ACR Meeting Abstracts

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Abstracts tagged "Patient reported outcomes"

  • Abstract Number: 1494 • ACR Convergence 2020

    Patient-Reported Adverse Events, Quality of Life and Treatment Adherence in Juvenile Idiopathic Arthritis: Analysis of Two Large International Cohorts

    Alessandra Alongi1, Maria Trachana2, Valda Stanevicha3, Laura Marinela Ailioaie4, Elena Tsitsami5, Angelo Ravelli6, Alessandro Consolaro6 and Nicolino Ruperto7, 1IRCCS Istituto Giannina Gaslini, Genoa, Italy, 2Aristotle University of Thessaloniki, Thessaloníki, Greece, 3Riga Stradins University, Riga, Latvia, 4Alexandru Ioan Cuza University of Iasi, Iasi, Romania, 5Aghia Sophia Childrens Hospital, Athens, Greece, 6Università degli Studi di Genova, Genoa, Italy, 7Istituto Giannina Gaslini, Genova, Italy

    Background/Purpose: Juvenile idiopathic arthritis (JIA) patients may experience significant medication-related adverse effects (AEs), which may adversely affect health-related quality of life (HRQOL), daily activities and…
  • Abstract Number: 1733 • ACR Convergence 2020

    Patients with Rheumatoid Arthritis and Comorbid Depression Have High Levels of RAPID3 (Routine Assessment of Patient Index Data) and FAST3 (Fibromyalgia Assessment Screening Index) on a Multidimensional Health Assessment Questionnaire (MDHAQ)

    Rosa Morlà1, Tengfei Li2, Jose Inciarte-Mundo3, Isabel Castrejon Fernandez4, Jose Gómez-Puerta5, Raimon Sanmartí5 and Theodore Pincus6, 1Hospital Universitari Clínic de Barcelona, Barcelona, Spain, 2Georgetown University, Washigton, 3Hospital Universitari Clínic de Barcelona, Barcelona, 4Hospital General Universitario Gregorio Marañón, Chicago, IL, 5Hospital Universitari Clínic de Barcelona, Barcelona, Catalonia, Spain, 6Rush University Medical Center, Chicago, IL

    Background/Purpose: Patients with rheumatoid arthritis (RA) have higher comorbid depression and/or fibromyalgia (FM) than the general population. A multidimensional health-assessment questionnaire (MDHAQ) includes two queries…
  • Abstract Number: 0137 • ACR Convergence 2020

    PROMIS-29 Scores Are Significantly Higher in Patients with Rheumatoid Arthritis Who Meet Criteria for Co-morbid Fibromyalgia (FM) Than in Those with Rheumatoid Arthritis and No FM

    Kathryn Gibson1, Geraldine Hassett2 and Theodore Pincus3, 1Liverpool Hospital, Sydney, Australia, 2Liverpool Hospital, Sydney, Liverpool BC, NSW, New South Wales, Australia, 3Rush University Medical Center, Chicago, IL

    Background/Purpose: The Patient-Reported Outcomes Measurement Information System short form 29 (PROMIS-29)1 uses computer assisted technology (CAT) to derive patient assessments.  High PROMIS-29 scores are seen in…
  • Abstract Number: 0160 • ACR Convergence 2020

    Use of PROMIS29 Across Inflammatory Arthritis: Score Distributions and Impact of Contextual Factors

    Alexis Ogdie1, Kaleb Michaud2, Mark Hwang3, Sofia Pedro4 and Patricia Katz5, 1University of Pennsylvania, Philadelphia, PA, 2FORWARD-The National Data Bank for Rheumatic Diseases; University of Nebraska Medical Center, Wichita, 3McGovern Medical School at the University of Texas Health Science Center at Houston, Houston, TX, 4FORWARD-The National Data Bank for Rheumatic Diseases, Wichita, 5University of California, San Francisco, Novato, CA

    Background/Purpose: The Patient-Reported Outcome Measure Information System (PROMIS) includes a set of instruments developed to measure physical, mental and social health. PROMIS measures have been…
  • Abstract Number: 0344 • ACR Convergence 2020

    Use of the BASDAI in Psoriatic Arthritis Patients with and Without Axial Disease

    Soumya Reddy1, M. Elaine Husni2, Jose Scher3, Ethan Craig4, Alexis Ogdie4 and Jessica Walsh5, 1NYU School of Medicine, New York, NY, 2Cleveland Clinic, Cleveland, OH, 3NYU School of Medicine, New York City, 4University of Pennsylvania, Philadelphia, PA, 5University of Utah School of Medicine, George E. Wahlen Veteran Affairs Medical Center, Salt Lake City, UT

    Background/Purpose: The Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) is increasingly being used to assess the activity of axial disease in patients with psoriatic arthritis…
  • Abstract Number: 0724 • ACR Convergence 2020

    Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis (JIA) Correlate with Pain and Stress Using Patient-Reported Outcomes Measurement Information System (PROMIS®)

