Abstract Number: 79 • 2016 ACR/ARHP Annual Meeting
A NOVEL Missense Mvk mutation in a Family with Familial Mediterranean Fever-like Disease
Background/Purpose: Monogenic autoinflammatory diseases are mainly disorders of innate immunity and characterized by unprovoked inflammatory attacks. We studied a consanguineous family with two affected children,…Abstract Number: 80 • 2016 ACR/ARHP Annual Meeting
Impact of a Patient Support Program on Abandonment of Adalimumab Treatment Initiation in Patients with Rheumatoid Arthritis, Ankylosing Spondylitis, and Psoriatic Arthritis
Background/Purpose: Treatment abandonment (failure to start therapy after prescription) is common among patients (pts) prescribed specialty pharmaceuticals. AbbVie offers a pt support program (PSP) for…Abstract Number: 81 • 2016 ACR/ARHP Annual Meeting
Understanding the Importance of a Patient’s Role in the Management of RA: Physician- and Patient-Based Survey
Background/Purpose: RA is a chronic, debilitating condition for which there is no cure. To identify and better understand the perspectives of both healthcare providers (HCPs)…Abstract Number: 82 • 2016 ACR/ARHP Annual Meeting
Patients with Rheumatoid Arthritis in Germany: Are They Ready for Ehealth Via Mobile Medical Applications?
Background/Purpose: Mobile medical Applications (mApps) with diary functions and integrated patient-reported outcome instruments allow patients (pts) with rheumatoid arthritis (RA) to self-monitor their disease apart…Abstract Number: 83 • 2016 ACR/ARHP Annual Meeting
A Qualitative Study Exploring Participants’ Perception of the Making It Work Program, an Online Program to Help People with Inflammatory Arthritis Maintain Employment
Background/Purpose: Health services addressing employment needs for people with arthritis are lacking. To address this need, we developed the Making it Work (MiW) program, an…Abstract Number: 84 • 2016 ACR/ARHP Annual Meeting
Treatment Outcomes and Predictors of Patient Support Program Use Among Patients with Rheumatoid Arthritis: Results from a Post-Marketing Observational Study (PMOS)
Background/Purpose: Patient (pt) support programs (PSPs) are offered to Rheumatoid arthritis (RA) pts to help manage treatment of this chronic disease. Little information is available…Abstract Number: 85 • 2016 ACR/ARHP Annual Meeting
Evaluation of Patient Satisfaction with the on-Tracc Program; Benefits of a Joint Approach
Background/Purpose: The University of Alberta Division of Rheumatology has launched a new multidisciplinary clinic, the On-TRACC Program (On Treating Rheumatoid Arthritis – Providing Access to…Abstract Number: 86 • 2016 ACR/ARHP Annual Meeting
Optimizing the Efficiency of Patient Data Capture Using Smartphone Technology: Evaluation of the Correlation Between Promis Instruments for PRO Data Capture
Background/Purpose: Patient-reported outcomes (PROs) are key to enabling the comprehensive assessment of patient-centered benefits in comparative effectiveness research (CER). However, the relationships between different PROMIS…Abstract Number: 87 • 2016 ACR/ARHP Annual Meeting
Familiarity Vital for Telemedicine Uptake Among Parents of Pediatric Rheumatology Patients
Background/Purpose: The United States pediatric rheumatology (PR) workforce is committed to a mission of providing children access to PR care. With a limited number and…Abstract Number: 88 • 2016 ACR/ARHP Annual Meeting
Patient-Clinician Co-Participation in Design of an App for RA Management Via Telehealth Yields an App with High Usability and Acceptance
Background/Purpose: Traditional management of rheumatoid arthritis (RA) is by rheumatologist review 3 to 6 monthly. This is not sustainable in many healthcare systems as demand…Abstract Number: 89 • 2016 ACR/ARHP Annual Meeting
2015 ACR/ARHP Workforce Study (WFS): Adult Rheumatology Specialists in the United States: Effect of Gender and Generation
Background/Purpose: Workforce surveys are essential to plan for training, recruitment, practice management, funding, and access to care. Gender and generational differences may have significant effects…Abstract Number: 90 • 2016 ACR/ARHP Annual Meeting
Impacts of Anti-TNF Treatment on Improvement in Work Place and Household Productivity in Patients with Psoriatic Arthritis
Background/Purpose: Psoriatic arthritis (PsA) is a unique inflammatory arthritis that affects the skin, nails, and the joints. Most of the patients consider PsA to have…Abstract Number: 91 • 2016 ACR/ARHP Annual Meeting
A Systematic Review of Smartphone Applications for Measuring and Recording Rheumatoid Arthritis Disease Activity
Background/Purpose: It is recommended that management of rheumatoid arthritis (RA) requires regular quantitative assessment of RA activity. Treat to target management could be facilitated by use…Abstract Number: 92 • 2016 ACR/ARHP Annual Meeting
Is Patient Support Program (PSP) Participation Associated with Longer Persistence and Greater Adherence Among New Users of Adalimumab?
Background/Purpose: In Israel, patients treated with adalimumab (ADA) can enroll in a patient support program (PSP) provided by AbbVie, which includes a home visit by…Abstract Number: 93 • 2016 ACR/ARHP Annual Meeting
2015 ACR/ARHP Workforce Study in the United States: Adult Rheumatologist Supply and Demand Projections for 2015-2030
Background/Purpose: The 2015 ACR Workforce study updated the current and projected adult rheumatology workforce for the next 15 years. Methods: The 2015 ACR/ARHP Workforce…
