Abstracts tagged "Pediatric rheumatology"

Abstract Number: 3151 • 2015 ACR/ARHP Annual Meeting
Validation of Patient-Reported Outcomes Measurement Information System (PROMIS®) Modules for Use in Childhood-Onset Lupus
Jordan T. Jones¹, Janet Wootton², Jun Ying³, Brianna Liberio⁴, Jiha Lee⁵, Adam Carle⁶, Laura Schanberg² and Hermine I. Brunner⁶, ¹Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Pediatrics, Duke Medical Center, Durham, NC, ³University of Cincinnati, Cincinnati, OH, ⁴University of Cincinnati College of Medicine, Cincinnati, OH, ⁵Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Childhood-onset lupus (cSLE) has a substantial negative impact on health-related quality of life (HRQoL). Patient-reported outcomes (PROs) that accurately assess HRQoL and are responsive…
Abstract Number: 388 • 2015 ACR/ARHP Annual Meeting
Pain, Fatigue and the Psychological Impact on Health-Related Quality of Life in Childhood-Onset Lupus
Jordan T. Jones¹, Natoshia Cunningham², Catherine Donnelly³, Susmita Kashikar-Zuck⁴ and Hermine I. Brunner⁵, ¹Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Behavioral Medicine & Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Internal Medicine, University of Cincinnati, Cincinnati, OH, ⁴Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵Pediatric Rheumatology Collaborative Study Group, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Childhood-onset lupus (cSLE) is a chronic autoimmune disease that has negative impact on health-related quality of life (HRQoL), especially when increased disease activity and…
Abstract Number: 399 • 2015 ACR/ARHP Annual Meeting
Management of Lupus Anticoagulant Hypoprothrombinemia Syndrome in Juvenile Systemic Lupus Erythematosus – Single Center Experience
J. Brian Shirley¹, Patricia Rosillo¹, Andrea Ramirez¹ and Anna Carmela Sagcal-Gironella², ¹Allergy, Immunology and Rheumatology, Baylor College of Medicine/Texas Children's Hospital, Houston, TX, ²Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, TX
Background/Purpose: Lupus anticoagulant hypoprothrombinemia syndrome (LAHS) is a rare phenomenon that leads to concomitant thrombosis and hemorrhage thus presenting a therapeutic dilemma. In children, this…
Abstract Number: 930 • 2015 ACR/ARHP Annual Meeting
Evaluation of Temporomandibular Joint Arthritis with Ultrasound in Juvenile Idiopathic Arthritis
Edward J. Oberle^1,2, James Nocton³ and Arthur Meyers⁴, ¹Pediatrics, Ohio State University, Columbus, OH, ²Pediatric Rheumatology, Nationwide Children's Hospital, Columbus, OH, ³Pediatrics, Medical College of Wisconsin, Milwaukee, WI, ⁴Radiology, Children's Hospital of Wisconsin, Milwaukee, WI
Background/Purpose: Temporomandibular joint (TMJ) arthritis is a common yet widely under recognized feature of Juvenile Idiopathic Arthritis (JIA). It is often clinically silent and difficult…
Abstract Number: 1021 • 2015 ACR/ARHP Annual Meeting
Nucleic Acids Sensing Receptors RIG-I and MDA5 As Potential Amplifiers of the Interferon Signature in Childhood Onset Systemic Lupus Erythematosus
Naomi I Maria¹, M. Javad Wahadat¹, Cornelia G. van Helden-Meeuwsen¹, Annette van Dijk-Hummelman², Radboud JEM Dolhain³, Sylvia Kamphuis² and Marjan A. Versnel¹, ¹Immunology, Erasmus Medical Center, Rotterdam, Netherlands, ²Pediatric Rheumatology, Eramus MC Sophia Children's Hospital, Rotterdam, Netherlands, ³Rheumatology, Erasmus Medical Center, Rotterdam, Netherlands
Background/Purpose: Defective or sustained activation of Interferon (IFN) signaling has been associated with enhanced susceptibility to systemic lupus erythematosus (SLE). The cytosolic RIG-I-like receptors (RLRs),…
Abstract Number: 2317 • 2014 ACR/ARHP Annual Meeting
Towards Reliable Implementation and Optimal Use of Medication Decision Aid Cards for Shared Decision Making in Juvenile Idiopathic Arthritis
