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  • Abstract Number: 2027 • 2012 ACR/ARHP Annual Meeting

    Chronic Nonbacterial Osteomyelitis of the Mandible in Children: a Tertiary Center Experience

    Daniela S. Ardelean1 and Ronald Laxer2, 1Pediatric Rheumatology, Hospital for Sick Children, Toronto, ON, Canada, 2Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada

    Background/Purpose:  Chronic nonbacterial osteomyelitis (CNO) of the mandible is a rare osseous autoinflammatory disease. Diagnosis is based on characteristic clinical, laboratory and imaging features. Our…
  • Abstract Number: 2028 • 2012 ACR/ARHP Annual Meeting

    Medication Adherence and Quality of Life in Children with Rheumatic Disease

    Stacey E. Tarvin1, Lisa M. Macharoni2, Christine M. Raches3 and Nicole M. Taylor2, 1Pediatric Rheumatology, Riley Hospital for Children, Indianapolis, IN, 2School of Psychological Sciences, University of Indianapolis, Indianapolis, IN, 3Riley Child Development Center, Riley Hospital for Children, Indianapolis, IN

    Background/Purpose: Children with rheumatic diseases are often prescribed complex medication regimens.  Medication side-effects may have a negative impact on physical appearance and subsequently impact adherence. …
  • Abstract Number: 2029 • 2012 ACR/ARHP Annual Meeting

    Reliability of Scoring a Disease Damage Measure for Juvenile Localized Scleroderma

    Kathryn S. Torok1, Suzanne C. Li2, Christina Kelsey3, Mara L Becker4, Fatma Dedeoglu5, Robert C. Fuhlbrigge6, Gloria Higgins7, Sandy D. Hong8, Maria F. Ibarra9, Ronald Laxer10, Thomas G. Mason II11, Marilynn G. Punaro12, Elena Pope13, C. Egla Rabinovich14 and Katie G. Stewart12, 1Pediatric Rheumatology, Scleroderma Center of Pittsburgh, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 2Pediatrics, Joseph M Sanzari Children's Hospital, Hackensack University Medical Center, Hackensack, NJ, 3Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, 4Clinical Pharmacology and Rheumatology, Children's Mercy Hospital, Kansas City, MO, 5Division of Immunology, Boston Children's Hospital, Boston, MA, 6Pediatric Rheumatology, Childrens Hospital, Boston, MA, 7Pediatric Rheumatology NATIONWIDE CHILDRENS HOSPITAL, PRCSG-Cincinnati Children's Hospital Medical Center, Columbus, OH, 8Pediatrics-Rheumatology, U of Iowa Children's Hosp, Iowa City, IA, 9Pediatric Rheumatolgy, Children's Mercy Hospital, Kansas City, MO, 10Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, 11Rheumatology, Mayo Clinic Rochester, Rochester, MN, 12Pediatric Rheumatology, Texas Scottish Rite Hospital, Dallas, TX, 13Dermatology, The Hospital for Sick Children, Toronto, ON, Canada, 14Pediatric Rheumatology, Duke University Medical Center, Durham, NC

    Background/Purpose: .    In order to more accurately capture disease activity and damage in juvenile Localized Scleroderma (jLS) and to develop an accepted outcome measure for…
  • Abstract Number: 2030 • 2012 ACR/ARHP Annual Meeting

    A Multi-Modal Amplified Musculoskeletal Pain Treatment Program: Associations of Previous Pharmacotherapy with Subsequent Outcomes

    Cara M. Hoffart1, Pamela Weiss2, David D. Sherry3, Chris Feudtner4 and Margaret Stineman5, 1The Children's Hospital of Philadelphia, Philadelphia, PA, 2Center for Pediatric Clinical Effectiveness, Children's Hospital of Philadelphia, Philadelphia, PA, 3Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA, 4Division of General Pediatrics, Children's Hospital of Philadelphia; University of Pennsylvania Center for Clinical Epidemiology and Biostatistics, Philadelphia, PA, 5The University of Pennsylvania, Philadelphia, PA

