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Abstracts tagged "Minority Health"

  • Abstract Number: 0610 • ACR Convergence 2026

    What People with Lupus Need to Make Treatment Decisions: Focus Group Findings to Inform a Shared Decision-Making Tool

    Nishat Bhuiyan1, Mia Barron2, Ilse Peterson3, Holly Peay3, Susan Manzi4, Safoah Agyemang5 and Joy Buie5 Affiliations: 1Lupus Foundation of America, Washington, D.C., 2University of South Carolina, Columbia, SC, 3Faegre Drinker Consulting, Washington, D.C., 4Lupus Center of Excellence, Autoimmunity Institute, Allegheny Health Network, Pittsburgh, PA, 5Lupus Foundation of America, Washington, DC

    Background/Purpose: Shared decision-making (SDM) is a collaborative process integrating clinical evidence with patient values and circumstances. Despite SDM being a facilitator of high-quality, equitable care,…
  • Abstract Number: 0770 • ACR Convergence 2026

    Language-Based Disparities and Delay to Diagnosis and Treatment of Axial Spondyloarthritis

    Astrid Strasik1, Joshua Bloomstein2, Sarah Miller3, Katherine Wysham4, Jean Liew5, Bryanna Mantilla6, Grant Hughes2 and Rachael Stovall7 Affiliations: 1University of Washington Internal Medicine Residency, RENTON, WA, 2University of Washington, Seattle, WA, 3Stanford University, San Bruno, CA, 4VA PUGET SOUND/UNIVERSITY OF WASHINGTON, Seattle, WA, 5Boston University, Boston, MA, 6Snoqualmie Valley Health, Snoqualmie, WA, 7Division of Rheumatology, University of Washington, Seattle, WA

    Background/Purpose: Axial spondyloarthritis (axSpA) is associated with an average diagnostic delay of 5 to 10 years [1], which has been linked to poorer functional outcomes,…
  • Abstract Number: 0772 • ACR Convergence 2026

    Medication Adherence in an Urban Safety-Net Rheumatology Clinic: Associations with Social Determinants and Clinical Factors

    Valeria Esparza1, Negin Samandari2, Parmida Zandinejad3, Mohamed Elbathani1, Ana Leal Bramasco1, Trevor Pickering4 and Leanna Wise5 Affiliations: 1LAGMC/Keck Medicine of USC, Los Angeles, CA, 2Keck School of Medicine of USC, Los Angeles, CA, 3Herman Ostrow School of Dentistry, Los Angeles, 4University of Southern California, Los Angeles, 5LAGMC/Keck Medicine of USC, Pasadena, CA

    Background/Purpose: Medication adherence is essential for effective management of chronic rheumatic diseases (RMDs). Patient and disease characteristics, along with social determinants of health (SDOH), can…
  • Abstract Number: 0908 • ACR Convergence 2026

    Reframing Strength: Superwoman Schema and Self-Management in Black Women with Systemic Lupus Erythematosus

    Jerik Leung1, Vashti Robinson2, Shacoria Anderson1, Michaela Cotner2, Charmayne Dunlop-Thomas2, Regine Haardoerfer1, Tené Lewis2, S. Sam Lim3 and Cam Escoffery1 Affiliations: 1Emory University, Rollins School of Public Health, Atlanta, GA, 2Emory University, Atlanta, GA, 3Department of Medicine, Division of Rheumatology, Emory University School of Medicine, Atlanta, GA

    Background/Purpose: Black women bear a disproportionate burden of systemic lupus erythematosus (SLE) inequities including poorer quality of life and cardiovascular health. Sociobehavioral mechanisms underlying these…
  • Abstract Number: 1539 • ACR Convergence 2026

    Patient Perspectives on Allogeneic CAR T Cell Therapy in Systemic Lupus Erythematosus: Findings from a Focus Group Study (Part 3)

    Joy Buie1, Safoah Agyemang1, Andrew Henry2, Andrew BitMansour2, Vaneet Sandhu2, Natalie Shiff2 and Nishat Bhuiyan3 Affiliations: 1Lupus Foundation of America, Washington, DC, 2Fate Therapeutics, Inc., San Diego, CA, 3Lupus Foundation of America, Washington, D.C.

