Abstracts tagged "PRO"

Abstract Number: 0655 • ACR Convergence 2021
Depression and Fatigue: Two Forgotten Associated Comorbidities in Patients with Rheumatoid Arthritis
Rosa Morlà¹, Beatriz Frade-Sosa², Núria Sapena³, Roberto Gumucio², Raimon Sanmarti² and Jose A Gomez-Puerta², ¹Hospital Universitari Clinic de Barcelona, Barcelona, Spain, ²Hospital Clínic de Barcelona, Barcelona, Spain, ³Rheumatology Department, Hospital Clínic, Barcelona, Spain
Background/Purpose: Rheumatoid arthritis (RA) is frequently associated with different comorbidities. Depression and fatigue are common in RA patients with a prevalence of 17-39-%(1) and 40%(2)…
Abstract Number: 1212 • 2019 ACR/ARP Annual Meeting
Psychological Profile in Patients with Rheumatic Diseases in China: A Study of HADS Self-assessment with Smart System of Disease Management (SSDM)
Yongfu Wang¹, Jianhong Wu ², Yasong Li ³, Henglian Wu ⁴, Yang li ⁵, Hua Wei ⁶, Xiaoqi Chen ⁷, Bin Wu ⁸, Zhenbin li ⁹, Jinli Ru ¹⁰, Wenqiang Fan ¹¹, Shengguang Li ¹², Fang He ¹³, Yi Zhao ¹⁴, Fen Li ¹⁵, Bin Wu ¹⁶, Feng Wang ¹⁷, Miaojia Zhang ¹⁸, Lirong Kang ¹⁹, Hui Xiao ²⁰, Yuhua Jia ²¹, Bing Wu ²², Fei Xiao ²³ and Hui Song ²⁴, ¹The First Affiliated Hospital of BaoTou Medical College, Baotou, Nei Mongol, China (People's Republic), ²Dazhou Central Hospital, Dazhou, Sichuan, China (People's Republic), ³Zhejiang provincial people's hospital, Hangzhou, Zhejiang, China (People's Republic), ⁴Dongguan donghua hospital, Dongguan, Guangdong, China (People's Republic), ⁵The Second Affiliated Hospital of Harbin Medical University, Haerbin, China (People's Republic), ⁶Northern Jiangsu People's Hospital, Yangzhou, China (People's Republic), ⁷Zhongnan Hospital of Wuhan University, wuhan, China (People's Republic), ⁸The First People's Hospital of Jingzhou, jingzhou, China (People's Republic), ⁹The 980th Hospital of the PLA Joint Logistic Support Force, shijiazhuang, China (People's Republic), ¹⁰The Second Hospital of Shanxi Medical University, Shanxi, Shanxi, China (People's Republic), ¹¹Central Hospital of XinXiang, Xinxiang, Hainan, China (People's Republic), ¹²Peking University International Hospital, beijing, China (People's Republic), ¹³Suining Central Hospital, suining, China (People's Republic), ¹⁴Xuanwu Hospital, Capital Medical University, Beijing, China, beijing, China (People's Republic), ¹⁵The Second Xiangya Hospital of Central South University, changsha, China (People's Republic), ¹⁶Chongqing Hospital of Traditional Chinese Medicine, Chongqing, Chongqing, China (People's Republic), ¹⁷Central Hospital of Xiangyang, xiangyang, China (People's Republic), ¹⁸Jiangsu Province Hospital, The first affiliated hospital of Nanjing medical university, nanjing, China (People's Republic), ¹⁹The First Affiliated Hospital of BaoTou Medical College, baotou, China (People's Republic), ²⁰Shanghai Gothic Internet Technology Co., Ltd, shanghai, Shanghai, China (People's Republic), ²¹Shanghai Gothic Internet Technology Co., Ltd., Shanghai, Shanghai, China (People's Republic), ²²Shanghai Gothic Internet Technology Co., Ltd, Shanghai, China (People's Republic), ²³Shanghai Gothic Internet Technology Co., Ltd., shanghai, China (People's Republic), ²⁴Beijing Jishuitan Hospital, Beijing, Beijing, China (People's Republic)
Background/Purpose: The patients with chronic diseases such as rheumatic diseases suffer from physical pain and/or disability. In addition, psychological morbidities have also been found in…
Abstract Number: 2477 • 2019 ACR/ARP Annual Meeting
