Abstracts tagged "patient"

Abstract Number: 2159 • ACR Convergence 2024
Reaching Those in Need: Understanding the Reach of a Digital Program for Lupus Self-Management Education
Katherine Carpenter¹, Melissa French², Sara Johnson³, Janet Johnson³, Ashley Holden⁴, Joy Buie¹, Melicent Miller¹ and Mary Crimmings¹, ¹Lupus Foundation of America, Washington, DC, ²Lupus Foundation of America, Alexandria, VA, ³ProChange Behavior Solutions, South Kingstown, RI, ⁴Lupus Foundation of America, Bossier City, LA

Background/Purpose: As part of a 5-year cooperative agreement with the Centers for Disease Control and Prevention, The Lupus Foundation of America (LFA) has implemented the…
Abstract Number: 1058 • ACR Convergence 2024
Bridging the Care Gap Between Hospital Discharge and Outpatient Care Transition for Pediatric Rheumatology Patients: An RN-led Quality Improvement Project
Adrienne Ramirez¹, Lisa Walker-Vischer² and Tzielan Lee³, ¹Stanford Medicine - Children's Health, Palo Alto, CA, ²San Jose State University, Campbell, CA, ³Stanford University School of Medicine, Palo Alto, CA

Background/Purpose: When pediatric rheumatology patients are discharged from a hospital, the period between hospital discharge & outpatient care transition creates a care gap when there…
Abstract Number: PP09 • ACR Convergence 2020
An Integrative Approach to Managing Rheumatoid Arthritis (RA): Healing the Body, Mind & Spirit
Elisabeth Abeson¹, ¹Westport, CT

Background/Purpose: Diagnosed with RA in 2012, rheumatologists prescribed methotrexate or a biologic. As I was profoundly impacted by my mom’s 30-year battle with RA, I…
Abstract Number: PP11 • ACR Convergence 2020
“Knitting a Community of Hope”- Supporting, Empowering and Educating Those Living with Lupus, and Overlapping Conditions and Their Loved Ones via in Person and Virtual Support Groups That Include Art Therapy, and Wellness Techniques Is Key; Mental Health Is as Important as Physical Health
Juana Mata¹ and Ma. Estela Mata-Carcamo², ¹Looms for Lupus, La Puente, CA, ²Looms for Lupus, Baldwin Park, CA