    Background/Purpose: Systemic lupus erythematosus (SLE) disproportionately affects racial and ethnic minoritized populations who also remain underrepresented in SLE clinical trials. Patient-centered evidence is needed to…
  • Abstract Number: 1701 • ACR Convergence 2026

    Association Between Caregiver-Reported Social Risk and Clinic Adherence Rates in Pediatric Rheumatology

    Kristina Ciaglia1, Xilong Li2, Emily Deese3, Deepa Bhat3, Hana Moosa2 and Sarah Messiah2 Affiliations: 1UT Southwestern, Dallas, TX, 2UT Southwestern Medical Center, Dallas, TX, 3Scottish Rite for Children, Dallas, TX

    Background/Purpose: BackgroundSocial determinants of health (SDoH) influence outcomes in pediatric chronic disease, yet their relationship to clinic adherence among pediatric rheumatology patients is not well…
  • Abstract Number: 1710 • ACR Convergence 2026

    Persisting Racial and Ethnic Disparities in Systemic Lupus Erythematosus Hospitalizations in the United States

    Sumanth Chandrupatla1 and Jasvinder Singh2 Affiliations: 1University of Alabama at Birmingham, Birmingham AL, ALABAMA, AL, 2Baylor College of Medicine, Houston, TX

    Background/Purpose: To assess the age-sex-adjusted rate of primary SLE hospitalizations by race/ethnicity and determine if there are racial/ethnic disparities in primary SLE hospitalizations in the…
  • Abstract Number: 1711 • ACR Convergence 2026

    Racial and Social Disparities in Inpatient Outcomes Among Adults with SLE: A Nationwide Analysis, 2016-2023

    Tarek Tabbah1, Fiza Farrukh2, Jennifer Choi3, Daanyal Farrukh4, Yasra Badi2, Daniel jones5 and Pinak Shah3 Affiliations: 1MountainView IM residency, Las Vegas, NV, 2Department of Internal Medicine, Sunrise Health GME Consortium, Las Vegas, NV, 3MountainView IM Residency, Las Vegas, 4Department of Kinesiology, McMaster University, Hamilton, Canada, 5Sunrise Health GME Consortium, Las Vegas

    Background/Purpose: Underrepresented individuals with systemic lupus erythematosus (SLE) have a higher likelihood of a more severe disease course, thereby increasing the risk of mortality and…
  • Abstract Number: 1735 • ACR Convergence 2026

    A Comparison of Healthcare Resource Utilization Amongst African American Women with and without Systemic Lupus Erythematosus (SLE)

    Olivia Metcalf1, Bethany Wolf2, Taylor White1, Lori Ann Ueberroth3, L Quinnette King3, Charmayne Dunlop-Thomas4, Lee Moultrie5, Marquetta Goodwine6, Edith Williams7, S. Sam Lim8, Carl Langefeld9, Diane Kamen10 and Paula Ramos1 Affiliations: 1Emory University School of Medicine, Atlanta, GA, 2Medical University of South Carolina, Charleston, SC, 3Medical University of South Carolina, Charleston, 4Emory University, Atlanta, GA, 5Lee H Moultrie & Associates, North Charleston, 6Gullah/Geechee Nation, St Helena Island, SC, 7University of Rochester Medical Center, Rochester, NY, 8Department of Medicine, Division of Rheumatology, Emory University School of Medicine, Atlanta, GA, 9Wake Forest University School of Medicine, Winston-Salem, NC, 10Medical University of South Carolina, Johns Island, SC

    Background/Purpose: Systemic lupus erythematosus (SLE) disproportionately affects African American women and is associated with increased healthcare resource utilization (HRU). Insurance coverage may influence access to…
  • Abstract Number: 1769 • ACR Convergence 2026

    Understanding the Impact of Systemic Lupus Erythematosus on Work Productivity and Daily Activity Among African American Women

    Chelsea Ezeako1, Bethany Wolf2, Taylor White1, Lori Ann Ueberroth3, L Quinnette King3, Charmayne Dunlop-Thomas4, Lee Moultrie5, Marquetta Goodwine6, Edith Williams7, S. Sam Lim8, Carl Langefeld9, Diane Kamen10 and Paula Ramos1 Affiliations: 1Emory University School of Medicine, Atlanta, GA, 2Medical University of South Carolina, Charleston, SC, 3Medical University of South Carolina, Charleston, 4Emory University, Atlanta, GA, 5Lee H Moultrie & Associates, North Charleston, 6Gullah/Geechee Nation, St Helena Island, SC, 7University of Rochester Medical Center, Rochester, NY, 8Department of Medicine, Division of Rheumatology, Emory University School of Medicine, Atlanta, GA, 9Wake Forest University School of Medicine, Winston Salem, NC, 10Medical University of South Carolina, Johns Island, SC

