ACR Meeting Abstracts

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Abstracts tagged "Qualitative Research"

  • Abstract Number: 0195 • ACR Convergence 2024

    Screening for Social Determinants of Health in Patients with SLE: A Point-of-Care Feasibility Study

    S. Sam Lim1, Vijay R. Nadipelli2, Michelle Bruno3, Daphne Lew4, Bernard Rubin5, Charmayne M. Dunlop-Thomas6, Kristi R. Mitchell3, Lydia Demetriou7, Jeffrey Berko3 and Alfred Kim8, 1Emory University, Atlanta, GA, 2GSK, Medical Evidence Generation, Philadelphia, PA, 3Atlas Clarity, LLC, San Francisco, CA, 4Center for Biostatistics and Data Science, Institute for Informatics, Data Science, and Biostatistics, Washington University School of Medicine and Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO, 5Progentec Diagnostics, Inc., Oklahoma City, OK, 6Emory University School of Medicine, Department of Medicine, Division of Rheumatology, Atlanta, GA, 7GSK, Global Clinical Operations, Brentford, United Kingdom, 8Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO

    Background/Purpose: Currently, social determinants of health (SDoH; conditions in which people live) are not routinely screened for in US outpatient rheumatology clinics.1 SLE disproportionally affects…
  • Abstract Number: 1318 • ACR Convergence 2024

    Patient Anxiety, Fear, and Kinesiophobia: Challenges Shared by UK Physiotherapists in Managing Polymyalgia Rheumatica – Findings from a Qualitative Study

    Anne O'Brien1, Sara Muller1, Jennifer Liddle2, Martin Thomas1 and Christian D Mallen3, 1Keele University, Keele, Staffordshire, England, United Kingdom, 2Newcastle University, Newcastle upon Tyne, United Kingdom, 3Keele University, Keele, Staffordshire, United Kingdom

    Background/Purpose: Polymyalgia Rheumatica (PMR) is the commonest rheumatic condition affecting older people. 35% of newly diagnosed patients report anxiety, (Muller et al., 2016) which, with…
  • Abstract Number: 0210 • ACR Convergence 2024

    Rheumatology, Heal Thyself: The Experience of Underrepresented Physicians in Rheumatology

    Rob Valdovinos1, Ashley Martin2, Jay Mehta2 and Irene Blanco3, 1UCSF Benioff Children's Hospital, San Francisco, CA, 2Children's Hospital of Philadelphia, Philadelphia, PA, 3Northwestern University, Oak Park, IL

    Background/Purpose: Providing racially and ethnically concordant care in minoritized populations by providers identifying as underrepresented in medicine (URiM) has been reported to be associated with…
  • Abstract Number: 1721 • ACR Convergence 2024

    Recombinant Zoster Vaccine Uptake in US Adults with Rheumatic Disease: A Mixed Methods Analysis

    Justin Gatwood1, Catherine McGuiness2, Marie Yasuda2, Chi-Chang Chen2, Vasudha Gupta3 and Nikita Stempniewicz1, 1GSK, Philadelphia, PA, 2IQVIA, Wayne, PA, 3IQVIA, Durham, NC

    Background/Purpose: Compared to the immunocompetent US population ≥50 years, adults with rheumatic diseases are at increased risk for herpes zoster (HZ). To address this risk,…
  • Abstract Number: 0273 • ACR Convergence 2024

    Barriers and Facilitators for Outpatient Follow-Up After an Acute Gout Flare: A Qualitative Research Study

    Elizabeth Lopez1, Lesley Jackson2, Kenneth Saag3 and Maria I. ("Maio") Danila4, 1University of Alabama at Birmingham, Montgomery, AL, 2University of Alabama at Birmingham, Birmingham, AL, 3The University of Alabama at Birmingham, Birmingham, AL, 4University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL

    Background/Purpose: Many people with gout utilize the emergency department (ED) for acute gout care, but many do not receive subsequent adequate outpatient care for long-term…
  • Abstract Number: 1933 • ACR Convergence 2024

    Telemedicine for Under-resourced Patients with Systemic Lupus Erythematosus: A Qualitative Study Exploring the Views and Experiences of Patients and Rheumatology Health Care Professionals

