
Abstract Number: 061 • 2023 Pediatric Rheumatology Symposium
Variation in Treatment Approaches to IVIG- Refractory Kawasaki Disease (KD) Among Pediatric Rheumatologists: The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Treatment of Refractory KD Survey
Daniel Ibanez¹, Bianca Lang², Ali Yalcindag³, Linda Wagner-Weiner⁴, Julia Shalen⁵, Kenneth Schikler⁶, Shoghik Akoghlanian⁷, Hulya Bukulmez⁸, Kristen Hayward⁹, Sivia Lapidus¹⁰, Andrea Ramirez¹¹, Robert Sundel¹, Cagri Yildirim-Toruner¹² and CARRA Registry Investigators¹³, ¹Boston Children's Hospital, Boston, MA, ²Dalhousie University - Halifax, Halifax, NS, Canada, ³Hasbro Children's Hospital, Milton, MA, ⁴The University of Chicago, Chicago, IL, ⁵Johns Hopkins University, Baltimore, MD, ⁶University of Louisville School of Medicine Norton Children's Hospital, Louisville, KY, ⁷Nationwide Children's Hospital, Columbus, OH, ⁸MetroHealth Medical Center, Case Western Reserve, Cleveland, OH, ⁹Seattle Children's Hospital/University of Washington School of Medicine, Seattle, WA, ¹⁰Department of Pediatrics, Joseph M. Sanzari Children's Hospital, Hackensack University Medical Center, Hackensack, NJ, ¹¹Baylor College of Medicine, Houston, TX, ¹²Baylor College of Medicine, Texas Children's Hospital, Houston, TX, ¹³CARRA, Washington, DC
Background/Purpose: Kawasaki disease (KD) is the leading cause of acquired heart disease in children in North America. Initial treatment with IVIG has significantly reduced the…
Abstract Number: 097 • 2023 Pediatric Rheumatology Symposium
Survey of Covid-19 Immunization and Infection in Patients with Systemic Juvenile Idiopathic Arthritis and Adult Onset Still’s Disease
Mariana Correia Marques¹, Paul Subrata², Carol Lake³, Ly-Lan Bergeron⁴, Rashmi Sinha⁵, Luciana Peixoto⁶, Marinka Twilt⁷ and Michael Ombrello⁸, ¹Translational Genetics and Genomics Section, National Institute of Arthritis and Musculoskeletal and Skin Diseases/Children`s National Hospital, Bethesda, MD, ²NIAID Collaborative Bioinformatics Resource (NCBR), National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD, ³NIH, GAITHERSBURG, MD, ⁴NIH/NIAMS, Vienna, VA, ⁵Systemic JIA Foundation, Cincinnati, OH, ⁶Systemic JIA Foundation, Cincinnati, ⁷Alberta Children's Hospital, Calgary, AB, Canada, ⁸Translational Genetics and Genomics Section, National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health, North Bethesda, MD
Background/Purpose: Immunization is one of the most important tools for the control of the Covid-19 pandemic. The safety and effectiveness of the Covid-19 immunizations have…
Abstract Number: 102 • 2023 Pediatric Rheumatology Symposium
Preliminary Results from a Survey of Psychological Resilience Among JIA Patients
Daniella Schocken and Tracy Ting, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Psychological resilience – an individuals capacity to adapt in the face of stressors and recover after adverse events – has been linked to a…
Abstract Number: 105 • 2023 Pediatric Rheumatology Symposium
Awareness of Multisystem Inflammatory Syndrome in Children Among U.S. Parents: A Cross-Sectional Survey
Lyndsey Cole¹, E. Adrianne Hammershaimb², Yuanyuan Liang², Megan Hendrich³, Dhiman Das³, Robert Petrin³, James Campbell², Sean O'Leary¹ and Jessica Cataldi¹, ¹University of Colorado School of Medicine, Denver, CO, ²University of Maryland School of Medicine, Baltimore, MD, ³Ipsos US Public Affairs, Washington, DC
Background/Purpose: Little is known about parental awareness of multisystem inflammatory syndrome in children (MIS-C), a rare but severe sequela of SARS-CoV-2 infection. We sought to…
Abstract Number: 124 • 2023 Pediatric Rheumatology Symposium
JIA-Associated TMJ Arthritis, Idiopathic Condylar Resorption or Anterior Disc Displacement – a Care Provider Survey