    Danielle Fair1, Judyann Olson2, Jan Lemke1, Stella Protopapas3, Ke Yan2 and Jian Zhang2, 1Children's Wisconsin, Milwaukee, WI, 2Medical College of Wisconsin, Milwaukee, WI, 3Riley Children's Hospital at Indiana University, Indianapolis, IN

    Background/Purpose: Children with chronic diseases have higher rates of mental health issues and less favorable outcomes than the general pediatric population.  Children with JIA experience…
  • Abstract Number: 1141 • ACR Convergence 2020

    Reversing Seasonal Decline of T2T Outcome in RA Patients Under Double Hits by Chinese New Year and COVID-19 Epidemic via Online Interaction with SSDM

    Rong Mu1, Hongbin Li2, Zhanyun Da3, Anbin Huang4, Hongzhi Wang5, Jing Lu6, Jianhong Wu7, Shengtao Zhang8, Yikai Yu9, Chun Li10, Shouxin Li9, Peng Ji11, Hua Wei12, Bin Wu13, Zhenbin Li14, Lingxun Shen15, Yanping Zhao16, Yi Zhao17, Xiaoqiang Hou18, Hui Xiao19, Yuhua Jia20, Bing Wu20, Yonggang Zhao20, Xin Chen19, Miaomiao Song20, Fei Xiao20 and Zhanguo Li21, 1People's Hospital, Beijing University Medical School, Beijing, Beijing, China (People's Republic), 2The Affiliated Hospital of Inner Mongolia Medical University, Hohhot, China (People's Republic), 3The affiliated Hospital of Nantong University, Nantong, Jiangsu, China (People's Republic), 4Union Hospital Affiliated Tongji Medical College of Huazhong University of Science and Technology, WuHan, China (People's Republic), 5The First Hospital of Jiaxing, Jiaxing, China (People's Republic), 6First Affiliated Hospital of China Medical University, Shenyang, China (People's Republic), 7Department of Rheumatology, Dazhou Central Hospital, Dazhou, China (People's Republic), 8Tongji Hospital Affiliated Tongji Medical College of Huazhong University of Science and Technology, Wuhan, China (People's Republic), 9Tongji Hospital Affiliated to Tongji Medical College of HUST, Wuhan, Hubei, China (People's Republic), 10People's Hospital, Beijing University Medical School, beijing, China (People's Republic), 11The first affiliated hospital of xinjiang medical university, Urumqi, Xinjiang, China (People's Republic), 12Northern Jiangsu People's Hospital, Yangzhou, China (People's Republic), 13Chongqing Hospital of Traditional Chinese Medicine, chongqing, China (People's Republic), 14Chinese people ’s liberation army joint service support force 980 hospital, shijiazhuang, Jiangxi, China (People's Republic), 15Union Hospital Affiliated Tongji Medical College of HUST, Wuhan, Hubei, China (People's Republic), 16First Affiliated Hospital of Harbin Medical University, Harbin, China (People's Republic), 17Xuanwu Hospital, Capital Medical University, Beijing, China, Beijing, China (People's Republic), 18Yichang Central People's Hospital, Beijing, China (People's Republic), 19Shanghai Gothic Internet Technology Co., Ltd., Shanghai, Shanghai, China (People's Republic), 20Shanghai Gothic Internet Technology Co., Ltd., Shanghai, China (People's Republic), 21Peking University People’s Hospital, Xicheng, Beijing, China (People's Republic)

    Background/Purpose: Treat-to-target (T2T), achieving a DAS28 below 3.2 is the main management strategy for RA. The Chinese New Year is a long holiday started in…
  • Abstract Number: 1275 • ACR Convergence 2020

    Unexpected Changes in Physical and Psychological Measures Among Georgia Lupus Patients During the Early Weeks of the COVID-19 Pandemic in the United States, March 30–April 21, 2020

    S. Sam Lim1, Kristina Theis2, Charmayne Dunlop-Thomas1, Gaobin Bao1, Charles Helmick2, Caroline Gordon3 and Cristina Drenkard4, 1Emory University, Atlanta, GA, 2Centers for Disease Control and Prevention, Atlanta, GA, 3University of Birmingham, Birmingham, England, United Kingdom, 4Division of Rheumatology, Department of Medicine, Emory School of Medicine, Atlanta, GA

    Background/Purpose: An infectious disease outbreak can lead to negative physical and psychological consequences in the general public, as shown by the early COVID-19 pandemic, through…
  • Abstract Number: 1586 • ACR Convergence 2020

    Rheum Service: Comprehensive Virtual Care During COVID-19

    Stephanie Gottheil1 and Joseph Carson1, 1London Rheumatology, London, ON, Canada

    Background/Purpose: During COVID-19, patients require timely access to rheumatologists while adhering to physical distancing guidelines. In this quality improvement project, we developed a comprehensive virtual…
  • Abstract Number: 1734 • ACR Convergence 2020

