Abstracts tagged "Outcome measures"

Abstract Number: 2017 • 2016 ACR/ARHP Annual Meeting
Performance of Modified Rodnan Skin Score in Early Diffuse Cutaneous Scleroderma-Analysis from 4 International Cohorts
Dinesh Khanna¹, Susanna Proudman^2,3, Tracy M. Frech⁴, Svetlana Nihtyanova⁵, Robyn T. Domsic⁶, Veronica J. Berrocal⁷, Wendy Stevens⁸, Mandana Nikpour⁹ and Christopher P.Denton¹⁰, ¹University of Michigan, Ann Arbor, MI, ²Rheumatology Unit, Royal Adelaide Hospital, Adelaide, Australia, ³Discipline of Medicine, University of Adelaide, Adelaide, Australia, ⁴Div of Rheumatology, University of Utah Medical Ctr, Salt Lake City, UT, ⁵Centre for Rheumatology and Connective Tissue Diseases, University College London Medical School, Royal Free Hospital, London, United Kingdom, ⁶Medicine - Rheumatology, University of Pittsburgh, Pittsburgh, PA, ⁷Div of Rheumatology, University of Michigan, Ann Arbor, MI, ⁸Rheumatology, St. Vincent’s Hospital, Melbourne, Australia, ⁹Melbourne University, Melbourne, Australia, ¹⁰Centre of Rheumatology and Connective Tissue Diseases, University College London, London, United Kingdom
Background/Purpose: The modified Rodnan skin score (mRSS) is used as a primary outcome measure in clinical trials of dcSSc. EUSTAR analysis has proposed that a…
Abstract Number: 2038 • 2016 ACR/ARHP Annual Meeting
Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Improvement on Quality Measures for Children with Juvenile Idiopathic Arthritis
C. April Bingham¹, Jesse Pratt², Cagri Yildirim-Toruner³, Ronald Laxer⁴, Beth Gottlieb⁵, Jennifer E. Weiss⁶, Tzielan Lee⁷, Sheetal S. Vora⁸, Jon M. Burnham⁹, Julia Harris¹⁰, Judyann C. Olson¹¹, Murray Passo¹², Michelle Batthish¹³, Michael Shishov¹⁴, Kerry Ferraro¹⁵, Deborah M. Levy¹⁶, Christine O'Brien¹⁷, Kristi Whitney-Mahoney¹⁷, Nancy Griffin¹⁸, Anne Paul¹⁹ and Esi Morgan²⁰, ¹Penn State Health Children's Hospital, Hershey, PA, ²Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Rheumatology, Nationwide Children's Hospital, Columbus, OH, ⁴Div of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ⁵Pediatrics, Cohen Children's Medical Center, Lake Success, NY, ⁶Hackensack Univ Med Ctr, Hackensack, NJ, ⁷Pediatric Rheumatology, Stanford University School of Medicine, Palo Alto, CA, ⁸Pediatric Rheumatology, Medical College of Wisconsin, Milwaukee, WI, ⁹Pediatric Rheumatology, Children's Hospital Philadelphia, Philadelphia, PA, ¹⁰Children's Mercy Kansas City, Kansas City, MO, ¹¹Ped/MACC Fund Research Ctr, Medical College of Wisconsin, Milwaukee, WI, ¹²Pediatric Rheumatology, Medical University of South Carolina, Charleston, SC, ¹³Division of Pediatric Rheumatology, McMaster Children's Hospital, Hamilton, ON, Canada, ¹⁴Pediatric Rheumatology, Phoenix Children's Hospital, Phoenix, AZ, ¹⁵Pediatric Rheumatology Care and Outcomes Improvement Network, Cincinnati, OH, ¹⁶Division of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ¹⁷The Hospital for Sick Children, Toronto, ON, Canada, ¹⁸James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹⁹Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²⁰Pediatric Rheumatology, Cincinnati Children's Hospital, Cincinnati, OH
Background/Purpose: Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) is a growing multi-center network organized on a learning health system model designed to improve outcomes…
Abstract Number: 2732 • 2016 ACR/ARHP Annual Meeting