Background/Purpose: Juana was Diagnosed with Rheumatoid Arthritis in April 2009. In May 2009 she ended up in the hospital with a variety of symptoms and…
Abstract Number: 168 • 2019 ACR/ARP Annual Meeting
Development and Usability Testing of Take Charge: An Email Series to Increase Knowledge of Self-Management Skills in People with Lupus
Karin Tse ¹, Lauren Metelski ¹, Reid Dossinger ¹, Mike Donnelly ¹ and Latifa Boyce¹, ¹Lupus Foundation of America, Washington, DC
Background/Purpose: Email may be a promising approach to expose people with lupus, especially newly diagnosed patients, to educational information, tools, and resources on lupus self-management…
Abstract Number: 169 • 2019 ACR/ARP Annual Meeting
Wikipedia as a Source of Health Information for the Public: Systematic Analysis of Quality and Readability of 8 Common Rheumatic Diseases Articles
Mosaab Mohameden¹, Ali Ali ², Zi Ying Li ², Sehreen Mumtaz ² and Candice Reyes Yuvienco ², ¹University of California San Francisco Fresno, Cincinnati, OH, ²University of California San Francisco Fresno, Fresno, CA
Background/Purpose: Wikipedia is the largest open-access online collaborative encyclopedia. Several studies have shown that Wikipedia is one of the most read online source for health…
Abstract Number: 170 • 2019 ACR/ARP Annual Meeting
Evaluating an Illustrated Storybook for Children with Juvenile Idiopathic Arthritis
Jimin Lee¹, Dennis Newhook ², Kaylee Eady ² and Roman Jurencak ¹, ¹Children's Hospital of Eastern Ontario, Ottawa, ON, Canada, ²CHEO Research Institute, Ottawa, ON, Canada
Background/Purpose: While juvenile idiopathic arthritis (JIA) is a common pediatric rheumatic disease, there is a lack of available child-friendly patient education materials. An illustrated storybook…
Abstract Number: 209 • 2019 ACR/ARP Annual Meeting
Joint Overuse in Patients with Rheumatoid Arthritis
Daisuke Kobayashi¹, Sachimi Amao ², Satoshi Ito ³, Kiyoshi Nakazono ³, Hajime Ishikawa ⁴ and Ichiei Narita ¹, ¹Division of Clinical Nephrology and Rheumatology, Niigata University, Niigata, Niigata, Japan, ²Nursing department, Niigata Rheumatic Center, Shibata, Japan, ³Department of Rheumatology, Niigata Rheumatic Center, Shibata, Japan, ⁴Department of Rheumatology, Niigata Rheumatic Center, Shibata, Niigata, Japan
Background/Purpose: The development of drug therapies for rheumatoid arthritis (RA), and control of synovitis has now become easier. However, once patients are relieved of pain,…
Abstract Number: 704 • 2019 ACR/ARP Annual Meeting
Improving Patient-Centered Care by Utilizing Lupus Wellness Program
Jacinta Renaldi¹, Fotios Koumpouras ¹, Lenore Buckley ¹ and Mei Xue Dong ¹, ¹Yale University, New Haven
Background/Purpose: Although the mortality rate of lupus has decreased with improvement of treatment options, it remains high compared to non-SLE mortality. The factors that contribute…
Abstract Number: 1200 • 2019 ACR/ARP Annual Meeting
Influenza Vaccination Rates Among Patients with Systemic Lupus Erythematosus and Rheumatoid Arthritis on Immunosuppressive Therapy: Findings from a Large Public Hospital
Judith Aniekwena¹, Titilope Olanipekun ² and Valery Effoe ², ¹Morehouse School of Medicine, Atlanta, GA, ²Morehouse School of Medicine, Atlanta
Background/Purpose: Influenza infection constitutes a significant cause of morbidity and mortality in patients living with Systemic Lupus Erythematosus (SLE) and Rheumatoid Arthritis (RA). The risk…
Abstract Number: 2255 • 2019 ACR/ARP Annual Meeting
Adherence to Subcutaneous Anti-tnf Therapies in Chronic Inflammatory Rheumatism and Therapeutic Education
Francoise Fayet¹, Angelique Fan ¹, Malory Rodere ¹, CARINE SAVEL ², Bruno Pereira ¹ and Martin SOUBRIER ³, ¹CHU Clermont-Ferrand, Clermont-ferrand, France, ²CHU Gabriel Montpied, Clermont-Ferrand, Auvergne, France, ³CHU Gabriel Montpied, Clermont Ferrand, Auvergne, France
Background/Purpose: The treatment options for chronic inflammatory rheumatism (CIR) have grown over the last few years with the emergence of anti-tumor necrosis factor (anti-TNF) agents.…
Abstract Number: 2263 • 2019 ACR/ARP Annual Meeting
A Qualitative Study Evaluating Near-Patient Tools Including a Mobile Application for Earlier RA Referral; Potential to Reduce Chronic Disease Burden
Norma Biln ¹, Simran Chahal¹, Bruce Clarke ² and Alison Warner ², ¹Augurex Life Sciences Corp, Vancouver, Canada, ²B2 Consulting, Kelowna, Canada
Background/Purpose: Rheumatoid arthritis (RA) is a chronic, debilitative autoimmune disease. Patients who are treated with disease modifying therapy within 6-12 weeks of symptom onset have…
Abstract Number: 2265 • 2019 ACR/ARP Annual Meeting
The Effects of Message Framing on Patients’ Perceptions and Willingness to Switch to a Biosimilar
Chiara Gasteiger ¹, Annie Jones ¹, Maria Kleinstauber ¹, Maria Lobo ², Robert Horne ³, Keith Petrie ¹ and Nicola Dalbeth¹, ¹University of Auckland, Auckland, New Zealand, ²Auckland District Health Board, Auckland, New Zealand, ³University College London, London, United Kingdom
Background/Purpose: Patients may hold negative perceptions towards biosimilars which can create barriers to their uptake. Physicians also report uncertainty in how best to explain biosimilars.…
Abstract Number: 2274 • 2019 ACR/ARP Annual Meeting
Targeted Education Improves Awareness of Reproductive Health Issues Among Women with Rheumatologic Diseases
Sonya Selvaraj¹, Tanya Allawh ², Meagan Clark ¹, Sneha Patel ³, Christina Payne ⁴ and Arundathi Jayatilleke ¹, ¹Drexel, Philadelphia, PA, ²Hahnemann, Philadelphia, PA, ³Einstein Montefiore, Bronx, NY, ⁴Allegheny General, Philadelphia, PA
Background/Purpose: Managing rheumatologic conditions in women of childbearing age necessitates consideration of reproductive health issues. We studied reproductive health awareness in women with rheumatic disease…
Abstract Number: 2720 • 2019 ACR/ARP Annual Meeting
Implementation of an Evidence-based Transition Clinic in a Pediatric Rheumatology Academic Institution
Rebecca Overbury¹, John Bohnsack ², CJ Inman ³, Sara Stern ³, Karen James ³, Daniel Clegg ³, Tracy Frech ⁴ and Aimee Hersh ³, ¹Assisstant Professor, University of Utah, Salt Lake City, UT, ²University of Utah School of Medicine, Salt Lake City, UT, ³University of Utah, Salt Lake City, UT, ⁴Division of Rheumatology, University of Utah and Salt Lake VAMC, Salt Lake City, UT
Background/Purpose: Transition from pediatric to adult rheumatology care is more likely to be successful if a transition program is in place. Previously successful interventions to…

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