ACR Meeting Abstracts

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Abstracts tagged "education, patient"

  • Abstract Number: 1065 • ACR Convergence 2021

    Optimizing Joint Pain EConsult Referrals in an Underserved Region of Southern California

    Neha Chiruvolu1 and Vaneet Sandhu2, 1UC Riverside School of Medicine, Riverside, CA, 2Loma Linda University Health, Loma Linda, CA

    Background/Purpose: Electronic consultations (eConsults) are increasingly utilized to supplement or replace face to face (FTF) visits in different medical specialties. They are especially valuable in…
  • Abstract Number: PP07 • ACR Convergence 2021

    How Online Spanish-Language Resources Got Me and My RA Through the COVID-19 Pandemic

    Wigna Cruz, Puerto Rico

    Background/Purpose: I was experiencing joint pain especially in my wrists, which led me to see my physician for testing. Initially I was misdiagnosed with lupus.…
  • Abstract Number: 1068 • ACR Convergence 2021

    Analysis of Tweets Containing Information Related to Rheumatological Diseases on Twitter

    Adrian abbasi1, Miguel Álvarez-Mon2, Carolina Donat-Vargas3, ana Perez4, julio suarez1, lorena montano1, emilio rico1 and melchor Alvarez de Mon1, 1Hospital Universitario Príncipe de Asturias, Madrid, Spain, 2Hospital Universitario Infanta Leonor, Madrid, Spain, 3IMDEA Food, Cardiovascular and Nutritional Epidemiology Group, Madrid, Spain, 4Hospital Universitario Príncipe de Asturias. Rheumatology. Medicine Faculty. Alcala University Department., Madrid, Spain

    Background/Purpose: Twitter is an indicator of the interests of its users in the real world, and therefore, is an appropriate setting to assess the content…
  • Abstract Number: PP13 • ACR Convergence 2021

    CreakyKitchen: How the Online Cooking Show I Started is Building Community and Encouraging Better Food Choices for Me and Others Living with Rheumatic and Chronic Disease

    Chantelle Marcial, Boston, MA

    Background/Purpose: At 19, I was mis-diagnosed with Lupus as it was a common condition in my family. My treatment at that time was mainly DMARDs,…
  • Abstract Number: 1069 • ACR Convergence 2021

    Supporting Patient-Centered Care in the Pediatric Rheumatology Setting: Patient, Family and Provider Experiences with OurNotes

    Uptej Khalsa1, Rajdeep Pooni2, Christy Sandborg1, Imelda Balboni1, Karen Wayman3 and Tzielan Lee4, 1Stanford University, Palo Alto, CA, 2Stanford Children's Health, Palo Alto, CA, 3Stanford Children’s Health, Palo Alto, CA, 4Stanford University School of Medicine, Palo Alto, CA

    Background/Purpose: Health information transparency enabled by the widespread adoption of patient portals and open notes has truly transformed the way healthcare is delivered. However, broader…
  • Abstract Number: 1151 • ACR Convergence 2021

    Experiences and Finding Meaning Among Latin Americans Living with Lupus: Learning from Social Media Narratives by Patients and Their Social Network

    Tirsa Colmenares-Roa1, Alfonso Gastelum-Strozzi2, Erica Crosley3, Yurilis Fuentes-Silva4, Cristina Reategui-Sokolova5, Claudia Elera-Fitzcarrald6, Soledad Ibañez7, Ernesto Cairoli8, Bernardo A. Pons-Estel9, Ingris Peláez-Ballestas1 and Cristina Drenkard10, 1Hospital General de Mexico "Dr. Eduardo Liceaga", Mexico, Mexico, 2Instituto de Ciencias Aplicadas y Tecnología, Universidad Nacional Autónoma de México, Mexico, Mexico, 3John Hopkins University, Baltimore, MD, 4Division of Rheumatology, Complejo Hospitalario Universitario Ruiz y Páez, Universidad de Oriente, Ciudad Bolívar, Centro Nacional de Enfermedades Reumáticas, Ciudad Bolívar, Venezuela, 5Hospital Guillermo Almenara Irigoyen, Lima, Peru, 6Universidad Cientifica del Sur/Hospital Guillermo Almenara Irigoyen. EsSalud, Lima, Peru, 7Sanatorio Güemes, Buenos Aires, Argentina, 8Autoimmune Diseases Unit, Centro Asistencial del Sindicato Médico del Uruguay (CASMU) and Hospital Evangélico, Montevideo, Uruguay, 9Grupo Oroo - Centro Regional de Enfermedades Autoinmunes y Reumticas (GO-CREAR), Rosario, Argentina, 10Emory University, Atlanta, GA