Meaningful Involvement of Patients in the Development of a Core Outcome Set for Psoriatic Arthritis
Maarten de Wit¹, Alexis Ogdie², Willemina Campbell³, Philip J Mease⁴, Niti Goel⁵, Laure Gossec⁶, Ying Ying Leung⁷, Christine Lindsay⁸, Penelope Palominos Jr.⁹, Ingrid Steinkoenig¹⁰, Suzanne Grieb¹¹ and Ana-Maria Orbai¹², ¹Medical Humanities, VU Medical Centre, Amsterdam, Netherlands, ²University of Pennsylvania, Philadelphia, PA, ³Rheumatology, Toronto Western Hospital, Toronto, ON, Canada, ⁴Rheumatology Research, Swedish Medical Center, Seattle, WA, ⁵Quintiles; Duke University School of Medicine, Durham, NC, ⁶Paris 06 University and AP-HP, Hôpital Pitié Salpêtrière, Paris, France, ⁷North District Hospital, Hong Kong, China, ⁸Medical Affairs, Amgen Inc, Thousand Oaks, CA, ⁹Rheumatology, Hospital de Clinicas de Porto Alegre, Santa Cecilia, Brazil, ¹⁰Patient Research Partner, Cleveland, OH, ¹¹Psychology, Johns Hopkins University, Baltimore, MD, ¹²Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD
Background/Purpose: The Group for Research of Psoriasis and Psoriatic Arthritis (GRAPPA)-Outcome Measures in Rheumatology (OMERACT) Psoriatic Arthritis (PsA) working group recently obtained endorsement at the…
Abstract Number: 2741 • 2016 ACR/ARHP Annual Meeting
Reliability and Construct Validity of the Psoriatic Arthritis Impact of Disease (PsAID) Questionnaire – Independent Validation Study in a UK Cohort
Richard Holland¹, William Tillett^1,2, Eleanor Korendowych¹, Charlotte Cavill^1,3, Mel Brooke⁴ and Neil J McHugh⁵, ¹Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, ²Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom, ³Rheumatology, Bath Institute for Rheumatic Disease, Bath, United Kingdom, ⁴PsAZZ Support Group, Bath, United Kingdom, ⁵Royal National Hospital for Rheumatic Diseases and Dept Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom
Background/Purpose: Patient reported outcomes (PROs) have been found to be reliable indicators of baseline status, change during treatment, and are predictive of long-term outcome. A…
Abstract Number: 2754 • 2016 ACR/ARHP Annual Meeting
Self-Reported Physical Activity Questionnaire in Axial Spondyloarthritis: Modification of the Squash
Fiona Maas¹, Anna Jetske Baron^1,2, Freke Wink³, Reinhard Bos³, Yvo Kamsma², Hendrika Bootsma⁴, Suzanne Arends^1,3 and Anneke Spoorenberg^1,3, ¹Rheumatology and Clinical Immunology, University of Groningen, University Medical Center Groningen, Groningen, Netherlands, ²Center for Human Movement Sciences, University of Groningen, University Medical Center Groningen, Groningen, Netherlands, ³Rheumatology, Medical Center Leeuwarden, Leeuwarden, Netherlands, ⁴Rheumatology and Clinical Immunology, University of Groningen, University Medical Center Groningen, The Netherlands, Groningen, Netherlands
Background/Purpose: Improvement of physical function and physical activity are important goals in the management of axial spondyloarthritis (axSpA). Although physical function is included in the…
Abstract Number: 2921 • 2016 ACR/ARHP Annual Meeting
Patient Participation in Patient Reported Outcome Instrument Development in Systemic Sclerosis
