ACR Meeting Abstracts

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Abstracts tagged "Scleroderma, Localized"

  • Abstract Number: 0371 • ACR Convergence 2024

    This Is Caring: Enhancing Patient Education Materials for Individuals with Morphea Through Qualitative Inquiry

    Jennifer Foster1, Robin Higashi2, Priya Sarlashkar1 and Heidi Jacobe1, 1The University of Texas Southwestern Medical Center, Department of Dermatology, Dallas, TX, 22UT Southwestern Medical Center, Peter O’Donnell Jr School of Public Health, Dallas, TX

    Background/Purpose: Patient education materials (PEMs) are essential for conveying disease and treatment information, empowering patients to actively participate in their care. However, PEMs for rare…
  • Abstract Number: 0706 • ACR Convergence 2024

    Single Center Prospective Cohort of Systemic Sclerosis Patients Who Are At-Risk for Pulmonary Hypertension

    Carleigh Zahn1, Scott Visovatti2, Rosemary Gedert1, Suiyuan Huang1, Victor Moles1, Amber Young1, Vallerie McLaughlin1 and Dinesh Khanna1, 1University of Michigan, Ann Arbor, MI, 2The Ohio State University, Columbus

    Background/Purpose: Pulmonary hypertension (PH) is a leading cause of mortality in systemic sclerosis (SSc). We launched an IRB approved prospective study (NOVEL) in 2013 at…
  • Abstract Number: 1767 • ACR Convergence 2024

    Endothelial Cell-Driven JAG/NOTCH Signaling in Localized Scleroderma Patients

    Theresa Hutchins1, Anwesha Sanyal1, Deren Esencan1 and Kathryn Torok2, 1University of Pittsburgh, Pittsburgh, PA, 2Division of Rheumatology, Scleroderma Center, Department of Pediatrics, UPMC Children’s Hospital of Pittsburgh, Pittsburgh, PA, USA, Pittsburgh, PA

    Background/Purpose: Localized scleroderma is a rare autoimmune disease primarily affecting the skin and underlying tissue. While its exact pathogenesis remains unclear, studies suggest links to…
  • Abstract Number: 1774 • ACR Convergence 2024

    Metabolomics and Lipidomics in Juvenile Localized Scleroderma

    Yuan Zhang1, Angela Aquilani2, Rebecca Nicolai3, Fabrizio De Benedetti4, Emiliano Marasco2 and Cristina Maglio1, 1University of Gothenburg, Gothenburg, Sweden, 2Bambino Gesù Children’s Hospital, Immunology and Rheumatology Unit, Roma, Italy, 3Division of Rheumatology, IRCCS Ospedale Pediatrico Bambino Gesù, Rome, Italy, 4IRCCS Ospedale Pediatrico Bambino Gesù, Rome, Italy

    Background/Purpose: Juvenile localised scleroderma (jLS) is a rare rheumatic disease in children characterized by inflammation and fibrosis in the skin [1, 2]. The cause and…
  • Abstract Number: 2178 • ACR Convergence 2024

    Evaluating the Non-Inferiority of Mycophenolate Mofetil Compared to Methotrexate in Treating Juvenile Localized Scleroderma

    Elena DeRosas1, Haley Havrilla2 and Kathryn Torok3, 1University of Pittsburgh, Pittsburgh, PA, 2Division of Rheumatology, Scleroderma Center, Department of Pediatrics, UPMC Children’s Hospital of Pittsburgh, Pittsburgh, PA, USA, Pittsburgh, 3Division of Rheumatology, Scleroderma Center, Department of Pediatrics, UPMC Children’s Hospital of Pittsburgh, Pittsburgh, PA, USA, Pittsburgh, PA

    Background/Purpose: Methotrexate (MTX) has historically been used as first-line therapy for juvenile localized scleroderma (jLS), but tolerability often limit compliance. Recent evidence from case series…
  • Abstract Number: 2194 • ACR Convergence 2024

    Association of Reticular Dermis and Subcutis Inflammatory Infiltrate with Musculoskeletal Involvement in Pediatric Localized Scleroderma

    Deren Esencan1, Anwesha Sanyal1, Haley Havrilla2, Samantha Branton1, Theresa Hutchins1, Claudia Salgado3 and Kathryn Torok4, 1University of Pittsburgh, Pittsburgh, PA, 2Division of Rheumatology, Scleroderma Center, Department of Pediatrics, UPMC Children’s Hospital of Pittsburgh, Pittsburgh, PA, USA, Pittsburgh, 3University of Miami Miller School of Medicine, Miami, FL, 4Division of Rheumatology, Scleroderma Center, Department of Pediatrics, UPMC Children’s Hospital of Pittsburgh, Pittsburgh, PA, USA, Pittsburgh, PA

    Background/Purpose: Localized scleroderma (morphea) is a rare autoimmune disorder characterized by inflammatory infiltrate and collagen deposition in the skin and connective tissue. While textbooks offer…
  • Abstract Number: 0332 • ACR Convergence 2023

    Initial Characterization of a Skin Symptom Questionnaire for Patients with Systemic Sclerosis

