Session Type: Abstract Submissions (ACR)
Background/Purpose: Ankylosing spondylitis is a kind of chronic inflammatory diseases, inflammation of the sacroiliac joint and spine attachment points are the main symptoms , as a kind of chronic disease, the patients’ self-management is very importantTo investigate and evaluate the effect a new kind of health management model on disease-related knowledge, joint function and quality of life in patients with ankylosing spondylitis(AS).
Methods: 84 patients with AS Who have signed the informed consent in China were included in this study. All the patients satisfied the ACR classification criteria for AS.Doctors and AS patients co-builded a club which was a new kind of self-management model in the follow-up 6 months.In the club,the medical staff could give AS patients psychological guidance, pain guidance, dietary guidance and life guidance,patients could also give others positive impact. before and after six months of this management model of club, we evaluate the disease-related knowledge, compliance, joint function, psychological quality, and life quality by questionnaire of AS health management and Bath AS Function Index (BASFI) .
Results: The questionnaire score of disease-related knowledge in AS patients increased significantly from (58.14 ± 11.62) to (74.77 ± 10.16) (p = 0.000); In the long process of treatment, many AS Patients despair and feel hopeless because they thought it impossible to Work like a healthy person,but after this management model ,the ration has been significantly reduced from14.1% (11/84) to 3.57% (3/84)(P = 0.017). Meanwhile,patients willing to cooperate with doctors and face life actively increased significantly from 72.62% (61/84) to 90.48% (76/84), (P = 0.003).Patients unwilling to insist long-term drug therapy for fear of side effects dropped significantly from 35.71% (30/84) to 4.76% (4/84) (P = 0.000);Patients who quit smoking and drinking, and could diet reasonably rose significantly from 45.24% (38/84) to 79.76% ( 67/84), (P = 0.000); BASFI score improved from 5.25 ± 1.93 to 3.90 ± 1.87 (P = 0.000); Patients with satisfaction of health education increased significantly from 72.62% (61/84) to 100% (84/84), P = 0.000.
Conclusion: AS club could mobilize patients’ initiative, make them cooperate actively with doctors.By this new kind of management model,AS patients could gain more knowledge about health and improve their joint function;And what’s more, this kind of management model also increased the patients’ ability of self-management, improved their life quality.
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ACR Meeting Abstracts - https://acrabstracts.org/abstract/effects-of-self-management-model-on-the-disease-related-knowledge-joint-function-and-quality-of-life-in-patients-with-ankylosing-spondylitis/