Abstracts tagged "Social support"

Abstract Number: 1911 • ACR Convergence 2024
Improving Healthcare Access in Underserved Brooklyn Communities: A Comprehensive Multispecialty Patient Navigator Program
Meenakshi Kurup¹, Grace Shadid², Jasmine Pak², Alejandra Moncayo³, Naureen Kabani⁴, Soodeh Kabir⁵, Sharon Glick⁵ and Ellen Ginzler⁶, ¹SUNY Downstate Health Sciences University, Department of Medicine, Brooklyn, NY, ²SUNY Downstate College of Medicine, Brooklyn, NY, ³SUNY Downstate Health Sciences University, College of Medicine, Brooklyn, NY, ⁴SUNY Downstate Medical Center, Brooklyn, NY, ⁵SUNY Downstate Health Sciences University, Department of Dermatology, Brooklyn, NY, ⁶SUNY Downstate Health Sciences University, New York, NY
Background/Purpose: Underserved communities in the USA face significant healthcare disparities, leading to poorer clinical outcomes and higher rates of chronic diseases. Socioeconomic barriers such as…
Abstract Number: 1919 • ACR Convergence 2024
Patient-reported Social Risk Factor Screening Among Rheumatology Outpatients
Alissa Chandler¹, Mohammed Hamid², Aurora Jiao³, Kelsey Hulcher⁴, Isha Sharma⁵, Patrice Odom⁴, Andrew Robinson⁶, Sara Kellahan², Maura Kepper⁷, Colleen Dostal⁸, Senada Fenelon⁹, Seth Eisen¹⁰, Daphne Lew¹¹ and Alfred Kim¹², ¹Washington University, St. Louis, MO, ²Washington University School of Medicine, St. Louis, MO, ³Washington University, Saint Louis, ⁴Washington University, Saint Louis, MO, ⁵Washington University in St. Louis School of Medicine, San Jose, CA, ⁶Washington University, Fenton, MO, ⁷Washington University, Brown School of Social Work, Saint Louis, ⁸Southern Illinois University Edwardsville, St. Louis, MO, ⁹Washington University St Louis, Ballwin, MO, ¹⁰Washington University School of Medicine, St Louis, MO, ¹¹Center for Biostatistics and Data Science, Institute for Informatics, Data Science, and Biostatistics, Washington University School of Medicine and Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO, ¹²Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO
Background/Purpose: The purpose of this study was to pilot test a patient-reported social risk factor (SRF) screening tool among rheumatology outpatients and to examine the…
Abstract Number: 1951 • ACR Convergence 2024
Patient-Reported Barriers to Care Across Pediatric Rheumatology Patients at a Tertiary Academic Medical Center
Bethany Walker¹, Carolyn Smith², John Bridges³, Linda McAllister¹, Ashley McCamy⁴, Annelle Reed⁵, Erica Reynolds⁴, Isabella Robles², Livie Timmerman⁶, Tana Webb², Melissa Mannion⁷ and Emily Smitherman⁷, ¹Children's of Alabama, Trussville, AL, ²Children's of Alabama, Birmingham, AL, ³University of Alabama at Birmingham/Children's of Alabama, Birmingham, AL, ⁴Children's of Alabama, Birmingham, ⁵Children's of Alabama, Tuscaloosa, AL, ⁶University of Alabama at Birmingham, Gardendale, AL, ⁷University of Alabama at Birmingham, Birmingham, AL
Background/Purpose: Pediatric rheumatic diseases require frequent medical interactions, including follow-up visits with various providers, lab testing, imaging procedures, and infusion treatments. The impact of these…
Abstract Number: 2151 • ACR Convergence 2024
Rheumatology on Reddit: A Descriptive Analysis
Alfredo Madrid García¹, Beatriz Merino Barbancho², Inés Pérez - Sancristóbal³, Dalifer Freites Nuñez⁴, Luis Rodriguez Rodriguez⁵, lydia Abasolo Alcazar⁶, Leticia Leon⁷ and Benjamin fernandez-Gutierrez⁷, ¹Fundación para la Investigación Biomédica del Hospital Clínico San Carlos (IDISCC), Madrid, Madrid, Spain, ²Life supporting technologies. Escuela Técnica Superior de Ingenieros de Telecomunicación. Universidad Politécnica de Madrid., Madrid, Spain, ³Department of Rheumatology, Hospital Clinico San Carlos,, Madrid, Madrid, Spain, ⁴Hospital Clínico San Carlos. Madrid. Spain., Madrid, Spain, ⁵Hospital Clinico San Carlos, Madrid, Madrid, Spain, ⁶IdISSC. HCSC, Madrid, Spain, ⁷Hospital Clinico San Carlos, Madrid, Spain
