Abstracts tagged "education, patient"

Abstract Number: PP26 • ACR Convergence 2022
Chronically Catherine: A Sex and the City-Inspired Autobiographical Column for Disabled Young Adults on Subjects We Really Care About – Like Disabled Dating and How Hot Cheetos Saved My Life
Catherine Ames¹, Courtney Wells² and Kristine Carandang¹, ¹Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, ²University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN
Background/Purpose: What if Carrie Bradshaw, sex advice columnist, fashionsta, and all around icon from Sex and the City were chronically ill? Or disabled? That's the…
Abstract Number: 0181 • ACR Convergence 2022
Patient Perspective of Unique Support and Education Needs of Latinx/Latino(a)/Hispanic Rheumatoid Arthritis Patients: Implications for a Culturally Tailored and Disease Specific Intervention
Anna Balakrishnan¹, Adena Batterman¹, Daniel Hernandez², Angel Tapia³, Joan Westreich¹, Roberta Horton¹ and Theodore Fields¹, ¹Hospital for Special Surgery, New York, NY, ²Global Healthy Living Foundation, Nyack, NY, ³Global Healthy Living Foundation, Upper Nyack, NY
Background/Purpose: Health disparities for Latinx RA patients, including higher pain, fatigue, disability, and risk for depression are well documented.1, 2, 3, 4 Support and education…
Abstract Number: 1342 • ACR Convergence 2022
Quality Improvement: Communicating Risk Regarding JAK Inhibitor Use in Rheumatology Patients
Reid Weisberg¹, Brett Capel¹, Annabelle Guo¹, Komal Patel¹, Rashmi Arora², Swathi Reddy³ and Una Makris⁴, ¹University of Texas Southwestern Medical Center, Dallas, TX, ²Dallas VA Medical Center / University of Texas Southwestern Medical Center, Dallas, TX, ³Dallas VA Medical Center / University of Texas Southwestern Medical Center, Colleyville, TX, ⁴UT Southwestern Medical Center and Dallas VA, Dallas, TX
Background/Purpose: In September 2021, the FDA updated its boxed warnings for Janus Kinase (JAK) inhibitors to include increased risk of major adverse cardiac events (MACE)…
Abstract Number: 0182 • ACR Convergence 2022
Newly Diagnosed with Inflammatory Arthritis. Development of a Complex Self-management Intervention
Luise Lindgren¹, Tanja Thomsen², Mette Aadahl³, Sara Kristensen⁴, Bente Esbensen⁵, Annette de Thurah⁶ and Merete L Hetland⁵, ¹Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark, ²Rigshospitalet, Glostrup, Center for Rheumatology and Spine Diseases. COPECARE, Center for Clinical Research and Prevention, Bispebjerg and Frederiksberg Hospital, Glostrup, Denmark, ³Center for Clinical Research and Prevention, Bispebjerg and Frederiksberg Hospital, Denmark.Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Denmark, Frederiksberg, Denmark, ⁴Patient research partner, Frederiksberg, Denmark, ⁵Rigshospitalet, Glostrup, Denmark, ⁶Department of Rheumatology, Aarhus University Hospital, Denmark. Department of Clinical Medicine, Aarhus University, Aarhus, Denmark
Background/Purpose: Patients newly diagnosed with inflammatory arthritis (IA) request regular consultations and support from health professionals (HPRs) in rheumatology to manage physiological, emotional, and social…
Abstract Number: 1346 • ACR Convergence 2022
“Finally, I Can Do Something About It Myself”: A Process Evaluation of the Plants for Joints Lifestyle Intervention
Carlijn Wagenaar¹, Alie Toonstra¹, Wendy Walrabenstein¹, Dirkjan van Schaardenburg² and Femke van Nassau², ¹Reade Rheumatology Center, Amsterdam, Netherlands, ²Amsterdam UMC, Amsterdam, Netherlands
Background/Purpose: Plants for Joints (PFJ) is a multidisciplinary intervention centered around a whole-food plant-based diet, physical activity, and sleep and stress management.1 The PFJ intervention…
Abstract Number: 0185 • ACR Convergence 2022
Empowered2work: Development and Delivery of a Multi-faceted Peer-coaching Workshop Focusing on Health Promotion and Ergonomic Issues in the Workplace
Erika Mosor, Romualdo Ramos and Tanja Stamm, Medical University of Vienna, CeMSIIS - Center for Medical Statistics, Informatics, and Intelligent Systems, Section for Outcomes Research, Wien, Austria
Background/Purpose: Work and education significantly impact health and quality of life in people with rheumatic and musculoskeletal diseases (RMDs). However, patients often experience internal and…
Abstract Number: 1348 • ACR Convergence 2022
We Asked Patients and Families: What Is the Job of a Pediatric Rheumatologist?
