Abstracts tagged "Qualitative Research"

Abstract Number: 0273 • ACR Convergence 2024
Barriers and Facilitators for Outpatient Follow-Up After an Acute Gout Flare: A Qualitative Research Study
Elizabeth Lopez¹, Lesley Jackson², Kenneth Saag³ and Maria I. ("Maio") Danila⁴, ¹University of Alabama at Birmingham, Montgomery, AL, ²University of Alabama at Birmingham, Birmingham, AL, ³The University of Alabama at Birmingham, Birmingham, AL, ⁴University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL
Background/Purpose: Many people with gout utilize the emergency department (ED) for acute gout care, but many do not receive subsequent adequate outpatient care for long-term…
Abstract Number: 1933 • ACR Convergence 2024
Telemedicine for Under-resourced Patients with Systemic Lupus Erythematosus: A Qualitative Study Exploring the Views and Experiences of Patients and Rheumatology Health Care Professionals
Sebastian Bruera¹, Savannah Bowman¹, Keshia Ferguson¹, MaryJo Maliekel¹, Maria A. Lopez-Olivo², Maria Suarez-Almazor³, Maria I. ("Maio") Danila⁴, Jinoos Yazdany⁵ and Sandeep Agarwal¹, ¹Baylor College of Medicine, Houston, TX, ²The University of Texas, MD Anderson Cancer Center, Houston, TX, ³MD Anderson Cancer Center, Houston, TX, ⁴University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL, ⁵UCSF, San Francisco, CA
Background/Purpose: There is a paucity of knowledge regarding the benefits and limitations of telemedicine in patients with SLE, particularly in those with under-resourced backgrounds. We…
Abstract Number: 0370 • ACR Convergence 2024
Adolescents’ and Providers’ Perceptions of the Transition from Pediatric to Adult Rheumatology
Julia Witowska, Brett Curtis, Melanie Donahue, Sara Platte, Rebecca Northway and Jacqueline Madison, University of Michigan, Ann Arbor, MI
Background/Purpose: The transition from pediatric to adult rheumatology is a vulnerable period for adolescents and is associated with greater disease burden. Adolescents require an organized…
Abstract Number: 2105 • ACR Convergence 2024
The Identity, Impact, and Management of OA and OA Pain from the Perspective of People with OA: A Systematic Literature Review of Qualitative Studies
Sylvain Mathieu¹, Alice Courties², Céline Mathy³, Serge Perrot⁴, Françoise Alliot Launois⁵, Stan Moumbe⁶, Nathan Foulquier⁷, Jérémie Sellam⁸ and Rinie Geenen⁹, and GO-PAIN Working group, ¹CHU Gabriel Montpied, Clermont-Ferrand, France, ²AP-HP, Paris, France, ³University of Liège, Liège, Belgium, ⁴Paris Dauphine University, Paris, France, ⁵AFLAR, Paris, France, ⁶Patient, Paris, France, ⁷LBAI. UMR 1227, University of Brest, Brest, France, ⁸Saint-Antoine Hospital - AP-HP, Paris, Ile-de-France, France, ⁹Department of Psychology, Utrecht, Netherlands
Background/Purpose: Knowledge of beliefs, needs, and priorities of people with osteoarthritis (OA) is of utmost important to be able to offer person-centered care. Concepts that…
Abstract Number: 0371 • ACR Convergence 2024
This Is Caring: Enhancing Patient Education Materials for Individuals with Morphea Through Qualitative Inquiry
Jennifer Foster¹, Robin Higashi², Priya Sarlashkar¹ and Heidi Jacobe¹, ¹The University of Texas Southwestern Medical Center, Department of Dermatology, Dallas, TX, ²2UT Southwestern Medical Center, Peter O’Donnell Jr School of Public Health, Dallas, TX
Background/Purpose: Patient education materials (PEMs) are essential for conveying disease and treatment information, empowering patients to actively participate in their care. However, PEMs for rare…
