Abstracts tagged "Access to care"

Abstract Number: 1295 • ACR Convergence 2025
Neuropsychiatric Lupus in Children and Adolescents: Understanding Current Practices and Barriers to Care Perceived by Pediatric Rheumatology Clinicians in North America
Martha Rodriguez¹, Ekemini Ogbu², Ashley Danguecan³, Marietta De Guzman⁴, Alexandra Theisen⁵, Lawrence Ng⁶, Andrea Knight³ and Ryann Kammeyer⁷, ¹Riley Hospital For Children at Indiana University, Indianapolis, IN, ²Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Hospital for Sick Children, Toronto, ON, Canada, ⁴Baylor College of Medicine, Houston, TX, ⁵University of Arkansas, Little Rock, AR, ⁶The Hospital for Sick Children, Toronto, Canada, Toronto, ON, Canada, ⁷University of Colorado, Denver, CO
Background/Purpose: Neuropsychiatric involvement in Systemic Lupus Erythematosus (NPSLE) is a major cause of morbidity and mortality, particularly among children who are still developing neurologically. Despite…
Abstract Number: 1013 • ACR Convergence 2025
All roads lead to Rheum? Modeling scenarios of new patients-to-pediatric rheumatologist ratios in different US states
Gabriela Accetta Rojas¹, Evan Mulvihill², Salma Siddique¹ and Annemarie Brescia¹, ¹Nemours Children's Hospital of Delaware, Wilmington, DE, ²Nemours/A.I.duPont Hospital for Children, Wilmington, DE
Background/Purpose: Rheumatology is among the pediatric subspecialties with the lowest workforce density in the US1. Initial management of most of the pediatric rheumatologic conditions relies…
Abstract Number: 0192 • ACR Convergence 2025
Digital Empowerment on Hold: Adoption Gaps in Prescribable Digital Health Applications – A National Cross-Sectional Study from Germany
Phillip Kremer¹, Daniel Fink², Harriet Morf³, Hannah Labinsky⁴, Karolina Gente⁵, Peer Aries⁶, Martin Krusche¹, Sebastian Kuhn⁷, Axel Hueber⁸ and Johannes Knitza⁹, ¹Division of Rheumatology and Systemic Inflammatory Diseases, III. Department of Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany, ²Rheumazentrum Mittelhessen, Bad Endbach, Germany, ³Department of Medicine ³ - Rheumatology & Immunology, Friedrich-Alexander-Universität (FAU) Erlangen-Nürnberg and Uniklinikum Erlangen, Erlangen, Germany, ⁴University Hospital of Wuerzburg, Würzburg, Germany, ⁵Department of Internal Medicine V - Hematology, Oncology and Rheumatology, University Hospital Heidelberg, Heidelberg, Baden-Wurttemberg, Germany, ⁶Department of Rheumatology, Immunologikum, Hamburg, Germany, ⁷Institute for Digital Medicine, University Hospital of Giessen and Marburg, Philipps University Marburg, Marburg, Germany, ⁸Klinikum Nuernberg, Nuernberg, Germany, ⁹Institute for Digital Medicine, University Hospital Gießen-Marburg, Philipps University, Marburg, Germany
Background/Purpose: Rheumatic and musculoskeletal diseases (RMDs) are chronic conditions that require complex, multidisciplinary care. Since 2020, digital health applications (DiGAs) have been available for prescription…
Abstract Number: 2556 • ACR Convergence 2025
Information Needs of Patients with Vasculitis
Jodi Hall, Vasculitis Foundation, Shawnee, KS
Background/Purpose: The aim of this research was to discover and characterize the information needs of patients who have been diagnosed with vasculitis. Vasculitis is a term…
Abstract Number: 1933 • ACR Convergence 2025
