ACR Meeting Abstracts

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Abstracts tagged "Qualitative Research"

  • Abstract Number: 0371 • ACR Convergence 2024

    This Is Caring: Enhancing Patient Education Materials for Individuals with Morphea Through Qualitative Inquiry

    Jennifer Foster1, Robin Higashi2, Priya Sarlashkar1 and Heidi Jacobe1, 1The University of Texas Southwestern Medical Center, Department of Dermatology, Dallas, TX, 22UT Southwestern Medical Center, Peter O’Donnell Jr School of Public Health, Dallas, TX

    Background/Purpose: Patient education materials (PEMs) are essential for conveying disease and treatment information, empowering patients to actively participate in their care. However, PEMs for rare…
  • Abstract Number: 2149 • ACR Convergence 2024

    Rheumatoid Arthritis: Patient’s Voice First! An Original Approach Based on Infodemiology Using Social Media Content – Results from the PRIMA Study

    Jérémie Sellam1, Luisa Attali2, Sonia Trope3, Paméla Voillot4 and Cécile Gaujoux-Viala5, 1Saint-Antoine Hospital - AP-HP, Paris, Ile-de-France, France, 2Centre de recherches en médecine, psychanalyse et société - Université Paris, Strasbourg, France, 3ANDAR, Paris, Ile-de-France, France, 4Kap code, Paris, France, 5CHU Nîmes, Nïmes, Languedoc-Roussillon, France

    Background/Purpose: Social media and online forums are popular for understanding patients' feelings and concerns, which are hard to assess with traditional methods. Infodemiology collects and…
  • Abstract Number: 0454 • ACR Convergence 2024

    Evaluating the Rate of Cervical Cancer Screening and HPV Vaccination in Women with Systemic Lupus Erythematosus Within a Large Urban Healthcare System

    Alana Haussmann1, Eunice Adu Dapaah2, John FitzGerald2 and Maureen McMahon3, 1University of California Los Angeles, Santa Monica, CA, 2UCLA, Los Angeles, CA, 3UCLA David Geffen School of Medicine, Los Angeles, CA

    Background/Purpose: Prior research has outlined an increased incidence of cervical dysplasia and cervical cancer in women diagnosed with systemic lupus erythematosus (SLE). These individuals face…
  • Abstract Number: 2150 • ACR Convergence 2024

    Understanding Unmet Needs and Quality of Life Impact of Giant Cell Arteritis (GCA) and Polymyalgia Rheumatica (PMR) Using Social Media: A Patient and Caregiver Perspective

    Pallavi Arun1, Nikita Parashar1, Sakshi Sharma1, Kanika Arora1, Vandana Padmanabhan1 and Alvaro Arjona2, 1Novartis Healthcare Private Limited, Hyderabad, Telangana, India, 2Novartis Farmaceutica, S.A., Madrid, Madrid, Spain

    Background/Purpose: Analyzing social media conversations of patients (pts) and caregivers can be useful to understand the real-world perspectives thereby improving quality of healthcare.1 GCA and…
  • Abstract Number: 0676 • ACR Convergence 2024

    Understanding the Patient Burden of Lupus: Insights from Multi-Faceted Ethnography Research

    Jeanette Andersen1, Ina Meyer2, Neeta Camadoo3, Tracy Machado4, Shreya Saraf4 and Mohamed Akrout2, 1Lupus Europe, Brussels, Belgium, 2F. Hoffmann-La Roche Ltd, Basel, 3Roche Products Ltd, Welwyn Garden City, 4Elma Research International, London

    Background/Purpose: Systemic lupus erythematosus (SLE or lupus) is a chronic autoimmune disease that affects multiple organs, including the skin, joints, lungs, heart, kidneys and brain.…
  • Abstract Number: 2154 • ACR Convergence 2024

    “I Have Taken Five Different Kinds of Tablets and Injections, and I Still Have Foot Pain”: An International Outcome Measures in Rheumatology (OMERACT) Qualitative Study Exploring Patient Perspectives of Foot and Ankle Disorders