John Pauling^1,2, Tracy M. Frech^3,4, Robyn T. Domsic⁵ and Marie Hudson^6,7, ¹Department of Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom, ²Department of Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, ³Internal Medicine, Salt Lake City VAMC, Salt Lake, UT, ⁴Internal Medicine-Division of Rheumatology, University of Utah School of Medicine, SLC, UT, ⁵Medicine - Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, ⁶Medicine, McGill University, Montreal, QC, Canada, ⁷Medicine/Rheumatology, Jewish General Hospital, Lady Davis Research Institute, Montreal, QC, Canada
Background/Purpose: The patient perspective captured using Patient-Reported Outcome (PRO) instruments provide valuable insight into the patient condition not always captured by physician-derived assessment tools. Target…
Abstract Number: 2963 • 2016 ACR/ARHP Annual Meeting
BehçEt’s Disease in Children: Eastern Mediterranean Experience
Hafize Emine Sonmez¹, Ezgi Deniz Batu¹, Betul Sozeri², Yonatan Butbul Aviel³, Yelda Bilginer⁴ and Seza Ozen⁵, ¹Pediatric Rheumatology, Hacettepe University Faculty of Medicine, Ankara, Turkey, ²Pediatric Rheumatology, Erciyes University Faculty of Medicine, Kayseri, Turkey, ³Pediatric Rheumatology, Rambam Medical Center, Haifa, Israel, ⁴Department of Pediatrics, Division of Rheumatology, Hacettepe University Faculty of Medicine, ANKARA, Turkey, ⁵Department of Pediatrics, Division of Rheumatology, Hacettepe University Faculty of Medicine, Ankara, Turkey
Background/Purpose: Behçet’s disease (BD) is a variable vessel vasculitis which is more common in adults. The most widely used diagnostic criteria for adult onset disease…
Abstract Number: 3016 • 2016 ACR/ARHP Annual Meeting
Validity of a 2-Component Disease Activity Score for Accurate Assessment of Synovitis in Rheumatoid Arthritis
Elizabeth M.A. Hensor^1,2, Paul McKeigue³, Philip G. Conaghan^1,2, Maya H. Buch^1,2, Jennifer H. Barrett^2,4, Jackie L. Nam^1,2, Marco Colombo⁵, Athina Spiliopoulou^5,6, Felix Agakov⁶, Stephen Kelly⁷, Myles J. Lewis⁷, Costantino Pitzalis⁷, Paul Emery^1,2, Ann W. Morgan^1,2 and IACON Consortium & PEAC Consortium, ¹Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom, ²NIHR-Leeds Musculoskeletal Biomedical Research Unit, Leeds, United Kingdom, ³Medical School, Centre for Population Health Sciences, University of Edinburgh, Edinburgh, United Kingdom, ⁴School of Medicine, University of Leeds, Leeds, United Kingdom, ⁵Centre for Population Health Sciences, University of Edinburgh, Edinburgh, United Kingdom, ⁶Pharmatics Limited, Edinburgh, Edinburgh, United Kingdom, ⁷Barts and the London School of Medicine and Dentistry, William Harvey Research Institute, Queen Mary University of London, London, United Kingdom
Background/Purpose: The original Disease Activity Score (DAS) was derived from clinicians’ therapeutic decisions1, which may have been influenced by patient-subjective factors such as general health…
Abstract Number: 1326 • 2015 ACR/ARHP Annual Meeting
Which Score to Use for Radiographic Damage Assessment of the Spine in (early) Axial Spondyloarthritis? Two-Year Data from the DESIR Cohort
Sofia Ramiro¹, Pascal Claudepierre², Rosaline van den Berg³, Victoria Navarro-Compán⁴, Antoine Feydy⁵, Maria-Antonietta d'Agostino⁶, Damien Loeuille⁷, Maxime Dougados⁸, Monique Reijnierse⁹ and Désirée van der Heijde¹, ¹Rheumatology, Leiden University Medical Center, Leiden, Netherlands, ²Rheumatology, Université Paris Est Créteil, Créteil, France, ³Leiden University Medical Center, Leiden, Netherlands, ⁴Rheumatology, University Hospital La Paz, Madrid, Spain, ⁵Paris Descartes University, Radiology B department, Cochin Hospital, Paris, France, ⁶Rheumatology, Versailles-Saint Quentin en Yvelines University, Boulogne-Billancourt, France, ⁷Rheumatology, Nancy University Hospital, Nancy, France, ⁸Rheumatology Department, Cochin hospital, Paris-Descartes University, Paris, France, ⁹Radiology, Leiden University Medical Center, Leiden, Netherlands
