Abstracts tagged "Patient questionnaires"

Abstract Number: 2629 • 2015 ACR/ARHP Annual Meeting
The Most Frequent Fears and Beliefs of 226 Patients with Rheumatoid Arthritis or Spondyloarthritis, Using a Novel Questionnaire
Laure Gossec^1,2, Pierre Chauvin^3,4, Christophe Hudry⁵, Florence Mathoret-Philibert⁶, Maud Poussière⁷, Thibault de Chalus⁸, Francoise Russo-Marie⁹, Jean-Michel Joubert⁸, Alain Saraux¹⁰ and Francis Berenbaum^1,11, ¹Rheumatology Department, Sorbonne Universités, Université Pierre et Marie Curie, Paris, France, ²Rheumatology Department, AP-HP, Hôpital Pitié Salpêtrière, Paris, France, ³Department of Social Epidemiology, Sorbonne Universités, Université Pierre et Marie Curie, Paris, France, ⁴Department of Social Epidemiology, Pierre Louis Institute of Epidemiology and Public Health, Paris, France, ⁵Rheumatology, AP-HP, Hôpital Cochin, Paris, France, ⁶Clinical Psychology Department, AP-HP, Hôpital Cochin, Paris, France, ⁷Independent Researcher, Paris, France, ⁸UCB Pharma, Colombes, France, ⁹Arthritis Foundation Courtin, Neuilly-sur-Seine, France, ¹⁰Rheumatology Department, CHU de la Cavale Blanche, Brest Cedex, France, ¹¹Rheumatology Department, AP-HP, Hôpital Saint-Antoine, Paris, France
Background/Purpose: Patients with chronic inflammatory disorders such as rheumatoid arthritis (RA) or spondyloarthritis (SpA) create personal sets of fears and beliefs related to their disease.…
Abstract Number: 2632 • 2015 ACR/ARHP Annual Meeting
Development and Validation of a Questionnaire Assessing the Fears and Beliefs of Patients Suffering from Chronic Rheumatic Diseases
Laure Gossec^1,2, Alain Saraux³, Christophe Hudry⁴, Florence Mathoret-Philibert⁵, Maud Poussière⁶, Thibault de Chalus⁷, Francoise Russo-Marie⁸, Jean-Michel Joubert⁷, Pierre Chauvin⁹ and Francis Berenbaum^1,10, ¹Rheumatology Department, Sorbonne Universités, Université Pierre et Marie Curie, Paris, France, ²Rheumatology Department, AP-HP, Hôpital Pitié Salpêtrière, Paris, France, ³Rheumatology Department, CHU de la Cavale Blanche, Brest Cedex, France, ⁴Rheumatology, AP-HP, Hôpital Cochin, Paris, France, ⁵Clinical Psychology Department, AP-HP, Hôpital Cochin, Paris, France, ⁶Independent Researcher, Paris, France, ⁷UCB Pharma, Colombes, France, ⁸Arthritis Foundation Courtin, Neuilly-sur-Seine, France, ⁹Department of Social Epidemiology, Sorbonne Universités, Université Pierre et Marie Curie, Paris, France, ¹⁰Rheumatology Department, Hôpital Saint-Antoine, Paris, France
Background/Purpose: Questionnaires assessing the beliefs of patients with chronic rheumatic diseases mainly focus on medications.1A validated questionnaire evaluating patients' fears and beliefs towards their disease…
Abstract Number: 26 • 2015 ACR/ARHP Annual Meeting
Higher Scores of Women Compared to Men for Most Clinical Measures of Rheumatoid Arthritis (RA) Status: Greater Differences for Patient Self-Report Scores Than for Rheumatologist Estimates: A Cross-Sectional 3 Center Study from Routine Care
Isabel Castrejón¹, Martin Bergman², Yusuf Yazici³, Annie Huang¹, Joel A. Block¹ and Theodore Pincus¹, ¹Rheumatology, Rush University Medical Center, Chicago, IL, ²Division of Rheumatology, Taylor Hospital, Ridley Park, PA, ³NYU Hospital for Joint Diseases, New York, NY
Background/Purpose: Higher scores for women compared to men have been reported for all 7 rheumatoid arthritis (RA) Core Data Set measures (1, 2). Most of…
Abstract Number: 2971 • 2014 ACR/ARHP Annual Meeting
Patient’s Self-Monitoring Via Smartphone: The Compass Study Correlation Between Patient Self-Assessment of Rheumatoid Arthritis Disease Activity Via Smartphone Technology and Physicians’ Validated Scores