    Lara Chapman1, Caroline Flurey2, Anthony C. Redmond1, Pam Richards3, Eiman Soliman4, Abdelhfeez Moshrif5, Lucy Malone6, Christopher Joyce7, Marian Hannan8, Philip S. Helliwell9, Catherine Hofstetter10, Hylton Menz11, Beverley Shea12 and Heidi Siddle1, 1University of Leeds, Leeds, United Kingdom, 2University of the West of England, Bristol, Bristol, United Kingdom, 3OMERACT, Bristol, United Kingdom, 4Alexandria Faculty of Medicine, Alexandria, Egypt, 5Al-azhar university, Assiut, Egypt, 6Harrogate and District NHS Foundation Trust, Harrogate, United Kingdom, 7Homerton Healthcare NHS Foundation Trust, London, United Kingdom, 8Marcus Institute for Aging Research, Hebrew SeniorLife, Milton, MA, 9Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Leeds, United Kingdom, 10OMERACT, Toronto, Canada, 11La Trobe University, Fairfield, Victoria, Australia, 12Ottawa Hospital Research Institute, Ottawa, ON, Canada

    Background/Purpose: The foot and ankle are frequently affected in rheumatic and musculoskeletal diseases (RMDs), yet there is a lack of high-quality evidence to determine the…
  • Abstract Number: 1079 • ACR Convergence 2024

    Early Recognition of Myositis: Time Correlation Between Transaminases and Inflammatory Myopathy in a Community-Based Rheumatology Practice

    Anjali nidhaan, Shannon Iriza, Abbie West, Michael martin and Gauri Pethe, prisma health, columbia, SC

    Background/Purpose: Recognizing muscle breakdown as a potential cause of elevated transaminases is crucial in the primary care setting to facilitate early referral to rheumatology for…
  • Abstract Number: 2160 • ACR Convergence 2024

    Development of a Lupus Chatbot

    Leila Khalili1, Pooja Desai2, Maya Souvignier1, Sophie Askanase2, Lena Mamykina2 and Anca Askanase1, 1Columbia University Medical Center, New York, NY, 2CUIMC, New York, NY

    Background/Purpose: Artificial Intelligence (AI) is poised to take the world of medicine by storm. The next decade will likely bring major changes in technology use…
  • Abstract Number: 1107 • ACR Convergence 2024

    Investigating Pyrexia of Unknown Origin: A Rheumatologist’s Perspective

    Carine Moezinia1, Jan Nouza2, Beatrice Hornstein-Lasry2, Luai Kawar2, Asim Khan2 and Jessica Manson2, 1University College London Hospital, London, England, United Kingdom, 2University College London Hospital, London, United Kingdom

    Background/Purpose: Pyrexia of Unknown Origin (PUO) is defined as a fever above 38.3°C recorded on several occasions, that evades diagnosis for at least 3 weeks.…
  • Abstract Number: 2166 • ACR Convergence 2024

    Nominal Group Technique to Identify What Adolescents with JIA and Parents of Children with JIA Consider When Making Treatment Change Decisions

    Melissa Mannion1, Livie Timmerman2, Emily Smitherman1, Jeffrey Curtis3 and Ronan O'Beirne1, 1University of Alabama at Birmingham, Birmingham, AL, 2University of Alabama at Birmingham, Gardendale, AL, 3The University of Alabama at Birmingham, Birmingham, AL

    Background/Purpose: Juvenile idiopathic arthritis (JIA) is a life-long disease that often requires escalation of therapy to achieve disease control. The goal of this project was…
  • Abstract Number: 1179 • ACR Convergence 2024

    Development of an Optimal Physiotherapy Intervention to Reduce Stiffness Following Knee Joint Replacement

    Michelle Hall1, Fiona Moffatt1, Ben Smith2, Melanie Narayanasamy3, Joanne Stocks1, Katie Sheehan4 and Catherine Sackley3, 1University of Nottingham, Nottingham, United Kingdom, 2University Hospitals of Derby and Burton NHS Foundation Trust, Derby, England, United Kingdom, 3University of Nottingham, Nottingham, England, United Kingdom, 4Queen Mary University of London, London, England, United Kingdom