Specialist Wound Care Services Provision and Sharp Debridement Practices for Digital Ulcers (DU) Management in Systemic Sclerosis (SSc): An International Survey
Rúben Duarte Fernandes¹, Fernando Estevez-Lopez², Michael Hughes³, Francesco Del Galdo⁴ and Begonya Alcacer-Pitarch¹, ¹Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, England, United Kingdom, ²University of Almeria, Almeria, Andalucia, Spain, ³Division of Musculoskeletal and Dermatological Sciences, The University of Manchester, Manchester Academic Health Science Centre, Manchester, UK, Manchester, England, United Kingdom, ⁴University of Leeds, Leeds, United Kingdom
Background/Purpose: DUs affect around 50% of SSc patients, however access to specialist wound-care services has been identified as a patient’s unmet need. This international survey…
Abstract Number: 1271 • ACR Convergence 2025
Overcoming Obstacles to Care: Survey of Adult Patients with Idiopathic Inflammatory Myopathies (IIM)
Saloni Patolia¹, Carolina Alvarez², Jessica Grant³, Paul Mihas⁴, Todd Schwartz⁵, Galen Foulke⁶, Amanda Nelson⁵ and Astia Allenzara⁵, ¹UNC Rheumatology, Durham, NC, ²University of North Carolina at Chapel Hill, Miami, FL, ³Odum Institute for Reseach in Social Science, Chapel Hill, NC, ⁴Odum Institute for Reseach in Social Science, Chapel Hill, ⁵Thurston Arthritis Research Center, Chapel Hill, ⁶Penn State Health, Hershey, PA
Background/Purpose: Idiopathic inflammatory myopathies (IIM) are heterogenous autoimmune diseases requiring coordinated, patient-centered care. Understanding patient perspectives on diagnosis, treatment, health screening, and barriers to care…
Abstract Number: 1011 • ACR Convergence 2025
Model-based Evaluation of the Potential Public Health Impact of Expanding Medicare Coverage for Weight Loss Medications for Beneficiaries with Knee Osteoarthritis and Obesity in the US.
Ethan Eickmann¹, Daniel Betensky¹, Karen Smith¹, Candace Feldman¹, Jason Kim², Ankur Pandya³, Jeffrey Katz⁴ and Elena Losina⁵, ¹Brigham and Women's Hospital, Boston, MA, ²Arthritis Foundation, Atlanta, GA, ³Harvard School of Public Health, Boston, ⁴Brigham and Women's Hospital, Brookline, MA, ⁵BWH, Boston, MA
Background/Purpose: US federal law currently does not allow Medicare Part D coverage for weight loss medications without additional indications, such as diabetes. Several glucagon-like peptide-1…
Abstract Number: 0191 • ACR Convergence 2025
Advanced therapy use in RA patients with moderate disease activity in a large NHS Foundation Trust in South London, UK
Aoibhinn Kelly¹, Maddalena Rupnik², Nasra Ahmed¹, Mrinalini Dey³ and Elena Nikiphorou⁴, ¹King's College Hospital NHS Foundation Trust, London, United Kingdom, ²Faculty of Medicine and Dentistry, Queen Mary University of London, London, United Kingdom, ³Centre for Rheumatic Diseases, King's College London, London, United Kingdom, ⁴King's College London, London, United Kingdom
Background/Purpose: Moderate disease in rheumatoid arthritis (RA) is defined as a 28-joint disease activity score (DAS28) of 3.2-5.1(MDAS). As per the National Institute for Health…
Abstract Number: 2551 • ACR Convergence 2025
Integrating Advanced Practice Providers into a Rheumatology Musculoskeletal Ultrasound Clinic: Enhancing Patient Access and Procedural Expertise
Christopher Estes¹, Janeth Yinh¹, Mark Matza¹, Marcy Bolster² and Minna Kohler³, ¹Massachusetts General Hospital, Boston, MA, ²Massachusetts General Hospital, Concord, MA, ³Massachusetts General Hospital, Harvard Medical School, Boston, MA