Background/Purpose: Over the past decade, social media data have gained special interest across various sectors, specially in medicine where these data are being utilized for…
Abstract Number: 2551 • ACR Convergence 2024
Modified Delphi Process to Propose an Equity Measurement Roadmap in Rheumatology
Sancia Ferguson¹, Allen Anandarajah², Melissa Wells³, Delamo Bekele⁴, Ashira Blazer⁵, Cynthia Crowson⁴, Deborah Desir⁶, Elizabeth Ferucci⁷, Wambui Machua⁸, Esi Morgan⁹, Wendy Rogers¹⁰, Lauren Smith¹¹, JoAnn Zell¹², Lisa Suter¹³, Shraddha Jatwani¹⁴ and Christie Bartels¹⁵, ¹University of Wisconsin, Madison, Madison, WI, ²University of Rochester Medical Center, Rochester, NY, ³McFarland Clinic, Ames, IA, ⁴Mayo Clinic, Rochester, MN, ⁵University of Maryland Baltimore, Baltimore, MD, ⁶Yale School of Medicine, WOODBRIDGE, CT, ⁷Alaska Native Tribal Health Consortium, Anchorage, AK, ⁸Piedmont Healthcare, Atlanta, GA, ⁹Seattle Children's Hospital, Seattle, WA, ¹⁰Lupus Foundation of America, Inc, Washington, DC, ¹¹Medstar Georgetown University Hospital, District Heights, MD, ¹²University of Colorado Anschutz Medical Campus, Denver, CO, ¹³Yale School of Medicine, New Haven, CT, ¹⁴Dignity Health-MMG Rheumatology, Citrus Heights, CA, ¹⁵University of Wisconsin School of Medicine and Public Health, Madison, WI
Background/Purpose: Achieving health equity has been a long-standing goal, as Academy of Medicine leaders stated, ‘There is no equity without quality, and there is no…
Abstract Number: 1924 • ACR Convergence 2023
Impact of the COVID-19 Pandemic on Clinical and Psychosocial Features of Patients with UCTD
Caroline Siegel¹, Lucy Masto¹, Amaya Smole¹, Bessie Stamm¹, JoAnn Vega¹, Dongmei Sun¹, Deanna Jannat-Khah¹, Michael Lockshin², Lisa Sammaritano² and Medha Barbhaiya², ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Weill Cornell Medicine, New York, NY
Background/Purpose: The early COVID-19 pandemic led to physical and psychological burdens for patients with systemic rheumatic diseases, whether or not they had had COVID-19. To…
Abstract Number: 2089 • ACR Convergence 2023
Social Listening Analysis of IgG4-Related Disease Social Media Discussions
Esteban Rivera¹, Kelly Gavigan², Daniel Hernandez³, Maria Picone⁴, Angeni Cordova⁴, Lauren Dougherty⁴, Kristina Davidson⁵, Brian LaMoreaux⁶, Anthony Amatucci⁷ and W. Benjamin Nowell⁸, ¹Global Healthy Living Foundation, Long Island City, NY, ²Global Healthy Living Foundation, Upper Nyack, NY, ³Global Healthy Living Foundation, St. Johns, FL, ⁴TREND Community, Philadelphia, PA, ⁵Horizon Therapeutics, Dublin, Ireland, ⁶Horizon Therapeutics, Deerfield, IL, ⁷Horizon Therapeutics, Cambridge, MA, ⁸Global Healthy Living Foundation, Nyack, NY
Background/Purpose: Immunogobulin G4-Related Disease (IgG4-RD) is a rare chronic immune-mediated fibroinflammatory disorder that often manifests with tumor-like masses and/or enlargement of multiple organs. In order…
Abstract Number: PP01 • ACR Convergence 2023
You Can’t Get This from a Doctor: The Role of Support Groups for Adults Aged 25-55 Living with Arthritis
Eileen Davidson, Global Healthy Living Foundation, Burnaby, BC, Canada
Background/Purpose: Living with a rheumatic condition comes with unique concerns specific to mental and social health like struggling with fatigue, anxiety, depression, and isolation, all…
Abstract Number: PP15 • ACR Convergence 2023
Toward a Frontier Beyond the Barriers of Position and Prejudice
Noriko Okochi¹, Eiji Oishi², Yuki Kojima³, Noro Takashi³, Mika Ishiguro³, Toshiko Ito-Ihara⁴ and YOSHIHIRO ARIMURA⁵, ¹Rheumatic Disease and Vasculitis Support Network Japan, Institute of Neuropsychiatry, Tokyo, Japan, ²Rheumatic Disease and Vasculitis Support Network Japan, UBE Frontier University, Yamaguchi, Japan, ³Rheumatic Disease and Vasculitis Support Network Japan, Shinagawa-Ku, Tokyo, Japan, ⁴Kyoto Prefectural University of Medicine, Rheumatic Disease and Vasculitis Support Network Japan, Kyoto, Japan, ⁵Kyorin University School of Medicine, Kichijoji Asahi Hospital, Rheumatic Disease and Vasculitis Support Network Japan, Mitaka-Shi, Tokyo, Japan