    Background/Purpose: Management of Amplified Musculoskeletal Pain (AMP) in children (i.e. juvenile primary fibromyalgia, complex regional pain syndrome, neuropathic pain, central sensitization) remains controversial. Common practice…
  • Abstract Number: 2031 • 2012 ACR/ARHP Annual Meeting

    Safety and Efficacy of Anakinra in Patients with Deficiency of Interleukin-1 Receptor Antagonist

    Gina A. Montealegre1, Adriana Almeida de Jesus2, Dawn C. Chapelle3, Paul Dancey4, Joost Frenkel5, Annet van Royen-Kerkhoff6, Ronit Herzog7, Giovanna Ciocca8, Rafael F. Rivas-Chacon8, Ann M. Reed9, Nicole Plass3, Ivona Aksentijevich10, Polly J. Ferguson11, Suvimol C. Hill12, Edward Cowen13 and Raphaela T. Goldbach-Mansky3, 1NIAMS, Bethesda, MD, 2Translational Autoinflammatory Disease Section, National Institute of Arthritis and Musculoskeletal and Skin Diseases, NIH, Bethesda, MD, 3Translational Autoinflammatory Diseases Section, National Institute of Arthritis and Musculoskeletal and Skin Diseases, NIH, Bethesda, MD, 4Health Science Centre, Memorial University of Newfoundland, St Johns, Canada, 5Wilhelmina Childrens Hospital, University of Utrecht, Utrecht, Netherlands, 6University of Utrecht, Utrecht, Netherlands, 7Cornell University, New York, NY, 8Miami Children's Hospital, Miami, FL, 9Rheumatology, Mayo Clinic, Rochester, MN, 10Inflammatory Disease Section, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, 11Dept of Pediatrics--Rheum, University of Iowa Carver College of Medicine, Iowa City, IA, 12Radiology and Imaging Sciences, NIH Clinical Center, Bethesda, MD, 13Dermatology Consultation Servce, National Cancer Institute, National Institutes of Health, Bethesda, MD

    Background/Purpose: Deficiency of interleukin-1 receptor antagonist (DIRA) is a neonatal-onset autoinflammatory syndrome caused by mutations in IL1RN gene and clinically characterized by a perinatal onset…
  • Abstract Number: 2032 • 2012 ACR/ARHP Annual Meeting

    Results From a Multicentre International Registry of Familial Mediterranean Fever: Impact of Genetic and Environment Factors On the Expression of a Monogenic Disease in Children

    Seza Ozen1, Erkan Demirkaya2, Gayane Amaryan3, Isabelle Koné-Paut3, Adem Polat3, Turker Turker3, Patricia Woo4, Yosef Uziel5, Consuelo Modesto3, Martina Finetti3, Pierre Quartier6, Efimia Papadopoulou-Alataki3, Sulaiman Al-Mayouf3, Giovanna Fabio3, Romina Gallizzi7, Luca Cantarini8, Joost Frenkel9, Susan Nielsen10, Michael Hofer3, Antonella Insalaco3, Huri Ozdogan3, Nicolino Ruperto3 and Marco Gattorno3, 1Hacettepe University, Ankara, Turkey, 2Gulhane Military Medical Faculty, Ankara, Turkey, 3Paediatric Rheumatology International Trials Organization (PRINTO), Istituto Giannina Gaslini, Genova, Italy, 4University College London, London, United Kingdom, 5Pediatric Rheumatology, Meir medical center, Kfar Saba, Israel, 6Pediatric Rheumatology, IMAGINE Institute, Hôpital Necker-Enfants Malades, Assistance Publique Hôpitaux de Paris, Université Paris-Descartes, Paris, France, 7University of Messina, Messina, Italy, 8University of Siena, Siena, Italy, 9University Medical Center Utrecht, Utrecht, Netherlands, 10Istituto Giannina Gaslini, Genoa, Italy

