Background/Purpose: This study sought to assess the physical function and psychological well- being of teens with juvenile idiopathic arthritis (JIA) as well as to assess social media as an effective option for peer support among teens with JIA. 

Methods: Eighteen teens (age range 13-18) with medically managed JIA were recruited to participate in the study. The study team measured functional ability, functional capacity, and psychosocial wellbeing via standardized assessments.  A randomly selected subgroup of the cohort were given the opportunity to wear an activity monitor, with the intent of exploring the effects of technology in promoting self-management behaviors (increased activity levels or increased awareness of activity level).  All participants were invited to join a moderated online social media forum to qualitatively assess psychosocial well-being, as well as to explore social media as a potential option for peer support among teens with JIA. 

Results: Study results indicate that despite the presence of a chronic condition and occasional physical limitations, there are not significant differences in functional ability or psychosocial well-being amongst teens with JIA when compared to current literature describing healthy peers.   The qualitative responses from the online forum indicated difficulty with managing medications and a desire to participate in the same activities as peers, despite having pain.    

Conclusion: The qualitative responses, along with the overall poor compliance with the activity monitors and online forum, may indicate that teens with JIA require continued assistance from medical professionals and caregivers to take steps towards self- management of their condition.

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ACR Meeting Abstracts - https://acrabstracts.org/abstract/physical-function-and-psychological-well-being-in-teens-with-juvenile-idiopathic-arthritis-jia-characterization-and-exploration-of-technology-assisted-self-management/