Abstracts tagged "PROMIS"

Abstract Number: 490 • 2015 ACR/ARHP Annual Meeting
Personalizing the Treat to Target Approach in Rheumatoid Arthritis
Eric M. Ruderman¹, Jennifer Beaumont², Azra Muftic², Arthur M. Mandelin II¹, Amy Eisenstein², George J. Greene² and David Cella², ¹Medicine, Division of Rheumatology, Northwestern University Feinberg School of Medicine, Chicago, IL, ²Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL
Background/Purpose: The treat to target (T2T) approach has become part of the standard of care in RA management. Implicit in this approach is patient involvement…
Abstract Number: 1064 • 2015 ACR/ARHP Annual Meeting
Feasibility and Validity of Patient Reported Outcome Measurement Information System (PROMIS) in SLE
Shanthini Kasturi¹, Jayme C. Burket², Jessica Berman¹, Kyriakos A. Kirou¹, Alana B. Levine¹, Lisa R. Sammaritano¹ and Lisa Mandl^1,3, ¹Rheumatology, Hospital for Special Surgery, New York, NY, ²Healthcare Research Institute, Hospital for Special Surgery, New York, NY, ³Department of Rheumatology, Hospital for Special Surgery, New York, NY
Background/Purpose: Accurate measurement of patient reported outcomes (PROs) is particularly important in SLE, a heterogeneous disease in which similar symptoms can have disparate impact across…
Abstract Number: 1081 • 2015 ACR/ARHP Annual Meeting
Administration of Patient Reported Outcome Measurement Information System (PROMIS) Instruments By Computer Adaptive Testing in Patients with Systemic Vasculitis
Gunnar Tomasson¹, John T. Farrar², David Cuthbertson³, Carol McAlear⁴, Susan Asdown⁵, Don Gebhart⁶, Georgia Lanier⁷, Nataliya Milman⁸, Jacqueline Peck⁹, Joanna Robson¹⁰, Simon Carette¹¹, Gary S. Hoffman¹², Nader A. Khalidi¹³, Curry L. Koening¹⁴, Carol A. Langford¹², Larry W. Moreland¹⁵, Paul A. Monach¹⁶, Christian Pagnoux¹¹, Ulrich Specks¹⁷, Antoine G. Sreih¹⁸, Steven R. Ytterberg¹⁹ and Peter A. Merkel⁴, ¹Dept of Public Health Sciences, University of Iceland, Reykiavik, Iceland, ²Universitiy of Pennsylvania, Philadelphia, PA, ³Biostatistics and Informatics, Department of Pediatrics, University of South Florida, Tampa, FL, ⁴Penn Vasculitis Center, Division of Rheumatology, University of Pennsylvania, Philadelphia, PA, ⁵NONE, Branbury, United Kingdom, ⁶NONE, Columbus, OH, ⁷NONE, Framingham, MA, ⁸Division of Rheumatology, University of Ottawa, Ottawa, ON, Canada, ⁹Oxford University, Oxford, United Kingdom, ¹⁰Nuffield Department of Orthopaedics Rheumatology and Musculoskeletal Sciences, University of Oxford, University of Oxford, Oxford, United Kingdom, ¹¹Mount Sinai Hospital, Toronto, ON, Canada, ¹²Rheumatology, Cleveland Clinic, Cleveland, OH, ¹³McMaster University, Hamilton, ON, Canada, ¹⁴Division of rheumatology, George E. Wahlen Department of Veterans Affairs Medical Center Salt Lake City and University of Utah, University of Utah School of Medicine, Salt Lake City, UT, ¹⁵Rheumatology & Clinical Immunology, University of Pittsburgh, Pittsburgh, PA, ¹⁶Rheumatology, Boston University School of Medicine, Boston, MA, ¹⁷Division of Pulmonary and Critical Care Medicine, Mayo Clinic College of Medicine, Rochester, MN, ¹⁸Department of Rheumatology, University of Pennsylvania, Philadelphia, PA, ¹⁹Rheumatology Division, Mayo Clinic, Rochester, MN
Background/Purpose: Currently-used outcome measures in vasculitis insufficiently capture the life impact of systemic vasculitis from patients' perspectives. The Patient Reported Outcome Measurement Information System…
Abstract Number: 2434 • 2015 ACR/ARHP Annual Meeting
Promis Tools for Measurement of Patient-Reported Outcomes in Children with Juvenile Arthritis
Timothy Brandon¹, Brandon Becker¹, Katherine Bevans¹ and Pamela F. Weiss², ¹Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, ²Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose: Child/parent perspectives on their own/their child's health are highly pertinent to disease management. PROMIS is a collection of patient-reported outcome measures that were developed…
Abstract Number: 2540 • 2015 ACR/ARHP Annual Meeting
Construct Validity of the Promis-29 in Systemic Sclerosis: Results from the Scleroderma Patient-Centered Intervention Network (SPIN) Cohort
Linda Kwakkenbos¹, Brett D. Thombs¹, Susan J. Bartlett², Marie-Eve Carrier³, Marie Hudson¹, Luc Mouthon⁴, Vanessa L. Malcarne⁵, Maureen Sauvé⁶, Dinesh Khanna⁷ and SPIN investigators, ¹McGill University, Montreal, QC, Canada, ²Medicine, McGill University, Montreal, QC, Canada, ³Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada, ⁴Paris Descartes University, UPRES-EA 4058, Department of Internal Medicine, Cochin Hospital, Paris, France, ⁵SDSU/UC San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, ⁶Scleroderma Societies of Canada and Ontario, Hamilton, QC, Canada, ⁷Division of Rheumatology, University of Michigan, Ann Arbor, MI
Background/Purpose: The Patient-Reported Outcomes Measurement Information System (PROMIS¨) initiative is a cooperative research program designed to develop, evaluate, and standardize item banks to measure patient-reported…
Abstract Number: 2615 • 2015 ACR/ARHP Annual Meeting
