ACR Meeting Abstracts

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  • Abstract Number: PP08 • ACR Convergence 2022

    Learning to Advocate for Myself and the Young Adult Community While Finding My Place as a Patient Partner at CARRA (Childhood Arthritis and Rheumatology Research Alliance)

    Ela Chintagunta1, Courtney Wells2 and Kristine Carandang3, 1Young Patients' Autoimmune Research & Empowerment Alliance, Chicago, IL, 2University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN, 3Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA

    Background/Purpose: I was diagnosed with Juvenile Idiopathic Arthritis at the age of 13 when I was experiencing joint swelling in my lower body and my…
  • Abstract Number: PP05 • ACR Convergence 2022

    From Practical Tips to Heartfelt Encouragement: How Social Media Can Improve Quality of Life with Rheumatic Disease

    Cheryl Crow1 and Zoe Rothblatt2, 1Arthritis Life, Bellevue, WA, 2Global Healthy Living Foundation, New York, NY

    Background/Purpose: Living with different autoimmune rheumatic diseases, we (Cheryl and Zoe) share similar struggles with disease management, and successes in learning new ways to use…
  • Abstract Number: 2262 • ACR Convergence 2022

    Albumin-hitchhiking MMP13 siRNA Conjugate (siMMP13< (EG18L)2) for the Treatment of Rheumatic Disease

    Juan Colazo1, Ella Hoogenboezem1, Fang Yu1, Veeraj Shah1, Justin Lo1, Hongsik Cho2, Karen Hasty2, Leslie Crofford3 and Craig Duvall1, 1Department of Biomedical Engineering, Vanderbilt University, Nashville, Nashville, TN, 2Department of Orthopaedic Surgery and Biomedical Engineering, Memphis VA Medical Center, Memphis, TN, 3Vanderbilt University Medical Center, Nashville, TN

    Background/Purpose: Osteoarthritis (OA) and rheumatoid arthritis (RA) decrease quality of life due to joint destruction, pain, and decreased function. Multiple joint osteoarthritis (MJOA) can occur…
  • Abstract Number: 2241 • ACR Convergence 2022

    Autoantibodies and Damage in Patients with Idiopathic Inflammatory Myopathies: A Longitudinal Multicenter Study from the EuroMyositis International Network

    Fabricio Espinosa-Ortega1, Karin Lodin2, Marie Holmqvist1, Maryam Dastmalchi3, Angela Ceribelli4, Jiri Venkovsky5, Hector Chinoy6, Louise Diederichsen7, Samuel Shinjo8, Ingrid Lundberg9 and Helene Alexanderson1, 1Karolinska Institutet, Stockholm, Sweden, 2Karolinska University hospital, Huddinge, Sweden, 3Karolinska University Hospital, Stockholm, Sweden, 4Humanitas Research Hospital, Humanitas University, Rozzano (MI) Italy, Borgo San Giacomo, Italy, 5Charles Univ Prague, Inst Rheumatol, Prague, Czech Republic, Prague, Czech Republic, 6The University of Manchester, Sale, United Kingdom, 7Copenhagen University Hospital, Rigshospitalet, Dragør, Denmark, 8Faculdade de Medicina FMUSP, Universidade de São Paulo, São Paulo, Brazil, 9Karolinska Universitetssjukhuset, Karolinska Institutet, Stockholm, Sweden

    Background/Purpose: Patients with idiopathic inflammatory myopathies (IIM) may harbor autoantibodies that are associated with well-defined clinical phenotypes. The association of these autoantibodies with level of…
  • Abstract Number: PP16 • ACR Convergence 2022

    Please Hear Me: How Effective Provider-Patient Communication Improved My Psoriatic Arthritis

    Ashley Krivohlavek, Oklahoma City, OK

    Background/Purpose: At age 12, I was diagnosed with psoriasis (PsO) followed by a diagnosis of psoriatic arthritis (PsA) at age 30. I'm now 38. In…
  • Abstract Number: PP14 • ACR Convergence 2022

    The Use of Social Support as Treatment

    Aleta McLean, Open Hand Atlanta, Atlanta, GA

    Background/Purpose: The months leading up to my diagnosis were frustrating. Initially my hair started falling out. I was told it was stress related. I was…
  • Abstract Number: PP19 • ACR Convergence 2022

