Abstracts tagged "patient"

Abstract Number: 216 • 2017 ACR/ARHP Annual Meeting
Creation of the First Massive Open Online Course for Patients with Rheumatoid Arthritis
Sonia Tropé¹, Jean-David Cohen², Catherine Beauvais³, Didier Poivret⁴, Alain Saraux⁵, Danielle VACHER⁶, Hervé Barkatz⁷, Pascal Lacoste⁷, Valérie Weill⁸ and Gérard Thibaud⁹, ¹149 avenue du Maine, ANDAR, Paris, France, ²IMMUNO-RHEUMATOLOGY, CHU LAPEYRONIE, MONTPELLIER, France, ³Service de Rhumatologie, Hopital Saint Antoine, Paris, France, ⁴Rheumatology, Metz, France, ⁵Rheumatology, Brest University Medical School Hospital, Brest, France, ⁶expert-patient, ANDAR patient organisation, Paris, France, ⁷Hbmotion, Paris, France, ⁸hbmotion, Paris, France, ⁹ANDAR patient organisation, Paris, France
Background/Purpose: People with chronic conditions face the disease more effectively when they develop psychosocial skills and self-care. Health authorities thus recommend the organization of therapeutic…
Abstract Number: 353 • 2017 ACR/ARHP Annual Meeting
Patient Experiences of Rheumatoid Arthritis Models of Care: An International Survey
Cheryl L. Koehn¹, Kelly Lendvoy¹, Yue Ma², Linda Li³, Alison Hoens⁴, Marion Souveton⁵ and John M. Esdaile⁴, ¹Arthritis Consumer Experts, Vancouver, BC, Canada, ²Simon Fraser University, Burnaby, BC, Canada, ³Rheumatology, Arthritis Research Canada, Richmond, BC, Canada, ⁴Arthritis Research Canada, Richmond, BC, Canada, ⁵F. Hoffmann-La Roche Ltd, Basel, Switzerland
Background/Purpose: Despite the global prevalence of rheumatoid arthritis (RA), there is no single model of care (MoC) and little is known about the RA patient…
Abstract Number: 1115 • 2017 ACR/ARHP Annual Meeting
Long-Term Adherence to Urate-Lowering Therapy in Gout: Do Not Blame on the Patients
Fernando Perez-Ruiz¹ and Sandra Chinchilla², ¹Rheumatology Division, Hospital Universitario Cruces, Baracaldo, Spain, ²BioCruces Health Research Institute, Barakaldo, Spain
Background/Purpose: adherence to urate-lowering treatment (ULT) in patients with gout is reported to be lower than 50% in the first year and below 20% at…
Abstract Number: 1856 • 2017 ACR/ARHP Annual Meeting
Patient and Physician Perspectives on Content Value for Educational Material Regarding Rare Rheumatic Diseases
Chris Hatzis¹, Elizabeth Soto-Cardona², Jessica K. Gordon² and Robert F. Spiera², ¹Medicine, Hospital for Special Surgery, New York, NY, ²Rheumatology, Hospital for Special Surgery, New York, NY
Background/Purpose: Internet-based information is important for patients and their caregivers. For the past 4 years, our academic medical center’s Center for Scleroderma, Vasculitis & Myositis…
Abstract Number: 1861 • 2017 ACR/ARHP Annual Meeting
Evaluation of a Longstanding Telephone Peer Counseling Service on People with Systemic Lupus Erythematosus and Their Loved Ones
Priscilla Toral¹, Melissa T. Flores¹, Roberta Horton¹ and Jillian Rose², ¹Social Work Programs, Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, New York, NY
Background/Purpose: Studies show telephone peer support has been used to address a range of health concerns in people living with chronic illness. A phone evaluation…
Abstract Number: 2120 • 2017 ACR/ARHP Annual Meeting
Quality, Content and Readability Assessment of Patient Education Websites Relating to Ehlers-Danlos Syndrome
