Abstract Number: 1428 • 2018 ACR/ARHP Annual Meeting
Parental Involvement and Adolescents/Young Adults Self-Management during the Transition Period: A Cross-Sectional Survey in Childhood Onset Rheumatic Diseases
Background/Purpose: A NIH focus group study found that adolescents and young adults (AYA) with active disease relied heavily on their parents for disease management. It…Abstract Number: 1706 • 2018 ACR/ARHP Annual Meeting
Development of an Online Lupus Self-Management Program Based on the Transtheoretical Model of Change
Background/Purpose: The Lupus Foundation of America is in Year 3 of a 5-year cooperative agreement with the Centers for Disease Control and Prevention to develop…Abstract Number: 1241 • 2016 ACR/ARHP Annual Meeting
Understanding Lupus Patients’ Ability to Work with Numbers
Background/Purpose: Systemic lupus erythematous (SLE) is a heterogeneous disease with high morbidity and mortality affecting approximately 20-150 cases per 100,000 people. The risk of early…Abstract Number: 25 • 2015 ACR/ARHP Annual Meeting
Attrition and Participant Characteristics in a Rheumatoid Arthritis Cohort
Background/Purpose: The generalizability and validity of in longitudinal observational studies is contingent on participant characteristics. If attrition is not random, it is important to identify…Abstract Number: 452 • 2015 ACR/ARHP Annual Meeting
Associations Between Arthritis Patient, Disease-Specific and Provider Characteristics and Medication Information Source Use
Background/Purpose: Few studies have described how patient, disease-specific, and provider factors are associated with medication information source use among arthritis patients. We address this research…Abstract Number: 2382 • 2015 ACR/ARHP Annual Meeting
An Outsourced Health-Enhancing Physical Activity Program for People with Rheumatoid Arthritis. Exploration of the Maintenance Phase
Background/Purpose: Health-enhancing physical activity (HEPA), i.e. at least 150 weekly minutes of moderate-intensity and at least twice-weekly muscle-strengthening activities, is recommended for every adult. Long-term studies on HEPA…Abstract Number: 113 • 2013 ACR/ARHP Annual Meeting
Posttraumatic Stress Disorder and Risk For Incident Rheumatoid Arthritis
Background/Purpose: Posttraumatic stress disorder (PTSD) is associated with autoimmune dysfunction, but the relationship between PTSD and the incidence of autoimmune disorders has not been studied…Abstract Number: 2430 • 2012 ACR/ARHP Annual Meeting
Using the Internet in Help-Seeking As Illness Develops in Early Rheumatoid Arthritis
Background/Purpose: Patients’ Internet use for health purposes is regarded as potentially transformational. Using on-line resources is associated with the emergence of the e-patient; broadly defined…Abstract Number: 2067 • 2012 ACR/ARHP Annual Meeting
Access to Technology and Interest in Mobile “app” for Disease Management Among Patients with Systemic Lupus Erythematosus Seeking Care At a Large Referral Center
Background/Purpose: Some of the challenges facing patients with chronic diseases such as systemic lupus erythematosus (SLE) include identifying triggers for disease “flares” and accurately recalling…Abstract Number: 1853 • 2012 ACR/ARHP Annual Meeting
Rheumatoid Arthritis Patients’ Experiences of Medication Side Effects and Subsequent Decision Making about Medications
Background/Purpose: Medication adherence in rheumatoid arthritis (RA) patients can be influenced by their previous experiences with medication side effects. Negative experiences may lead patients to…Abstract Number: 916 • 2012 ACR/ARHP Annual Meeting
Population Incidence of Soft Tissue Knee Injury: Estimates From a Swedish Health Care Register
Background/Purpose: Soft tissue knee injury is a well-established and potent risk factor for development of knee osteoarthritis. However, there is a paucity of epidemiological data…Abstract Number: 864 • 2012 ACR/ARHP Annual Meeting
Will I Waste Your Time? Delays in Help-Seeking for RA Flares
Background/Purpose: Anecdotal evidence suggests that patients vary in how long they wait before seeking medical help for an RA flare. The aim of this research…Abstract Number: 869 • 2012 ACR/ARHP Annual Meeting
Concepts Which Determine Health in a Positive Way Are Important to People with Rheumatoid Arthritis and Are Covered by Some Patient-Reported Outcome Instruments
Background/Purpose: Rheumatoid arthritis is a chronic autoimmune disease that has a major impact on functioning, health and well-being. Concepts which determine health in a positive…Abstract Number: 2627 • 2012 ACR/ARHP Annual Meeting
Gender Differences of Concepts Important to People Living with Crohn’s Disease and Their Coverage by Commonly Used Patient-Reported Outcome Instruments: Patient’s Perspective Elevated by a Qualitative Study
Background/Purpose: Crohn's disease (CD) has a major impact on functioning, health and well-being and patient-reported outcome (PRO) instruments have not been analysed from the perspective…
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