    Background/Purpose: Familial Mediterranean Fever (FMF) is an autoinflammatory disease caused by mutations in a single gene, the MEFV gene. The disease is very frequent among…
  • Abstract Number: 2033 • 2012 ACR/ARHP Annual Meeting

    Infliximab Is an Effective Therapy in Pediatric Renal Sarcoidosis

    Elisa Wershba1, Laura Lewandowski1, Heather Van Mater2 and C. Egla Rabinovich1, 1Pediatric Rheumatology, Duke University Medical Center, Durham, NC, 2Duke Pediatric Rheumatology, Duke University Medical Center, Durham, NC

    Background/Purpose:   Renal sarcoidosis is an unusual form of a rare multisystem disease, and there is little data to guide therapy. The cytokines implicated in…
  • Abstract Number: 2034 • 2012 ACR/ARHP Annual Meeting

    Magnetic Resonance Imaging Is a Reliable Tool to Monitor Chronic Non-Bacterial Osteomyelitis in Children

    Grazia Minardo1, Giulia Zanon1, Simone Corradin2, Pietro Zucchetta3, Giorgia Martini4, Fabio Vittadello1 and Francesco Zulian5, 1Department of Pediatrics, University of Padua, Padua, Italy, 2Institute of Radiology, University of Padua, Padua, Italy, 3Department of Nuclear Medicine, University of Padua, Padua, Italy, 4Department of Pediatrics,, University of Padua, Padua, Italy, 5Department of Pediatrics, University of Padua, Padova, Italy

    Background/Purpose: Chronic non-bacterial osteomyelitis (CNO) is a rare condition characterized by inflammatory bone lesions with no detectable infectious agents. It may be unifocal (U-CNO) or…
  • Abstract Number: 2035 • 2012 ACR/ARHP Annual Meeting

    Performance of Icbd (International Criteria for Behcet’s Disease) in Iranian Children with Behcet’s Disease

    Nahid Shafaie1, Bahar Sadeghi Abdollahi2 and Fereydoun Davatchi2, 1Rheumatology Research Centre, Shariati Hospital-Tehran Univ, Tehran, Iran, 2Rheumatology, Behcet's Unit, Rheumatology Research Center, Tehran University of Medical Sciences, Tehran, Iran

    Background/Purpose: ICBD is the new international criteria for diagnosis/classification of Behcet’s Disease, created in 2006. The scoring system for ICBD depends on 2 points for…
  • Abstract Number: 2036 • 2012 ACR/ARHP Annual Meeting

    Children’s Hospital of Pittsburgh Pediatric Onset En Coup De Sabre and Parry-Romberg Syndrome Cohort

    Kristin M. Brown1, Darren Smith2, Christina Kelsey3, Katherine Kurzinski4 and Kathryn S. Torok5, 1Pediatric Rheumatology, University of Pittsburgh, Pittsburgh, PA, 2Plastic and Reconstructive Surgery, university of Pittsburgh Division of Plastic and Reconstructive Surgery, Children's Hospital of Pittsburgh, Pittsburgh, 3Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, 4Pediatric Rheumatology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 5Pediatric Rheumatology, Scleroderma Center of Pittsburgh, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA

    Background/Purpose: Localized scleroderma is an autoimmune disease characterized by disfiguring thickening and fibrosis of the skin and underlying soft tissues; the majority of cases have…
  • Abstract Number: 2037 • 2012 ACR/ARHP Annual Meeting

    Poor Quality of Gout Care Is Strongly Associated with Higher Gout-Related Health Care Utilization

    Jasvinder A. Singh1 and Joshua Richman2, 1Department of Medicine, University of Alabama, Tuscaloosa, AL, 2Biostatistics, UAB School of Medicine, Birmingham, AL

    Background/Purpose:   Proponents of improving quality of gout care have suggested various gout quality indicators, but no study to date has shown the link between…
  • Abstract Number: 2039 • 2012 ACR/ARHP Annual Meeting

    Uveitis Surveillance Through Lean-Six Sigma for Quality Assurance in Juvenile Idiopathic Arthritis