Changes in a Patient-Reported Measure of Physical Function, PF-10a, Are Most Strongly Associated with Changes in the Patient Global Assessment Portion of a Composite Measure of RA Disease Activity
Elizabeth R. Wahl^1,2, Andrew Gross², Vladimir Chernitskiy², Patricia P. Katz² and Jinoos Yazdany³, ¹Medicine/Rheumatology, San Francisco Veterans Affairs Medical Center, San Francisco, CA, ²Medicine/Rheumatology, University of California San Francisco, San Francisco, CA, ³University of California, San Francisco, San Francisco, CA
Background/Purpose: A brief patient-reported measure of physical function, the PROMIS PF-10a, is sensitive to changes in disease activity among patients with rheumatoid arthritis (RA). However,…
Abstract Number: 420 • 2014 ACR/ARHP Annual Meeting
Less Is More: The Shorter Physical Function Measure Promis-PF10a Outperforms HAQ in an Ethnically Diverse, Urban Rheumatoid Arthritis Clinic Population
Elizabeth R. Wahl¹, Andrew J. Gross², R Krishna Chaganti¹, Lianne S. Gensler³, Vladimir Chernitskiy¹, Laura Trupin², Patricia P. Katz² and Jinoos Yazdany², ¹Rheumatology, University of California, San Francisco, San Francisco, CA, ²Medicine, University of California, San Francisco, San Francisco, CA, ³Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA
Background/Purpose: Patient-reported outcome measures are important tools that assess the impact of disease on patients' lives; in RA, patient-reported physical function is especially relevant. In…
Abstract Number: 262 • 2014 ACR/ARHP Annual Meeting
Longitudinal Assessment of Promis Pediatric Item Banks in Children with Chronic Musculoskeletal Pain
Esi M. Morgan DeWitt¹, Adam Carle², Kimberly Barnett³, Jennifer Farrell⁴, Kenneth Goldschneider⁵, Carlton Dampier⁶, David D. Sherry⁷ and Susmita Kashikar-Zuck³, ¹Department of Pediatrics, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵Anesthesia, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Department of Pediatrics (Hematology-Oncology), Emory University School of Medicine, Atlanta, GA, ⁷Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose Assessing clinical status in musculoskeletal pain syndromes requires self-report of pain and function. Yet, the field suffers from a lack of psychometrically sound, consistently…
Abstract Number: 259 • 2014 ACR/ARHP Annual Meeting
Development of Pediatric Item Banks to Measure Pain Behavior in the Patient Reported Outcomes Measurement Information System
Esi M. Morgan DeWitt¹, Kimberly Barnett², Wen-Hung Chen³, Jennifer Farrell⁴, Dennis Revicki⁵, Adam Carle⁶, Karon Cook⁷, Kenneth Goldschneider⁸, Carlton Dampier⁹, David D. Sherry¹⁰ and Susmita Kashikar-Zuck², ¹Department of Pediatrics, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Evidera, Bethesda, MD, ⁴Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵Outcomes Research, Evidera, Bethesda, MD, ⁶Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁷Center for Patient-Centered Outcomes - Institute for Public Health and Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁸Anesthesia, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁹Department of Pediatrics (Hematology-Oncology), Emory University School of Medicine, Atlanta, GA, ¹⁰Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose The NIH Patient Reported Outcomes Measurement Information System (PROMIS) has created publicly available patient reported outcomes measures in several domains of physical, social and…
Abstract Number: 2867 • 2013 ACR/ARHP Annual Meeting
Using Patient Reported Outcomes Measurement Information System Instruments To Identify Disease Flares In People With Rheumatoid Arthritis
Susan J. Bartlett^1,2, Ana-Maria Orbai³, Trisha Duncan³ and Clifton O. Bingham III³, ¹Clinical Epidemiology, McGill University, Montreal, QC, Canada, ²Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, ³Rheumatology, Johns Hopkins University, Baltimore, MD
Background/Purpose: Rheumatoid arthritis (RA) is associated with unpredictable episodes of disease worsening that may prompt consideration of treatment change. Core RA Flare domains have been…
Abstract Number: 259 • 2013 ACR/ARHP Annual Meeting
Examining Patient Reported Outcome Measurement Information System Measures In Community Dwelling Adults With Arthritis
Ana-Maria Orbai¹, Leigh F. Callahan², Rebecca J. Cleveland³, Sharon R. Ghazarian⁴, Susan J. Bartlett^5,6 and Clifton O. Bingham III¹, ¹Rheumatology, Johns Hopkins University, Baltimore, MD, ²Thurston Arthritis Res Ctr, University of North Carolina, Chapel Hill, NC, ³Thurston Arthritis Research Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, ⁴Bayview Biostatistics, Epidemiology and Data Management (BEAD) Core, Johns Hopkins University, Johns Hopkins University, Baltimore, MD, ⁵Clinical Epidemiology, McGill University, Montreal, QC, Canada, ⁶Division of Rheumatology, Johns Hopkins University, Baltimore, MD
Background/Purpose: Arthritis is the leading cause of disability in the US and impacts on multiple aspects of health-related quality of life (HRQoL). Many multidimensional HRQoL…

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