Abstracts tagged "PROMIS"

Abstract Number: 1389 • 2018 ACR/ARHP Annual Meeting
Depression and the Patient Reported Outcomes Measurement Information System in Systemic Lupus Erythematosus
Brett Dietz¹, Patricia Katz¹, Maria Dall'Era², Louise Murphy³, Cristina Lanata¹, Laura Trupin¹ and Jinoos Yazdany², ¹University of California San Francisco, San Francisco, CA, ²University of California, San Francisco, San Francisco, CA, ³Arthritis Program, Centers for Disease Control and Prevention, Atlanta, GA
Background/Purpose: Health-related quality of life (HRQoL) is reduced in SLE. Depression is a possible contributor to reduced HRQoL. The relationship between major depression and HRQoL…
Abstract Number: 1402 • 2018 ACR/ARHP Annual Meeting
The Relationship of Pain, Fatigue and Emotional Distress with Quality of Life in Juvenile Myositis
Kyle J. Fahey¹, Elizabeth L. Gray², Rowland W. Chang³, David Cella⁴, Lauren M. Pachman⁵ and Kaveh Ardalan⁶, ¹Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, ²Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, ³Preventive Medicine, Medicine, and Physical Medicine & Rehabilitation, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁴Departments of Medical Social Sciences, Neurology, Pediatrics, Preventive Medicine, and Psychiatry and Behavioral Sciences,, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁵Cure JM Program of Excellence in Juvenile Myositis Research, Stanley Manne Children’s Research Institute, affiliated with Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ⁶Departments of Pediatrics and Medical Social Sciences, Division of Rheumatology, Northwestern University Feinberg School of Medicine/Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL
Background/Purpose: Juvenile Myositis (JM) is an autoimmune disease that negatively impacts quality of life (QoL) outcomes via muscle weakness and vasculopathic rashes. The relative contribution…
Abstract Number: 1082 • 2017 ACR/ARHP Annual Meeting
Responsiveness and Minimally Clinically Important Differences of Promis Measures in Rheumatoid Arthritis
Susan J. Bartlett¹, Michelle Jones² and Clifton O. Bingham III³, ¹Department of Medicine, Division of ClinEpi, Rheumatology, Respirology, McGill University, Montreal, QC, Canada, ²Johns Hopkins University School of Medicine, Baltimore, MD, ³Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD
Responsiveness and Minimally Clinically Important Differences of PROMIS Measures in Rheumatoid ArthritisBackground/Purpose: The ability to detect meaningful change in clinical status (responsiveness) is an important…
Abstract Number: 1247 • 2017 ACR/ARHP Annual Meeting
Coexisting Fibromyalgia in Patients with Rheumatoid Arthritis Worsens Scores for Pain, Physical Function and Depression
Dylan Ruebeck¹, Judith Baumhauer² and Allen P. Anandarajah³, ¹Internal Medicine, University of Rochester Medical Center, Rochester, NY, ²Orthopedics, University of Rochester Medical Center, rochester, NY, ³Dept of Rheumatology, Univ of Rochester Medical Ctr, Rochester, NY
Background/Purpose: Quality of life (QOL) measures as assessed by Patient Reported Outcome Measurement Information System (PROMIS) can contribute essential information about the status of or…
Abstract Number: 1255 • 2017 ACR/ARHP Annual Meeting
Using PROs to Guide Patient-Centered Conversations and Care in Inflammatory Arthritis: The Clinician Perspective
Susan J. Bartlett¹, Katherine Clegg Smith², Elaine de Leon², Michelle Jones³, Anna Kristina Gutierrez⁴, Allie Butanis⁵ and Clifton O. Bingham III⁶, ¹Department of Medicine, Division of ClinEpi, Rheumatology, Respirology, McGill University, Montreal, QC, Canada, ²Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, ³Johns Hopkins University School of Medicine, Baltimore, MD, ⁴Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ⁵Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, ⁶Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD
Background/Purpose: Although patient-reported outcomes (PROs) are routinely collected for research and quality purposes, they have not been routinely incorporated into the routine care of patients.…
Abstract Number: 1263 • 2017 ACR/ARHP Annual Meeting
Relevance and Utility of Patient Reported Outcomes Measurement Information System (PROMIS®) Instruments in SLE: A Qualitative Study