Esi M. Morgan DeWitt¹, Janalee Taylor², Karla B. Jones³, Murray H. Passo⁴, Catherine C. Mims⁴, Jesse Pratt⁵, Ellen A. Lipstein⁶, Nancy Griffin⁷, Sheetal S. Vora⁸, Beth S. Gottlieb⁹, Elizabeth Roth-Wojcicki¹⁰ and William B. Brinkman¹¹, ¹Department of Pediatrics, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²William S. Rowe Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Rheumatology ED 1S, Nationwide Children's Hospital, Columbus, OH, ⁴Pediatric Rheumatology, Medical University of South Carolina, Charleston, SC, ⁵Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Division of Adolescent Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁷James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁸University of North Carolina Chapel Hill, Chapel Hill, NC, ⁹Pediatric Rheumatology, Cohen Children's Medical Center of New York, New Hyde Park, NY, ¹⁰Pediatrics, Medical College of Wisconsin, Milwaukee, WI, ¹¹Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose The purpose of the study was to improve communication and shared decision-making (SDM) between clinicians and parents of patients with juvenile idiopathic arthritis (JIA),…
Abstract Number: 2318 • 2014 ACR/ARHP Annual Meeting
Increasing Rates of Remission in Juvenile Idiopathic Arthritis through a Quality Improvement Learning Network – the Pediatric Rheumatology Care and Outcomes Improvement Network
Esi M. Morgan DeWitt¹, Stacy P. Ardoin², C. April Bingham³, Beth S. Gottlieb⁴, Ronald Laxer⁵, Nancy Griffin⁶, Jesse Pratt⁷, Anne Paul⁸, Daniel Lovell⁹, Judyann C. Olson¹⁰, Murray H. Passo¹¹, Jennifer E. Weiss¹², Tzielan C. Lee¹³, Sheetal S. Vora¹⁴, Melissa M. Hazen¹⁵ and Peter Margolis¹⁶, ¹Department of Pediatrics, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Pediatric & Adult Rheumatology, Ohio State University College of Medicine, Columbus, OH, ³Penn State Hershey Children's Hospital, Hershey, PA, ⁴Pediatric Rheumatology, Cohen Children's Medical Center of New York, New Hyde Park, NY, ⁵Rheumatology, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada, ⁶James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁷Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁸Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁹Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Department of Pediatrics, University of Cincinnati, Cincinnati, OH, ¹⁰Medical College of Wisconsin, Milwaukee, WI, ¹¹Pediatric Rheumatology, Medical University of South Carolina, Charleston, SC, ¹²Pediatric Rheumatology, Joseph M Sanzari Children’s Hospital, Hackensack University Medical Center, Hackensack, NJ, ¹³Pediatric Rheumatology, Stanford University School of Medicine, Stanford, CA, ¹⁴University of North Carolina Chapel Hill, Chapel Hill, NC, ¹⁵Division of Immunology, Boston Children's Hospital, Boston, MA, ¹⁶Clinical Effectiveness, Cincinnati Children's Hospital, Cincinnati, OH
Background/Purpose The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) since 2011 has used quality improvement (QI) methods, chronic illness care model interventions, and a…
Abstract Number: 1870 • 2014 ACR/ARHP Annual Meeting
Children and Parent Satisfaction in the Pediatric Rheumatology Clinic: Patient Orientated Quality Service Measures
Jenny Tekano¹, Lori B. Tucker² and Audrea Chen³, ¹Rheumatology, BC Children's Hospital, Vancouver, BC, Canada, ²Rheumatology, BC Children's Hospital and University of British Columbia, Vancouver, BC, Canada, ³research student, Vancouver, BC, Canada
Background/Purpose Patient satisfaction is a multidimensional concept, and is a component of quality care. Inclusion of patient experience with care is highly relevant in improving…
Abstract Number: 1329 • 2014 ACR/ARHP Annual Meeting
Comparison of Clinical and Serological Features of Childhood Sjögren Syndrome Based on the Presence or Absence of Parotitis