    Background/Purpose: SLE disproportionately affects Latin Americans, and outcomes are worse amongst them compared to non-minority populations. Understanding patients' views of living with SLE is critical…
  • Abstract Number: 1152 • ACR Convergence 2021

    A Follow-Up Evaluation of a Longstanding Telephone Peer Counseling Service for People with Systemic Lupus Erythematosus and Their Loved Ones

    Priscilla Toral, Roberta Horton and Jillian Rose, Hospital for Special Surgery, New York, NY

    Background/Purpose: With technology rapidly evolving, studies still reinforce the value of telephone peer support for people living with chronic illness. A follow-up evaluation was conducted…
  • Abstract Number: 1153 • ACR Convergence 2021

    The Influence of Companions on a Patient’s Decision to Transition to a Biosimilar: A Randomized Controlled Trial

    Chiara Gasteiger1, Katie Groom1, Maria Lobo2, Urte Scholz3, Keith Petrie1 and Nicola Dalbeth1, 1University of Auckland, Auckland, New Zealand, 2Auckland District Health Board, Auckland, New Zealand, 3University of Zurich, Zurich, Switzerland

    Background/Purpose: Involving patients in treatment decisions is commonplace in healthcare, but patients are frequently accompanied by a support person (companion). Companions are often actively involved…
  • Abstract Number: 1154 • ACR Convergence 2021

    What Do Patients Know About Biosimilars and How Satisfied Are They with the Educational Process? – A Systematic Comparison Between Rheumatologists and Nurse Specialists, Including Effects of Multiswitching

    Sabina Gall, Uta Kiltz, Tanja Kobylinski, Ioana Andreica, Kristina Vaupel, Xenofon Baraliakos and Jürgen Braun, Rheumazentrum Ruhrgebiet Herne, Ruhr-Universität Bochum, Herne, Germany

    Background/Purpose: The market share of biosimilars (bsDMARDs) is steadily growing, not only in rheumatologic care. Although data on efficacy, efficiency and safety have been generated…
  • Abstract Number: 1157 • ACR Convergence 2021

    Patient Perspective on the Non Medical Switch of Originator to Its Biosimilar in Inflammatory Arthritis Using a Social Media Survey

    David Vega Morales1, Alejandro Garza-Alpirez2 and Carlos Andrés Díaz-Garza2, 1Hospital Universitario, Garcia, Mexico, 2Tecnologico de Monterrey, Escuela de Medicina y Ciencias de la Salud, San Pedro, Mexico

    Background/Purpose: The use of biosimilars instead of its originator is a controversial subject with many implications. It is considered that a non medical switch should…
  • Abstract Number: 0107 • ACR Convergence 2021

    Acceptability of the COVID-19 Vaccine in Patients with Rheumatic Diseases and Healthcare Professionals in 19 Arab Countries