Emily Hause¹, Nathan Rubin², Bryce Binstadt¹, Colleen Correll¹, Patricia Hobday¹, Alison Lerman¹, Shawn Mahmud¹, Mona Riskalla¹, Meghan Ryan³, Zachary Shaheen¹ and Danielle Bullock¹, ¹University of Minnesota, Minneapolis, MN, ²University of Minnesota Masonic Cancer Center, Minneapolis, MN, ³University of Minnesota, Vadnais Heights, MN
Background/Purpose: Pediatric rheumatology is a highly specialized field, with approximately 300 practicing pediatric rheumatologists in the United States. Prior research into patient understanding of medical…
Abstract Number: 0196 • ACR Convergence 2022
The Impact of Barometric Pressure Waves on Connective Tissue Disorders
Fehmida Zahabi¹ and Kevin Kerr², ¹Texas Rheumatology Care, Plano, TX, ²Chimera Innovations LLC, Allen, TX
Background/Purpose: Pain is a disabling, depressing state which reduces an individual's productivity. Weather changes have been vaguely attributed to cause pain. Previous studies have had…
Abstract Number: 1349 • ACR Convergence 2022
Priority Educational Topics to Deliver Information About Immune Checkpoint Inhibitors for Patients with Cancer and a Pre-Existing Autoimmune Disease
Maria A. Lopez-Olivo¹, Juan Ruiz², Gabrielle Duhon², Mehmet Altan³, Hussein Tawbi², Adi Diab⁴, Clifton O. Bingham III⁵, Cassandra Calabrese⁶, Natalia I. Heredia⁷, Robert J. volk² and Maria Suarez-Almazor⁸, ¹The University of Texas, MD Anderson Cancer Center, Houston, TX, ²The University of Texas MD Anderson Cancer Center, Houston, TX, ³Department of Thoracic/Head and Neck Medical Oncology, The University of Texas MD Anderson Cancer Center, Houston, TX, ⁴UT MD Anderson Cancer Center, Houston, TX, ⁵Johns Hopkins University, Baltimore, MD, ⁶Cleveland Clinic Foundation, Cleveland Heights, OH, ⁷The University of Texas Health Science Center at Houston, School of Public Health, Houston, TX, ⁸MD Anderson Cancer Center, Houston, TX
Background/Purpose: Immune checkpoint inhibitors (ICI) have improved cancer outcomes but can cause severe toxicity and flares in cancer patients with pre-existing autoimmune disease. The objective…
Abstract Number: 0197 • ACR Convergence 2022
Is Similar the Same? How We Incorporated Feedback from 250 Patients into a CME Activity on Biosimilars
Stephen Bender¹ and Suzanne Schrandt², ¹FACTORx, Cherry Hill, NJ, ²ExPPect, Arlington, VA
Background/Purpose: The goals of this project were two-fold: The primary goal was to provide clinicians who treat rheumatoid arthritis (RA) and inflammatory bowel disease (IBD)…
Abstract Number: 1755 • ACR Convergence 2022
Improving Quality of Life Through Connection: A Scoping Review of Peer Coaching Interventions in the Field of Rheumatology
Megan Creasman¹, Mackenzie Brown², Yuliana Domínguez Páez³, Michelle Demetres⁴, Monika Safford⁴ and Iris Navarro-Millan⁴, ¹NYP-Weill Cornell, New York, NY, ²Weill Cornell Medicine, Brooklyn, NY, ³Weill Cornell Medicine, Bronx, NY, ⁴Weill Cornell Medicine, New York, NY
Background/Purpose: Peer coaches are lay individuals providing health education and behavior change interventions, and often have the same condition as the person that they are…
Abstract Number: 0202 • ACR Convergence 2022
Learning Needs Assessment for Patients with Cancer and a Pre-Existing Autoimmune Disease Who Are Candidates to Receive Immune Checkpoint Inhibitors