    Jeong Min Yu1, John VanBuren2, Angela Child2, Jessica Alvey2, Lisa Mandl3, Laura Pinheiro4, Shervin Assassi5, Elana Bernstein6, Flavia Castelino7, Lorinda Chung8, Luke Evnin9, Tracy Frech10, Faye Hant11, Laura Hummers12, Dinesh Khanna13, Kimberly Lakin1, Dorota Lebiedz-Odrobina14, Yiming Luo15, Ashima Makol16, Jerry Molitor17, Duncan Moore18, Carrie Richardson19, Nora Sandorfi20, Ami Shah21, Ankoor Shah22, Victoria Shanmugam23, Brian Skaug24, Virginia Steen25, Elizabeth Volkmann26 and Jessica Gordon1, 1Hospital for Special Surgery, New York, NY, 2University of Utah, Salt Lake City, UT, 3Hospital for Special Surgery, Weill Cornell Medicine, New York, NY, 4Weill Cornell Medicine College, New York, NY, 5University of Texas McGovern Medical School at Houston, Houston, TX, 6Columbia University, New York, NY, 7Massachusetts General Hospital, Boston, MA, 8Department of Medicine, Division of Immunology and Rheumatology, Stanford University School of Medicine, Woodside, CA, 9Scleroderma Research Foundation, Brisbane, CA, 10Vanderbilt University Medical Center, Nashville, TN, 11Medical University of South Carolina, Charleston, SC, 12Johns Hopkins University, Baltimore, MD, 13University of Michigan, Ann Arbor, MI, 14University of Utah, Cottonwood Heights, UT, 15Division of Rheumatology, Department of Medicine, Columbia University Irving Medical Center, New York, NY, 16Mayo Clinic, Rochester, MN, Rochester, MN, 17University of Minnesota, Minneapolis, MN, 18Northwestern Memorial Hospital, Chicago, IL, 19Northwestern University, Riverside, IL, 20University of Pennsylvania, Philadelphia, PA, 21Department of Medicine, Division of Rheumatology, Johns Hopkins University School of Medicine, Ellicott City, MD, 22Duke University, Durham, NC, 23Victoria Shanmugam, MD, Great Falls, VA, 24Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, 25Georgetown University School of Medicine, Washington, DC, 26University of California Los Angeles, Los Angeles, CA

    Background/Purpose: Skin disease is a hallmark of systemic sclerosis (SSc). The modified Rodnan skin score (mRSS) is physician performed measurement that assesses the extent and…
  • Abstract Number: 0639 • ACR Convergence 2023

    Evaluating Esophageal Dysmotility by Scintigraphy in Systemic Sclerosis: Subsets and Phenotypes

    Antonio Salas1, Lisa Yanek2 and Zsuzsanna McMahan3, 1Johns Hopkins University School of Medicine, Baltimore, MD, 2Johns Hopkins University School of Medicine Department of Medicine, Baltimore, MD, 3Johns Hopkins Rheumatology, Lutherville, MD

    Background/Purpose: Gastrointestinal (GI) dysmotility affects most patients with systemic sclerosis (SSc), and the esophagus is the most commonly affected region. While most SSc patients are…
  • Abstract Number: 054 • 2023 Pediatric Rheumatology Symposium

    Craniofacial Localized Scleroderma: A Single Center Retrospective Cohort

    Leigh Stubbs, Ammar Hashemi, Raegan Hunt and Renata Maricevich, Baylor College of Medicine, Houston, TX

    Background/Purpose: Craniofacial localized scleroderma (LS) can lead to disfigurement and severe extracutaneous manifestations (ECMs). There is an ongoing need to standardize multidisciplinary evaluation and care.…
  • Abstract Number: 106 • 2023 Pediatric Rheumatology Symposium

    Caregivers’ Perspectives on Barriers to Care in Juvenile Localized and Systemic Scleroderma

    Leigh Stubbs1, Andrew Ferry2, Danielle Guffey1, Christina Loccke3, Erin Moriarty Wade3, Pamela Pour3, Kaveh Ardalan4, Peter Chiraseveenuprapund5, Ingrid Ganske6, Daniel Glaser7, Gloria Higgins8, Nadia Luca9, Katharine Moore10, Vidya Sivaraman11, Katie Stewart1, Natalia Vasquez Canizares12, Raegan Hunt1, Renata Maricevich1, Kathryn Torok13 and Suzanne Li14, 1Baylor College of Medicine, Houston, TX, 2Oregon Health and Science University, Portland, OR, 3n/a, 4Duke University School of Medicine, Durham, NC, 5University of California - San Diego, San Diego, CA, 6Boston Children’s Hospital and Harvard Medical School, Boston, MA, 7Yale University School of Medicine, New Haven, CT, 8Nationwide Childrens Hospital/ The Ohio State University, Columbus, OH, 9University of Calgary, Calgary, AB, Canada, 10University of Colorado / Children's Hospital Colorado, Denver, CO, 11Nationwide Children's Hospital/ The Ohio State University, Columbus, OH, 12Children's Hospital at Montefiore, New York, NY, 13University of Pittsburgh, Pittsburgh, PA, 14Hackensack Meridian School of Medicine, Joseph M. Sanzari Children's Hospital, Hackensack, NJ