Background/Purpose: Several scores have been developed to assess radiographic damage in AS. However, we do not know how they perform in early phases of the…
Abstract Number: 1597 • 2015 ACR/ARHP Annual Meeting
Variability in Health Assessment Questionnaire Based on Type of Health Insurance Coverage and Rheumatology Practice
Jacqueline Stewart¹, Regan Arendse², Boulos Haraoui³, Michael Starr⁴, Denis Choquette⁵, Michelle Teo⁶, Dalton Sholter⁷, Emmanouil Rampakakis⁸, Eliofotisti Psaradellis⁹, Brendan Osborne¹⁰, Karina Maslova¹¹, Cathy Tkaczyk¹⁰, Francois Nantel¹² and Allen J Lehman¹¹, ¹Penticton Regional Hospital, Penticton, BC, Canada, ²University of Saskatchewan, Saskatoon, SK, Canada, ³Institut de Rhumatologie de Montréal and University of Montreal, Montreal, QC, Canada, ⁴Rheumatology, McGill University, Montreal, QC, Canada, ⁵Rheumatology Department, Institut de Rhumatologie de Montréal and University of Montreal, Montreal, QC, Canada, ⁶Rheumatology, Penticton Regional Hospital, Penticton, BC, Canada, ⁷Rheumatology Associates, Edmonton, AB, Canada, ⁸JSS Medical Research, St-Laurent, QC, Canada, ⁹JSS Medical Research, Montreal, QC, Canada, ¹⁰Medical Affairs, Janssen Inc., Toronto, ON, Canada, ¹¹Janssen Inc., Toronto, ON, Canada, ¹²19 Green belt Dr, Janssen Inc., Toronto, ON, Canada
Background/Purpose : Previous studies in rheumatoid arthritis (RA) have shown that patient socioeconomic status (SES) impacts patient prognosis. We hypothesized that public vs. private healthcare…
Abstract Number: 1891 • 2015 ACR/ARHP Annual Meeting
Parameters That Predict Worsening of Skin Thickness in Patients with Early Diffuse Cutaneous Systemic Sclerosis
Masataka Kuwana¹, Minoru Hasegawa², Yucihiro Shirai¹, Osamu Ishikawa³, Hirahito Endo⁴, Fumihide Ogawa⁵, Daisuke Goto⁶, Shinichi Sato⁷, Hironobu Ihn⁸, Yasushi Kawaguchi⁹ and Kazuhiko Takehara¹⁰, ¹Department of Allergy and Rheumatology, Nippon Medical School Graduate School of Medicine, Tokyo, Japan, ²Dermatology, Faculty of Medical Sciences, University of Fukui, Fukui, Japan, ³Department of Dermatology, Gunma University Graduate School of Medicine, Gunma, Japan, ⁴Department of Rheumatology, Jusendo General Hospital, Koriyama, Japan, ⁵Department of Dermatology, Nagasaki University Graduate School of Biomedical Science, Nagasaki, Japan, ⁶Division of Clinical Immunology, Doctoral Program in Clinical Sciences, University of Tsukuba, Graduate School of Comprehensive Human Sciences, Tsukuba, Japan, ⁷Dermatology, University of Tokyo Graduate School of Medicine, Tokyo, Japan, ⁸Department of Dermatology and Plastic Surgery, Faculty of Life Sciences, Kumamoto University, Kumamoto, Japan, ⁹Institute of Rheumatology, Tokyo Women's Medical University, Tokyo, Japan, ¹⁰Dermatology, Kanazawa University Graduate School of Medical Science, Kanazawa City, Japan
Background/Purpose: Skin thickness is a hallmark of systemic sclerosis (SSc), and its progression is associated with poor prognosis. The modified Rodnan total skin thickness score…
Abstract Number: 1904 • 2015 ACR/ARHP Annual Meeting