    Sebastian Bruera1, Savannah Bowman1, Keshia Ferguson1, MaryJo Maliekel1, Maria A. Lopez-Olivo2, Maria Suarez-Almazor3, Maria I. ("Maio") Danila4, Jinoos Yazdany5 and Sandeep Agarwal1, 1Baylor College of Medicine, Houston, TX, 2The University of Texas, MD Anderson Cancer Center, Houston, TX, 3MD Anderson Cancer Center, Houston, TX, 4University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL, 5UCSF, San Francisco, CA

    Background/Purpose: There is a paucity of knowledge regarding the benefits and limitations of telemedicine in patients with SLE, particularly in those with under-resourced backgrounds. We…
  • Abstract Number: 0370 • ACR Convergence 2024

    Adolescents’ and Providers’ Perceptions of the Transition from Pediatric to Adult Rheumatology

    Julia Witowska, Brett Curtis, Melanie Donahue, Sara Platte, Rebecca Northway and Jacqueline Madison, University of Michigan, Ann Arbor, MI

    Background/Purpose: The transition from pediatric to adult rheumatology is a vulnerable period for adolescents and is associated with greater disease burden. Adolescents require an organized…
  • Abstract Number: 2105 • ACR Convergence 2024

    The Identity, Impact, and Management of OA and OA Pain from the Perspective of People with OA: A Systematic Literature Review of Qualitative Studies

    Sylvain Mathieu1, Alice Courties2, Céline Mathy3, Serge Perrot4, Françoise Alliot Launois5, Stan Moumbe6, Nathan Foulquier7, Jérémie Sellam8 and Rinie Geenen9, and GO-PAIN Working group, 1CHU Gabriel Montpied, Clermont-Ferrand, France, 2AP-HP, Paris, France, 3University of Liège, Liège, Belgium, 4Paris Dauphine University, Paris, France, 5AFLAR, Paris, France, 6Patient, Paris, France, 7LBAI. UMR 1227, University of Brest, Brest, France, 8Saint-Antoine Hospital - AP-HP, Paris, Ile-de-France, France, 9Department of Psychology, Utrecht, Netherlands

    Background/Purpose: Knowledge of beliefs, needs, and priorities of people with osteoarthritis (OA) is of utmost important to be able to offer person-centered care. Concepts that…
  • Abstract Number: 0371 • ACR Convergence 2024

    This Is Caring: Enhancing Patient Education Materials for Individuals with Morphea Through Qualitative Inquiry

    Jennifer Foster1, Robin Higashi2, Priya Sarlashkar1 and Heidi Jacobe1, 1The University of Texas Southwestern Medical Center, Department of Dermatology, Dallas, TX, 22UT Southwestern Medical Center, Peter O’Donnell Jr School of Public Health, Dallas, TX

    Background/Purpose: Patient education materials (PEMs) are essential for conveying disease and treatment information, empowering patients to actively participate in their care. However, PEMs for rare…
  • Abstract Number: 2149 • ACR Convergence 2024

    Rheumatoid Arthritis: Patient’s Voice First! An Original Approach Based on Infodemiology Using Social Media Content – Results from the PRIMA Study

    Jérémie Sellam1, Luisa Attali2, Sonia Trope3, Paméla Voillot4 and Cécile Gaujoux-Viala5, 1Saint-Antoine Hospital - AP-HP, Paris, Ile-de-France, France, 2Centre de recherches en médecine, psychanalyse et société - Université Paris, Strasbourg, France, 3ANDAR, Paris, Ile-de-France, France, 4Kap code, Paris, France, 5CHU Nîmes, Nïmes, Languedoc-Roussillon, France

    Background/Purpose: Social media and online forums are popular for understanding patients' feelings and concerns, which are hard to assess with traditional methods. Infodemiology collects and…
  • Abstract Number: 0454 • ACR Convergence 2024

    Evaluating the Rate of Cervical Cancer Screening and HPV Vaccination in Women with Systemic Lupus Erythematosus Within a Large Urban Healthcare System

    Alana Haussmann1, Eunice Adu Dapaah2, John FitzGerald2 and Maureen McMahon3, 1University of California Los Angeles, Santa Monica, CA, 2UCLA, Los Angeles, CA, 3UCLA David Geffen School of Medicine, Los Angeles, CA

