ACR Meeting Abstracts

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  • Abstract Number: 041 • 2020 Pediatric Rheumatology Symposium

    Ancestry, Demographic and Clinical Features of Israeli Periodic Fever Aphthous Stomatitis, Pharyngitis and Adenitis (PFAPA) Syndrome – a Multi-center Cohort

    Gil Amarilyo1, Liora Harel 2, Sabreen Abu Ahmad 3, Maryam Abu Rumi 3, Riva Brik 4, Nofar Hezkelo 5, Orly Ohana 6, Yoel Levinsky 7, Gabriel Chodick 5 and Yonatan Butbul Aviel 8, 1Schneider Hospital, Tel Aviv University, Kibbutz Magal, Israel, 2Schneider Hospital, Tel Aviv University, Petah-Tiqva, Israel, 3Ruth Rappaport Children's Hospital, Rambam Medical Center, Haifa, Israel, 4Haifa, Israel, 5Sackler Faculty of Medicine, Tel Aviv University, Ramat Aviv, Israel, Tel Aviv, Israel, 6Schneider Children's Medical Cener of Israel, Petach Tikva, Israel, 7Schneider Children's Medical Cnetr of Israel, Tel Aviv University, Petach Tikva, Israel, 8Rambam Medical center, Haifa, Hefa, Israel

    Background/Purpose: Periodic fever, aphthous stomatitis, pharyngitis and adenitis (PFAPA) syndrome is an autoinflammatory disease of unknown etiology. Recently, we showed that there may be a…
  • Abstract Number: 042 • 2020 Pediatric Rheumatology Symposium

    Safety Analysis of Infliximab-dyyb as Compared to Infliximab in Pediatric Rheumatic Conditions

    Mary Culp 1, Dusty Lewis 1, Bethanne Thomas 2, Fatima Barbar-Smiley 3, Kyla Driest 4, Edward Oberle 4, Stacy Ardoin 1 and Kelly Wise1, 1Nationwide Children's Hospital, Columbus, 2Nationwide Children's, Columbus, 3Nationwide Children's Hospital, Columbus, Ohio, 4Division of Rheumatology, Nationwide Children's Hospital, Columbus

    Background/Purpose: Infliximab is an effective treatment for many pediatric rheumatic conditions, but high medication cost creates a barrier to patient access. Biosimilar drugs are proven…
  • Abstract Number: 043 • 2020 Pediatric Rheumatology Symposium

    Resolution of Coronary Artery Changes in Patients with Refractory Kawasaki Disease with Prolonged Course of Infliximab: A Case Series

    Shelley Shi1 and Anusha Ramanathan 1, 1Kaiser Permanente Los Angeles, Los Angeles, California

    Background/Purpose: Treatment for patients with Kawasaki Disease (KD) refractory to standard therapy is controversial. Most experts recommend a second dose of IVIG [1], and for…
  • Abstract Number: 044 • 2020 Pediatric Rheumatology Symposium

    Nailing Down Nailfold Capillaroscopy Practices: A Survey of Pediatric Rheumatologists Within the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Network

    Sonia Savani1, Natasha Ruth 2, Paul Nietert 1, Gabrielle Morgan 3, Mileka Gilbert 1 and Lauren Pachman 4, 1Medical University of South Carolina, Charleston, South Carolina, 2Medical University South Carolina, Charleston, South Carolina, 3Ann & Robert H. Lurie Children's Hospital of Chicago and Northwestern University Feinberg School of Medicine, Chicago, Illinois, 4Northwestern's Feinberg School of Medicine. Ann and Robert H. Lurie Children's Hospital of Chicago; Stanley Manne Children's Research Institute of Chicago, 303 E Superior, Chicago

    Background/Purpose: Juvenile dermatomyositis (JDM) is a rare systemic autoimmune disease characterized by vasculopathy and rash. The Bohan-Peter criteria for dermatomyositis are not ideal. There is…
  • Abstract Number: 045 • 2020 Pediatric Rheumatology Symposium

    No-Shows: a Search for Modifiable Risk Factors

    Samantha Ong 1, Xujia Li 1 and Austin Dalrymple2, 1Saint Louis University School of Medicine, St. Louis, 2Saint Louis University School of Medicine, Saint Louis, Missouri

    Background/Purpose: Missed ambulatory visits, or “no-shows,” limit patient access, increase costs, occupy provider time, and lead to worse patient outcomes. Only a few studies have…
  • Abstract Number: 046 • 2020 Pediatric Rheumatology Symposium

