Abstracts tagged "Qualitative Research"

Abstract Number: 2603 • ACR Convergence 2025
Evaluating the Feasibility, Acceptability, and Behavioral Impact of Brief Action Planning (BAP) Coaching for Physical Activity in Adults with Chronic Knee Symptoms: A Qualitative Study
Moath Alshahrani¹, Kristin Haglund², Miranda McIlheran², Rowland Chang³, Pamela Semanik⁴, Sheikh Iqbal Ahamed² and Daniel Pinto⁵, ¹Marquette University/ King Khalid University, Milwaukee, WI, ²Marquette University, Milwaukee, WI, ³Northwestern University Feinberg School of Medicine, Chicago, IL, ⁴Rush uUniversity, Chicago, IL, ⁵Marquette University, Wauwatosa, WI
Background/Purpose: Physical activity (PA) improves chronic knee symptoms (CKS) by decreasing pain and improving function, yet many interventions to increase PA are resource-intensive or poorly…
Abstract Number: 1050 • ACR Convergence 2025
Bridging the Gap: A Mixed-Methods Study to Enhance Integration of HCQ-SAFE, A Shared Decision-Making Tool for Hydroxychloroquine Use, in Routine Lupus Care
Isabella Hartel¹, Jay Patel¹, David Gazeley², Drake Johnson¹, Justin Levinson¹, Carmen Campbell¹, Britney Youngchild³, Shelby Gomez³, Amannda Weber⁴, Jessica Michaud⁵, Laura Dickmann⁶, Sancia Ferguson⁷, Betty Chewning⁸, Christie Bartels⁹ and Shivani Garg¹⁰, ¹University of Wisconsin, School of Medicine and Public Health, Madison, Madison, WI, ²Medical College of Wisconsin, Milwaukee, WI, ³University of Wisconsin, School of Pharmacy, Madison, WI, ⁴University of Wisconsin (UW), UW Health, Madison, WI, ⁵Medical College of Wisconsin, Milwaukee, Madison, WI, ⁶Medical College of Wisconsin, Milwaukee, Milwaukee, ⁷University of Wisconsin School of Medicine and Public Health, Madison, Madison, WI, ⁸University of Wisconsin, School of Pharmacy, Madison, ⁹University of Wisconsin School of Medicine and Public Health, Madison, WI, ¹⁰University of Madison, School of Medicine and Public Health, Madison, WI
Background/Purpose: Hydroxychloroquine (HCQ) is a key therapy for lupus (or SLE). Yet, challenged to weigh benefits vs. harms, ~80% of patients self-discontinue HCQ. Shared decision-making…
Abstract Number: 2556 • ACR Convergence 2025
Information Needs of Patients with Vasculitis
Jodi Hall, Vasculitis Foundation, Shawnee, KS
Background/Purpose: The aim of this research was to discover and characterize the information needs of patients who have been diagnosed with vasculitis. Vasculitis is a term…
Abstract Number: 1506 • ACR Convergence 2025
Perspectives on Clinical Trial Participation for Novel Advanced Therapies: A Focus Group Study in Systemic Lupus Erythematosus (SLE)
Olivia A. Stein¹, Jennifer Lee¹, Evelyne Vinet², Arielle Mendel³, Christian Pineau⁴, Leanne Mielczarek⁵ and Sasha Bernatsky², ¹Research Institute of the McGill University Health Centre, Montreal, Canada, ²Research Institute of the McGill University Health Centre, Montreal, QC, Canada, ³McGill University Health Centre, Montreal, Canada, ⁴McGill University, Montréal, QC, Canada, ⁵Lupus Canada, Newmarket, Canada
Background/Purpose: Our objective is to identify barriers and facilitators perceived by people with systemic lupus erythematosus (SLE) regarding participation in clinical trials for novel/advanced agents,…
Abstract Number: 2409 • ACR Convergence 2025
Cutaneous Lupus Activity Investigator’s Global Assessment―Revised (CLA-IGA-R) Content Validity: Cutaneous Lupus Erythematosus (CLE) Patient Qualitative Study
Joseph F Merola¹, Weihong Yang², Qianyun Li², Helen Doll³, Jason Randall³, Catherine Barbey⁴ and Feng Zeng², ¹Department of Dermatology and Department of Medicine, UT Southwestern Medical Center, Dallas, TX, ²Biogen, Cambridge, MA, ³Clinical Outcomes Solutions, Folkestone, Kent, United Kingdom, ⁴Biogen, Baar, Switzerland
Background/Purpose: The Cutaneous Lupus Activity Investigator’s Global Assessment-Revised (CLA-IGA-R) is an emerging clinician-reported outcome measure for severity of Cutaneous Lupus Erythematosus (CLE) disease activity, developed…
Abstract Number: 0794 • ACR Convergence 2025
Using Artificial Intelligence to Analyze Multilingual Qualitative Data in Lupus Pregnancy Research: A Proof of Concept with Large Language Models