Background/Purpose: Point-Of-Care Ultrasound (POCUS) use among Advanced Practice Providers (APPs) is expanding across health care, yet formal rheumatology-specific POCUS training remains limited. Existing POCUS curricula…
Abstract Number: 1930 • ACR Convergence 2025
Can a Multinational Awareness Campaign Improve Referral Rates and Reduce Diagnostic Delays in Patients with Chronic Inflammatory Rheumatic Diseases? The Impact of a Prospective Interventional Study
Nelly Ziade¹, Karen Mechleb², Fatima Alnaimat³, Sherif Gamal⁴, Avin Maroof⁵, Bassel Elzorkany⁶, Manal Mashaleh⁷, Manal El Rakawi⁸, Mahmoud Adly⁹, Lina Elkibbi¹⁰, ERRAOUI Mariam¹¹, Krystel Aouad¹², Chafika Haouichat¹³, Nizar Abdullateef¹⁴, ASAL ADNAN RIDHA¹⁵, Fatemah Baron¹⁶ and Ihsane Hmamouchi¹⁷, ¹Department of Rheumatology, Saint-Joseph University and Hotel-Dieu de France, Beirut, Lebanon, ²Saint Joseph University Beirut, Beirut, Lebanon, ³The University of Jordan, amman, Jordan, ⁴Cairo University, Cairo, Egypt, ⁵University of Kurdistan Hawler, Erbil, Iraq, ⁶Private (BZRC), Cairo, Egypt, ⁷Al Saudi Hospital, Amman, Jordan, ⁸Djillali Bounaama University Hospital, Algiers, Algeria, Algiers, Algeria, ⁹Ministry of Health, Kuwait, Kuwait, Saad Elabdulla, Kuwait, ¹⁰Specialized Medical Center, Riyadh, Saudi Arabia, Riyadh, Saudi Arabia, ¹¹CHU Agadir, Agadir, Morocco, ¹²Department of Rheumatology, Saint George Hospital University Medical Center, Beirut, Lebanon, ¹³Djillali Bounaama University Hospital, Algiers, Algeria, ¹⁴Baghdad College of Medicine, Baghdad, Iraq, ¹⁵Baghdad Teaching Hospital, Baghdad, Iraq, ¹⁶Al-Jahra Hospital, Kuwait, Kuwait, Kuwait, Kuwait, ¹⁷Health Sciences Research Center (CReSS).Faculty of Medicine, International University of Rabat, Rabat, Morocco
Background/Purpose: Delayed diagnosis and treatment in chronic inflammatory rheumatic diseases (CIRDs), including rheumatoid arthritis (RA), axial spondyloarthritis (axSpA), and psoriatic arthritis (PsA), is associated with…
Abstract Number: 1265 • ACR Convergence 2025
Patient Portal Awareness and Utilization Across Diverse Rheumatology Populations
Emily Gutowski¹, Joshua Novack², Allyson Covello², Philip Carlucci³, Scott Goldberg¹, Mary Guan⁴, Marcus Hines², Elliot Philips², Michael Pillinger⁵ and Sara Stream⁶, ¹New York University Grossman School of Medicine, Brooklyn, NY, ²New York University Grossman School of Medicine, New York, NY, ³New York University School of Medicine, New York, NY, ⁴NYU Grossman SOM, Brooklyn, NY, ⁵New York University Grossman School of Medicine, New York,, NY, ⁶New York University Grossman School of Medicine, Great Neck, NY
Background/Purpose: Patients with rheumatic diseases face complex and chronic diagnoses that require close monitoring and frequent communication with their providers. Given increasing challenges to in-person…
Abstract Number: 0606 • ACR Convergence 2025
Increased Recombinant Zoster Vaccination in SLE following Public Reimbursement: Data from Two Prospective SLE Cohorts