Abstract Number: 2149 • ACR Convergence 2024
Rheumatoid Arthritis: Patient’s Voice First! An Original Approach Based on Infodemiology Using Social Media Content – Results from the PRIMA Study
Jérémie Sellam¹, Luisa Attali², Sonia Trope³, Paméla Voillot⁴ and Cécile Gaujoux-Viala⁵, ¹Saint-Antoine Hospital - AP-HP, Paris, Ile-de-France, France, ²Centre de recherches en médecine, psychanalyse et société - Université Paris, Strasbourg, France, ³ANDAR, Paris, Ile-de-France, France, ⁴Kap code, Paris, France, ⁵CHU Nîmes, Nïmes, Languedoc-Roussillon, France

Background/Purpose: Social media and online forums are popular for understanding patients' feelings and concerns, which are hard to assess with traditional methods. Infodemiology collects and…
Abstract Number: 0454 • ACR Convergence 2024
Evaluating the Rate of Cervical Cancer Screening and HPV Vaccination in Women with Systemic Lupus Erythematosus Within a Large Urban Healthcare System
Alana Haussmann¹, Eunice Adu Dapaah², John FitzGerald² and Maureen McMahon³, ¹University of California Los Angeles, Santa Monica, CA, ²UCLA, Los Angeles, CA, ³UCLA David Geffen School of Medicine, Los Angeles, CA
Background/Purpose: Prior research has outlined an increased incidence of cervical dysplasia and cervical cancer in women diagnosed with systemic lupus erythematosus (SLE). These individuals face…
Abstract Number: 2150 • ACR Convergence 2024
Understanding Unmet Needs and Quality of Life Impact of Giant Cell Arteritis (GCA) and Polymyalgia Rheumatica (PMR) Using Social Media: A Patient and Caregiver Perspective
Pallavi Arun¹, Nikita Parashar¹, Sakshi Sharma¹, Kanika Arora¹, Vandana Padmanabhan¹ and Alvaro Arjona², ¹Novartis Healthcare Private Limited, Hyderabad, Telangana, India, ²Novartis Farmaceutica, S.A., Madrid, Madrid, Spain
Background/Purpose: Analyzing social media conversations of patients (pts) and caregivers can be useful to understand the real-world perspectives thereby improving quality of healthcare.1 GCA and…
Abstract Number: 0676 • ACR Convergence 2024
Understanding the Patient Burden of Lupus: Insights from Multi-Faceted Ethnography Research
Jeanette Andersen¹, Ina Meyer², Neeta Camadoo³, Tracy Machado⁴, Shreya Saraf⁴ and Mohamed Akrout², ¹Lupus Europe, Brussels, Belgium, ²F. Hoffmann-La Roche Ltd, Basel, ³Roche Products Ltd, Welwyn Garden City, ⁴Elma Research International, London
Background/Purpose: Systemic lupus erythematosus (SLE or lupus) is a chronic autoimmune disease that affects multiple organs, including the skin, joints, lungs, heart, kidneys and brain.…
Abstract Number: 2154 • ACR Convergence 2024
“I Have Taken Five Different Kinds of Tablets and Injections, and I Still Have Foot Pain”: An International Outcome Measures in Rheumatology (OMERACT) Qualitative Study Exploring Patient Perspectives of Foot and Ankle Disorders
Lara Chapman¹, Caroline Flurey², Anthony C. Redmond¹, Pam Richards³, Eiman Soliman⁴, Abdelhfeez Moshrif⁵, Lucy Malone⁶, Christopher Joyce⁷, Marian Hannan⁸, Philip S. Helliwell⁹, Catherine Hofstetter¹⁰, Hylton Menz¹¹, Beverley Shea¹² and Heidi Siddle¹, ¹University of Leeds, Leeds, United Kingdom, ²University of the West of England, Bristol, Bristol, United Kingdom, ³OMERACT, Bristol, United Kingdom, ⁴Alexandria Faculty of Medicine, Alexandria, Egypt, ⁵Al-azhar university, Assiut, Egypt, ⁶Harrogate and District NHS Foundation Trust, Harrogate, United Kingdom, ⁷Homerton Healthcare NHS Foundation Trust, London, United Kingdom, ⁸Marcus Institute for Aging Research, Hebrew SeniorLife, Milton, MA, ⁹Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Leeds, United Kingdom, ¹⁰OMERACT, Toronto, Canada, ¹¹La Trobe University, Fairfield, Victoria, Australia, ¹²Ottawa Hospital Research Institute, Ottawa, ON, Canada