Ruediger Mueller¹, Ulrich Walker², Diego Kyburz³, Robert Theiler⁴, Adrian Forster⁵, Fabiana Ganz⁶ and Patrick Dufner⁷, ¹Rheumatology, Kantonspital St. Gallen, St. Gallen, Switzerland, ²Department of Rheumatology, Basel University, basel, Switzerland, ³Rheumatology, University Hospital, Basel, Switzerland, ⁴Rheumatology, Triemli spital, Zurich, Switzerland, ⁵Spital Thurgau AG, Diessenhofen, Switzerland, ⁶Medical Immunology, Abbvie AG, Baar, Switzerland, ⁷Immunology, Abbvie AG, Baar, Switzerland
Background/Purpose In clinical practice, patients with RA are usually seen every 3 to 6 months1. Although desirable, monthly visits with assessments of disease activity are…
Abstract Number: 1347 • 2014 ACR/ARHP Annual Meeting
Understanding Vaccination Rates Among Patients with Rheumatoid Arthritis
Diana S Sandler¹, Eric M. Ruderman², Tiffany Brown³, Ji Young Lee³, Amanda Ozanich³, David T Liss³ and David W Baker³, ¹Medicine/Rheumatology, Northwestern University, Chicago, IL, ²Div of Rheumatology, Northwestern University, Chicago, IL, ³Northwestern University, Chicago, IL
Background/Purpose: Vaccinations are important for patients with rheumatoid arthritis (RA) who may receive immunosuppressive therapies that increase their risk of infection. The Advisory Committee on…
Abstract Number: 1934 • 2013 ACR/ARHP Annual Meeting
Scores On The Multidimensional Health Assessment Questionnaire (MDHAQ) For “Walk 2 Miles Or 3 Kilometers,” “Poor Sleep,” and “Participate In Recreation,” Are Higher, Indicating Poorer Status, Than Scores For 8 Activities Derived From The Health Assessment Questionnaire (HAQ)
Kathryn Gibson¹, Sung-Hoon Park^2,3 and Theodore Pincus⁴, ¹Liverpool Hospital and University of New South Wales, Sydney, Australia, ²NYU Hospital for Joint Diseases and New York University School of Medicine, New York, NY, ³Catholic University of Daegu School of Medicine, Daegu, South Korea, ⁴Rheumatology, Rush University Medical Center, Chicago, IL
Background/Purpose: The HAQ [Arthritis Rheum 1980;23:137] has been used in almost all rheumatoid arthritis (RA) clinical trials conducted over the last two decades, and provides…
Abstract Number: 1913 • 2013 ACR/ARHP Annual Meeting
Expectations RA Patients Have For Their Treatment – A Comparison Of Clinical Results For Biologic and Disease-Modifying Anti-Rheumatic Drug Treated Patients Using Multiple Medical Cohorts
Tsukasa Matsubara^1,2, Hiroaki Matsuno², Tomomaro Izumihara², Yuichi Takahashi², Akira Sagawa², Motohiro Oribe², Eisuke Shono², Kensuke Kume², Masanori Adachi², Yuichi Nishioka², Nobumasa Miyake², Keisuke Hashimoto², Toshikaki Miyamoto², Shigeto Kiyokawa², Tomohiko Yoshida², Syoichi Kondo², Yoshiki Shiohira², Takanori Azuma², Yukio Sato², Masaaki Yoshida², Kenji Mannami², Akihiko Nakamura², Yasuhiko Hirabarashi², Keiko Funahashi³ and James E. Middleton⁴, ¹Department of Orthopedics, Matsubara Mayflower Hospital, Kato, Japan, ²Japanese Clinician's Biologic Research Group, Kobe, Japan, ³Department of Clinical Research, Matsubara Mayflower Hospital, Kato, Japan, ⁴Research Institute of Joint Diseases, Kobe, Japan
Background/Purpose: Treat to Target (T2T) primary principal - “The treatment of rheumatoid arthritis must be based on a shared decision between patient and rheumatologist”. Japan…
Abstract Number: 1557 • 2013 ACR/ARHP Annual Meeting
Assessing The Real Life Impact Of Psoriatic Arthritis On Disability, Quality Of Life, and Provider Satisfaction
M. Elaine Husni¹, Daniel Duch² and Neil J. Korman³, ¹Rheumatology Dept A50, Cleveland Clinic Foundation, Cleveland, OH, ²Curatio CME Institute, Exton, PA, ³Case Western Reserve Univ (Uni, University Hospitals Dermatolo, Cleveland, OH
Background/Purpose: Despite the availability of more targeted therapies for psoriatic arthritis (PsA), an assessment of the impact these have had on patient well-being has not recently…
Abstract Number: 1049 • 2013 ACR/ARHP Annual Meeting
Formal Education Level Explains Variation In Rheumatoid Arthritis (RA) Core Data Set Measures and Indices In Korean Patients At Higher Levels Of Significance Than Age, Sex, and Duration Of Disease
