Abstracts tagged "Disparities"

Abstract Number: 2529 • ACR Convergence 2024
Improving Outcomes and Narrowing Disparities in Juvenile Idiopathic Arthritis (JIA): A Division-Wide, Equity-Focused Quality Improvement Project
Dori Abel¹, Kirsten Spichiger², Megan Roman², William Baar², Claire O'Malley², Jay Mehta¹, Terri Al'Hadi², Kerry Ferraro³, Denique Butler², Asia Wilson-Sanders², Catherine Lewis², Danielle Dodson⁴ and Jon Burnham¹, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²Children's Hospital of Philadelphia, Philadelphia, ³JIA parent and CHOP volunteer, Lower Gwynedd, PA, ⁴The Children's Hospital of Philadelphia, Philadelphia
Background/Purpose: Although new therapeutics and treat-to-target interventions have improved JIA care, pronounced racial and ethnic outcome disparities persist. At our center, the mean population-level clinical Juvenile…
Abstract Number: 0181 • ACR Convergence 2024
Integrated Multidisciplinary Lupus Social Work Program to Manage Social Determinants of Health in SLE and Lupus Nephritis – Preliminary Results
Kimberly DeQuattro¹, Stephanie DeVaughn², Andrew Kanoff³ and Abdallah Geara¹, ¹University of Pennsylvania, Philadelphia, PA, ²Uniersity of Pennsylvania, Pennsylvania, ³University of Pennsylvania, Philadelphia, PA, Philadelphia, PA
Background/Purpose: Minoritized individuals with systemic lupus erythematosus (SLE) experience social determinants of health (SDOH) challenges that affect access to care and increase the risk for…
Abstract Number: 0404 • ACR Convergence 2024
Methotrexate Adherence in JIA: Use of Electronic Health Record-Linked Pharmacy DispensingData
Dori Abel¹, David Anderson¹, Michael Kallan², Levon Utidjian³, Jon Burnham⁴, Joyce Chang⁵, Chen Kenyon³ and Sabrina Gmuca¹, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²University of Pennsylvania, Philadelphia, ³Children's Hospital of Philadelphia, Philadelphia, ⁴Children's Hospital of Philadelphia, Bryn Mawr, PA, ⁵Boston Children's Hospital, Boston, MA
Background/Purpose: The extent to which adherence to prescribed treatment regimens contributes to differential disease outcomes in JIA – and demographic disparities in these outcomes –…
Abstract Number: 1028 • ACR Convergence 2024
Assessment of Patient-Reported Outcomes in Juvenile Idiopathic Arthritis by Race, Ethnicity, and Insurance Type in the Pediatric Rheumatology Care and Outcomes Improvement Network Registry
Julia Harris¹, Nancy Pan², Catherine Bingham³, Sheetal Vora⁴, Cagri Yildirim-Toruner⁵, Kerry Ferraro⁶, Erik Friedrichsen⁷, Michelle Batthish⁸, Jon Burnham⁹, Danielle Fair¹⁰, Suhas Ganguli¹¹, Mileka Gilbert¹², Beth Gottlieb¹³, Olha Halyabar¹⁴, Melissa Hazen¹⁵, Tzielan Lee¹⁶, Daniel Lovell¹⁷, Melissa Mannion¹⁸, Edward Oberle¹⁹, Linda Ray²⁰, Michael Shishov²¹, Mary Toth²² and Esi Morgan²³, ¹Children's Mercy Kansas City, Overland Park, KS, ²Hospital for Special Surgery, Weill Cornell Medicine, New York, NY, ³Penn State Children’s Hospital, Hershey, ⁴Atrium Health Levine Children's Hospital, Charlotte, NC, ⁵Baylor College of Medicine/ Texas Children's Hospital, Houston, TX, ⁶JIA parent and CHOP volunteer, Lower Gwynedd, PA, ⁷Seattle Children's Hospital, Seattle, ⁸McMaster Children's Hospital, Hamilton, ON, Canada, ⁹Children's Hospital of