Abstracts tagged "health status"

Abstract Number: 1157 • ACR Convergence 2020
Health and Socioeconomic Outcomes in a Neonatal-Onset Multisystem Inflammatory Disease (NOMID) Cohort Followed for a Median of Fifteen Years
Sara Alehashemi¹, Megha Garg², Kim Johnson³, Kelly King⁴, Chris Zalewski⁴, Debbie Payne⁵, Adriana de Jesus⁶, Joseph Snow⁷, Wadih Zein⁵, M. Teresa Magone⁵, Rachel Bishop⁸, Carmen Brewer⁴, Jeff Kim⁴, Scott Paul⁹, John Butman¹⁰ and Raphaela Goldbach-Mansky¹¹, ¹Translational Autoinflammatory Disease Section (TADS)/NIAID/NIH, Clarksville, MD, ²NIH/NIAID, Rochester, NY, ³NIH, NIAID, Bethesda, ⁴NIH, NIDCD, Bethesda, MD, ⁵NIH/NEI, Bethesda, MD, ⁶Translational Autoinflammatory Disease Section (TADS)/NIAID/NIH, Silver Spring, MD, ⁷NIH, NIMH, Bethesda, MD, ⁸NIH, NEI, Bethesda, MD, ⁹NIH, CC/RMD, Bethesda, MD, ¹⁰NIH, CC/DRD, Bethesa, MD, ¹¹Translational Autoinflammatory Disease Section (TADS)/NIAID/NIH, Potomac, MD
Background/Purpose: Patients (pts) with NOMID have systemic inflammation and organ damage such as sensorineural hearing loss, hydrocephalus, optic nerve atrophy and growth plate defects. IL-1 blocking…
Abstract Number: 1287 • ACR Convergence 2020
Prevalence of Morbidity Prior to Diagnosis of Incident Systemic Lupus Erythematosus in the Danish Population
Julia Simard¹, Mikkel Faurschou², Soeren Jacobsen² and Renata Hansen², ¹Stanford Medicine, Stanford, CA, ²Copenhagen Lupus and Vasculitis Clinic, Copenhagen, Denmark
Background/Purpose: Patients with SLE experience a high burden of various comorbidities at disease onset and during disease progression. Studies of excess morbidity prior to SLE…
Abstract Number: 1890 • ACR Convergence 2020
Daily Management of Patients with Axial Spondyloarthritis: Self-monitoring of Disease Activity with a Smartphone App Is Feasible – a Proof of Concept Study
Uta Kiltz¹, Robin Kempin¹, Jutta Richter², Anna Schlegel¹, Xenofon Baraliakos¹, Styliani Tsiami³, Ioana Andreica¹, Bjoern Buehring⁴, David Kiefer¹ and Juergen Braun¹, ¹Rheumazentrum Ruhrgebiet, Ruhr-University Bochum, Herne, Germany, ²Rheumatology and Hiller Research Unit, Heinrich-Heine-University Duesseldorf, Medical Faculty, Duesseldorf, Germany, Duesseldorf, Germany, ³Rheumazentrum Ruhrgebiet Herne, Ruhr-University Bochum, Herne, Germany, ⁴Rheumazentrum Ruhrgebiet, Ruhr-University Bochum, Velbert, Germany
Background/Purpose: Assessment and monitoring of disease activity and functioning is of major importance for the course of axial spondyloarthritis (axSpA). This is equally important for…
Abstract Number: 264 • 2018 ACR/ARHP Annual Meeting
Relationships between Adverse Childhood Experiences and Health Status in Systemic Lupus Erythematosus
Kimberly DeQuattro¹, Laura Trupin¹, Jing Li¹, Patricia Katz², Cristina Lanata¹, Edward H. Yelin³, Stephanie Rush³, Lindsey A. Criswell², Louise Murphy⁴, Maria Dall'Era⁵ and Jinoos Yazdany¹, ¹Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, ²University of California San Francisco, San Francisco, CA, ³Medicine/Rheumatology, University of California San Francisco, San Francisco, CA, ⁴Arthritis Program, Centers for Disease Control and Prevention, Atlanta, GA, ⁵University of California, San Francisco, San Francisco, CA