Sung-Hoon Park^1,2, Isabel Castrejón³, Jung-Yoon Choe¹, Seong-Kyu Kim¹, Hwajeong Lee¹, Sang Gyu Kwak¹ and Theodore Pincus³, ¹Catholic University of Daegu School of Medicine, Daegu, South Korea, ²NYU Hospital for Joint Diseases and New York University School of Medicine, New York, NY, ³Rheumatology, Rush University Medical Center, Chicago, IL
Background/Purpose: Poor health is associated with low socioeconomic status (SES), with higher prevalence, greater severity and earlier mortality of many diseases, including rheumatoid arthritis (RA).…
Abstract Number: 2606 • 2012 ACR/ARHP Annual Meeting
Patient Reported Outcomes in Early Arthritis Patients
L. Heimans¹, K.V.C. Wevers-de Boer¹, K. Visser¹, R. Goekoop², T.H.E. Molenaar³, B.A. Grillet⁴, Tom Huizinga¹ and C.F. Allaart¹, ¹Rheumatology, Leiden University Medical Center, Leiden, Netherlands, ²Haga Hospital, The Hague, Netherlands, ³Dept of Rheumatology, Groene Hart Hospital, Gouda, Netherlands, ⁴Department of Rheumatology, Zorgsaam Hospital, Terneuzen, Netherlands
Background/Purpose: To investigate patient reported outcomes (PROs) of functioning and health related quality of life (HRQOL) after 1 year remission (DAS
Abstract Number: 2236 • 2012 ACR/ARHP Annual Meeting
Cross Cultural Validation of English and French Versions of a Disease Specific Patient Reported Outcome Measure for Lupus in Canada
Josiane Bourré-Tessier¹, Ann E. Clarke², Rachel A. Mikolaitis³, Mark Kosinski⁴, Sasha Bernatsky⁵, Joel A. Block³ and Meenakshi Jolly⁶, ¹Rheumatology, McGill University, Montréal, QC, Canada, ²Clinical Epidemiology, McGill University, Montreal, QC, Canada, ³Section of Rheumatology, Rush University Medical Center, Chicago, IL, ⁴QualityMetric Inc, Lincoln, RI, ⁵McGill University, Montreal, QC, Canada, ⁶Rheumatology, Rush University Medical Center, Chicago, IL
Background/Purpose: The LupusPRO, a disease targeted Patient Reported Outcome measure, was developed and validated in US patients with Systemic Lupus Erythematosus (SLE). We aimed to…
Abstract Number: 1723 • 2012 ACR/ARHP Annual Meeting
The Development of the Rheumatoid Arthritis Patient Priorities in Pharmacological Intervention Outcome Measures
Tessa Sanderson¹, John R. Kirwan², Marianne Morris¹, Jon Pollock³, Robert Noddings², Anne Watts² and Sarah Hewlett⁴, ¹University of the West of England, Bristol, United Kingdom, ²Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, United Kingdom, ³Faculty of Health and Life Sciences, University of the West of England, Bristol, United Kingdom, ⁴Academic Rheumatology, University of the West of England, Bristol, United Kingdom
Background/Purpose: Previous research developed a set of 8 priority treatment outcomes generated by patients to complement the professionally developed ACR core set for RA. These…
Abstract Number: 405 • 2012 ACR/ARHP Annual Meeting
Frequencies of Boolean and Index Based ACR-EULAR Remissions Differ Slightly Depending On the Method of Patient Global Assessment
Paul Studenic¹, Josef S. Smolen¹ and Daniel Aletaha², ¹Department of Internal Medicine 3, Division of Rheumatology, Medical University Vienna, Vienna, Austria, ²Department of Internal Medicine 3, Division of Rheumatology, Medical University of Vienna, Vienna, Austria
Background/Purpose: Two definitions of remission have been put forward by the ACR and EULAR: a Boolean based, requiring swollen and tender joint counts (SJC, TJC),…
Abstract Number: 90 • 2012 ACR/ARHP Annual Meeting
Physical Function, Pain and Fatigue Are Related to Sleep Disturbance in Females with Rheumatoid Arthritis
Cathrine Austad¹, Tore K. Kvien² and Till Uhlig², ¹Department of Rheumatology, Diakonhjemmet Hospital, Norway, Oslo, Norway, ²Dept. of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway
Background/Purpose: Sleep quality is an important aspect of health and well-being and the Outcome Measures in Rheumatology Clinical Trials group has identified sleep quality as…

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