Philadelphia, Philadelphia, PA, ¹⁰Medical College of Wisconsin/Children's Wisconsin, Wauwatosa, WI, ¹¹Hackensack University Medical Center, Hackensack, ¹²Medical University of South Carolina, Charleston, SC, ¹³Cohen Children's Medical Center, Lake Success, NY, ¹⁴Division of Immunology, Boston Children's Hospital, Harvard Medical School, Boston, MA, ¹⁵Boston Children's Hospital, Boston, MA, ¹⁶Stanford University School of Medicine, Palo Alto, CA, ¹⁷Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹⁸University of Alabama at Birmingham, Birmingham, AL, ¹⁹Nationwide Children's Hospital, Columbus, OH, ²⁰University of Mississippi Medical Center, Jackson, MS, ²¹Phoenix Children's Hospital, Phoenix, AZ, ²²Nemours Foundation, Orlando, FL, ²³Seattle Children's Hospital, Seattle, WA
Background/Purpose: As healthcare moves towards more patient-centered care, it is increasingly important to integrate patients’ opinions into clinical assessments and decision-making. The Pediatric Rheumatology Care…
Abstract Number: 1910 • ACR Convergence 2024
Appointment Adherence: Impact of Health Portal Access, Letters, Phone Calls and Text Message Reminders in Underserved Population
Dina Ismail¹, Fatema Ezzy² and Milena Vukelic³, ¹Albert Einstein College of Medicine, Bronx, NY, ²Jacobi Medical Center/Albert Einstein College of Medicine, New York, NY, ³Louisiana State University, New York City, NY
Background/Purpose: Missed appointments in rheumatology are reported to be up to 40%. Non-adherence to outpatient visits is contributing to poor outcomes and low income population is considered especially vulnerable. In New…
Abstract Number: 2551 • ACR Convergence 2024
Modified Delphi Process to Propose an Equity Measurement Roadmap in Rheumatology
Sancia Ferguson¹, Allen Anandarajah², Melissa Wells³, Delamo Bekele⁴, Ashira Blazer⁵, Cynthia Crowson⁴, Deborah Desir⁶, Elizabeth Ferucci⁷, Wambui Machua⁸, Esi Morgan⁹, Wendy Rogers¹⁰, Lauren Smith¹¹, JoAnn Zell¹², Lisa Suter¹³, Shraddha Jatwani¹⁴ and Christie Bartels¹⁵, ¹University of Wisconsin, Madison, Madison, WI, ²University of Rochester Medical Center, Rochester, NY, ³McFarland Clinic, Ames, IA, ⁴Mayo Clinic, Rochester, MN, ⁵University of Maryland Baltimore, Baltimore, MD, ⁶Yale School of Medicine, WOODBRIDGE, CT, ⁷Alaska Native Tribal Health Consortium, Anchorage, AK, ⁸Piedmont Healthcare, Atlanta, GA, ⁹Seattle Children's Hospital, Seattle, WA, ¹⁰Lupus Foundation of America, Inc, Washington, DC, ¹¹Medstar Georgetown University Hospital, District Heights, MD, ¹²University of Colorado Anschutz Medical Campus, Denver, CO, ¹³Yale School of Medicine, New Haven, CT, ¹⁴Dignity Health-MMG Rheumatology, Citrus Heights, CA, ¹⁵University of Wisconsin School of Medicine and Public Health, Madison, WI
Background/Purpose: Achieving health equity has been a long-standing goal, as Academy of Medicine leaders stated, ‘There is no equity without quality, and there is no…
Abstract Number: 0182 • ACR Convergence 2024
Pilot Volunteer Lupus Navigator Program – Leveraging Community Health Workers to Address Social Determinants of Health in SLE
Patricia Nogueira De Sa¹, Stephanie Wirtshafter¹, Abdallah Geara² and Kimberly DeQuattro², ¹University of Pennsylvania, Pennsylvania, ²University of Pennsylvania, Philadelphia, PA