    Living with Rheumatoid Arthritis in a Rural Farming Community: How I Found a Rheumatologist and Got Targeted Treatment

    Vanessa Kerr, Mexico, MO

    Background/Purpose: I'm Vanessa and I've been married to James, a farmer, for 27 years. We have 5 children and when my fourth was born, I…
  • Abstract Number: PP18 • ACR Convergence 2022

    From Devastated to Empowered: How Patient Engagement in Research Changes Lives

    Eileen Davidson, Burnaby, BC, Canada

    Background/Purpose: In April of 2015 I was a 29 year-old single mom diagnosed with rheumatoid arthritis (RA). RA wasn't unknown to me; my aunt who…
  • Abstract Number: PP21 • ACR Convergence 2022

    What Lies Beneath: Making Rheumatoid Arthritis Visible for the Seronegative Patient Through Blood Work

    Shilpa Venkatachalam, Global Healthy Living Foundation, New York, NY

    Background/Purpose: When I first received my Rheumatoid Arthritis (RA) diagnosis 5 years ago, I experienced a combination of relief and disbelief. Relief because now all…
  • Abstract Number: PP22 • ACR Convergence 2022

    Patients Raising Awareness for Patients – A Collaborative Partnership Between Take a Pain Check Foundation and Canadian Arthritis Patient Alliance

    Natasha Trehan1 and Laurie Proulx2, 1Take a Pain Check Foundation, Markham, ON, Canada, 2Canadian Arthritis Patient Alliance, Ottawa, ON, Canada

    Background/Purpose: Juvenile Idiopathic Arthritis is a chronic disease that affects a child's school life and relationships, creating social isolation for youth and young adults. Take…
  • Abstract Number: PP13 • ACR Convergence 2022

    How Becoming Engaged in My Care with Specialized Tools and Support Helped Me Find My Personal Lupus Triggers and Regain Control of My Health

    Tonya Hinton-Green, Philadelphia, PA

    Background/Purpose: My story begins in the ER where I was diagnosed with lupus right after my 22nd birthday.For the next 25 years I went from…
  • Abstract Number: PP24 • ACR Convergence 2022

    Planting Seeds of Self-Advocacy: Increasing Healthcare Engagement in Children and Adolescents Through Arthritis Camp

    Kaye Anderson1, Kristine Carandang2 and Courtney Wells3, 1Young Patients' Autoimmune Research & Empowerment Alliance, River Falls, WI, 2Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, 3University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN

    Background/Purpose: I was diagnosed with Juvenile Idiopathic Arthritis at the age of ten. The constant battle between doctor appointments, pain, and medication side effects left…
  • Abstract Number: PP26 • ACR Convergence 2022

    Chronically Catherine: A Sex and the City-Inspired Autobiographical Column for Disabled Young Adults on Subjects We Really Care About – Like Disabled Dating and How Hot Cheetos Saved My Life

    Catherine Ames1, Courtney Wells2 and Kristine Carandang1, 1Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, 2University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN

    Background/Purpose: What if Carrie Bradshaw, sex advice columnist, fashionsta, and all around icon from Sex and the City were chronically ill? Or disabled? That's the…
  • Abstract Number: PP11 • ACR Convergence 2022

    Exercise as a Supportive Treatment for My Ankylosing Spondylitis

    Sara King-Dowling, Children's Hospital of Philadelphia, Philadelphia, PA

    Background/Purpose: Patients with autoimmune rheumatic diseases (ARDs) are often caught in a paradox as they experience mobility challenges, but long periods of immobility cause increased…
  • Abstract Number: PP10 • ACR Convergence 2022

    How Advocating for My Autoimmune Disease Led Me to Desire to Pursue a Career in Rheumatology

    Brooklyn Johnson1 and Kathleen Collins2, 1Memphis, TN, 2LeBonheur Children's Hospital, Memphis, TN

    Background/Purpose: The summer before my senior year, I developed a faint rash on my face and my arms. At a dermatology appointment, I pointed this…
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Embargo Policy

All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM CT on October 25. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

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