    Background/Purpose: Systemic lupus erythematosus (SLE) causes a range of fluctuating symptoms affecting individuals and their ability to work. African American women experience a disproportionate burden…
  • Abstract Number: 1770 • ACR Convergence 2026

    A Hard Pill to Swallow: A Lupus Nephritis Medication Adherence Pilot Using Proactive Screening and Clinical Pharmacy Intervention

    Frank Cai1, jazmine Castillo2, Victoria Glunt3 and Lisa Criscione-Schreiber2 Affiliations: 1Duke Rheumatology, Durham, NC, 2Duke University School of Medicine, Durham, NC, 3Duke Department of Medicine, Durham, NC

    Background/Purpose: Medication non-adherence in lupus nephritis (LN) is associated with renal flare, disease progression, and increased hospitalization. Clinical pharmacy practitioners (CPPs) represent an emerging direct…
  • Abstract Number: 2495 • ACR Convergence 2026

    Electronic Health Record Algorithms Have Lower Predictive Value in Black Juvenile Idiopathic Arthritis Patients and are More Affected by Exclusion criteria

    Jeiel Iyawe1, Rachel Dickey2, Srushti Gangireddy3, Wei-Qi Wei3 and Anna Patrick3 Affiliations: 1Meharry Medical College, Nashville, TN, 2Erlanger, Chattanooga, 3Vanderbilt University Medical Center, Nashville, TN

    Background/Purpose: Juvenile idiopathic arthritis (JIA) is an autoimmune arthritis with multiple subtypes and clinical heterogeneity, making it difficult to diagnose and treat. Black JIA patients have higher disease…
  • Abstract Number: 2501 • ACR Convergence 2026

    Mapping Disparities in Juvenile Dermatomyositis: A Retrospective Geospatial Study of Non-medical Drivers, Disease Presentation, and Clinical Course

    Dawn Gist1, Lucas Smith1, Kenneth Nobleza1, Duc Nguyen1, MaiLan Nguyen2, Amit Thakral3, Kristina Ciaglia4, Jingjing Gao5, Gayla Ferguson5 and Eyal Muscal1 Affiliations: 1Baylor College of Medicine, Houston, TX, 2Baylor College of Medicine, Austin, TX, 3Texas Children’s Hospital, Houston, TX, 4UT Southwestern, Dallas, TX, 5University of Texas School of Public Health, Houston, TX

    Background/Purpose: Prior studies suggest race, socioeconomic disadvantage, and delayed access to rheumatology care contribute to worse outcomes in juvenile dermatomyositis (JDM). Individual and neighborhood factors'…
  • Abstract Number: 2541 • ACR Convergence 2026

    Preliminary Results of a Patient-Informed, Culturally Tailored Support and Education Pilot Program for Latinx RA Patients

    Nabila Baytore1, Adena Batterman2 and Theodore Fields1 Affiliations: 1Hospital for Special Surgery, New York, NY, 2Hospital for Special Surgery, Harrington Park, NJ

    Background/Purpose: Significant disparities in outcomes among Latinx patients with rheumatoid arthritis (LRA) have been well documented, including pain, fatigue, disability, and depression. Studies attribute poorer outcomes to barriers such as limited…
  • Abstract Number: 0140 • ACR Convergence 2026

    Urinary DNA Methylation Distinguishes Active Lupus Nephritis from APOL1-Associated Kidney Disease in Systemic Lupus Erythematosus

    Prajakta Shinde1, Will Liao2, Cristina Lanata3, Vishnuprabu Pandian1, Christele Felix4, Andrra Nimoni4, Dzifa Dey5, Olusola Ayanlowo6, Erica Wolin2, Cindy Li2, David Cuddington2, Autumn LaRoque1, Timothy Niewold4, Dina Manaa2 and Ashira Blazer1 Affiliations: 1University of Maryland Baltimore, Baltimore, MD, 2New York Genome Center, New York, NY, 3NHGRI, Bethesda, MD, 4Hospital for Special Surgery, New York, NY, 5University of Ghana Medical School, Accra, Ghana, 6College of Medicine, University of Lagos, Lagos, Nigeria

    Background/Purpose: Progressive LN is a leading cause of end-stage kidney disease (ESKD) and a major driver of morbidity and mortality in SLE. Two coding variants…
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