Abstracts tagged "quality of care"

Abstract Number: 2195 • ACR Convergence 2024
Pediatric Rheumatology Graduation: A One-Way Bridge to Adult Care?
Kyla Fergason¹, David McDonald¹, Karissa Chesky², Jimin Kim², Tiphanie Vogel¹ and Miriah Gillispie-Taylor³, ¹Baylor College of Medicine, Houston, TX, ²Baylor College of Medicine, Houston, ³Baylor College of Medicine/Texas Children's Hospital, Houston, TX
Background/Purpose: For many patients with childhood onset disease, the transition from pediatric to adult healthcare is difficult, often resulting in lapses in care and increased…
Abstract Number: 0359 • ACR Convergence 2024
SpA Disk©: A New Tool to Monitor the QoL of Spondyloarthritis Patients
Roba Ghossan¹, OLIVIER FOGEL², Cécile Gaujoux-Viala³, anthony SABER⁴, Cedric Lukas⁵ and Corinne MICELI⁶, and SpA Disk Group, ¹COCHIN HOSPITAL, PARIS, France, ²AP-HP, Paris, France, ³CHU Nîmes, Nïmes, Languedoc-Roussillon, France, ⁴Sorbonne Paris Nord Université, Paris, France, ⁵Rheumatology department, CHU Montpellier, Montpellier, France, ⁶Université de Paris Cité, APHP, Paris, France
Background/Purpose: Spondyloarthritis (SpA) significantly affects patients' quality of life (QoL). Current tools in routine medical practice primarily focus on assessing disease activity, neglecting the broader…
Abstract Number: 1041 • ACR Convergence 2024
A Theory of Change for Patient-Initiated Follow-Up Care in Rheumatoid Arthritis
Manuel Ester¹, Krista White², Kiran Dhiman², Saania Zafar², Alexandra Charlton³, Glen Hazlewood⁴, Gabrielle L. Zimmermann⁵, Alison Hoens⁶, Sarah L. Manske⁷, Diane Lacaille⁸, Mark G. Perry⁹, Megan R.W. Barber¹⁰, Aurore Fifi-Mah⁴, Niki Panich¹¹, Monika Szpunar¹², Karen Then¹³, Kelly Osinski¹⁴, Shakeel Subdar¹⁵, Hafsah Al-Azem¹⁶, Michelle Jung¹⁶ and Claire Barber⁴, ¹McCaig Institute for Bone and Joint Health, Cumming School of Medicine, University of Calgary; O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary; Arthritis Research Canada, Calgary, AB, Canada, ²McCaig Institute for Bone and Joint Health, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada, ³Division of Rheumatology, Cumming School of Medicine, Calgaru, AB, Canada, ⁴University of Calgary, Calgary, AB, Canada, ⁵Alberta SPOR SUPPORT Unit – Learning Health System Team, Department of Medicine, University of Alberta; 6. Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Edmonton, AB, Canada, ⁶Arthritis Research Canada; Department of Physical Therapy, University of British Columbia, Vancouver, BC, Canada, ⁷McCaig Institute for Bone and Joint Health, Cumming School of Medicine, University of Calgary; Department of Radiology, University of Calgary, Calgary, AB, Canada, ⁸Arthritis Research Canada, University of British Columbia, Vancouver, BC, Canada, ⁹Department of Rheumatology, University Hospitals Plymouth; Peninsula Medical School, Plymouth, England, United Kingdom, ¹⁰Arthritis Research Canada; Division of Rheumatology, Cumming School of Medicine, Calgary, AB, Canada, ¹¹Cumming School of Medicine, University of Calgary, Calgary, AB, Canada, ¹²Arthritis Research Canada, Toronto, ON, Canada, ¹³Faculty of Nursing, University of Calgary, Calgary, AB, Canada, ¹⁴Alberta Health Services, Edmonton, AB, Canada, ¹⁵Temerty School of Medicine, University of Toronto, Toronto, ON, Canada, ¹⁶Division of Rheumatology, Cumming School of Medicine, Calgary, AB, Canada
Background/Purpose: Timely, high-quality care is critical to effective rheumatoid arthritis (RA) management. Due to the resource-intensive nature of routine lifelong follow-ups and rheumatologist shortages, RA…
Abstract Number: 1239 • ACR Convergence 2024
Innovative Patient Empowerment: Evaluating the Effect of a Physician-created Educational Video and To-do Lists on Promoting Preventive Health Measures in Rheumatic Disease Patients
