Abstracts tagged "Community programs"

Abstract Number: PP05 • ACR Convergence 2025
Mastering a Rare, Autoimmune Disease: My Journey Regaining Agency Through Education, Collaboration, and Community
Mustafa Shameem

Background/Purpose: After a complex diagnostic journey, my PCP working on a rheumatological theory ordered a myositis-specific autoantibody (MSA) panel. It revealed the presence of an…
Abstract Number: 2547 • ACR Convergence 2025
Assessing the Reach of a Virtual Education Program: Lupus & You: Answers. Advocacy. Action.
Ashley Holden, Wendy Rodgers, Khadija Dantata, Lety Ocana and Guadalupe Patino, The Lupus Foundation of America, Washington, DC
Background/Purpose: Comprehensive lupus education is essential for increasing awareness, early diagnosis and management of lupus due to the disease’s heterogenous nature. The Lupus Foundation of…
Abstract Number: 0630 • ACR Convergence 2025
Development, Validation and Performance of a Patient Knowledge Assessment Tool for Assessing the Immediate and Short-term Impact of an Information Course in Systemic Lupus Erythematosus
Ranjan Gupta, Rudra Prosad Goswami and Anju Mohan, All India Institute of Medical Sciences, New Delhi, Delhi, India
Background/Purpose: Long-term outcomes in rheumatic diseases can be improved by improving patients’ knowledge, beliefs and perception about their disease. However, there is a lack of…
Abstract Number: 0194 • ACR Convergence 2025
Evaluation of a Home-based Therapeutics Service: Feasibility, Patient and Caregiver Experience, and Cost
Xiaohui Xin, Andrea Low, Sow Ling Yee, Miao Miao Liu, Christina Tan, Daphne Ng and Siaw Ing Yeo, Singapore General Hospital, Singapore, Singapore
Background/Purpose: The home-based therapeutics service (HTS) by a community nurse is part of an ongoing larger initiative—Community Therapeutics Programme (CTP)—spearheaded by the Rheumatology and Immunology…
Abstract Number: 0349 • ACR Convergence 2024
Impact of the Stanford University Chronic Pain Self-Management Education Program on Pain Severity, Pain Self-Efficacy, and Pain Disability in a Population with a High Prevalence of Arthritis
Dina Jones¹, Louise Murphy², Ranjita Misra¹, Teresa Brady³, Sijin Wen¹, Dana Guglielmo⁴, Maura Robinson¹, Samantha Shawley-Brzoska¹, Chong Li¹, Alison Vargovich⁵, Megan Burkart⁶ and Richard Vaglienti¹, ¹West Virginia University, Morgantown, WV, ²Consultant, Halifax, NS, Canada, ³Clarity Consulting and Communications, Atlanta, GA, ⁴Consultant, Los Angeles, CA, ⁵Private Practice, Buffalo, NY, ⁶West Virginia Unviverstiy, Morgantown, WV
Background/Purpose: In 2021, 51.6 million (20.9%) US adults reported chronic pain (CP). Arthritis is a leading cause of CP. The Stanford Chronic Pain Self-Management Program…
Abstract Number: 0351 • ACR Convergence 2024
Empowering Lupus Communities: Evaluating a National Peer Support Program for Lupus Teen, Young Adult Patients and Their Families
Giselle Rodriguez, LCSW¹, Priscilla Calvache¹, Lillian Mendez², Kimberly Cabrera¹, Roberta Horton¹, Lisa Imundo³ and Jillian Rose-Smith¹, ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Carteret, NJ, ³New York Presbyterian Hospital - Columbia Campus, New York, NY
Background/Purpose: Research shows that peer support groups effectively provide emotional support, enhance knowledge, & improve coping for chronic illnesses. An evaluation of a bilingual hospital…
Abstract Number: 0979 • ACR Convergence 2024
The Joint Project: A Community-Based, Barangay Health Worker-Led Screening Program for Childhood Musculoskeletal Disorders in a Barangay in San Pedro, Laguna, Philippines
Ma Theresa Collante¹ and Leilani Mercado-Asis², ¹University of Santo Tomas, San Pedro, Laguna, Philippines, ²University of Santo Tomas, Man, National Capital Region, Philippines
Background/Purpose: Musculoskeletal diseases (MSD) are relevant across the life-course – from childhood to older age. In children, the most common MSD are fractures, scoliosis, arthritis…
Abstract Number: 1034 • ACR Convergence 2024
Elucidating the Program Theory of a Successful Interdisciplinary Team-Based Model of Rheumatology Care: An Exploratory Case Study
Lauren King¹, Daphne To¹, Zeenat Ladak², Carrie Barnes³, Catherine Hofstetter⁴, Carter Thorne⁵, Laura Oliva⁶, Noah Ivers², Jessica Widdifield⁷ and Celia Laur², and the Canadian Rheumatology Implementation Science Team (CAN-RIST), ¹University of Toronto, Toronto, ON, Canada, ²University of Toronto, Toronto, Canada, ³Patient Research Partner, Toronto, Canada, ⁴OMERACT, Toronto, Canada, ⁵Newmarket Rheumatology Consultants, Newmarket, ON, Canada, ⁶Women's College Hospital, Toronto, Canada, ⁷Sunnybrook Research Institute / ICES / UofT Institute of Health Policy, Management & Evaluation, Toronto, ON, Canada