Daria Sosna¹, Nancy Pan², Shelly Abramowicz³, Mara Becker⁴, Melissa Lerman⁵, Cory Resnick⁶, Tova Ronis⁷, Matthew Stoll⁸, Peter Stoustrup⁹, Marinka Twilt¹⁰, CARRA Registry Investigators¹¹ and For TMJaw¹², ¹Alberta Children's Hospital/University of Calgary, Calgary, AB, Canada, ²Hospital for Special Surgery, New York, NY, ³Emory University, Atlanta, GA, ⁴Duke University Medical Center/Duke Clinical Research Institute, Durham, NC, ⁵Children's Hospital of Philadelphia, Philadelphia, PA, ⁶Harvard University, Boston, MA, ⁷Children's National Hospital, Chevy Chase, MD, ⁸University of Alabama at Birmingham, Birmingham, AL, ⁹Aarhus University, Aarhus, Denmark, ¹⁰Alberta Children's Hospital, Calgary, AB, Canada, ¹¹CARRA, Washington, DC, ¹²TMJaw, Fullerton, CA
Background/Purpose: The temporomandibular joint (TMJ) can be affected in juvenile idiopathic arthritis (JIA) patients of any age or subtype. There have been reports of isolated…
Abstract Number: 0194 • ACR Convergence 2022
A Survey of Patients with Ehlers Danlos Syndrome and Their Interest in Multidisciplinary Care
Jordan Jones¹, William Black², Wendy Cogan³ and Elisabeth Callen⁴, ¹Children's Mercy Kansas City, Kansas City, MO, ²University of Kansas School of Medicine, Kansas City, KS, ³EDSKC Collaboration Inc., Kansas City, MO, ⁴American Academy of Family Physicians, Leawood, KS
Background/Purpose: Ehlers-Danlos Syndrome (EDS) represents a family of heritable connective tissue disorders with overlapping phenotypic features, frequently including joint hypermobility, tissue fragility, and skin hyperextensibility,…
Abstract Number: 1343 • ACR Convergence 2022
Satisfaction with Rheumatoid Arthritis Care Is Related to Discordance with Providers’ Treatment Goals and Patients’ Reasons for Disagreement
Kelly O'Neill¹, Pamela Sinicrope², Cynthia Crowson³, Kathryne Marks⁴, Rachel Giblon⁵, Elena Myasoedova² and John Davis², ¹Rheumatoid Patient Foundation, Winter Springs, FL, ²Mayo Clinic, Rochester, MN, ³Mayo Clinic, Eyota, MN, ⁴Brigham and Women's Hospital, Boston, MA, ⁵Mayo Clinic, Rochester, MN, Rochester, MN
Background/Purpose: We previously reported on the incidence of shared treatment goal discussions which are associated with disease activity (DA) improvement and satisfaction within rheumatology care.…
Abstract Number: 0198 • ACR Convergence 2022
Patient Perspectives on Janus Kinase Inhibitor Use in the Treatment of Inflammatory Arthritis
Savia de Souza¹, Andrew Bassett², Ruth Williams² and Elena Nikiphorou³, ¹Independent, London, United Kingdom, ²King's College London, London, United Kingdom, ³Leiden University Medical Center & King's College London, London, United Kingdom
Background/Purpose: Janus kinase inhibitors (JAKi) have relatively recently been licensed to treat inflammatory arthritis (IA); specifically rheumatoid arthritis (RA) and psoriatic arthritis (PsA). They differ…
Abstract Number: 1354 • ACR Convergence 2022
Early Real-World Effectiveness of Upadacitinib in Rheumatoid Arthritis Using Patient-Reported Outcomes Collected via Mobile Application
Leslie Harrold¹, Patrick Zueger², William Benjamin Nowell³, Taylor Blachley¹, Paul Lakin¹, David Curtis⁴, Laura Stradford³, Shilpa Venkatachalam⁵, Namita Tundia² and Pankaj Patel², ¹CorEvitas, LLC, Waltham, MA, ²AbbVie, Inc., North Chicago, IL, ³Global Healthy Living Foundation, Nyack, NY, ⁴Global Healthy Living Foundation, Upper Nyack, NY, ⁵Global Healthy Living Foundation, New York, NY
Background/Purpose: Little is known about the impact of upadacitinib (UPA) in rheumatoid arthritis (RA) during the initial weeks of therapy in real-world clinical practice. Our…
Abstract Number: 0210 • ACR Convergence 2022
Themes in Patients’ Discordance with Provider’s Rheumatoid Arthritis Treatment Goals Relate to Patient Age, Gender, and Ethnicity
Kelly O'Neill¹, Pamela Sinicrope², Cynthia Crowson³, Kathryne Marks⁴, Rachel Giblon⁵, Elena Myasoedova² and John Davis², ¹Rheumatoid Patient Foundation, Winter Springs, FL, ²Mayo Clinic, Rochester, MN, ³Mayo Clinic, Eyota, MN, ⁴Brigham and Women's Hospital, Boston, MA, ⁵Mayo Clinic, Rochester, MN, Rochester, MN
Background/Purpose: We previously reported on themes in patients' treatment goals and their association with rheumatoid arthritis (RA) disease activity (DA) and aspects of rheumatology care,…

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