Romina Boers¹, Grace Terry² and Bella Mehta³, ¹Weil Cornell Medicine, New York, ²Weil Cornell Medicine, Ne wYork, ³Hospital for Special Surgery, Weill Cornell Medicine, Jersey City, NJ
Background/Purpose: Women with systemic lupus erythematosus (SLE), particularly those of childbearing age, face heightened risks during pregnancy, including disease flares, adverse maternal-fetal outcomes, and emotional…
Abstract Number: 2204 • ACR Convergence 2025
A Novel Framework for Teratogenicity Counseling for Adolescents and Young Adults (AYAs) with Rheumatic Disease on Teratogenic Medications
Brittany Huynh¹, Elizabeth Pfeiffer² and Stacey Tarvin³, ¹Indiana University School of Medicine, Fishers, IN, ²Rhode Island College, Providence, RI, ³Riley Hospital for Children at Indiana University, Indianapolis, IN
Background/Purpose: Prior studies demonstrate low levels of knowledge and reported counseling regarding teratogenicity among AYAs with rheumatic disease. The aim of this study was to…
Abstract Number: 0520 • ACR Convergence 2025
Implementation of Salivary Gland Ultrasound by General Radiology can Improve Detection of Glandular Inflammation in Patients with Sicca
Stephanie Lee¹, Chadwick Johr², Nora Sandorfi², Ali Dhanaliwala² and Dana DiRenzo², ¹University of Pennsylvania & Children's Hospital of Philadelphia, Philadelphia, PA, ²University of Pennsylvania, Philadelphia, PA
Background/Purpose: Salivary Gland Ultrasound (SGUS) can be useful in the evaluation and management of Sjögren’s Disease (SjD) but its use has been limited to trained…
Abstract Number: 2198 • ACR Convergence 2025
Sociocultural Influences on Pregnancy Planning for Individuals Diagnosed with SLE in an Urban Hispanic Population: A Qualitative Study with Considerations for a Holistic Approach
Andrew Ramirez¹, Alexa Montes de Oca¹, Martha Delgado¹, Mellissa withers¹ and Leanna Wise², ¹University of Southern California, Los Angeles, ²LAGMC/Keck Medicine of USC, Los Angeles
Background/Purpose: As systemic lupus erythematosus (SLE) often affects women of child-bearing age, understanding how this population makes reproductive health decisions is critical for well-rounded healthcare.…
Abstract Number: 0393 • ACR Convergence 2025
Effects of Self-Reported Medication Barriers on Medication Adherence and Disease Activity in a Cohort of Patients with Juvenile Idiopathic Arthritis
Aditi Shaily¹, Allison R. Eckard², Paul Nietert³, Emily Vara¹, Natasha Ruth⁴ and Mileka Gilbert³, ¹Division of Rheumatology, Medical University of South Carolina, Charleston, SC, ²Departments of InternDivision of Infectious Diseases, Medical University of South Carolina, Charleston, SC, ³Medical University of South Carolina, Charleston, SC, ⁴Medical University South Carolina, Charleston, SC
Background/Purpose: Medications used to manage juvenile idiopathic arthritis (JIA) are highly effective in preventing joint damage and provide a favorable prognosis. Many patients, however, struggle…
Abstract Number: 2150 • ACR Convergence 2025
Rheum to Grow:An Approach Towards Human Centered Design through a Qualitative Analysis on the Transition from Pediatric to Adult Rheumatology
Lillian Chang¹, Rhea Sharma², Elyse Guziewicz¹, Jordan Jackson³, Katrina Romagnoli¹, Gemme Campbell¹, Saritha Korukonda¹, Priyanka Pawar¹, Jonida Cote⁴, Thomas Davis¹ and Emily Brunner¹, ¹Geisinger, Danville, PA, ²Geisinger Medical Center Internal Medicine Residency, Danville, PA, ³Geisinger Medical Center Medicine-Pediatrics Residency, Danville, PA, ⁴Geisinger Health System, Wilkes-Barre, PA
Background/Purpose: Up to half of patients who transition to adult care are lost to follow up within 2 years of transfer from pediatric to adult…
Abstract Number: 0317 • ACR Convergence 2025
“No matter how great my doctor is, he hasn’t had a knee replacement, he doesn’t understand all that pain” Program Evaluation of the Moving Well Peer Coach Intervention for Total Knee Replacement