    Anjali Patwardhan1, Kelly Kelleher2, Jeffery Hoffman3, Karla B. Jones4, Stacy P. Ardoin5 and Charles H. Spencer6, 1Pediatric Rheumatology, Nationwide Childrens Hospital, Columbus, OH, 2Pediatric Research and innovation, Nationwide Childrens Hospital, Columbus, OH, 3Emergency Medicine, Nationwide Childrens Hospital, Columbus, OH, 4Rheumatology ED260- 2S, Nationwide Children's Hospital, Columbus, OH, 5Pediatric & Adult Rheumatology, Ohio State University College of Medicine, Columbus, OH, 6Rheumatology, Nationwide Childrens Hospital, Columbus, OH

    Background/Purpose:  Chronic asymptomatic iridocyclitis occurs in 10-20% of all patients with JIA leading to insidious but progressive morbidity and possible blindness. Patients with JIA-associated uveitis…
  • Abstract Number: 2040 • 2012 ACR/ARHP Annual Meeting

    Provisions of Quality Driven Care in Childhood-Onset Systemic Lupus Erythematosus

    Matthew C. Hollander1, Jessica M. Sage2, Alexandria J. Greenler2, Tadej Avcin3, Michael W. Beresford4, Graciela Espada5, Marisa S. Klein-Gitelman6, Michael Henrickson7, Tsz-Leung Lee8, Joshua D. Pendl9, Marilynn G. Punaro10, Jennifer L. Huggins11, Anne M. Stevens12 and Hermine Brunner11, 1Division of Rheumatology, Seattle Children's Hospital, Seattle, WA, 2Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3International Investigator Consortium for MAS Diagnostic Criteria, Ljubljana, Slovenia, 4Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom, 5Rheumatology Section, Childrens Hosp Ricardo Gutierrez, Buenos Aires, Argentina, 6Division of Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, 7MLC 4010, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 8Paediatrics and Adolescent Med, Queen Mary Hospital, Hong Kong, Hong Kong, 9Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 10Pediatric Rheumatology, Texas Scottish Rite Hospital, Dallas, TX, 11Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 12Pediatrics, University of Washington, Seattle, WA

    Background/Purpose:  Quality Indicators (QI) are retrospectively measurable elements of practice performance for which there is evidence or consensus that can be used to assess the…
  • Abstract Number: 2000 • 2012 ACR/ARHP Annual Meeting

    Whole Body Magnetic Resonance Imaging in Evaluation of Enthesitis in Spondyloarthropathy

    Hemalatha Srinivasalu1, Suvimol C. Hill2, Gina A. Montealegre Sanchez3, April D. Brundidge3, Michael M. Ward4 and Robert A. Colbert3, 1Rheumatology, NIAMS NIH, Bethesda, MD, 2Radiology and Imaging Sciences, NIH Clinical Center, Bethesda, MD, 3NIAMS NIH, Bethesda, MD, 4Bldg 10 CRC Rm 4-1339, NIAMS NIH, Bethesda, MD

    Background/Purpose: Enthesitis is a characteristic feature of spondyloarthritis (SpA). Tenderness at enthesial points constitutes clinical enthesitis. However, this may not always correlate with actual inflammation…
  • Abstract Number: 2001 • 2012 ACR/ARHP Annual Meeting

    Methotrexate and Injectable Tumor Necrosis Factor Alpha Inhibitor Adherence and Persistence in Children with Rheumatic Diseases

    Sarah Ringold1, Shannon Grant2, Charmaine Girdish3, Carol A. Wallace4 and Sean Sullivan5, 1Pediatrics, Seattle Children's Hospital/Univ of Washington, Seattle, WA, 2Axio Research LLC, Seattle, WA, 3Research, CVS Caremark, Scottsdale, AZ, 4Pediatrics, Seattle Childrens Hospital, Seattle, WA, 5Health Sciences Building, University of Washington, Seattle, WA

    Background/Purpose: Medication adherence and persistence have been demonstrated to have important implications for treatment effectiveness, cost, and safety. Methotrexate is one of the most commonly…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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