Background/Purpose: Adverse childhood experiences (ACEs) such as abuse, neglect and domestic violence are associated with poor adult health status and immune dysregulation. The extent and…
Abstract Number: 2538 • 2017 ACR/ARHP Annual Meeting
Change in Self-Reported Health Status and Fatigue before and after the Diagnosis of Psoriatic Arthritis- the Nord-Trondelag Health Study (HUNT)
Mari Hoff¹, Tom Ivar Lund Nilsen², Ruth Stoklund Thomsen³, Agnete Malm Gulati⁴, Arthur Kavanaugh⁵ and Glenn Haugeberg⁴, ¹Rheumatolgy, University Hospital, St. Olavs Hospital, NTNU, Trondheim, Norway, ²Faculty of medicine, Department of public health and nursing, NTNU, Norwegian University of Science and Technology, Trondheim, Norway, ³Faculty of Medicine, Department of Public Health and Nursing, NTNU, Norwegian University of Science and Technology, Trondheim, Norway, ⁴NTNU, Norwegian University of Science and Technology, Trondheim, Norway, ⁵Medicine, University of California, San Diego, La Jolla, CA
Background/Purpose: Psoriatic arthritis (PsA) is a systemic inflammatory disease that can involve skin, nails, joints, enthuses, and can be associated with systemic symptoms such as…
Abstract Number: 396 • 2015 ACR/ARHP Annual Meeting
A Comparison of the Illness Experience Reported Via the Patient Reported Outcomes Measurement Information System Between Patients with Childhood-Onset Systemic Lupus Erythematosus, Juvenile Idiopathic Arthritis, and Widespread Chronic Musculoskeletal Pain
Michael J. Holland¹, Jordan Jones¹, Esi M. Morgan DeWitt², Susmita Kashikar-Zuck³, David D. Sherry⁴, Adam C. Carle⁵, Bin Huang⁶, Constance Mara⁷ and Hermine I. Brunner¹, ¹Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Behavioral Medicine & Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA, ⁵University of Cincinnati Department of Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁷James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: The Patient Reported Outcomes Measurement Information System (PROMIS¨), developed by the National Institutes of Health, seeks to create standardized instruments to measure patient reported…
Abstract Number: 121 • 2013 ACR/ARHP Annual Meeting
Comparative Burden Of Chronic Widespread Pain and Fibromyalgia In The US Population
Caroline Schaefer¹, Rachael Mann², Elizabeth T. Masters³, Joseph C. Cappelleri⁴, Shoshana Daniel⁵, Gergana Zlateva³, Heather McElroy⁶, Arthi B. Chandran³, Edgar H. Adams¹, Annlouise R. Assaf⁴, Michael McNett⁷, Philip Mease⁸, Stuart L. Silverman⁹ and Roland Staud¹⁰, ¹Covance Market Access Services Inc., Gaithersburg, MD, ²Covance Market Access Services Inc., San Diego, CA, ³Pfizer Inc., New York, NY, ⁴Pfizer Inc., Groton, CT, ⁵Covance Market Access Services Inc., Conshohocken, PA, ⁶Covance Market Access Services, Sydney, Australia, ⁷Aurora Pain Program, Milwaukee, WI, ⁸Director, Rheumatology Research, Swedish Medical Center, Seattle, WA, ⁹Cedars-Sinai Medical Center, UCLA Center of Excellence, Los Angeles, CA, ¹⁰Dept Med/Rheum/Clin Immun Div, University of Florida, Gainesville, FL
Background/Purpose: Few data exist on the comparative burden of chronic widespread pain (CWP) and fibromyalgia (FM) in the general population. Methods: 8,382 nationally representative participants…

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