Burden of Disease at Treatment Initiation Among Biologic-Naïve Patients with Oligoarticular versus Polyarticular Psoriatic Arthritis in the Corrona Psoriatic Arthritis/Spondyloarthritis Registry
Alexis Ogdie¹, Mei Liu ², Meghan Glynn ³, Kelechi Emeanuru ², Leslie Harrold ⁴, Sven Richter ⁵, Benoit Guerette ⁵ and Philip Mease ⁶, ¹Department of Medicine and Rheumatology and Department of Epidemiology and Biostatistics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, ²Corrona, LLC, Waltham, MA, ³Corrona, LLC, Waltham, ⁴Corrona, LLC and University of Massachusetts Medical School, Worcester, MA, ⁵Celgene Corporation, Summit, ⁶Swedish Medical Center/Providence St Joseph Health, and University of Washington, Seattle, WA
Background/Purpose: Oligoarticular PsA accounts for ≈50% of PsA worldwide, but only a paucity of data describes disease burden among these patients. The Corrona PsA/SpA Registry,…
Abstract Number: PP10 • 2018 ACR/ARHP Annual Meeting
Using a Mobile App to Facilitate Patient-Doctor Discussions to Make Informed Decisions Regarding ‘Painsomnia’
Shelley Fritz¹, Kristine Carandang² and Dawn Gibson³, ¹ArthritisPower Patient Partner: CreakyJoints/Global Healthy Living Foundation, Tampa, FL, ²Chan Division of Occupational Science & Occupational Therapy, University of Southern California, Los Angeles, CA, ³Founder #SpoonieChat; CreakyJoints/Global Healthy Living Foundation Patient Partner, Upper Nyack, NY
Background/Diagnosis: As a patient with AS, Dawn founded #SpoonieChat to provide a space on twitter for people living with chronic diseases to support each other.…
Abstract Number: 327 • 2018 ACR/ARHP Annual Meeting
The Patient Global Assessment and Common Composite Disease Activity Measures Vary Minimally When Patients Reflect on Their Arthritis or Their Global Health: Results from the Canadian Early Arthritis Cohort Study
Vivian P. Bykerk¹, Orit Schieir², Marie-France Valois³, Edward C. Keystone⁴, Gilles Boire⁵, Janet E. Pope⁶, Diane Tin⁷, Carol Hitchon⁸, Carter Thorne⁹, Susan J. Bartlett¹⁰ and Boulos Haraoui¹¹, ¹Deptartment of Rheumatology, Hospital for Special Surgery, New York, NY, ²McGill University, Montreal, ON, Canada, ³McGill University, Montreal, QC, Canada, ⁴University of Toronto and Mount Sinai Hospital, Toronto, ON, Canada, ⁵Rheumatology Division, Centre intégré universitaire de santé et de services sociaux de l'Estrie - Centre Hospitalier Universitaire de Sherbrooke and Universite de Sherbrooke, Sherbrooke, QC, Canada, ⁶Department of Medicine, University of Western Ontario, London, ON, Canada, ⁷The Arthritis Program, Southlake Regional Health Centre, Newmarket, ON, Canada, ⁸University of Manitoba, Winnipeg, MB, Canada, ⁹University of Toronto, Newmarket, ON, Canada, ¹⁰Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ¹¹Institut de Recherche en Rhumatologie de Montréal (IRRM), Montreal, QC, Canada
Background/Purpose: The patient global assessment (PtGA) is a core domain used in RA composite disease activity (CDA) measures for trials and treat-2-target paradigms. The PtGA…
Abstract Number: 665 • 2018 ACR/ARHP Annual Meeting
Impact of Peripheral Manifestations on Patient-Reported Outcomes (PROs) and Treatment in Spondyloarthritis. Data from ASAS-Comospa
Clementina López-Medina¹, Anna Molto² and Maxime Dougados³, ¹Rheumatology Department, Cochin Hospital, Paris, France, ²Hôpital Cochin, Department of Rheumatology, Paris Descartes University, Paris, France, ³Department of Rheumatology, Paris Descartes University and Cochin Hospital, Paris, France