Vanessa Bartsch¹, Basel Habboub², Kathrin Standfest¹, Johannes Knitza³, Georg Schett⁴ and Axel Hueber², ¹Division Rheumatology, Klinikum Nuernberg, Nuernberg, Germany, ²Klinikum Nuernberg, Nuernberg, Germany, ³Institute for Digital Medicine, Philipps-University Marburg and University Hospital of Giessen and Marburg, Marburg, Germany, ⁴Friedrich-Alexander-Universität Erlangen-Nürnberg, Erlangen, Germany
Background/Purpose: Patients with inflammatory rheumatic diseases (IRDs) are at higher risk for malignancies and infections. Effective management strategies for these comorbidities are urgently needed. We…
Abstract Number: 2329 • ACR Convergence 2024
Feasibility of a Streamlined Approach for Psoriatic Arthritis Screening and Symptom Assessment
Gretchen Ball¹, Hassan Hamade², Sarah Romanelli², Melissa Zundell², Sangyoon Shin², Thami Senthilkumaran², Angela Lamb², Saakshi Khattri³, Lourdes Perez Chada⁴, Joseph Merola⁵ and Alice Gottlieb⁶, ¹Albert Einstein College of Medicine, Ridgefield, CT, ²Icahn School of Medicine at Mount Sinai, New York, NY, ³Mount Sinai Medical Center, New York, NY, ⁴Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, ⁵UT Southwestern Medical Center, Newton, MA, ⁶Icahn School of Medicine at Mount Sinai, Department of Dermatology, Seattle, WA
Background/Purpose: Psoriatic arthritis (PsA) is frequently undiagnosed and/or undertreated. Given the elevated risk of disability with treatment delays, we launched a quality improvement initiative to…
Abstract Number: 0377 • ACR Convergence 2024
Improving Self-Management Support in Patients with Juvenile Idiopathic Arthritis
Julia Harris¹, Leslie Favier², Emily Fox³, Michael Holland³, Cara Hoffart⁴, Maria Ibarra³, Jordan Jones⁴, Susan Parish², Kara Remick-Erickson² and Ashley Cooper⁴, ¹Children's Mercy Kansas City, Overland Park, KS, ²Children's Mercy Kansas City, Kansas City, ³Children's Mercy Hospital, Kansas City, MO, ⁴Children's Mercy Kansas City, Kansas City, MO
Background/Purpose: Self-management support (SMS) is one of the key elements of the Chronic Care Model as it is an important aspect of the care for…
Abstract Number: 1042 • ACR Convergence 2024
Identifying Patient Priorities for Patient-Reported Outcome Measures in Rheumatoid Arthritis: A Modified Delphi Consensus Study
Racheal Githumbi¹, Steven Katz², Ania Kania-Richmond¹, Kim Giroux³, Yvonne Wallace³, Cheryl Barnabe¹, Glen Hazlewood¹, C. Allyson Jones², Amanda Steiman⁴, Anshula Ambasta¹, Diane Lacaille⁵, Elaine Yacyshyn², Jessica Widdifield⁶, Natasha Gakhal⁷, Tyler Williamson¹ and Claire Barber¹, ¹University of Calgary, Calgary, AB, Canada, ²University of Alberta, Edmonton, AB, Canada, ³Patient Partner, Calgary, AB, Canada, ⁴Sinai Health System, Toronto, ON, Canada, ⁵Arthritis Research Canada, University of British Columbia, Vancouver, BC, Canada, ⁶Sunnybrook Research Institute / ICES / UofT Institute of Health Policy, Management & Evaluation, Toronto, ON, Canada, ⁷Women's College Hospital, Toronto, ON, Canada
Background/Purpose: Patient-reported outcome measures (PROMs) are essential tools for prioritizing patient-centric care and enhancing health system-performance measurement in rheumatology. Effective use of PROMs collected in…
Abstract Number: 1258 • ACR Convergence 2024
Investigating Factors Associated with Gaps in Care in Adolescents and Young Adults with Systemic Lupus
Tamar Rubinstein¹, Avni Dave², Terrence Calistro³, Kimberly Rapoza³, Joyce Hui-Yuen⁴, Emily Masi⁵, Shari Salzhauer Berkowitz³, Zanab Mian⁶ and Kathleen Kenney-Riley⁷, ¹Albert Einstein College of Medicine, White Plains, NY, ²Albert Einstein College of Medicine, Bronx, NY, ³Mercy University, Dobbs Ferry, NY, ⁴North Shore LIJ Health System, Great Neck, NY, ⁵Cohen Children's Medical Center, Floral Park, NY, ⁶Cohen Children's Medical Center, Lake Success, NY, ⁷Albert Einstein College of Medicine, Port Chester, NY