Background/Purpose: The increasing prevalence of RMDs has resulted in a demand for care that surpasses the supply of rheumatologists, necessitating innovative care models to provide…
Abstract Number: 1929 • ACR Convergence 2024
Use of Digital Health Tools for Health Promotion Among Individuals with Rheumatologic Diseases in the United States
Ufuoma Mamoh¹, Soziema Salia¹, Alejandro Jaller¹, Comfort anim-koranteng², Joshua Halliday³, Joseph Atarere⁴, Ted Akhiwu¹ and Indira Acharya¹, ¹Medstar Union Memorial Hospital, Baltimore, MD, ²Harlem Medical Center, Harlem, NY, ³Grreater Accra Regional Hospital, Accra, Ghana, ⁴Department of Internal Medicine, MedStar Union Memorial Hospital, Baltimore, MD
Background/Purpose: Rheumatologic diseases (RDs) significantly impact the quality of life, cause significant socioeconomic burdens, and increase the risk of other systemic diseases including cardiovascular disease,…
Abstract Number: 1947 • ACR Convergence 2024
Optimizing Osteoarthritis Care Through Clinical and Community Partnership: Results of an Exploratory Trial
Kelli Allen¹, Liubov Arbeeva², Leigh Callahan³, Katherine Combs⁴, Tamara Godfrey⁵, Yvonne Golightly⁶, Derek Hales⁵, Carla Hill⁷, Katie Huffman⁸, Amanda Nelson⁵, Jennifer Rees⁵ and Todd Schwartz⁹, ¹University of North Carolina, Durham, NC, ²University of North Carolina, Chapel Hill, Carrboro, NC, ³University of North Carolina Thurston Arthritis Research Center, Chapel Hill, NC, ⁴YMCA of the Triangle, Raleigh, NC, ⁵University of North Carolina at Chapel HIll, Chapel Hill, NC, ⁶University of Nebraska Medical Center, Omaha, NE, ⁷UNC Health, Raleigh, NC, ⁸UNC Thurston Arthritis Research Center, Chapel Hill, NC, ⁹University of North Carolina-Chapel Hill, Chapel Hill, NC
Background/Purpose: Many studies have documented gaps in quality of care for knee and hip osteoarthritis (OA), particularly with respect to lifestyle (e.g., weight management, exercise)…
Abstract Number: PP12 • ACR Convergence 2024
Healing Together: The Role of Black, Indigenous and People of Color (BIPOC) -Only Chronic Illness Spaces in Comprehensive Care
Sarah Shaw and JP Summers, Global Healthy Living Foundation, Upper Nyack, NY
Background/Purpose: As someone from the Black, Indigenous, and People of Color (BIPOC) community living with rheumatic conditions, I have experienced firsthand many challenges that people…
Abstract Number: 2091 • ACR Convergence 2023
Reach and Representativeness of Participants in an Evidence-Based, Community-Delivered Physical Activity Intervention in Adults with Arthritis
Dina Jones¹ and Jennifer Hootman², ¹West Virginia University, Morgantown, WV, ²Centers for Disease Control and Prevention, Atlanta, GA
Background/Purpose: It is imperative that adults with arthritis and other chronic conditions are active enough to maintain health. Enhance®Fitness (EF) is an evidence-based physical activity…
Abstract Number: PP01 • ACR Convergence 2023
You Can’t Get This from a Doctor: The Role of Support Groups for Adults Aged 25-55 Living with Arthritis
Eileen Davidson, Global Healthy Living Foundation, Burnaby, BC, Canada
Background/Purpose: Living with a rheumatic condition comes with unique concerns specific to mental and social health like struggling with fatigue, anxiety, depression, and isolation, all…
Abstract Number: PP17 • ACR Convergence 2023
Utilizing Support Networks to Improve Patient Outcomes
Brian Vogel, Lupus and Allied Diseases Association, Inc., San Diego, CA
Background/Purpose: In 2006, I realized I was gay and identified as LGBTQIA but did not come out. In 2008, I began experiencing chronic widespread pain,…
Abstract Number: 1002 • ACR Convergence 2023
Optimizing Rural Rheumatology Access: Collaborative Tele-Health Clinic Between University of North Carolina and Piedmont Health 1 Year Extension and Opportunities for Improvement
Prarthana Jain¹, Eli Tiller², John Doughton³, Rumey Ishizawar⁴ and Alfredo Rivadeneira⁴, ¹University of North Carolina at Chapel Hill, Division of Rheumatology, Allergy and Immunology, Thurston Arthritis Research Center, Pittsboro, NC, ²University of North Carolina Department of Family Medicine, Piedmont Health Services, Siler City, NC, ³University of North Carolina Department of Family Medicine, Piedmont Health Services, Prospect Hill, NC, ⁴University of North Carolina at Chapel Hill, School of Medicine, Division of Rheumatology, Allergy, and Immunology, Thurston Arthritis Research Center, Chapel Hill, NC
Background/Purpose: Access to healthcare is challenging for racial and ethnic minorities, especially in medically underserved rural areas.1 This issue is particularly prevalent in North Carolina…

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