    Background/Purpose: Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare rheumatic diseases often associated with severe morbidities. Delays in diagnosis are common, putting children…
  • Abstract Number: 1368 • ACR Convergence 2022

    How Common Is the Coexistence of Juvenile Localized and Systemic Scleroderma? Results of a Multination Survey

    Ivan Foeldvari1, Nicola Helmus2 and Suzanne Li3, 1Hamburger Zentrum für Kinder- und Jugendrheumatologie, Hamburg, Germany, 2Hamburg Centre for Pediatric and Adolescence Rheumatology, Hamburg, Germany, 3Hackensack Meridian School of Medicine, Joseph M. Sanzari Children's Hospital, West Orange, NJ

    Background/Purpose: Pediatric scleroderma consists of two diseases, juvenile localized scleroderma (jLS) and juvenile systemic sclerosis (jSSc). While jLS and jSSc share some disease processes, there…
  • Abstract Number: 1382 • ACR Convergence 2022

    Juvenile Eosinophilic Fasciitis: A Single-Center Cohort

    Leigh Stubbs1, Oluwaseun Ogunbona2, Adekunle Adesina1, Sara Anvari1, Emily Beil1, Jamie Lai1, Andrea Ramirez1, Vibha Szafron1, Matthew Ditzler1 and Marietta DeGuzman1, 1Baylor College of Medicine, Houston, TX, 2Houston Methodist Hospital, Houston, TX

    Background/Purpose: Eosinophilic fasciitis (EF) is a rare fibrosing disease. Since described in 1975, less than 30 pediatric cases have been reported. EF presents with painful…
  • Abstract Number: 1518 • ACR Convergence 2022

    Prevalence, Risk Factors and Treatment Patterns of Digital Ischemic Complications in Systemic Sclerosis: A Single Center Cross-Sectional Study

    Ashima Makol1, Alicia Hinze2, Rachel Giblon1, Yasser Radwan3, Tina Gunderson4, David Liedl1, Kenneth J. Warrington4, Cynthia Crowson5 and Paul Wennberg1, 1Mayo Clinic, Rochester, MN, Rochester, MN, 2Mayo Clinic - Rochester, MN, Rochester, MN, 3Mayo Clinic/ Michigan State University, Lansing, MI, 4Mayo Clinic, Rochester, MN, 5Mayo Clinic, Eyota, MN

    Background/Purpose: Digital ischemic complications (DICs, including digital ulcers, digital pitting/scars, gangrene and/or amputation) can significantly impact hand function, disability and overall prognosis in SSc. We…
  • Abstract Number: 1542 • ACR Convergence 2022

    Exploratory Clinical Subgroup Clustering in Systemic Sclerosis – Results from the Indian Progressive Systemic Sclerosis Registry

    Shery Susan Philip1, Ramya Janardana1, Revanesh S Mirji1, Chengappa Kavadichanda2, Devender Bairwa3, Geetabali Sircar4, Parasar Ghosh5, Anupam Wakhlu6, Padmanabha Shenoy7, Sumithra Selvam8 and Vineeta Shobha1, 1St. John’s Medical College Hospital, Bangalore, India, 2JIPMER, Pondicherry, Puducherry, India, 3Jawaharlal Institute of Postgraduate Medical Education and Research (JIPMER), Puducherry, Puducherry, India, 4Institute of Postgraduate Medical Education and Research, Kolkata, West Bengal, India, 5Govt of West Bengal, Kolkata, India, Kolkata, West Bengal, India, 6Apollo Medics Super Speciality Hospitals, Lucknow, India, 7Centre for Arthritis and Rheumatism Excellence (CARE), Cochi, India, 8Division of Epidemiology and Biostatistics, St. John’s Research Institute, St. John's Medical College Hospital, Bangalore, India

    Background/Purpose: Classification of systemic sclerosis (SSc) into subsets has been a challenge due to it's heterogeneity. This study attempts to identify SSc subsets based on…
  • Abstract Number: 1946 • ACR Convergence 2022

    Focused Clinical Correlation of Autoantibody Testing in Juvenile Systemic Sclerosis and Localized Scleroderma Using the Euroimmun™ Scleroderma Disease Profile

    Jonathan Li1, Emily Mirizio2, Katherine Buhler3, Anne Stevens4, May Choi5, Kaila Schollaert-Fitch2, Kathryn Torok2, Christopher Liu2 and Marvin Fritzler3, 1Combined Internal Medicine-Pediatrics Residency Program, Children's Hospital of UPMC, Pittsburgh, PA, 2Pediatric Rheumatology, Children's Hospital of UPMC, Pittsburgh, PA, 3University of Calgary, Calgary, AB, Canada, 4Janssen, Hansville, WA, 5Brigham and Women's Hospital | University of Calgary, Calgary, AB, Canada

    Background/Purpose: Commercially available autoantibody (AAb) panels are developed for adult rheumatological diseases; application to pediatric disease has not been established. As a pediatric scleroderma referral…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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