Ahmed Omar^1,2, Laura Passalent³, Leslie Soever⁴, Medha Soowamber⁵ and Simon Carette⁶, ¹Rheumatology, Toronto Western Hospital, University of Toronto, Toronto, ON, Canada, ²Rheumatology, Mount Sinai Hospital, Toronto, ON, Canada, ³Allied Health, Toronto Western Hospital, Toronto, ON, Canada, ⁴Toronto General Hospital, Toronto, ON, Canada, ⁵University Health Network, Toronto, ON, Canada, ⁶Division of Rheumatology, Mount Sinai Hospital, University of Toronto, Toronto, ON, Canada
Background/Purpose: Ehlers-Danlos Syndrome (EDS) is a heritable connective tissue disease that presents in myriad ways. Education is an essential component in managing this complex condition.…
Abstract Number: 2250 • 2017 ACR/ARHP Annual Meeting
Linguistic Differences in Gout-Related Online Content: A Comparison of Professional Health Literature for Consumers Vs Patients’ Online Discussions of Gout
W. Benjamin Nowell¹, Kayla Jordan², Kelly Gavigan¹, Louis Tharp¹, Jeffrey R. Curtis³ and James Pennebaker⁴, ¹Global Healthy Living Foundation, Upper Nyack, NY, ²University of Texas at Austin, Austin, TX, ³Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, AL, ⁴Department of Psychology, University of Texas at Austin, Austin, TX
Background/Purpose: Non-adherence to gout medication is high. This may be due in part to patients’ belief that gout is primarily caused by overindulgence in certain…
Abstract Number: 2262 • 2017 ACR/ARHP Annual Meeting
Knowledge, Beliefs and Concerns about Osteoporosis – a Qualitative Synthesis
Jude des Bordes¹, Seema Prasad², Gregory Pratt³, Maria Suarez-Almazor¹ and Maria A. Lopez-Olivo¹, ¹Section of Rheumatology and Clinical Immunology, Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, Houston, TX, ²Gastroenterology Medical Oncology, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, Houston, TX, ³Research Medical Library, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, Houston, TX
Background/Purpose: Educating patients with osteoporosis about bone health could increase their knowledge and self-efficacy. These can help them adopt healthy lifestyles to prevent osteoporosis-associated fractures.…
Abstract Number: 2301 • 2017 ACR/ARHP Annual Meeting
Assessing the Utility and Impact of Musculoskeletal Ultrasound in a Large Pediatric Rheumatology Clinic
Onengiya Harry¹, Jennifer L. Huggins², Janalee Taylor³, Michael J. Holland⁴ and Tracy Ting⁵, ¹Cincinnati Childrens' Hospital Medical Center, Cincinnati, OH, ²Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵Rheumatology/MLC 4010, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Musculoskeletal ultrasound (MSUS) use in the care of pediatric rheumatology patients is increasing. Yet, despite the growing availability of MSUS, it remains unclear how…
Abstract Number: 2317 • 2017 ACR/ARHP Annual Meeting
Knowledge Translation in Juvenile Idiopathic Arthritis in Canada: A Focus on Parents of Children with JIA
Julia Wright¹, Benjamin Rose-Davis², Michelle Batthish³, Tania Cellucci⁴, Ciarán M. Duffy⁵, Lori Tucker⁶, Adam Huber⁷, Bianca Lang⁸, Deborah M. Levy⁹, Dax Rumsey¹⁰, Karen N Watanabe Duffy¹¹, Janet Curran¹² and Elizabeth Stringer¹³, ¹Faculty of Medicine, Dalhousie University, Halifax, NS, Canada, ²Department of Computer Science, Health Informatics, Dalhousie University, Halifax, NS, Canada, ³Division of Pediatric Rheumatology, McMaster Children's Hospital, Hamilton, ON, Canada, ⁴McMaster University, hamilton, ON, Canada, ⁵Children's Hospital of Eastern Ontario and University of Ottawa, Ottawa, ON, Canada, ⁶BC Children's Hospital, Vancouver, BC, Canada, ⁷IWK Health Centre, Halifax, NS, Canada, ⁸Pediatrics, IWK Health Centre, Halifax, NS, Canada, ⁹Division of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ¹⁰Stollery Children's Hospital, Edmonton, AB, Canada, ¹¹Rheumatology, Children's Hospital of Eastern Ontario and University of Ottawa, Ottawa, ON, Canada, ¹²Department of Pediatrics, IWK Health Centre, Halifax, NS, Canada, ¹³Department of Rheumatology, IWK Health Centre, Halifax, NS, Canada