    Background/Purpose: Prior research has outlined an increased incidence of cervical dysplasia and cervical cancer in women diagnosed with systemic lupus erythematosus (SLE). These individuals face…
  • Abstract Number: 2150 • ACR Convergence 2024

    Understanding Unmet Needs and Quality of Life Impact of Giant Cell Arteritis (GCA) and Polymyalgia Rheumatica (PMR) Using Social Media: A Patient and Caregiver Perspective

    Pallavi Arun1, Nikita Parashar1, Sakshi Sharma1, Kanika Arora1, Vandana Padmanabhan1 and Alvaro Arjona2, 1Novartis Healthcare Private Limited, Hyderabad, Telangana, India, 2Novartis Farmaceutica, S.A., Madrid, Madrid, Spain

    Background/Purpose: Analyzing social media conversations of patients (pts) and caregivers can be useful to understand the real-world perspectives thereby improving quality of healthcare.1 GCA and…
  • Abstract Number: 0676 • ACR Convergence 2024

    Understanding the Patient Burden of Lupus: Insights from Multi-Faceted Ethnography Research

    Jeanette Andersen1, Ina Meyer2, Neeta Camadoo3, Tracy Machado4, Shreya Saraf4 and Mohamed Akrout2, 1Lupus Europe, Brussels, Belgium, 2F. Hoffmann-La Roche Ltd, Basel, 3Roche Products Ltd, Welwyn Garden City, 4Elma Research International, London

    Background/Purpose: Systemic lupus erythematosus (SLE or lupus) is a chronic autoimmune disease that affects multiple organs, including the skin, joints, lungs, heart, kidneys and brain.…
  • Abstract Number: 2154 • ACR Convergence 2024

    “I Have Taken Five Different Kinds of Tablets and Injections, and I Still Have Foot Pain”: An International Outcome Measures in Rheumatology (OMERACT) Qualitative Study Exploring Patient Perspectives of Foot and Ankle Disorders

    Lara Chapman1, Caroline Flurey2, Anthony C. Redmond1, Pam Richards3, Eiman Soliman4, Abdelhfeez Moshrif5, Lucy Malone6, Christopher Joyce7, Marian Hannan8, Philip S. Helliwell9, Catherine Hofstetter10, Hylton Menz11, Beverley Shea12 and Heidi Siddle1, 1University of Leeds, Leeds, United Kingdom, 2University of the West of England, Bristol, Bristol, United Kingdom, 3OMERACT, Bristol, United Kingdom, 4Alexandria Faculty of Medicine, Alexandria, Egypt, 5Al-azhar university, Assiut, Egypt, 6Harrogate and District NHS Foundation Trust, Harrogate, United Kingdom, 7Homerton Healthcare NHS Foundation Trust, London, United Kingdom, 8Marcus Institute for Aging Research, Hebrew SeniorLife, Milton, MA, 9Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Leeds, United Kingdom, 10OMERACT, Toronto, Canada, 11La Trobe University, Fairfield, Victoria, Australia, 12Ottawa Hospital Research Institute, Ottawa, ON, Canada

    Background/Purpose: The foot and ankle are frequently affected in rheumatic and musculoskeletal diseases (RMDs), yet there is a lack of high-quality evidence to determine the…
  • Abstract Number: 1079 • ACR Convergence 2024

    Early Recognition of Myositis: Time Correlation Between Transaminases and Inflammatory Myopathy in a Community-Based Rheumatology Practice

    Anjali nidhaan, Shannon Iriza, Abbie West, Michael martin and Gauri Pethe, prisma health, columbia, SC

    Background/Purpose: Recognizing muscle breakdown as a potential cause of elevated transaminases is crucial in the primary care setting to facilitate early referral to rheumatology for…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

ACR Abstract Embargo Policy

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. Academic institutions, private organizations and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part a scientific presentation or presentation of additional new information that will be available at the time of the meeting) is under embargo until Saturday, November 11, 2023.

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying financial and other sponsors about this policy. If you have questions about the abstract embargo policy, please contact the public relations department at [email protected].

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