ACR Meeting Abstracts

ACR Meeting Abstracts

Abstract Number: 2697

Systemic Sclerosis Quality of Life Questionnaire (SScQoL) Captures the Complex Problems Experienced By Patients with Scleroderma

Matylda Sierakowska1, Stanislaw Sierakowski2, Marzena Olesinska3, Marek Brzosko4, Piotr Leszczynski5, Katarzyna Pawlak-Bus5, Bogdan Batko6, Piotr Wiland7, Maria Majdan8, Malgorzata Bykowska-Sochacka9, Wojciech Romanowski10, Aleksandra Zon-Giebel11, Slawomir Jeka12 and Mwidimi Ndosi13, 1Department of Integrated Medical Care, Medical University of Bialystok, Bialystok, Poland, 2Department of Rheumatology and Internal Diseases, Medical University of Bialystok, Poland, Bialystok, Poland, 3Department of Connective Tissue Disease, National Institute of Geriatrics, Rheumatology and Rehabilitation,, Warsaw, Poland, 4Department of Rheumatology and Internal Diseases, Pomeranian Medical University, Szczecin, Poland, 5Department of Rheumatology and Rehabilitation, Medical University in Poznan, Poznan, Poland, 6Center of Rheumatology, J. Dietl Hospital in Krakow, Krakow, Poland, 7Department and Clinic of Rheumatology and Internal Medicine, Medical University, Wroclaw, Poland, 8Department of Rheumatology and Connective Tissue Diseases, Medical University in Lublin, Lublin, Poland, 9Dr J. Titz-Kosko Regional Hospital for Rheumatic Diseases in Sopot, Sopot, Poland, 10Poznan Centre of Rheumatology in Srem, Srem, Poland, 11Silesian Center of Rheumatology, Rehabilitation and Prevention of Disability, Ustron, Poland, 122nd University Hospital, CM UMK, Department of Rheumatology and Connective Tissue Diseases,, Bydgoszcz, Poland, 13Department of Nursing and Midwifery, University of the West of England, Bristol, United Kingdom

Meeting: 2017 ACR/ARHP Annual Meeting

Date of first publication: September 18, 2017

Keywords: , , ,

Session Information

Date: Tuesday, November 7, 2017

Title: ARHP Systemic Sclerosis, Fibrosing Syndromes and Raynaud's – Clinical Aspects and Therapeutics Poster

Session Type: ACR Poster Session C

Session Time: 9:00AM-11:00AM

Background/Purpose:

Systemic sclerosis (SSc) is a chronic rheumatic disease that disturbs the patients’ biological, social, emotional spiritual, and physical functioning; resulting in reduced quality of life. The objective of this study was to assess if the newly adapted and validated tool, the Systemic Sclerosis Quality of Life (SscQoL) tool captures the complex health problems experienced by people with SSc.

Methods:

This was a cross-sectional analytical study, which included patients with SSc from 11 rheumatology clinics in Poland. We used the SScQoL (score range 0-29) to assess quality of life in people with SSc. We also assessed their functional status (Health Assessment Disability Index, HAQ-DI); psychological status (Hospital Anxiety and Depression Scale, HADS) and severity of other health problems (0-100 mm Visual Analogue Scale, VAS).

Results:

Patient characteristics are summarised in Table 1. Age was correlated with physical functioning domain QoL (rp=0.171; p=0.009) and breathing problems (rp=0.168; p=0.011). There was a correlation between disease duration and the following health problems: breathing problems (rp=0.217; p=0.001), Raynaud’s phenomenon (rp=0.184; p=0.005), fingers ulceration (rp=0.168; p=0.011), pain (rp=0.154; p=0.019) and the level of disability (rp=0.153; p=0.020).

Quality of life (SScQoL) was correlated with: HAQ-DI (rp=0.735; p<0.001), HADS-Anxiety (rp=0.631; p<0.001), HADS-Depression (rp=0.596; p<0.001), Pain-VAS (rp=0.593; p<0.001), Fatigue-VAS (rp=0.592; p<0.001) and the severity of Raynaud’s phenomenon (0-100 mm VAS) (rp=0.417; p<0.001).

Conclusion:

With the duration of SSc, the severity of clinical symptoms significantly reduced the quality of life of patients. The results suggest that SscQoL captures a range of complex health problems experienced by people with SSc. The improvement of the QoL in patients with SSc should be a priority objective for health professionals.

Table I. Patient characteristics, health problems and quality of life in patients with SSc

Variables studied (score range)

Mean (SD) – except where stated

Age

55.82 (12.55)

Disease duration

8.39 (8.18)

HAQ-DI (0 to 3)

0.99 (0.75)

Pain VAS (0 to 100)

33.08 (28.36)

Fatigue VAS (0 to100)

43.00 (29.04)

Raynaud’s attacks (0 to 100)

38.10 (31.90)

Intestinal problems (0 to 100)

20.18 (27.73)

Breathing problems (0 to 100)

26.57 (27.59)

Finger ulceration (0 to 100)

17.50 (27.85)

HADS A (0 to 21)

8.96 (4.67)

HADS D (0 to 21)

6.70 (4.12)

SScQoL (0 to 29)

14.81 (5.08)

SScQoL (domain)

* Degree of QoL

Function (0-6)

3.66 (1.57)

0.61

Emotional (0-13)

6.43 (3.04)

0.49

Social (0-6)

2.25 (1.87)

0.38

Sleep (0-2)

0.96 (0.91)

0.48

Pain (0-2)

0.98 (0.84)

0.49

*SScQoL domains have different number of items, therefore the degree of QoL is determined by average score divided by the maximum possible score for that domain

Disclosure: M. Sierakowska, None; S. Sierakowski, None; M. Olesinska, None; M. Brzosko, None; P. Leszczynski, None; K. Pawlak-Bus, None; B. Batko, None; P. Wiland, Celltrion Inc., 2; M. Majdan, None; M. Bykowska-Sochacka, None; W. Romanowski, None; A. Zon-Giebel, None; S. Jeka, None; M. Ndosi, None.

To cite this abstract in AMA style:

Sierakowska M, Sierakowski S, Olesinska M, Brzosko M, Leszczynski P, Pawlak-Bus K, Batko B, Wiland P, Majdan M, Bykowska-Sochacka M, Romanowski W, Zon-Giebel A, Jeka S, Ndosi M. Systemic Sclerosis Quality of Life Questionnaire (SScQoL) Captures the Complex Problems Experienced By Patients with Scleroderma [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 10). https://acrabstracts.org/abstract/systemic-sclerosis-quality-of-life-questionnaire-sscqol-captures-the-complex-problems-experienced-by-patients-with-scleroderma/. Accessed .

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