Background/Purpose: The Research in Canadian Children with Childhood Arthritis Emphasizing Outcomes (ReACCh-Out) cohort (2005-2010) has characterized outcomes for Canadian children with Juvenile Idiopathic Arthritis (JIA).…
Abstract Number: 2952 • 2017 ACR/ARHP Annual Meeting
A Randomized Controlled Trial (RCT) of an Internet-Based Self-Management Program for Adolescents with Juvenile Idiopathic Arthritis (JIA)
Jennifer N. Stinson¹, Sarah Campillo², Tania Cellucci³, Paul Dancey⁴, Ciarán M. Duffy⁵, Janet Ellsworth⁶, Brian M. Feldman⁷, Adam Huber⁸, Nicole Johnson⁹, Patrick McGrath⁸, Alan Rosenberg¹⁰, Natalie J. Shiff¹¹, Lynn R. Spiegel¹², Shirley M.L. Tse¹³, Lori Tucker¹⁴, J. Charles Victor¹⁵ and Stephanie Luca¹⁶, ¹Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada, ²Montreal Children's Hospital, Montreal, QC, Canada, ³McMaster University, hamilton, ON, Canada, ⁴Pediatrics, Janeway Children's Hospital, St. John's, NL, Canada, ⁵Children's Hospital of Eastern Ontario and University of Ottawa, Ottawa, ON, Canada, ⁶University of Alberta, Edmonton, AB, Canada, ⁷Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ⁸IWK Health Centre, Halifax, NS, Canada, ⁹Alberta Children's Hospital, University of Calgary, Calgary, AB, Canada, ¹⁰Pediatrics, University of Saskatchewan, Saskatoon, SK, Canada, ¹¹University of Florida, Gainesville, FL, ¹²Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada, ¹³Rheumatology, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada, ¹⁴BC Children's Hospital, Vancouver, BC, Canada, ¹⁵University of Toronto, Toronto, ON, Canada, ¹⁶The Hospital for Sick Children, Toronto, ON, Canada
Background/Purpose: Juvenile Idiopathic Arthritis (JIA) is a common chronic childhood illness associated with negative impact on health-related quality of life (HRQL). As teens mature, they…
Abstract Number: 192 • 2017 ACR/ARHP Annual Meeting
Patient Education Materials in Rheumatology: Only Adequate at Best
Aleksander Lenert¹ and Sujin Kim², ¹Internal Medicine, Div. of Rheumatology, University of Kentucky, Lexington, KY, ²Division of Biomedical Informatics, College of Medicine, University of Kentucky, Lexington, KY
Background/Purpose: Low health literacy and reading ability of rheumatologic patients is associated with poor outcomes [1]. In practice, patient education is commonly delivered via patient…
Abstract Number: 66 • 2017 Pediatric Rheumatology Symposium
Feasibility Testing of An Internet-Based Psycho-Educational Game for Children with Juvenile Idiopathic Arthritis and Their Parents
Jennifer N. Stinson¹, Mark Connelly², Adam Huber³, Nadia Luca⁴, Lynn R. Spiegel⁵, Argerie Tsimicalis⁶, Stephanie Luca⁷, Naweed Tajuddin⁷, Roberta Berard⁸, Julie Barsalou⁹, Sarah Campillo^10,11, Brian Feldman¹², Shirley M.L. Tse¹³, Paul Dancey¹⁴, Ciarán M. Duffy¹⁵, Nicole Johnson¹⁶, Patrick McGrath³, Natalie J. Shiff¹⁷, Lori Tucker¹⁸ and J. Charles Victor¹⁹, ¹Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada, ²Children's Mercy Hospital, Kansas City, MO, ³IWK Health Centre, Halifax, NS, Canada, ⁴Pediatric Rheumatology, University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada, ⁵Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada, ⁶McGill University, Montreal, QC, Canada, ⁷The Hospital for Sick