    The Challenge of Assessing Wellbeing from the Patients` Perspective in Early Rheumatoid Arthritis

    Diederik De Cock1, Tianna Poffe2, Geert Verbeke2, Sofia Pazmino1, Veerle Stouten1, Delphine Bertrand1, Rene Westhovens3 and Patrick Verschueren4, 1KU Leuven, Leuven, Belgium, 2KU Leuven, Leuven, 3University Hospitals Leuven, Belgium, Leuven, Belgium, 4University Hospital Leuven, Leuven, Belgium

    Background/Purpose: Although more effective therapeutics and treatment strategies for Rheumatoid Arthritis (RA) have improved many patient-reported outcomes (PROs), still a sizeable number of patients in…
  • Abstract Number: 0138 • ACR Convergence 2020

    Alignment and Discordances in Treatment Perceptions and Shared Decision-Making Among RA Patients and Rheumatology Care Teams

    Robert Levin1, Christopher Parker2, Kostas Botsoglou3, Jigar Shah4, Nimesh Dayal5, Kristina Fajardo6, Laura Simone6, Jeff Carter6 and Tamar Sapir6, 1University of South Florida, Clearwater, FL, 2Austin Diagnostic Clinic, Austin, TX, 3Rheumatology Center WNY, Buffalo, NY, 4Arthritis and Rheumatology Center of South Florida, Margate, FL, 5Arthritis Center of Orlando, Ocoee, FL, 6PRIME Education, LLC, Fort Lauderdale, FL

    Background/Purpose: Evidence-based guidelines for rheumatoid arthritis (RA) call for shared decision-making (SMD) as a method to personalize treatment decisions and achieve treat-to-target goals. We assessed alignment…
  • Abstract Number: 0161 • ACR Convergence 2020

    Validation of Patient-reported Outcomes (PRO) Lung Questionnaires for Systemic Juvenile Idiopathic Arthritis (SJIA) Patients at Risk for Lung Disease

    Kim Nguyen1, Christopher Towe2, Shima Yasin3, Alexei Grom4, Hermine I Brunner5 and Grant Schulert5, 1Veterans Affairs Cincinnati, University of Cincinnati Medical Center, Cincinnati, 2Cincinnati Children's Medical Hospital Center, Cincinnati, 3Cincinnati Children's Hospital Medical Center, Cincinnati, 4Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 5PRCSG, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH

    Background/Purpose: Systemic Juvenile Idiopathic Arthritis (SJIA) involves dysregulation of inflammation and innate immunity, and can cause life-threatening complications including lung disease (LD). However, there are…
  • Abstract Number: 0345 • ACR Convergence 2020

    Effectiveness and Safety of Apremilast in Biologic-Naive versus Biologic-Experienced Patients with Psoriatic Arthritis in Real-World Clinical Practice Settings in Germany: Interim Analysis of an Ongoing, Multicenter, Prospective, Non-interventional Study

    Jurgen Wollenhaupt1, Christian Bach2 and Josefine Roemmler-Zehrer3, 1Rheumatologie im Struenseehaus, Hamburg, Germany, 2Amgen GmbH, München, Germany, 3Amgen GmbH, München

    Background/Purpose: Apremilast (APR) was associated with improvements in physician-assessed and patient-reported outcomes in a large cohort of patients with PsA based on a 1-year interim…
  • Abstract Number: 0725 • ACR Convergence 2020

    A Data Science Evaluation of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) Questionnaire for Improving Management of JIA Patients

    Humbert Quesada-Masachs1, Michalis Faloutsos2, Shomit Ghose3, Sara Marsal4, Consuelo Modesto4 and Estefania Quesada-Masachs5, 1University of California Riverside, San Diego, 2University of California Riverside, Riverside, 3University of California Berkeley, San Francisco, 4Hospital Universitari Vall d'Hebron, Barcelona, Spain, 5Hospital Universitari Vall d'Hebron, San Diego

    Background/Purpose: The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a questionnaire developed to comprehensively assess Juvenile Idiopathic Arthritis (JIA) patients. Despite being translated into 54…
  • Abstract Number: 1142 • ACR Convergence 2020

    Implementation of an Evidence-based Transition Clinic in a Pediatric Rheumatology Academic Institution

    Rebecca Overbury1, Tracy Frech2, John Bohnsack3, CJ Inman1, Sara Stern1, Karen James1, Erin Treemarcki4 and Aimee Hersh4, 1University of Utah and Primary Children's Hospital, Salt Lake City, UT, 2University of Utah and Salt Lake Veterans Affair Medical Center, Salt Lake City, UT, 3University of Utah and Primary Children's Hospital, Cincinnati, OH, 4University of Utah and Primary Children's Hospital, Salt Lake City

    Background/Purpose: Transition from pediatric to adult rheumatology care is more likely to be successful if a transition program is in place. Previously successful interventions to…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

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