    Near Infrared Indocyanine Green Imaging Reveals Altered Anatomy and Diminished Function in Lymphatic Vessels in the Hands of Rheumatoid Arthritis Patients During Flare

    Richard Bell 1, Homaira Rahimi2, H. Mark Kenney 2, Ronald Wood 2, Alicia Lieberman 3, Edward Schwarz 4 and Christopher Ritchlin 5, 1University of Rochester Medical Center, Rochester, 2University of Rochester, Rochester, 3Batavia, 4University of Rochester, Rochester, NY, USA, Rochester, 5University of Rochester Medical Center, Canandaigua

    Background/Purpose: Near infrared (NIR) imaging studies of subdermal indocyanine green (ICG) in murine models of inflammatory arthritis have established abnormal lymphatic vessel (LV) function during…
  • Abstract Number: 047 • 2020 Pediatric Rheumatology Symposium

    Patients with Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry: Clinical Characteristics and Inception Cohorts

    Yongdong Zhao1, Timothy Beukelman 2, Yukiko Kimura 3, Mara Becker 4, Sarah Ringold 5, Anne Dennos 6 and Laura Schanberg 7 for the CARRA investigators, 1University of Washington, Seattle, 2University of Alabama at Birmingham, Birmingham, 3Hackensack Meridian School of Medicine, Hackensack, 4Duke University Medical Center/Duke Clinical Research Institute, Chapel Hill, 5Seattle Children's, Seattle, 6Duke University, Durham, 7Duke University Hospital, DURHAM

    Background/Purpose: In July 2015, the CARRA Registry was re-established as a multi-center observational study that collects essential data from patients with childhood-onset rheumatic diseases. The…
  • Abstract Number: 048 • 2020 Pediatric Rheumatology Symposium

    Novel Algorithm to Increase Sensitivity of Detecting Active Arthritis in Children Through Infrared Thermal Imaging

    Yongdong Zhao1, Ramesh Iyer 1, Mahesh Thapa 1, Debosmita Biswas 1, Kevin Cain 1, Savannah Partridge 1 and Carol Wallace 1, 1University of Washington, Seattle

    Background/Purpose: Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease in children. The use of infrared thermal imaging for screening JIA has not utilized…
  • Abstract Number: 049 • 2020 Pediatric Rheumatology Symposium

    Levels of Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis (JIA) and Their Correlation to Disease Manifestations Using Patient-Reported Outcomes Measurement Information System (PROMIS®) Measures

    Danielle Fair1, Judyann Olson 2, Jan Lemke 3, Stella Protopapas 4, Ke Yan 5 and Jian Zhang 6, 1Medical College of Wisconsin & Affiliated Hospitals: Children's Wisconsin, Wauwatosa, Wisconsin, 2Medical College of Wisconsin: Children's Wisconsin, Wauwatosa, Wisconsin, 3Children's Wisconsin, Milwaukee, Wisconsin, 4Riley Children’s Hospital at Indiana University, Indianapolis, Indiana, 5Medical College of Wisconsin, Milwaukee, Wisconsin, 6Medical College of Wisconsin, 53226, Wisconsin

    Background/Purpose: Children with chronic diseases have higher rates of mental health issues and less favorable outcomes than the general pediatric population.  Children with JIA experience…
  • Abstract Number: 050 • 2020 Pediatric Rheumatology Symposium

    Long Term Safety of Biologics and Biosimilars in Pediatric Rheumatic Diseases: An Experience from a Single North Indian Centre

    MANJARI AGARWAL 1, Sujata Sawhney2 and Anju Singh 3, 1Sir Ganga Ram Hospital, NEW DELHI, Delhi, India, 2Sir ganga ram hospital, Sector 37 noida, Uttar Pradesh, India, 3Sir Ganga Ram Hospital, delhi, India

    Background/Purpose:  The use of biologic response modifiers(BRMs) is associated with an increased risk of infections.We also use biosimilars for two reasons:1. originator not available, like…
  • Abstract Number: 051 • 2020 Pediatric Rheumatology Symposium

    Pediatric Providers’ Perspectives on Suspected Immune-Mediated Diffuse Alveolar Hemorrhage and Clinical Care Pathways

    Jessica Bloom1 and Robert Fuhlbrigge 2, 1Children's Hospital Colorado, Aurora, Colorado, 2University of Colorado, Aurora

    Background/Purpose: Immune-mediated diffuse alveolar hemorrhage (iDAH) is a life-threatening complication of pediatric rheumatologic diseases such as vasculitis, systemic lupus erythematosus, and antiphospholipid antibody syndrome. Delay…
  • Abstract Number: 052 • 2020 Pediatric Rheumatology Symposium