Shanthini Kasturi¹, Madeline Epsten², Adena Batterman³, Roberta Horton³, Juliette Kleinman³, Jillian Rose³, Jackie Szymonifka², Laura Robbins⁴ and Lisa A. Mandl¹, ¹Rheumatology, Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, ²Rheumatology, Hospital for Special Surgery, New York, NY, ³Social Work Programs, Hospital for Special Surgery, New York, NY, ⁴Education & Academic Affairs, Hospital for Special Surgery, New York, NY
Background/Purpose: The measurement of patient reported outcomes is a priority for patient-centered high value care. This is particularly true in chronic systemic diseases such as…
Abstract Number: 1264 • 2017 ACR/ARHP Annual Meeting
Responsiveness of Patient Reported Outcomes Measurement Information System (PROMIS®) Computerized Adaptive Tests (CATs) in Systemic Lupus Erythematosus (SLE)
Shanthini Kasturi¹, Jackie Szymonifka², Jessica R. Berman³, Kyriakos A. Kirou¹, Alana B. Levine¹, Lisa R. Sammaritano¹ and Lisa A. Mandl¹, ¹Rheumatology, Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, ²Rheumatology, Hospital for Special Surgery, New York, NY, ³Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, New York, NY
Background/Purpose: PROMIS CATs are precise measures of quality of life with construct validity in SLE. The longitudinal responsiveness (sensitivity to change) of PROMIS CATs in…
Abstract Number: 1852 • 2017 ACR/ARHP Annual Meeting
Validating Patient Reported Outcomes in Older Veterans with Chronic Back Pain
Rabih Nayfe¹, Matthieu Chansard², Thiru Annaswamy³, Katharine McCallister², Liana Fraenkel⁴, Eric Mortensen⁵ and Una E. Makris⁶, ¹Department of Medicine, UT Southwestern Medical Center, Dallas, TX, ²Clinical Sciences, UT Southwestern Medical Center, Dallas, TX, ³Physical Medicine & Rehabilitation,, VA North Texas Health Care System, Dallas, TX, ⁴Rheumatology, Rheumatology, Yale University School of Medicine, New Haven, CT, New Haven, CT, ⁵Department of Medicine, University of Connecticut, Farmington, CT, ⁶Department of Medicine, VA North Texas Health Care System, Dallas, TX
Background/Purpose: Chronic back pain is the second most common reason for a physician’s visit and results in significant physical and psychosocial consequences in older adults.…
Abstract Number: 2255 • 2017 ACR/ARHP Annual Meeting
Using PROs to Guide Patient-Centered Conversations and Care in Inflammatory Arthritis: The Patient Perspective
Clifton O. Bingham III¹, Katherine Clegg Smith², Elaine de Leon², Michelle Jones³, Anna Kristina Gutierrez⁴, Allie Butanis⁵ and Susan J. Bartlett⁴, ¹Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ²Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, ³Johns Hopkins University School of Medicine, Baltimore, MD, ⁴Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ⁵Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD
Background/Purpose: Although optimal care is patient-centered and grounded in shared decision-making (SDM) between patients and providers, rheumatologists often have little insight into the day-to-day experiences…
Abstract Number: 2694 • 2017 ACR/ARHP Annual Meeting
Performance of Patient-Reported Outcomes Measurement Information Systems (PROMIS) Promis-29 and Promis Self-Efficacy in Systemic Sclerosis (SSc)
Janet L. Poole¹, Veronica J. Berrocal², Jennifer Serrano³, Erica Bush³ and Dinesh Khanna³, ¹Health Sciences Ctr OT Program, 1 University of New Mexico, Albuquerque, NM, ²Div of Rheumatology, University of Michigan, Ann Arbor, MI, ³University of Michigan, Ann Arbor, MI
Background/Purpose: Patient reported outcomes are important to measure the effectiveness of non-pharmacological and pharmacological interventions. The goal of PROMIS is to develop standardized items banks…
Abstract Number: 2781 • 2017 ACR/ARHP Annual Meeting
Assessing RA Disease Activity with Promis Measures Using Smartphone Technology
Huifeng Yun¹, Shuo Yang², W. Benjamin Nowell³, Cooper Filby¹, Lang Chen¹ and Jeffrey R. Curtis⁴, ¹University of Alabama at Birmingham, Birmingham, AL, ²Division of Clinical Immunology & Rheumatology, University of Alabama at Birmingham, Birmingham, AL, ³Global Healthy Living Foundation, Upper Nyack, NY, ⁴Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, AL
Background/Purpose: Health information technology has enabled efficient measurement of PROs using Computer Adaptive Testing (CAT) methods, which have been shown to minimize missing data and…
Abstract Number: 2853 • 2017 ACR/ARHP Annual Meeting
Is Frailty Associated with Adverse Events after Total Joint Arthroplasty?