Background/Purpose: In Japan, firm boundaries exist between people from different walks of life surrounding diseases. 【Patients】Some patients are unable to assert themselves before doctors who…
Abstract Number: PP16 • ACR Convergence 2023
Peer Health Coaches Help Scleroderma Patients Cope with Isolation
Mary Alore¹, Yen Chen² and Susan Murphy³, ¹Troy, MI, ²University of Michigan, Ann Arbor, MI, ³University of Michigan, Plymouth, MI
Background/Purpose: In 2011, I felt extremely isolated with my new diagnosis of diffuse systemic sclerosis and sought support online and in support groups. In addition…
Abstract Number: PP17 • ACR Convergence 2023
Utilizing Support Networks to Improve Patient Outcomes
Brian Vogel, Lupus and Allied Diseases Association, Inc., San Diego, CA
Background/Purpose: In 2006, I realized I was gay and identified as LGBTQIA but did not come out. In 2008, I began experiencing chronic widespread pain,…
Abstract Number: 0189 • ACR Convergence 2023
Influence of Social Support on Systemic Lupus Erythematosus (SLE) Outcomes in a Health Disparity Population
Sarah Smith, Chloe Mattila, Lori Ann Ueberroth, L. Quinnette King, Diane L. Kamen, Paula Ramos and bethany wolf, Medical University of South Carolina, Charleston, SC
Background/Purpose: SLE disproportionately impacts African American women. Social support may have a positive impact in SLE and as such could potentially reduce disease burden. However,…
Abstract Number: 1000 • ACR Convergence 2023
Incorporation of Social Drivers of Health Screening into a Structured Healthcare Transition Program for Adolescents and Young Adults with Chronic Rheumatic Disease
Morayah Ciprien¹, Sarah Barrientos², Cori Christenholz², Elinore Benett² and Rosemary Peterson¹, ¹Dell Medical School at UT Austin, Austin, TX, ²Dell Children's Medical Center, Division of Rheumatology, Austin, TX
Background/Purpose: Social drivers of health (SDoH) such as access to housing and food, may significantly influence safe and timely transition to adult healthcare, yet routine…
Abstract Number: 1178 • ACR Convergence 2023
Self-Perceived Knowledge of Myositis Among Social Media Respondents- a Pilot Study on Twitter
Srijan Mittal¹, Vanshita Batra¹, Parikshit Sen², Saadia Sasha Ali³, Arpit Mago⁴, Mark Russell⁵, Eugenia Gkiaouraki⁶ and Rohit Aggarwal⁶, ¹Maulana Azad Medical College, New Delhi, India, ²Maulana Azad Medical College, 2-Bahadurshah Zafar Marg, New Delhi, Delhi-110002, India., Dalhi, India, ³King's College Hospital, Epsom, United Kingdom, ⁴Jawaharlal Nehru Medical College, Belgaum, India, ⁵King's College Hospital, London, United Kingdom, ⁶University of Pittsburgh, Pittsburgh, PA
Background/Purpose: Myositis is a rare complex autoimmune disease that is less known and poorly understood, with increased effort required for education of practitioners, students, educators,…
Abstract Number: 1231 • ACR Convergence 2023
Successful Implementation of a Mental Health Screening Program for Youth with Juvenile Dermatomyositis
Y. Ingrid Goh¹, Kayla Baker¹, Audrey Bell-Peter¹, Vanessa Carbone¹, Brian Feldman¹, Luana Flores Pereira¹, Jayne MacMahon¹, Valerio Maniscalco¹, Jo-Anne Marcuz¹, Greta Mastrangelo², Tanya Slater¹, Kristi Whitney¹ and Andrea Knight¹, ¹The Hospital for Sick Children, Toronto, ON, Canada, ²Division of Rheumatology, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada
Background/Purpose: High levels of emotional distress have been reported in children with juvenile myositis (JM). Inadequate recognition of mental health concerns by healthcare providers (HCPs)…

All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM CT on October 25. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].