    Nasopharyngeal Pneumococcus Colonization in Patients with Childhood Onset Systemic Lupus Erythematosus (cSLE) Compared to Healthy Controls

    Fatima Barbar-Smiley1, Stacy Ardoin 2, Chack-Yung Yu 3, Veronica Mruk 4, Cagri Yildirim-Toruner 2, Vidya Sivaraman 5, Joanne Drew 1, alexa meara 6, Asuncion Mejias 2 and Octavio Ramilo 7, 1Nationwide Children's Hospital, Columbus, Ohio, 2Nationwide Children's Hospital, Columbus, 3Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, 4The Ohio State University, Columbus, 5Division of Rheumatology, Nationwide Children's Hospital, Bexley, 6The Ohio State University Wexner Medical Center, COLUMBUS, 7Nationwide Children's Hospital, 700 Children's Drive

    Background/Purpose: Streptococcus pneumoniae (S. pneumoniae) may lead to severe life-threatening infections in both the general and immunocompromised population. Patients diagnosed with Systemic Lupus Erythematosus (SLE)…
  • Abstract Number: 053 • 2020 Pediatric Rheumatology Symposium

    Acceptability and Usability Testing of a Preliminary Version of the JIA Option Map, an Electronic Decision Aid for Pain Management Options in Juvenile Idiopathic Arthritis

    Karine Toupin April1, Adam Huber 2, Ciaran Duffy 3, Deema Couchman 1, Laurie Proulx 4, Esi Morgan 5, Fjolla Berbatovci 1, Andrea Boyd 1, Hannah Sachs 1, Alexandra Sirois 6, Lucie Brosseau 3, Janice Cohen 7, Margaret Bisch 3, Aditi Sivakumar 1, Marco Ragusa 1, Tania El Hindi 8, Isabelle Gaboury 9, Linda Li 10, Elizabeth Stringer 11, France Legare 12, Sabrina Cavallo 13, Michele Gibbon 14, Paul Fortin 15, William Brinkman 5, Mark Connelly 16, Jennifer Weiss 17, Sabrina Gmuca 18, Peter Tugwell 19 and Jennifer Stinson 20, 1Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada, 2IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, 3Ottawa, Canada, 4Canadian Arthritis Patient Alliance, Ottawa, Canada, 5Cincinnati Children's Hospital, Cincinnati, 6Outremont, Canada, 7Children's Hospital of Eastern Ontario, Ottawa, Canada, 8Statistics Canada, Ottawa, Canada, 9University of Sherbrooke, Sherbrooke, Canada, 10University of British Columbia, Vancouver, Canada, 11IWK Health Centre, Halifax, Canada, 12Laval University, Quebec City, Canada, 13University of Montreal, Montreal, Canada, 14Children's Hospital of Eastern Ontario RI, Ottawa, Canada, 15CHU de Quebec - Universite Laval, Quebec, Canada, 16Kansas City, 17Hackensack University Medical Center, Hackensack, 18Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, 19University of Ottawa - Ottawa, Ottawa, Canada, 20University of Toronto & The Hospital for Sick Children, Toronto, Ontario, Canada

    Background/Purpose: Although juvenile idiopathic arthritis (JIA) is one of the most common causes of chronic musculoskeletal pain among youth, families’ decision-making for pain management is…
  • Abstract Number: 054 • 2020 Pediatric Rheumatology Symposium

    Clinical and Laboratory Characteristics in Juvenile-onset Systemic Lupus Erythematosus Across Age Groups

    Joseph Massias 1, Eve Smith 1, Michael Beresford 1 and Christian Hedrich1, 1University of Liverpool, Liverpool, United Kingdom

    Background/Purpose: Systemic lupus erythematous (SLE) is a systemic autoimmune/inflammatory condition. Up to 20% of patients develop symptoms before their 18th birthday and are diagnosed with…
  • Abstract Number: 055 • 2020 Pediatric Rheumatology Symposium

    Differential Analysis of Serum and Urine S100 Proteins in Juvenile-onset Systemic Lupus Erythematosus (jSLE)

    Sean Donohue 1, Angela Midgley 1, Jennifer Davies 1, Rachael Wright 1, Ian Bruce 2, Michael Beresford 1 and Christian Hedrich1, 1University of Liverpool, Liverpool, United Kingdom, 2The University of Manchester, Manchester, United Kingdom

    Background/Purpose: Juvenile-onset systemic lupus erythematosus (jSLE) is a systemic autoimmune/inflammatory disease. Up to 80% of patients develop lupus nephritis (LN) that affects treatment and prognosis(1-3).…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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