Cara Murphy¹, Sarah Young², Vanessa Madrigal³, Noelia Hernandez⁴, Daniel Garcia⁵, Yuliana Dominguez Paez⁶, Monika Safford³, Iris Navarro-Millan⁷ and Mackenzie Brown⁸, ¹HSS, New York, NY, ²Weill Cornell Medicine, Johnson City, NY, ³Weill Cornell Medicine, New York, ⁴Weill Cornell Medicine, New York, NY, ⁵Weill Cornell, Brooklyn, NY, ⁶Albert Einstein College of Medicine, The Bronx, NY, ⁷Weill Cornell Medicine, Hospital for Special Surgery, Poughkeepsie, NY, ⁸Weill Cornell Medicine, Brooklyn, NY
Background/Purpose: Moving Well was a pre-habilitation peer coach intervention aimed at reducing levels of anxiety, depression, and pain among individuals undergoing total knee replacement (TKR)1.…
Abstract Number: 1934 • ACR Convergence 2025
Analysis of the Determinants of Vaccine Acceptance and Hesitancy in Germany: A Mixed-Methods Approach Incorporating Health Insurance Data and Qualitative Interviews with Patients and Physicians
Maria Zacharopoulou¹, thomas Grüter², Heike van de Sand³, Romy Lauer⁴, Marianne Tokic⁵, Jale Basten⁵, Robin Denz⁵, Anastasia Suslow⁶, Andreas Stallmach⁷, Anika Franz⁷, Theresa Oganowski², Ina Otte⁶, Ingo Meyer³, Horst Christian Vollmar⁶, Nina Timmesfeld⁵, Ursula Marschall⁸, Joachim Saam⁸, Kerstin Hellwig² and Uta Kiltz⁹, ¹Rheumazentrum Ruhrgebiet, Herne, Germany, ²St. Josef Hospital, Ruhr University Bochum, Germany, Bochum, Germany, ³PMV research group, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany, Cologne, Germany, ⁴Institute of General Practice and Family Medicine, Ruhr-University Bochum, Bochum, Germany, ⁵Department of Medical Informatics, Biometry, and Epidemiology, Ruhr University Bochum, Germany, Bochum, Germany, ⁶Institute of General Practice and Family Medicine (AM RUB), Medical Faculty, Ruhr University Bochum, Germany, Bochum, Germany, ⁷University Hospital Jena, Germany, Jena, Germany, ⁸BARMER Institute for Health System Research, Department Medicine and Health Services Research, Wuppertal, Germany, Wuppertal, Germany, ⁹Rheumazentrum Ruhrgebiet Herne, Ruhr-University Bochum, Herne, Germany
Background/Purpose: Adequate immunization is essential for patients with inflammatory rheumatic and musculoskeletal diseases (iRMD). Autoimmunity itself and immunotherapy increase the risk of infection independent of…
Abstract Number: 0217 • ACR Convergence 2025
Development of the American College of Rheumatology Implementation Guide for Integrating Patient Reported Systemic Lupus Erythematosus Quality Measures
Catherine Nasrallah¹, Christine Hariz², Shanthini Kasturi³, Wambui Machua⁴, Jinoos Yazdany⁵, Christie Bartels⁶, Kate Chiseri⁷, Starla Blanks⁷, Patti Katz⁸, Cherish Wilson⁹, April Jorge¹⁰, Beth Radtke¹¹, Tom Tack⁷ and Shivani Garg¹², ¹University of California San Francisco (UCSF), San Francisco, CA, ²University of California San Francisco (UCSF, San Francisco, CA, ³Tufts Medical Center, Boston, MA, ⁴Piedmont Healthcare, Atlanta, GA, ⁵UCSF, San Francisco, CA, ⁶University of Wisconsin School of Medicine and Public Health, Madison, WI, ⁷American College of Rheumatology, Atlanta, GA, ⁸UCSF, San Rafael, CA, ⁹UCSF / SFVA, San Francisco, CA, ¹⁰Massachusetts General Hospital, Boston, MA, ¹¹ACR, Atlanta, GA, ¹²University of Madison, School of Medicine and Public Health, Madison, WI
Background/Purpose: Systemic lupus erythematosus (SLE) is a complex disease that presents unique care challenges. To improve high-quality patient-centered care, the American College of Rheumatology (ACR),…
Abstract Number: 1922 • ACR Convergence 2025
Exploration of patient and clinician perspectives on rehabilitation in contemporary rheumatology care for rheumatoid arthritis: A qualitative study
Joel Thompson¹, Sharita Thomas², Jason Sharpe³, Kelli Allen⁴, Beth Jonas⁵, Patti Katz⁶ and Louise Thoma⁷, ¹University of North Carolina at Chapel Hill, Cary, NC, ²University of North Carolina at Chapel Hill, Chapel Hill, ³Flatiron Health, Durham, NC, ⁴University of North Carolina, Durham, NC, ⁵University of North Carolina at Chapel Hill, Chapel Hill, NC, ⁶UCSF, San Rafael, CA, ⁷University of North Carolina, Chapel Hill, NC
Background/Purpose: Adults with rheumatoid arthritis (RA) frequently experience functional deficits, disability, and reduced participation in meaningful activities despite improved medical management. Rehabilitation services, including physical…

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