Background/Purpose: Peripheral manifestations (arthritis, enthesitis and dactylitis) are frequent in patients with Spondyloarthritis (SpA). However, little is known regarding the impact of these manifestations on…
Abstract Number: 1405 • 2018 ACR/ARHP Annual Meeting
Assessment of the Psychometric Properties of Patient-Reported Outcomes of Depression in SLE
Andrew Kwan¹, Sherief Marzouk², Helia Ghanean², Michelle Vitti³, Kishwar Ali³, Dennisse Bonilla³, Nicole Anderson³, Jiandong Su³ and Zahi Touma³, ¹Faculty of Medicine, Queen's University, Kingston, ON, Canada, ²Psychiatry, University of Toronto, Toronto Western Hospital, Toronto, ON, Canada, ³University of Toronto, Toronto Western Hospital, Toronto, ON, Canada
Background/Purpose: Mood disorders, including depression, are amongst the most common manifestations of neuro-psychiatric SLE. Currently, the screening and diagnosis for depression in ambulatory settings are…
Abstract Number: 1525 • 2018 ACR/ARHP Annual Meeting
Effect of JAK-Inhibitor Versus Bdmards on Quality of Life in Rheumatoid Arthritis : A Meta Analysis of Randomized Controlled Trials
Mamadaly Boudhabhay¹, Thomas Barnetche² and Pascale Vergne-Salle³, ¹CHU de Limoges, Limoges, France, ²Rheumatology Department, FHU ACRONIM, Bordeaux University Hospital, Bordeaux, France, ³Rheumatology, CHU de Limoges, Limoges, France
Background/Purpose: Recent studies comparing JAK-inhibitors (Jak-i) and adalimumab seem to show a better efficacy of JAK-i on patient-reported outcomes in rheumatoid arthritis (RA). As there…
Abstract Number: 1635 • 2018 ACR/ARHP Annual Meeting
Validity of Patient-Reported Outcomes Measurement Information System Measures in Ankylosing Spondylitis Patients
Mark Hwang¹, Alexis Ogdie² and John D. Reveille³, ¹Internal Medicine-Rheumatology, University of Texas-McGovern Medical School, Houston, TX, ²Medicine/Rheumatology and Epidemiology, University of Pennsylvania, Philadelphia, PA, ³Rheumatology, McGovern Medical School at the University of Texas Health Science Center at Houston, USA, Houston, TX
Background/Purpose: The Patient-Reported Outcomes Measurement Information System (PROMIS) developed by the US National Institutes of Health is a patient-reported outcomes system designed to measure disease…
Abstract Number: 2362 • 2018 ACR/ARHP Annual Meeting
Understanding Patients’ Perceptions of Gout
Kelly Gavigan¹, Kayla Jordan², Alexa Meara³ and W. Benjamin Nowell¹, ¹Global Healthy Living Foundation, Upper Nyack, NY, ²University of Texas at Austin, Austin, TX, ³Internal Medicine/Rheumatology, The Ohio State University Wexner Medical Center, Columbus, OH
Background/Purpose: Past research has shown that patients’ (pts’) knowledge of their disease influences health-related behavior. The objective of this study is to explore gout pts’…
Abstract Number: 2364 • 2018 ACR/ARHP Annual Meeting
Vasculitis Patient Journey: A Scoping Review of Patient Experiences with Vasculitis
Navjeet Gill and Elaine Yacyshyn, Medicine, University of Alberta, Edmonton, AB, Canada
Abstract:Background/Purpose: Optimal management of vasculitis needs to address disease aspects of significance to patients. Understanding the patients’ journey with vasculitis allows clinicians to identify patient…
Abstract Number: 2597 • 2018 ACR/ARHP Annual Meeting
The Effect of Biologic Disease-Modifying Antirheumatic Drugs in Patient Reported Outcomes in Axial Spondyloarthritis; A Systematic Literature Review and a Call for Action
