Abstracts tagged "education, patient"

Abstract Number: 0053 • ACR Convergence 2020
¿Comprende? Assessing the Readability of Freely Available Spanish-Language Online Patient Education Materials for Rheumatologic Diseases
Carleigh Zahn¹, Bharat Kumar¹ and Cindy Puga², ¹University of Iowa Hospitals and Clinics, Iowa City, IA, ²Carver College of Medicine, Iowa City
Background/Purpose: Spanish is the second most popular language in the United States and third most commonly spoken language internationally. Despite the high prevalence of Spanish…
Abstract Number: 1614 • ACR Convergence 2020
Use of a Best Practice Alert to Encourage Transition Planning and Readiness
Bernard Danna¹, Monique Maher¹, Marietta DeGuzman², Andrea Ramirez¹, Eyal Muscal², Amanda Brown², Martha Curry², Maria Pereira², M. Brad Nelson², Pooja Patel², Ugo Awa², LeeGee Huang³, Blanca Sanchez-Fournier³, JaLeen Rogers³, Ariel Coleman³, Anne Dykes³, Miriah Gillispie-Taylor² and Tiphanie Vogel⁴, ¹Baylor College of Medicine, Houston, TX, ²Baylor College of Medicine, Houston, ³Texas Children's Hospital, Houston, ⁴Baylor College of Medicine/Texas Children's Hospital, Houston, TX
Background/Purpose: Transitioning children with chronic diseases from pediatric to adult care can be challenging. Patients are faced with the emotional shock of entering a new…
Abstract Number: 0079 • ACR Convergence 2020
Analysis of COVID-19 and Rheumatology Twitter Activity During the Pandemic Months
Mosaab Mohameden¹ and Ali H.Ali², ¹University of Cincinnati College of Medicine, Cincinnati, OH, ²University of California San Francisco Fresno, Fresno, CA
Background/Purpose: Twitter is a popular social media platform that is widely used to publish information and exchange ideas. There are over 300 million active monthly…
Abstract Number: 1615 • ACR Convergence 2020
Assessing Preparation for Care Transition Among Adolescents with Rheumatologic Disease: A Quality Assessment with Patient Survey
Jordan Roberts¹, Olha Halyabar², Carter Petty³ and Mary Beth Son¹, ¹Boston Children's Hospital, Boston, MA, ²Children's Hospital/Boston Medical Center, Boston, MA, ³Boston Childrens Hospital, Institutional Centers for Clinical and Translational Research, Boston, MA
Background/Purpose: Despite the risk for poor outcomes and gaps in care in the transition from pediatric to adult care, most pediatric rheumatology centers lack formal…
Abstract Number: 184 • 2020 Pediatric Rheumatology Symposium
A Survey of Uveitis Knowledge Among Juvenile Arthritis Patients and Parents
Ashley Cooper¹, Elaine Flanagan ², Tova Ronis ³, Baruch Goldberg ⁴, Ashley Sherman ¹, Chelsey Smith ⁵ and Gary Holland ⁶ for the CARRA investigators, ¹Children's Mercy Kansas City, Kansas City, ²Emory University, Atlanta, ³Children's National Hospital, Washington, ⁴UT Physicians, Houston, ⁵Children's Mercy Kansas City, Holden, ⁶
Background/Purpose: Chronic anterior uveitis is a sight-threatening complication of juvenile idiopathic arthritis (JIA). Prompt treatment to prevent complications requires regular screening and detection of uveitis…
Abstract Number: 187 • 2020 Pediatric Rheumatology Symposium
Perspectives of Adolescents and Young Adults Around Implementing Rheumatology Healthcare Transition: Preliminary Qualitative Findings
Kristine Carandang¹, Courtney Wells ² and Peter Chiraseveenuprapund ³, ¹University of California, San Diego, San Diego, ²St Paul, ³University of California - San Diego, San Diego
Background/Purpose: Nationwide initiatives call for improved healthcare services that empower adolescents to become independent in their health management and remain engaged in healthcare through young…

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