Jay Mehta¹, Namrata Singh² and Scott Lieberman³, ¹Pediatrics, Children's Hospital at Montefiore/Albert Einstein College of Medicine, Bronx, NY, ²Medicine, University of Iowa, Iowa City, IA, ³Pediatrics (Division of Rheumatology), University of Iowa Children's Hospital, Iowa City, IA
Background/Purpose: Sjögren syndrome is a complex autoimmune disease that affects lacrimal and salivary glands with the potential to cause damage to other organs. Diagnosis of…
Abstract Number: 1325 • 2014 ACR/ARHP Annual Meeting
Single Hub and Access Point for Pediatric Rheumatology in Europe (SHARE): Evidence Based Recommendations for Diagnosis and Treatment of Juvenile Localized Scleroderma and Juvenile Systemic Sclerosis
Bas Vastert¹, Roberta Culpo², Jordi Anton³, Tadej Avcin⁴, Eileen Baildam⁵, Christina Boros⁶, Tamás Constantin⁷, Jeff Chaitow⁸, Pavla Dolezalova⁹, Ozgur Kasapcopur¹⁰, Sheila Oliveira¹¹, Clarissa Pilkington¹², Annet van Royen-Kerkhof¹³, Ricardo A. G. Russo¹⁴, Claudia Saad-Magalhaes¹⁵, Natasa Toplak¹⁶, Angelo Ravelli¹⁷, Nico Wulffraat¹⁸, Ivan Foeldvari¹⁹ and Francesco Zulian²⁰, ¹University Medical Center Utrecht, Utrecht, Netherlands, ²Department of Pediatrics., University of Padua, Padua, Italy, ³Pediatric Rheumatology Unit. Hospital Sant Joan de Déu. Universitat de Barcelona, Barcelona, Spain, ⁴Pediatric Rheumatology, University Children´s Hospital, Ljubjana, Slovenia, ⁵Paediatric Rheumatology, Alder Hey Children's Foundation NHS Trust, Liverpool, United Kingdom, ⁶University of Adelaide, Adelaide, Australia, ⁷Pediatric Rheumatology, University Childrens Hospital, Budapest, Hungary, ⁸The Children’s Hospital Westmead, Sydney, Australia, ⁹Department of Paediatrics and Adolescent Medicine, Charles University, Prague, Czech Republic, ¹⁰University Cerrahpasa Faculty of Medicine, Istanbul, Turkey, ¹¹Pediatric Rheumatology, Universidade F Rio De Janeiro, Rio De Janeiro, Brazil, ¹²Rheumatology, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, ¹³Paediatric Immunology and Rheumatology, University Medical Centre Utrecht - Wilhelmina Children's Hospital, Utrecht, Netherlands, ¹⁴Immunology & Rheumatology, Hospital de Pediatria Garrahan, Buenos Aires, Argentina, ¹⁵Faculdade de Medicina de Botucatu, Botucatu, Brazil, ¹⁶Pediatric Rheumatology, University Medical Center, Ljubliana, Slovenia, ¹⁷Istituto Giannina Gaslini and University of Genova, Genova, Italy, ¹⁸Pediatric rheumatology, Wilhelmina Children's Hospital/ UMC Utrecht, Utrecht, Netherlands, ¹⁹Department of Pediatric Rheumatology, Hamburger Zentrum für Kinder und Jugendrheumatologie, Hamburg, Germany, ²⁰Pediatrics/Rheumatology Div, University of Padua, Padua, Italy
Background/Purpose Juvenile Localized Scleroderma (JLS) and Juvenile Systemic Sclerosis (JSSc) form a group of rare pediatric diseases that can lead to significant morbidity. Evidence-based guidelines…
Abstract Number: 1324 • 2014 ACR/ARHP Annual Meeting
Predictors of Disease Relapse in Juvenile Localized Scleroderma
Kathryn S. Torok¹, Katherine Kurzinski² and Christina Kelsey³, ¹Pediatric Rheumatology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, ²Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, ³Pediatric Rheumatology, University of Pittsburgh/UPMC, Pittsburgh, PA
Background/Purpose Localized scleroderma (LS) is an autoimmune disease characterized by inflammation of the skin and underlying tissue leading tissue damage including atrophy, dyspigmentation, and fibrosis. …
Abstract Number: 1302 • 2014 ACR/ARHP Annual Meeting
The Psychological Impact on Health-Related Quality of Life in Childhood-Onset Lupus
Jordan T. Jones¹, Natoshia Cunningham², Jennifer L. Huggins¹, Susmita Kashikar-Zuck³ and Hermine I. Brunner¹, ¹Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Behavioral Medicine & Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Childhood-onset lupus (cSLE) is a chronic autoimmune disease and its effect on health-related quality of life (HRQoL) has not been fully established, but, disease…