Santiago Rodrigues Manica^1,2, Joana Leite Silva³, Ana Rita Machado⁴, Constança Coelho⁵, Joana Duarte⁶, Elsa Vieira-Sousa⁷, José Tavares Costa⁸ and Fernando Pimentel-Santos^1,2, ¹CEDOC, NOVA Medical School, Lisbon, Portugal, ²Rheumatology, Hospital de Egas Moniz - Centro Hospitalar Lisboa Ocidental, EPE, Lisbon, Portugal, ³Serviço de Reumatologia da Unidade Local de Saúde do Alto Minho, Ponte de Lima, Portugal, Ponte de Lima, Portugal, ⁴Serviço de Reumatologia e Doenças Ósseas Metabólicas, Hospital de Santa Maria, Centro Hospitalar Lisboa Norte, Lisboa, Portugal, ⁵Genetics Laboratory, Institute of Environmental Health, Lisbon School of Medicine, University of Lisbon, Lisbon, Portugal, ⁶Medical Department, Novartis Pharma, Pharmaceutical products, Oeiras, Portugal, ⁷Rheumatology Department, CAML, Lisbon, Portugal, Lisbon, Portugal, ⁸Rheumatology Department, ULSAM, Ponte de Lima, Portugal, Ponte de Lima, Portugal
Background/Purpose: Patient reported outcomes (PROs) have gained relevance in the evaluation of axial SpA (axSpA), as they convey a more objective patient perspective. The concept…
Abstract Number: 2742 • 2018 ACR/ARHP Annual Meeting
Rituximab Versus Cyclophosphamide for Vasculitic Neuropathy: A Patient Reported Outcomes Study
Aditi Patel¹, Kevin Byram², Yuxuan Jin³, Alexander Wu¹, Yuebing Li⁴, Leonard H. Calabrese⁵ and Rula A Hajj-Ali⁶, ¹Internal Medicine, Cleveland Clinic, Cleveland, OH, ²Cleveland Clinic Foundation, Cleveland, OH, ³Quantitative Health Sciences, Cleveland Clinic, Cleveland, OH, ⁴Department of Neurology, Cleveland Clinic, Cleveland, OH, ⁵Rheumatic & Immunologic Dis, Cleveland Clinic, Cleveland, OH, ⁶Rheumatic and Immunologic Disease, Cleveland Clinic Foundation, Cleveland, OH
Background/Purpose: Vasculitic neuropathy (VN) is a major complication of systemic vasculitis and contributes to morbidity, functional limitation, and health care utilization in affected patients. Patient…
Abstract Number: 2911 • 2018 ACR/ARHP Annual Meeting
Patient-Reported Outcomes Measurement Information System (PROMIS®) Global Health Short Form Is Responsive to Patient Reported Changes in SLE Health Status
Shanthini Kasturi¹, Jackie Szymonifka², Jessica R. Berman³, Kyriakos A. Kirou³, Alana B. Levine³, Lisa R Sammaritano⁴ and Lisa A. Mandl⁴, ¹Medicine/Rheumatology, Tufts Medical Center, Boston, MA, ²Hospital for Special Surgery, New York, NY, ³Rheumatology, Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, ⁴Hospital for Special Surgery/Weill Cornell Medicine, New York, NY
Background/Purpose: The accurate and efficient serial measurement of patient centered outcomes is a priority in the clinical care of SLE. Patient-Reported Outcomes Measurement Information Systems…
Abstract Number: 2539 • 2017 ACR/ARHP Annual Meeting
The Contribution of Skin and Joint Improvements to the Health-Related Quality of Life of Patients with Active Psoriatic Arthritis
Arthur Kavanaugh¹, Alice B Gottlieb², Akimichi Morita³, Joseph Merola⁴, Julie Birt⁵, Chen-Yen Lin⁵, Catherine Shuler⁵ and Diamant Thaçi⁶, ¹Medicine, University of California, San Diego, La Jolla, CA, ²Department of Dermatology, New York Medical College, Vallhalla, NY, ³Dept of Geriatric & Environmental Dermatology, Nagoya City Univ Medical School, Nagoya, Japan, ⁴Clinical Unit for Research Innovation & Trials, Harvard Medical School, Boston, MA, ⁵Eli Lilly and Company, Indianapolis, IN, ⁶Comprehensive Center for Inflammation Medicine, University Hospital Schleswig-Holstein Campus Luebeck, Ratzeburger Allee, Germany
Background/Purpose: Psoriatic arthritis (PsA) is a chronic immune-mediated inflammatory disease affecting peripheral and axial joints. For patients with active psoriasis, the added burden of skin…

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