Background/Purpose: Adolescents and young adults (AYA) with systemic lupus (SLE) are at an especially high risk for disengagement in care, a possible cause of the…
Abstract Number: 2409 • ACR Convergence 2024
Adherence to EULAR Recommendations and Sub Optimal Management of Systemic Lupus Erythematosus in a Network of Community-Based Rheumatology Practices in the United States
Jeffrey Curtis¹, Emily Holladay², Amy Mudano³, Emily Smitherman⁴, Fenglong xie⁵, Shanette G. Daigle⁶, Yujie Su³, Mawuena Binka⁷, Gelareh Atefi⁸, Rana Muhammad Qasim Khan⁹ and Tope Olufade¹⁰, ¹Illumination Health, Birmingham, AL, ²University of Alabama at Birmingham, Edmond, OK, ³Illumination Health, Hoover, AL, ⁴University of Alabama at Birmingham, Birmingham, AL, ⁵University of Alabama at Birmingham; Illumination Health, Birmingham, AL, ⁶Foundation for Advancing Science, Technology, Education, and Research, Birmingham, ⁷BioPharmaceuticals Medical, AstraZeneca, Wilmington, DE, ⁸AstraZeneca, Media, PA, ⁹BioPharmaceuticals Medical, AstraZeneca, Wilmington, ¹⁰AstraZeneca, Wilmington, DE
Background/Purpose: Despite new developments in systemic lupus erythematosus (SLE) treatment and treatment guidelines, the clinical management of SLE is often sub-optimal. We aimed to describe…
Abstract Number: 0406 • ACR Convergence 2024
Delayed Diagnosis and Accrual of Joint Damage in Incident Cases of Juvenile Idiopathic Arthritis
Anna Costello¹, Cassandra Muir¹, Rui Xiao², Pamela Weiss³ and Irit Rasooly¹, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²University of Pennsylvania, Philadelphia, PA, ³Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose: Timely diagnosis of Juvenile Idiopathic Arthritis (JIA) enables early initiation of therapy, prevents accrual of joint damage, and improves outcomes. Data regarding the diagnostic…
Abstract Number: 1059 • ACR Convergence 2024
The Negative Impact of Physicians’ Neuroticism and Conscientiousness on Shared Decision Making in Patients with Systemic Lupus Erythematosus: The TRUMP2-SLE Project
Shigemi Morishita¹, Kenei Sada², Masataka Kudo³, Naofumi Dobashi⁴, Ryusuke Yoshimi⁵, Natsuki Sakurai⁶, Chiharu Hidekawa⁶, Yasuhiro Shimojima⁷, Dai Kishida⁷, Takanori Ichikawa⁷, Yoshi Miyawaki⁸, Keigo Hayashi⁹, Kenta Shidahara¹⁰, Yuichi Ishikawa¹¹, Nao Oguro¹², Nobuyuki Yajima¹³ and Noriaki Kurita¹⁴, ¹Department of Surgery, Oida Hospital, Sukumo, Japan, ²Department of Clinical Epidemiology, Kochi Medical School, Kochi University, Nankoku, Kochi, Japan, ³Department of General Internal Medicine, Iizuka Hospital, Fukuoka, Japan, ⁴Department of Internal Medicine, Kochi Prefectural Hata-Kenmin Hospital, Sukumo, Japan, ⁵Department of Medicine (Neurology and Rheumatology), Shinshu University School of Medicine, Yokohama, Kanagawa, Japan, ⁶Department of Stem Cell and Immune Regulation,Yokohama City University Graduate School of Medicine, Yokohama, Kanagawa, Japan, ⁷Department of Medicine (Neurology and Rheumatology), Shinshu University School of Medicine, Matsumoto, Nagano, Japan, ⁸Department of Nephrology, Rheumatology, Endocrinology and Metabolism, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Japan, ⁹Brigham and Women’s Hospital, Brookline, MA, ¹⁰"Department of Nephrology, Rheumatology, Endocrinology and Metabolism, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Okayama, Japan, ¹¹The First Department of Internal Medicine, University of Occupational and Environmental Health, Kitakyushu, Fukuoka, Japan, ¹²Division of Rheumatology, Department of Medicine, Showa University School of Medicine, Tokyo, Japan, ¹³Division of Rheumatology, Department of Medicine, Showa University School of Medicine, Tokyo, Japan., Tokyo, Japan, ¹⁴Department of Clinical Epidemiology, Graduate School of Medicine, Fukushima Medical University, Fukushima, Japan