Abstract Number: 1321 • 2014 ACR/ARHP Annual Meeting
A Pilot Study to Evaluate the Feasibility of Conducting Juvenile Localized Scleroderma Comparative Effectiveness Treatment Studies
Suzanne C. Li¹, Kathryn S. Torok², Mara L Becker^3,4, Fatma Dedeoglu⁵, Polly J. Ferguson⁶, Robert C. Fuhlbrigge^7,8, Gloria C. Higgins⁹, Sandy D. Hong¹⁰, Maria F. Ibarra¹¹, Ronald Laxer¹², Thomas G. Mason II¹³, Elena Pope¹⁴, Marilynn G. Punaro¹⁵, C. Egla Rabinovich¹⁶, Katie G. Stewart¹⁵ and Brian Feldman¹⁷, ¹Pediatrics, Joseph M Sanzari Children’s Hospital, Hackensack University Medical Center, Hackensack, NJ, ²Pediatric Rheumatology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, ³Rheumatology, Children's Mercy Hospital, Kansas City, MO, ⁴Clinical Pharmacology and Rheumatology, Children's Mercy Hospital, Kansas City, MO, ⁵Rheumatology, Boston Children's Hospital, Boston, MA, ⁶Dept of Pediatrics--Rheum, University of Iowa Carver College of Medicine, Iowa City, IA, ⁷Department of Dermatology, Brigham and Women's Hospital, Boston, MA, ⁸Division of Immunology, Boston Children's Hospital, Boston, MA, ⁹Pediatric Rheumatology Ohio State University, Nationwide Childrens Hosp, Columbus, OH, ¹⁰Pediatrics-Rheumatology, U of Iowa Children's Hosp, Iowa City, IA, ¹¹Pediatric Rheumatolgy, Children's Mercy Hospital, Kansas City, MO, ¹²Rheumatology, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada, ¹³Rheumatology, Mayo Clinic Rochester, Rochester, MN, ¹⁴Dermatology, The Hospital for Sick Children, Toronto, ON, Canada, ¹⁵Pediatric Rheumatology, Texas Scottish Rite Hospital, Dallas, TX, ¹⁶Pediatric Rheumatology, Duke Univ Med Ctr, Durham, NC, ¹⁷Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada
Background/Purpose Juvenile localized scleroderma (jLS) often causes severe morbidity in the developing child, including growth defects and disfigurement. Optimal therapy is not known. The…
Abstract Number: 320 • 2014 ACR/ARHP Annual Meeting
Autoantibodies in Juvenile Systemic Sclerosis
Katharine Moore^1,2, J. Lee Nelson^3,4, Marvin J. Fritzler⁵, Marisa S. Klein-Gitelman⁶, Ann M. Reed⁷, Tzielan C. Lee⁸ and Anne M. Stevens^1,9, ¹Pediatrics, University of Washington, Seattle, WA, ²Pediatric Rheumatology, Seattle Children's Hospital, Seattle, WA, ³University of Washington, Seattle, WA, ⁴Fred Hutchinson Cancer Research Center, Seattle, WA, ⁵Mitogen Advanced Diagnostics Laboratory, Faculty of Medicine, University of Calgary, Calgary, AB, Canada, ⁶Division of Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, ⁷Rheumatology, Mayo Clinic, Rochester, MN, ⁸Pediatric Rheumatology, Stanford University School of Medicine, Stanford, CA, ⁹Center for Immunity and Immunotherapies, Seattle Children's Research Institute, Seattle, WA
Background/Purpose: There are no known biomarkers for organ involvement, response to therapy, or prognosis in juvenile systemic sclerosis (jSSc). In adults with systemic sclerosis, a…
Abstract Number: 1273 • 2013 ACR/ARHP Annual Meeting
Granulomatosis With Polyangiitis In Children Is More Severe Than In Adults. A Long-Term, Single Center, Follow Up Study
Francesco Zulian¹, Grazia Minardo², Valeria Carraro³, Franco Schiavon³ and Giorgia Martini⁴, ¹PRINTO, Genoa, Italy, ²Department of Pediatrics, University of Padua, Padua, Italy, ³Rheumatology Clinic, University of Padova, Padova, Italy, ⁴Department of Pediatrics,, University of Padua, Padua, Italy
Background/Purpose: Granulomatosis with polyangiitis (GPA) is a rare disease in childhood. Treatment strategies and clinical approach are still mostly derived from adult GPA studies. The…

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