ACR Meeting Abstracts

ACR Meeting Abstracts

  • Meetings
    • ACR Convergence 2024
    • ACR Convergence 2023
    • 2023 ACR/ARP PRSYM
    • ACR Convergence 2022
    • ACR Convergence 2021
    • ACR Convergence 2020
    • 2020 ACR/ARP PRSYM
    • 2019 ACR/ARP Annual Meeting
    • 2018-2009 Meetings
    • Download Abstracts
  • Keyword Index
  • Advanced Search
  • Your Favorites
    • Favorites
    • Login
    • View and print all favorites
    • Clear all your favorites
  • ACR Meetings

Abstract Number: 2792

The Need for Personalized, Non-Pharmacological Intervention Programmes in Autoimmune Connective Tissue Disorders: Results of a EULAR-Funded Scoping Review with a Nested, Descriptive Meta-Analysis

Valentin Ritschl1, Ricardo Ferreira 2, Rúben Fernandes 2, Eduardo Santos 2, Essi Juutila 3, Erika Mosor 1, Kim Fligelstone 4, Helena Gaspar 5, Linda Schraven 6, Judy Ammerlaan 7, Georg Stummvoll 8, Maria João Salvador 2, Janet Poole 9, Cornelia van den Ende 10, Carina Boström 11 and Tanja Stamm 1, 1Medical University of Vienna, Vienna, Austria, 2Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal, 3Metropolia University of Applied Sciences, Helsinki, Finland, 4Federation of European Scleroderma Associations, Tournai, Belgium, 5Portuguese League Against Rheumatic Diseases, Portugal, Portugal, 6Federation of European Scleroderma Associations, Sweden, Sweden, 7University Medical Centre, Utrecht, Netherlands, 8Klinikum Malcherhof Baden, Baden, Austria, 9University of New Mexico, Albuquerque, NM, 10Sint Maartenskliniek Nijmegen, Nijmegen, Netherlands, 11Karolinska Institutet, Stockholm, Sweden

Meeting: 2019 ACR/ARP Annual Meeting

Keywords: mixed connective tissue disease (MCTD) and systemic sclerosis, non-pharmacologic intervention, Systemic lupus erythematosus (SLE)

  • Tweet
  • Email
  • Print
Session Information

Date: Tuesday, November 12, 2019

Title: 5T101: Clinical Aspects & Outcomes Research (2792–2797)

Session Type: ARP Abstract Session

Session Time: 2:30PM-4:00PM

Background/Purpose: Autoimmune Connective Tissue Disorders (CTDs), including Mixed Connective Tissue Disorders (MCTD), systemic sclerosis (SSc) and systemic lupus erythematous (SLE) can lead to Raynaud phenomenon, involvement of internal organs, pain in joints, skin abnormalities and muscle weakness. Consequently, people with CTDs experience limitations in activities of daily life and restrictions in participation. Programmes promoting patient education, self-management, physical activity, and healthy life style, provided by health professionals are therefore essential to these patients. However, there is a substantial gap of knowledge about the content which should be included in non-pharmacological intervention programmes.

The purpose of this study was to identify, map and appraise the content of existent face-to-face, digital and/or distance-learning non-pharmacological intervention programmes for patients with MCTD, SSc and/or SLE to inform a EULAR funded project with the overall aim to develop a new distance learning programme realizable with digital technologies.

Methods: A scoping literature review with a nested descriptive meta-analysis was performed in MEDLINE [Pubmed], EMBASE [OVID], CINAHL [EBSCO], PsycINFO [ProQUEST], the Cochrane Database of Systematic Reviews, OTSeeker, PEDro, and SciELO in September 2018. Furthermore, an international task-force identified additional grey literature and ongoing research projects. Eligibility checks of the articles based on pre-defined in- and exclusion criteria and data extractions were done independently by two researchers. The interventions contained in these programmes were extracted using the “Better reporting of interventions: template for intervention description and replication (TIDieR) checklist and guide”. A Sankey diagram and descriptive statistics were used to illustrate the relationships between the interventions and other characteristics of the studies. The protocol was pre-published on ResearchGate.

Results: Of 6667 identified records, 94 papers were eligible. Sixty-one studies (65%) were conducted between 2000 and 2018, mainly in the USA (35 [37%]), Brazil (11 [12%]) and Italy (10 [11%]). Thirty-three studies (35%) were randomised controlled trials, 17 (18%) were one-group pre-post-test designs and 12 (16%) clinical trials without randomisation (Figure 1). Overall, 4274 patients participated; 2955 had SLE [69%] and 1319 had SSc [31%], thus no studies with MCTD where found. The main content of the intervention programmes included exercises (22 [23%]), self-management (9 [10%]) and education (7 [7%]), with treatment goals focusing mainly on physical function (27 [29%]), quality of life (19 [20%]) and fatigue (12 [16%]). The interventions (67 [72%]) included or were based on an initial face-to-face component.

Conclusion: There was a variety of programmes content and interventions due to different consequences regarding activity limitations and participation restrictions in autoimmune CTDs. This highlights the need for personalized, multicomponent, non-pharmacological interventions.


Disclosure: V. Ritschl, None; R. Ferreira, None; R. Fernandes, None; E. Santos, None; E. Juutila, None; E. Mosor, None; K. Fligelstone, None; H. Gaspar, None; L. Schraven, None; J. Ammerlaan, None; G. Stummvoll, None; M. Salvador, None; J. Poole, None; C. van den Ende, None; C. Boström, None; T. Stamm, Janssen, 8, MSD, 8, Novartis, 8, Roche, 2, 8.

To cite this abstract in AMA style:

Ritschl V, Ferreira R, Fernandes R, Santos E, Juutila E, Mosor E, Fligelstone K, Gaspar H, Schraven L, Ammerlaan J, Stummvoll G, Salvador M, Poole J, van den Ende C, Boström C, Stamm T. The Need for Personalized, Non-Pharmacological Intervention Programmes in Autoimmune Connective Tissue Disorders: Results of a EULAR-Funded Scoping Review with a Nested, Descriptive Meta-Analysis [abstract]. Arthritis Rheumatol. 2019; 71 (suppl 10). https://acrabstracts.org/abstract/the-need-for-personalized-non-pharmacological-intervention-programmes-in-autoimmune-connective-tissue-disorders-results-of-a-eular-funded-scoping-review-with-a-nested-descriptive-meta-analysis/. Accessed .
  • Tweet
  • Email
  • Print

« Back to 2019 ACR/ARP Annual Meeting

ACR Meeting Abstracts - https://acrabstracts.org/abstract/the-need-for-personalized-non-pharmacological-intervention-programmes-in-autoimmune-connective-tissue-disorders-results-of-a-eular-funded-scoping-review-with-a-nested-descriptive-meta-analysis/

Advanced Search

Your Favorites

You can save and print a list of your favorite abstracts during your browser session by clicking the “Favorite” button at the bottom of any abstract. View your favorites »

All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

Wiley

  • Online Journal
  • Privacy Policy
  • Permissions Policies
  • Cookie Preferences

© Copyright 2025 American College of Rheumatology