    Background/Purpose: Arthrofibrosis is a complication following knee joint replacement due to excessive scar tissue formation. It leads to knee stiffness,  restricted range of movement (ROM)…
  • Abstract Number: 2171 • ACR Convergence 2024

    A Qualitative Exploration of Oral Healthcare Needs Amongst Canadian Patients with Rheumatic Diseases and Their Providers

    Chrysi Stavropoulou1, Corrie Billedeau2, Jennifer Protudjer1 and Carol Hitchon1, 1University of Manitoba, Winnipeg, MB, Canada, 2NA, Winnipeg, MB, Canada

    Background/Purpose: Patients with autoimmune rheumatic diseases (RDs) have a high prevalence of oral manifestations and/or oral side effects from immunomodulatory medications. These factors combined with…
  • Abstract Number: 1234 • ACR Convergence 2024

    Patient and Physician Preferences for Pain Relief Treatment for Moderate-to-Severe Pain Associated with Knee Osteoarthritis: A Qualitative Exploration

    Nadine Henderson1, Claud Theakston1, Sulayman Chowhury1, David Mott1, Chris Skedgel1, rita Freitas2, Stefan Ivanicius3, Gudula Petersen3, Samantha Schofield3, Angie Botto-van Bemden4, Mickaël Hiligsmann5, Ricardo larrainzar6, Deborah Marshall7, Tommi Tervonen8 and David Walsh9, 1Office of Health Economics, London, United Kingdom, 2Grünenthal GmbH, Aachen, Germany, 3Grunenthal GmbH, Aachen, Germany, 4Musculosketal Research International, Miami, FL, 5Maastricht University, Maastricht, Netherlands, 6Hospital Universitario Infanta Leonor, Madrid, Spain, 7University of Calgary, Calgary, AB, Canada, 8Kielo Research, Zug, Switzerland, 9University of Nottingham, Nottingham, United Kingdom

    Background/Purpose: Knee osteoarthritis (KOA) is a leading global cause of disability and chronic pain (Cross et al., 2014). It is well established that KOA affects…
  • Abstract Number: 1240 • ACR Convergence 2024

    Living with Antiphospholipid Antibodies: A Photovoice Exploration

    Francesca Cardwell1, Susan J. Elliott2, Paul S. Gibson3, Nancy Soliman4, Leslie Skeith4, Ann E. Clarke5 and Megan Barber5, 1University of Waterloo, Burlington, ON, Canada, 2University of Waterloo, Waterloo, ON, Canada, 3University of Calgary, Calgary, AB, Canada, 4University of Calgary, Calgary, ON, Canada, 5Division of Rheumatology, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada

    Background/Purpose: The diverse manifestations of antiphospholipid syndrome (APS) and antiphospholipid antibodies (aPLs) exert substantial but poorly understood impacts on the lives of those affected. This…
  • Abstract Number: 1242 • ACR Convergence 2024

    Qualitative Patient Interview Study in Patients with Systemic Lupus Erythematosus to Assess Patient Perception of Fatigue and Skin-Related Symptoms

    Joseph F. Merola1, Victoria Werth2, Jiyoon C. Choi3, Brandon Becker3, Teresa Edwards4, Coburn Hobar5, Samantha Pomponi5 and Vibeke Strand6, 1UT Southwestern Medical Center, Dallas, TX, 2Hospital of the University of Pennsylvania, Philadelphia, PA, 3Bristol Myers Squibb, Princeton, 4RTI International, Research Triangle Park, NC, 5Bristol Myers Squibb, Princeton, NJ, 6Division of Immunology/Rheumatology, Stanford University, Palo Alto, CA

    Background/Purpose: Systemic lupus erythematosus (SLE) is a chronic autoimmune disorder that disproportionately impacts women of childbearing age. Although the incidence varies widely based on ethnic…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

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