Children, Toronto, ON, Canada, ⁸Pediatrics, Children's Hospital, London Health Sciences Centre, London, ON, Canada, ⁹CHU Sainte-Justine, Université de Montréal, Montreal, QC, Canada, ¹⁰Rheumatology, Montreal Children's Hospital, Montreal, QC, Canada, ¹¹Montreal Children's Hospital, Montreal, QC, Canada, ¹²Department of Rheumatology, Hospital for Sick Children, Toronto, ON, Canada, ¹³Rheumatology, The Hospital for Sick Children and University of Toronto, Toronto, ON, Canada, ¹⁴Pediatrics, Janeway Children's Hospital, St. John's, NL, Canada, ¹⁵Children's Hospital of Eastern Ontario and University of Ottawa, Ottawa, ON, Canada, ¹⁶Pediatrics, University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada, ¹⁷University of Florida, Gainesville, FL, ¹⁸Pediatric Rheum/Rm K4-120, BC Childrens Hospital, Vancouver, BC, Canada, ¹⁹University of Toronto, Toronto, ON, Canada
Background/Purpose: Juvenile Idiopathic Arthritis (JIA) is a common chronic illness in childhood. The responsibility of JIA management during the younger years is shared among family…
Abstract Number: 15 • 2017 Pediatric Rheumatology Symposium
An Internet-based Self-management Program for Adolescents with Juvenile Idiopathic Arthritis – A Randomized Controlled Trial
Jennifer N. Stinson¹, Sarah Campillo², Tania Cellucci³, Paul Dancey⁴, Ciarán M. Duffy⁵, Janet Ellsworth⁶, Brian Feldman⁷, Adam Huber⁸, Nicole Johnson⁹, Patrick McGrath⁸, Alan Rosenberg¹⁰, Natalie J. Shiff¹¹, Lynn R. Spiegel¹², Shirley M.L. Tse¹³, Lori Tucker¹⁴, J. Charles Victor¹⁵ and Stephanie Luca¹⁶, ¹Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada, ²Montreal Children's Hospital, Montreal, QC, Canada, ³Pediatrics/Rheumatology, McMaster Children's Hospital, Hamilton, ON, Canada, ⁴Pediatrics, Janeway Children's Hospital, St. John's, NL, Canada, ⁵Children's Hospital of Eastern Ontario and University of Ottawa, Ottawa, ON, Canada, ⁶University of Alberta, Edmonton, AB, Canada, ⁷Department of Rheumatology, Hospital for Sick Children, Toronto, ON, Canada, ⁸IWK Health Centre, Halifax, NS, Canada, ⁹Pediatrics, University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada, ¹⁰Pediatrics, University of Saskatchewan, Saskatoon, SK, Canada, ¹¹University of Florida, Gainesville, FL, ¹²Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada, ¹³Rheumatology, The Hospital for Sick Children and University of Toronto, Toronto, ON, Canada, ¹⁴Pediatric Rheum/Rm K4-120, BC Childrens Hospital, Vancouver, BC, Canada, ¹⁵University of Toronto, Toronto, ON, Canada, ¹⁶The Hospital for Sick Children, Toronto, ON, Canada
Background/Purpose: Juvenile Idiopathic Arthritis (JIA) is a common chronic childhood illness associated with physical and emotional symptoms that can negatively impact health-related quality of life…
Abstract Number: 1153 • 2016 ACR/ARHP Annual Meeting
Exploring Perceptions of a Rheumatoid Arthritis Specific Smoking Cessation Programme
Pip Aimer¹, Lisa K. Stamp², Simon Stebbings³, Vicky Cameron¹, Sandra Kirby⁴ and Gareth Treharne⁵, ¹Medicine, University of Otago, Christchurch, New Zealand, ²University of Otago, Christchurch, New Zealand, ³Department of Medicine, Dunedin School of Medicine, University of Otago, Dunedin, New Zealand, ⁴Arthritis New Zealand, Wellington, New Zealand, ⁵Psychology, University of Otago, Dunedin, New Zealand
Background/Purpose: Premature mortality rates in individuals with rheumatoid arthritis (RA) are significantly higher in current smokers compared to those who have never smoked, making smoking…

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