    Lina El Kibbi1, Mona Metawee1, Ihsane Hmamouchi2, Nizar Abdulateef3, Hussein Halabi4, Mervat Eissa5, Manal El Rakawi6, Basel Masri7, Fatemah Abutiban8, Wafa Hamdi9, Asal Adnan3, Antonella Abi Najm10, Renaud Felten11, Laurent Arnaud11 and Nelly Ziade12, 1Specialized Medical Center, Riyadh, Saudi Arabia, 2Rheumatology Unit, Temara Hospital, Laboratory of Biostatistics, Clinical Research and Epidemiology (LBRCE), Faculty of Medicine and Pharmacy, Mohammed V University, Rabat, Morocco, 3Rheumatology Unit, Department of Medicine, College of Medicine, University of Baghdad, Baghdad, Iraq, 4King Faisal Specialist Hospital and Research Center, Jeddah, Saudi Arabia, 5Cairo University, Cairo, Egypt, Cairo, Egypt, 6Rheumatology Department, Douera Hospital, Faculty of Medicine, Saad Dahlab, Blida, Algeria, 7Jordan Hospital, Amman, Jordan, 8Rheumatology Unit, Department of Medicine, Jaber Alahmed Alsabah Hospital, Kuwait City, Kuwait, 9Rheumatology Department, Kassab Institute of Orthopedics, UR17SP04, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, Tunisia, 10Faculty of Medicine, Saint-Joseph University, Beirut, Lebanon, 11Department of Rheumatology, French National Reference Center for Autoimmune Diseases (CRMR RESO), Strasbourg, France, 12Rheumatology Department, Saint-Joseph Medical University and Hotel-Dieu de France Hospital, Beirut, Lebanon

    Background/Purpose: The first COVID-19 vaccines were authorized in December 2020. However, their acceptability remains debated and has never been evaluated in patients with chronic rheumatic…
  • Abstract Number: 1159 • ACR Convergence 2021

    Improving Healthcare Transition Implementation: Recommendations from Young Patients with Rheumatic Conditions

    Courtney Wells1, Peter Chira2, Dana Guglielmo3, Stacy Ardoin4, Katelyn Melcher5, Meghan Trimble6 and Kristine Carandang7, 1University of Wisconsin-River Falls, White Bear Lake, MN, 2Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA, 3Student, Atlanta, GA, 4Nationwide Children's Hospital, Columbus, OH, 5Patient Partner, Ankeny, IA, 6Patient Partner, Minneapolis, MN, 7Independent, San Diego, CA

    Background/Purpose: Implementation of structured healthcare transition processes remains elusive for most US rheumatology clinics (Johnson et al., 2021). Although research studies have proposed models and…
  • Abstract Number: 0147 • ACR Convergence 2021

    A Qualitative Analysis of Methotrexate Self-Injection Education Videos on YouTube: An Update

    Amy Semaka, Hillary Wilson and Steven Katz, University of Alberta, Edmonton, AB, Canada

    Background/Purpose: Patients are turning to the Internet for guidance and information at an increasing rate, requiring clinicians to be aware of the constantly changing resources…
  • Abstract Number: 1451 • ACR Convergence 2021

    Improving Health Outcomes and Social Connectedness Through Virtual Exercise Programs in Community Members with Musculoskeletal Conditions

    Titilayo Ologhobo1, Bertilia Trieu2, Claudia Zurlini1, Bonnie McGrath1, Linda Roberts1, Vilma Briones1, Pamela Sanchez-Villagomez2, Robyn Wiesel1, Sandra Goldsmith1 and Laura Robbins1, 1Hospital for Special Surgery, New York, NY, 2Hospital of Special Surgery, New York

    Background/Purpose: According to the 2020 American Health Ranking System, 26% of adults are physically inactive with a higher prevalence found in adults ages ≥65 years.…
  • Abstract Number: 0225 • ACR Convergence 2021

    Prevalence of Sexual Dysfunction and Depression in German Patients with Psoriasis and Psoriatic Arthritis – Results of the PIPPA Study

    Sebastian Saur1, Alexandra Schloegl2, Caroline Höppner3, Anastasia Gubar2, Katharina Meier4, Matthias Hahn2 and Jorg Henes2, 1Universtiy Hostpiatl Tübingen, Tuebingen, Germany, 2University Hospital Tuebingen, Tuebingen, Germany, 3Charite Berlin, Berlin, Germany, 4Department of Dermatology, Venereology and Allergology – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany, Berlin, Germany

    Background/Purpose: As known chronic inflammatory diseases have an impact on sexuality. To date, there are only a few studies from North and Latin America which…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

ACR Abstract Embargo Policy

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. Academic institutions, private organizations and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part a scientific presentation or presentation of additional new information that will be available at the time of the meeting) is under embargo until Saturday, November 11, 2023.

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying financial and other sponsors about this policy. If you have questions about the abstract embargo policy, please contact the public relations department at [email protected].

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