Arielle Mendel¹, Nathalie Amiable², Yvan St-Pierre³, Sasha Bernatsky⁴, Ines Colmegna⁵, Michaël Desjardins⁶, Louis-Pierre Grenier⁷, Fares Kalache⁸, Christian Pineau⁹, Chantal Sauvageau¹⁰, Evelyne Vinet⁴ and Paul Fortin¹¹, ¹McGill University Health Centre, Montréal, QC, Canada, ²Centre de recherche du CHU de Québec – Université Laval, Quebec City, QC, Canada, ³Research Institute of the McGill University Health Centre, Montréal, QC, Canada, ⁴Research Institute of the McGill University Health Centre, Montreal, QC, Canada, ⁵The Research Institute of the McGill University Health Centre, Montréal, QC, Canada, ⁶Centre Hospitalier de l'Université de Montréal (CHUM)), Montreal, QC, Canada, ⁷Montreal General Hospital, Montréal, QC, Canada, ⁸McGill University Health Center, Montreal, QC, Canada, ⁹McGill University, Montréal, QC, Canada, ¹⁰Institut national de santé publique du Québec, Quebec City, QC, Canada, ¹¹Centre ARThrite - CHU de Québec - Université Laval, Quebec, QC, Canada
Background/Purpose: Herpes Zoster (shingles) is a common preventable adverse event in SLE. In Quebec, Canada, the Recombinant Zoster Vaccine (RZV) became free of charge for…
Abstract Number: 0181 • ACR Convergence 2025
Launch of the National Tele-Rheumatology Program (NTRP) to Expand Rheumatology Care to Rural Veterans
Cherish Wilson¹, Catherine Nasrallah², Gary Tarasovsky³, Alicia Hamblin⁴, Asia Williams⁵, Broderick Flynn⁵, Bernard Ng⁶ and gabriela Schmajuk⁷, ¹UCSF / SFVA, San Francisco, CA, ²University of California San Francisco (UCSF), San Francisco, CA, ³SFVA, San Francisco, ⁴UCSF, San Francisco, CA, ⁵Lexington VA, Lexington, ⁶Lexington VA, University of Washington, Seattle, ⁷University of California, San Francisco, and San Francisco Veterans Affairs Medical Center, San Francisco, CA
Background/Purpose: Given the nationwide shortage of rheumatologists, particularly in rural areas, many Veterans Affairs (VA) facilities have struggled to hire or retain specialists, resulting in…
Abstract Number: 2550 • ACR Convergence 2025
Development of a ‘Training Toolkit’ to Support Advanced Practice Providers (APPs) Entry into a Rheumatology Musculoskeletal Ultrasound Subspecialty Clinic
Christopher Estes¹, Janeth Yinh¹, Mark Matza², Marcy Bolster³ and Minna Kohler⁴, ¹Massachusetts General Hospital, Boston, MA, ²Massachusetts General Hospital, Newton, MA, ³Massachusetts General Hospital, Concord, MA, ⁴Massachusetts General Hospital, Harvard Medical School, Boston, MA
Background/Purpose: The integration of advanced practice providers (APPs) into rheumatology practice may help address increasing demand and long wait times.1 However, outcome data on APP…
Abstract Number: 1928 • ACR Convergence 2025
Oral Health in Patients with Rheumatic Diseases: A Pilot Quality Improvement Program
Margarita Isabel Alarcon-Jarquin¹, Fernanda M. Garcia-Garcia², Vanessa L. Lopez-Flores¹, Aleydis Gonzalez-Melendez³, Gabriel Figueroa-Parra³, Dionicio A. Galarza-Delgado² and Janett C. Riega-Torres⁴, ¹Rheumatology Service, University Hospital “Dr. José Eleuterio González”, Universidad Autónoma de Nuevo León, Monterrey, Nuevo Leon, Mexico, ²Rheumatology Service, Hospital Universitario Dr. José Eleuterio González, Universidad Autónoma de Nuevo León, Monterrey, Mexico, ³Rheumatology Service, Hospital Universitario “Dr. Jose Eleuterio Gonzalez”, Universidad Autonoma de Nuevo Leon, Monterrey, Mexico, ⁴Rheumatology Service, Hospital Universitario “Dr. Jose Eleuterio Gonzalez”, Universidad Autonoma de Nuevo Leon, Monterrey, Nuevo Leon, Mexico
Background/Purpose: Patients with rheumatic diseases commonly experience oral health issues such as dental caries, xerostomia, and periodontal disease. These complications are linked to both the…

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