Development of the Mawdsley Calcinosis Questionnaire (MCQ) Version 1 – a Patient-Reported Outcome Measure (PROM) for Systemic Sclerosis Related Calcinosis (SSc-Ca)
Lesley Ann Saketkoo¹, Kim Fligelstone², Evan Busman³, Angela Christensen⁴, Sophia Cenac⁵, Samara Khalique⁶, Andrew Aubin⁷, Veronika K. Jaeger⁸, Anne Mawdsley⁹, Jessica K. Gordon¹⁰, Randi Kaufman¹¹, Murray Baron¹², Virginia D. Steen¹³ and Tracy M. Frech¹⁴, ¹Tulane University Lung Center, New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA, ²Royal Free Hospital, Scleroderma Unit and Scleroderma Society, London, United Kingdom, ³Atlanta Scleroderma Support Group, Atlanta, GA, ⁴Tulane University School of Medicine, New Orleans, LA, ⁵Louisiana State University Health Science Center, New Orleans, LA, ⁶Louisiana State University Health Sciences Center, New Orleans, LA, ⁷Louisiana State University School of Medicine, New Orleans, LA, ⁸Department of Rheumatology, University Hospital Basel, Basel, Switzerland, ⁹Raynaud's & Scleroderma - Care and Support UK, Cheshire, United Kingdom, ¹⁰Rheumatology, Hospital for Special Surgery, New York, NY, ¹¹Lousiana State University Health Sciences Center - School of Public Health, New Orleans, LA, ¹²Jewish General Hospital, Lady Davis Institute and McGill University, Montreal, QC, Canada, ¹³Rheumatology, Georgetown University Medical Center, Washington, DC, ¹⁴Div of Rheumatology, University of Utah, Salt Lake City, UT
Background/Purpose: SSc-Ca is a poorly understood vascular complication of SSc that usually related to extreme constant pain and infection/amputation risk for persons living with SSc-Ca…
Abstract Number: 2167 • 2015 ACR/ARHP Annual Meeting
Application of Combined Reporting of Benefit and Harm (OMERACT 3×3 methodology) to the Rheumatoid Arthritis Comparison of Active Therapies Trial
Maarten Boers^1,2, Sarah Leatherman³, James R. O'Dell⁴ and Jeffrey R. Curtis⁵, ¹Rheumatology, Amsterdam Rheumatology and immunology Center, VU University medical center, Amsterdam, Netherlands, ²Amsterdam Rheumatology and immunology Center, VU University Medical Center, Amsterdam, Netherlands, ³MAVERIC CSPCC (151MAV), VA Boston Healthcare System, Boston, MA, ⁴University of Nebraska Medical Center, Omaha, NE, ⁵Birmingham VAMC, Birmingham, AL
Background/Purpose: The Outcome Measures in Rheumatology (OMERACT) Initiative has suggested an analysis of the occurrence of benefit and harm in trials simultaneously, at the individual…
Abstract Number: 2223 • 2015 ACR/ARHP Annual Meeting
Improving Clinical Decisions for Rheumatoid Arthritis Management Using Online Medical Simulations
Nimish Mehta¹, Keith Johnson², Douglas Blevins³ and Martin Warters³, ¹Medscape, LLC, New York, NY, ²Medscape Education, New York, NY, ³Medscape, LLC, Durham, NC
Background/Purpose: In many patients with rheumatoid arthritis (RA), the disease is not adequately controlled, and only a minority of patients attain the goal of consistent…
Abstract Number: 2224 • 2015 ACR/ARHP Annual Meeting
Tailored, Online Education on Comparative Effectiveness Studies in Rheumatoid Arthritis: Success in Improving Knowledge and Clinical Decisions
Nimish Mehta, Emilie McCardell and Kathleen Geissel, Medscape, LLC, New York, NY
Background/Purpose: Analysis of past educational activities on comparative effectiveness studies in RA identified different educational needs for varying segments of rheumatologists – from interpretation of…

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