Lisa A. Mandl^1,2, Abigail M. Schmucker³, Nathaniel Hupert⁴, Mayu Sasaki³, Charles N. Cornell^5,6, Michael B. Cross^5,6, Alejandro Gonzalez Della Valle^5,6, Mark P. Figgie^6,7, Seth A. Jerabek^5,6, Jackie Szymonifka¹ and Steven K. Magid^8,9, ¹Rheumatology, Hospital for Special Surgery, New York, NY, ²Medicine - Rheumatology, Weill Cornell Medicine, New York, NY, ³Quality Research Center, Hospital for Special Surgery, New York, NY, ⁴Medicine, Healthcare Policy and Research, Weill Cornell Medicine, New York, NY, ⁵Surgery, Hospital for Special Surgery, New York, NY, ⁶Surgery, Weill Cornell Medicine, New York, NY, ⁷Orthopaedics, Hospital for Special Surgery, New York, NY, ⁸Medicine - Rhuematology, Hospital for Special Surgery, New York, NY, ⁹Medicine, Weill Cornell Medicine, New York, NY
Background/Purpose: The increased volume of TJA due to the aging population requires a better understanding of the effect of physiological frailty, in addition to chronological…
Abstract Number: 2951 • 2017 ACR/ARHP Annual Meeting
Responsiveness of the Patient Reported Outcomes Measurement Information System to Golimumab Intravenous and Infliximab Treatment in a Real World Clinical Trial in Rheumatoid Arthritis Patients
Jeffrey R. Curtis¹, Douglas Conaway², Joy Schechtman³, Aaron Broadwell⁴, Alan J. Kivitz⁵, Vance Bray⁶, Shelly Kafka⁷, Dennis Parenti⁷, Shawn Black⁷, Stephen Xu⁸, Wayne Langholff⁸ and Clifton O. Bingham III⁹, ¹Rheumatology & Immunology, University of Alabama at Birmingham, Birmingham, AL, ²Rheumatology/Medicine, Carolina Health Specialists, Myrtle Beach, SC, ³Sun Valley Arthritis Center LTD, Peoria, AZ, ⁴Rheumatology Osteoporosis Specialists, Shreveport, LA, ⁵Altoona Arthritis & Osteoporosis Center, Altoona, PA, ⁶Denver Arthritis Clinic, Denver, CO, ⁷Janssen Scientific Affairs, LLC, Horsham, PA, ⁸Janssen Research & Development, LLC, Spring House, PA, ⁹Rheumatology, Johns Hopkins University, Baltimore, MD
Background/Purpose: The Patient (Pt) Reported Outcomes Measurement Information System (PROMIS [P]) questionnaires developed by the NIH have been validated and are a feasible assessment tool…
Abstract Number: 227 • 2017 ACR/ARHP Annual Meeting
Chinese-American Rheumatology Patients Who Use Traditional Chinese-Medicine Have Worse Patient Reported Outcomes
Kai Sun¹, Jackie Szymonifka², Henghe Tian³, Ya Ju Chang⁴, Jennifer Leng⁵ and Lisa A. Mandl⁶, ¹Hospital for Special Surgery/Weill Cornell medicine, New York, NY, ²Rheumatology, Hospital for Special Surgery, New York, NY, ³Internal Medicine, New York University School of Medicine, New York, NY, ⁴Mount Sinai Beth Israel, New York, NY, ⁵Immigrant Health and Cancer Disparities laboratory, Memorial Sloan Kettering Cancer Center, New York, NY, ⁶Rheumatology, Hospital for Special Surgery/Weill Cornell Medicine, New York, NY
Background/Purpose: Chinese-Americans are a fast growing US immigrant group, and many use Traditional Chinese Medicine (TCM). Ethnic Chinese patients also have worse outcomes in SLE…
Abstract Number: 344 • 2017 ACR/ARHP Annual Meeting
Real World Clinical Trial Comparing the Patient Reported Outcomes Measurement Information System Short Forms and Profiles to CDAI Disease Classification in Rheumatoid Arthritis Patients
Jeffrey R. Curtis¹, Sergio Schwartzman², Shelly Kafka³, Dennis Parenti³, Shawn Black³, Stephen Xu⁴, Wayne Langholff⁴ and Clifton O. Bingham III⁵, ¹Rheumatology & Immunology, University of Alabama at Birmingham, Birmingham, AL, ²Weill Cornell Medical College, New York, NY, ³Janssen Scientific Affairs, LLC, Horsham, PA, ⁴Janssen Research & Development, LLC, Spring House, PA, ⁵Rheumatology, Johns Hopkins University, Baltimore, MD
Background/Purpose: Patient (Pt) reported outcomes (PROs) play a role in overall disease evaluation, therapeutic response assessment and care of rheumatoid arthritis (RA) patients (Pts). The…

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