Background/Purpose: The foot and ankle are frequently affected in rheumatic and musculoskeletal diseases (RMDs), yet there is a lack of high-quality evidence to determine the…
Abstract Number: 1079 • ACR Convergence 2024
Early Recognition of Myositis: Time Correlation Between Transaminases and Inflammatory Myopathy in a Community-Based Rheumatology Practice
Anjali nidhaan, Shannon Iriza, Abbie West, Michael martin and Gauri Pethe, prisma health, columbia, SC
Background/Purpose: Recognizing muscle breakdown as a potential cause of elevated transaminases is crucial in the primary care setting to facilitate early referral to rheumatology for…
Abstract Number: 2160 • ACR Convergence 2024
Development of a Lupus Chatbot
Leila Khalili¹, Pooja Desai², Maya Souvignier¹, Sophie Askanase², Lena Mamykina² and Anca Askanase¹, ¹Columbia University Medical Center, New York, NY, ²CUIMC, New York, NY
Background/Purpose: Artificial Intelligence (AI) is poised to take the world of medicine by storm. The next decade will likely bring major changes in technology use…
Abstract Number: 1032 • ACR Convergence 2023
“Not of Your Ethnicity”: A Qualitative Study Exploring Diverse Patient Experiences in Axial Spondyloarthritis (axSpA)
Bryanna Mantilla¹, K Wysham², Jean liew³ and Grant Hughes¹, ¹University of Washington, Seattle, WA, ²VA Puget Sound/University of Washington, Seattle, WA, ³Boston University, Boston, MA
Background/Purpose: Axial spondyloarthritis (axSpA) can result in significant morbidity. Existing studies suggest functional impairment and inflammation may be worse in Black and Latine patients. However,…
Abstract Number: 2021 • ACR Convergence 2023
Beliefs, Attitudes, and Preferences of Patients with Rheumatoid Arthritis (RA) and Concomitant Cancer with Respect to RA Therapy
Juan Ruiz¹, Sheneze Madramootoo², Maria A. Lopez-Olivo¹, Namrata Singh³ and Maria Suarez-Almazor⁴, ¹The University of Texas, MD Anderson Cancer Center, Houston, TX, ²The University of Texas MD Anderson Cancer Center, Houston, TX, ³University of Washington, Bellevue, WA, ⁴MD Anderson Cancer Center, Houston, TX
Background/Purpose: Treatment of rheumatoid arthritis (RA) in patients with cancer could potentially result in poor cancer outcomes because of immunosuppression. Adequate data for shared decision-making…
Abstract Number: 1208 • ACR Convergence 2023
Investigating the Experiences of Patients Living with Antiphospholipid Antibodies: A Qualitative Study
Francesca Cardwell¹, Alexandra Kobza², Susan Elliott¹, paul Gibson², Nancy Soliman², leslie skeith², Ann Clarke³ and Megan R.W. Barber², ¹University of Waterloo, Waterloo, ON, Canada, ²University of Calgary, Calgary, AB, Canada, ³University of Calgary, Division of Rheumatology, Cumming School of Medicine, Calgary, AB, Canada
Background/Purpose: Substantial morbidity and mortality affect those with aPLs and APS, yet the patient experience remains poorly understood. This research investigated patient experiences of aPL/APS…

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