Maria A. Lopez-Olivo¹, Johncy Kachira², Maryam Buni³, Sang Taek Kim⁴, Huifang Lu⁴, Gabrielle Duhon⁴, Juan Ruiz⁴, Clifton O. Bingham III⁵, Cassandra Calabrese⁶, Robert J. volk⁴ and Maria Suarez-Almazor⁷, ¹The University of Texas, MD Anderson Cancer Center, Houston, TX, ²The University of Texas MD Anderson Cancer Center, Texas, TX, ³MD Anderson Cancer Center, Bellaire, TX, ⁴The University of Texas MD Anderson Cancer Center, Houston, TX, ⁵Johns Hopkins University, Baltimore, MD, ⁶Cleveland Clinic Foundation, Cleveland Heights, OH, ⁷MD Anderson Cancer Center, Houston, TX
Background/Purpose: Immune checkpoint inhibitors (ICI) have been extremely successful in the treatment of various malignancies. Patients with pre-existing autoimmune disorders and cancer are at risk…
Abstract Number: 1782 • ACR Convergence 2022
Sociocultural and Moral Factors Influencing the Decision to Vaccinate Among Rheumatic Patients: A Qualitative Study
Tirsa Colmenares-Roa¹, Amaranta ManriquedeLara², Virginia Pascual Ramos³, JOSE FRANCISCO MOCTEZUMA RIOS⁴, Irazu Contreras-Ibañez⁵, Everardo Alvarez-Hernandez⁶, Guillermo Guaracha Basañez⁷, Graciela Meza-LópezyOlguin⁴ and Ingris Pelaez-Ballestas¹, ¹Hospital General de México "Dr. Eduardo Liceaga", Ciudad de México, Mexico, ²Hospital General de México "Dr. Eduardo Liceaga,", Ciudad de México, Mexico, ³Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran, Ciudad de México, Mexico, ⁴HOSPITAL GENERAL DE MEXICO "Dr. Eduardo Liceaga", Ciudad de México, Mexico, ⁵Instituto Nacional de Nutricion Salvador Zubirán, Ciudad de México, Mexico, ⁶Hospital General de Mexico "Dr.Eduardo Liceaga", Ciudad de México, Mexico, ⁷Instituto Nacional de Ciencias Médicas y Nutrición "Salvador Zubirn", Ciudad de México, Mexico
Background/Purpose: Vaccination is a process that involves individual, social and moral aspects, beyond public governance of vaccines or vaccination as a public health concern. The…
Abstract Number: 0219 • ACR Convergence 2022
COVID-19 Impact on Second Year Medical Students Experience with Interactive Patient Encounters as a Supplement to Teaching the Skin and Rheumatology Course
Emily Littman¹, Jeremy Adamson² and Shazia Beg³, ¹UCF College of Medicine, Boca Raton, FL, ²UCF College of Medicine, Orlando, FL, ³UCF, Orlando, FL
Background/Purpose: The use of interactive patient scenarios has long been a valuable component of medical school curricula, as this type of learning facilitates empathy, comprehensive…
Abstract Number: 2189 • ACR Convergence 2022
Impact of a Fatigue and Energy Management Program for Persons with Systemic Sclerosis (FAME-iSS): A Pilot Study
Janet Poole¹, Deirdre Connolly², Jessica Salazar³ and Kristine Carandang⁴, ¹University of New Mexico, Albuquerque, NM, ²School of Medicine, Trinity College, Dublin, Ireland, ³University of New Mexico, Occupational Therapy Graduate Program, Albuquerque, NM, ⁴Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA
Background/Purpose: Fatigue is one of the most prevalent and disabling symptom reported by people with systemic sclerosis (SSc). No fatigue-specific programs exist for people with…

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