Background/Purpose: The treatment of systemic lupus erythematosus (SLE) remains challenging due to its complexity, despite the introduction of various promising treatments. Recent EULAR recommendations emphasize…
Abstract Number: 1591 • ACR Convergence 2024
Domains and Outcome Measures for the Assessment of Digital Vasculopathy and Raynaud Phenomenon in Juvenile Systemic Sclerosis: A Systematic Review
Valerio maniscalco¹, Simone Appenzeller², Jennifer lemon³, Lucy stead⁴, Natalia Vasquez Canizares⁵, Gabriele Simonini⁶, Suzanne Li⁷ and Clare Pain⁸, and IJOG study, ¹Santo Stefano Hospital; Meyer Children Hospital IRCCS, Firenze, Toscana, Italy, ²Unicamp, Campinas, SP, Brazil, ³Alder Hey Children's NHS Foundation Trust, Liverpool, ⁴Liverpool University, Liverpool, ⁵Children's Hospital at Montefiore; Albert Einstein College of Medicine;, New York, NY, ⁶Meyer Children Hospital IRCCS; NEUROFARBA Department, University of Florence, Florence, Italy, ⁷Hackensack University Medical Center, Hackensack, ⁸Alderhey Children's NHS Foundation Trust, Liverpool, United Kingdom
Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease that primary affect the vascular system determining multiple organ damage and reducing quality of life…
Abstract Number: 2526 • ACR Convergence 2024
Development of the Hospital Emergency Advocacy & Treatment Kit (HEAT Kit) for Patients with Vasculitis
Sarah Jones¹, Pamela Squires² and Donna McArthur³, ¹Eosinophilic & Rare Disease Cooperative, Tucson, AZ, ²Eosinophilic & Rare Disease Cooperative, Tucson, ³Adjunct professor of nursing, Vanderbilt School of Nursing; Adjunct clinical professor, University of Arizona College of Nursing & Dept. of Neurology, Tucson, AZ
Background/Purpose: All forms of vasculitis are rare with patients frequently experiencing poor or extended care in the hospital and ED settings. The ERDC founder experienced…
Abstract Number: 0426 • ACR Convergence 2024
Quality Improvement Initiative to Increase Contraception Screening and Documentation for Reproductive-Aged Women Prescribed Teratogenic Medications in an Academic Rheumatology Center
Caroline Siegel¹, Avi Mikhaylov¹, Emily Wu², Deanna Jannat-Khah¹, Erika Abramson³, Lisa Sammaritano⁴ and Nancy Pan⁵, ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Rochester, NY, ³Weill Cornell Medicine, New York, NY, ⁴Hospital for Special Surgery, Scarsdale, NY, ⁵Hospital for Special Surgery, Weill Cornell Medicine, New York, NY
Background/Purpose: Rheumatology patients prescribed teratogenic medications often are not prescribed effective contraception. Efforts to improve this important quality indicator are limited by inadequate and poorly…
Abstract Number: 1061 • ACR Convergence 2024
Utilization of Electronic Health Record System to Improve Glucocorticoid Induced Osteoporosis Screening and Treatment
Anupama Shahane¹, Marissa Blum², Andrew Kanoff³, Kristel Frey⁴, Sean Looby⁵ and Nora Sandorfi¹, ¹University of Pennsylvania, Philadelphia, PA, ²Temple University Health System, Philadelphia PA, Philadelphia, ³University of Pennsylvania, Philadelphia, PA, Philadelphia, PA, ⁴University of Pennsylvania, Philadelphia PA, Philadelphia, PA, ⁵University of Pennsylvania, Philadelphia PA, Philadelphia
Background/Purpose: Osteoporosis is the most common bone disease leading to fragility fractures associated with significant morbidity and increased mortality (1). Glucocorticoids (GC) are widely used…

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