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic, multisystem autoimmune condition that disproportionally affects individuals from racial and ethnic minority groups with more than 95%…
Abstract Number: 0616 • ACR Convergence 2024
Disparities in Health-Related Quality of Life Among Patients with Systemic Lupus Erythematosus
Victoria Delk¹, Dulaney Wilson², Gary Gilkeson², Jim Oates² and Diane Kamen², ¹Medical University of South Carolina, North Charleston, SC, ²Medical University of South Carolina, Charleston, SC
Background/Purpose: Systemic lupus erythematosus (SLE) is a systemic autoimmune disease with the potential to severely diminish patients' quality of life (QoL). SLE disproportionately affects young…
Abstract Number: 1030 • ACR Convergence 2024
Diversity in Axial Spondyloarthritis Drug Trials: Examining Enrollment by Sex, Race, Ethnicity and Geographic Region
Mathieu Choufani¹, Wissam Ghusn² and Joerg Ermann³, ¹Division of Rheumatology, Inflammation, and Immunity, Brigham and Women's Hospital, Boston, MA, ²Department of Internal Medicine, Boston Medical Center, Boston, MA, ³Division of Rheumatology, Inflammation and Immunity, Brigham and Women's Hospital and Harvard Medical School, Boston, MA
Background/Purpose: While axial spondyloarthritis (AxSpA) was historically perceived as a "white man's disease", it is now appreciated as a condition that can affect individuals of…
Abstract Number: 1916 • ACR Convergence 2024
Healthcare Disparities and Clinical Outcomes in Cardiac Sarcoidosis. a Retrospective Cohort Study
Yurilu Gonzalez Moret¹, Diego Lema², kevin Lo³ and Fabian Rodriguez Quinonez⁴, ¹Jefferson Einstein Hospital, Philadelphia, PA, ²Universidad Central de Venezuela, University of Wisconsin, Philadelphia, PA, ³Brigham and Women's Hospital, Boston, MA, ⁴Einstein Medical Center Philadelphia, Philadelphia, PA
Background/Purpose: Sarcoidosis is a condition affecting multiple organ systems, characterized by the presence of non-caseating granulomas. Cardiac sarcoidosis (CS) is a challenging diagnosis, with a…
Abstract Number: 2552 • ACR Convergence 2024
Changes in Social Determinants of Health Needs Uncovered by a Rheumatology-Based Screening and Assistance Program
Haelynn Gim¹, Rebecca Summit², Karli Retzel², Leah Santacroce², Virginia Bills³, Nancy Shadick², Sara Schoenfeld⁴ and Candace Feldman², ¹Harvard Medical School, Brookline, MA, ²Brigham and Women's Hospital, Boston, MA, ³Mass General Brigham, Boston, MA, ⁴Massachusetts General Hospital, Boston, MA
Background/Purpose: Social determinants of health (SDoH), including non-medical social needs and adverse environmental exposures, contribute to inequities in rheumatic disease care and outcomes. Patients with…
Abstract Number: 0185 • ACR Convergence 2024
New and Severe Damage in a Prevalent Lupus Cohort Through the Lens of Demographic and Neighborhood Disparities
Jonathan Katz¹, Ang Yu², Felix Elwert², Robert Greenlee³, David Gazeley⁴, Ann Rosenthal⁵, Jenna Cormier⁵, Bryn Sutherland⁵, Shalvi Parikh⁶, Yiran Jiang⁷ and Christie Bartels⁸, ¹University of Wisconsin Hospitals and Clinics, Madison, WI, ²University of Wisconsin-Madison, Madison, WI, ³Marshfield Clinical Research Institute, Marshfield, WI, ⁴Medical College of Wisconsin, Wauwatosa, WI, ⁵Medical College of Wisconsin, Milwaukee, WI, ⁶Mississippi Delta Family Medicine Residency, Greenville, MS, ⁷Annapolis Rheumatology, Washington, DC, ⁸University of Wisconsin School of Medicine and Public Health, Madison, WI
Background/Purpose: Systemic Lupus Erythematosus (SLE) disproportionally affects minoritized populations. SLE damage, assessed by SLICC/ACR Damage Index (SDI), is higher in Black than in White US…
Abstract Number: 0619 • ACR Convergence 2024
Prevalence and Factors Predicting Hemophagocytic Lymphohistiocytosis in Hospitalized Patients with Systemic Lupus Erythematosus
OKEOGHENE AKPOIGBE¹, BETTINA ESCOLANO², ENOCH J ABBEY² and Amanda Sammut³, ¹New York City Health and Hospitals/Harlem in Affliation with Columbia University, NEW YORK, NY, ²New York City Health and Hospitals/Harlem in Affliation with Columbia University, NEW YORK, ³New York City Health and Hospitals/Harlem. Rheumatology Department, Chappaqua, NY
Background/Purpose: Systemic lupus erythematosus (SLE) complicated with hemophagocytic lymphohistiocystosis (HLH) can be life-threatening with mortality as high as 9.9%-10.5%. Estimates of the prevalence of HLH…
Abstract Number: 1031 • ACR Convergence 2024
Access to Advanced Therapies in Axial Spondyloarthritis in Latin America, Data from the PANLAR-ESPALDA Registry
Rodrigo Garcia Salinas¹, Fernando Andres Sommerfleck², Diego Vila³, Daniel Palleiro⁴, Daniel Fernández-Ávila⁵, Julio César Casasola Vargas⁶, Maria Amada Barcia⁷, Dora Liliana Candia Zuniga⁸, Nicolas Martin Marin Zucaro⁹, María Lorena Brance¹⁰ and Wilson Bautista-Molano¹¹, ¹Hospital Italiano La Plata, La Plata, Argentina, ²Sanatorio Julio Mendez, Buenos Aires, Argentina, ³Hospital Virgen del Carmen, Campana, Buenos Aires, Argentina, ⁴Instituto Nacional de Reumatologia, Montevideo, Uruguay, ⁵5Hospital San Ignacio, Colombia, BOGOTA, Colombia, ⁶Hospital General de México, “Dr.Eduardo Liceaga”, MEXICO CITY, Mexico, ⁷7Hospital General Portoviejo del Instituto Ecuatoriano de Seguridad Social (IESS), Guayaquil, Ecuador, ⁸8Hospital Regional Primero de Octubre ISSTE, Fuerzas Armadas, Mexico City, Mexico, ⁹Hospital Italiano de Buenos Aires, Capital Federal, Argentina, ¹⁰School of Medicine, Rosario National University, Argentina, Rosario, Argentina, ¹¹University Hospital Fundación Santa Fe de Bogotá, Bogotá, Colombia
Background/Purpose: Access to advanced treatments in LATAM poses challenges due to various socioeconomic factors. The PANLAR-ESPALDA registry was established with the objective of gathering data…
Abstract Number: 1917 • ACR Convergence 2024
Access to Rheumatology Care near Indian Health Service Hospitals for American Indian Communities
Tristan Furnary¹, Rachel Wallwork², Megan Lockwood³, Brooke Montgomery⁴, Caleb Bolden⁴, Siobhan Wescott⁵, Matthew Tobey⁴ and Marcy Bolster⁴, ¹Harvard Medical School, Brookline, MA, ²Johns Hopkins University, Towson, MD, ³Medstar Georgetown University Hospital, Washington, DC, ⁴Massachusetts General Hospital, Boston, MA, ⁵University of Nebraska Medical Center, Omaha, NE
Background/Purpose: Geographic barriers to subspecialty care among American Indian (AI) populations are poorly defined. Mapping the geographic distribution of rheumatology providers is a crucial step…

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