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Abstract Number: 2009

Development of Multimedia Patient Education Tools (MM-PtET) for Osteoarthritis (OA), Osteoporosis (OP) and Rheumatoid Arthritis Patients (RA)

Maria A. Lopez-Olivo1, Aparna Ingleshwar2, Robert Volk3, Andrea Barbo4, Maria Jibaja-Weiss5 and Maria E. Suarez-Almazor6, 1Department of General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX, 2The University of Texas MD Anderson Cancer Center, Houston, TX, 3General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX, 4Department of Biostatistics, The University of Texas, MD Anderson Cancer Center, Houston, TX, 5Office of Outreach and Health Disparities, Baylor College of Medicine, Houston, TX, 6The Department of General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX

Meeting: 2014 ACR/ARHP Annual Meeting

Keywords: Knee, Osteoporosis and rheumatoid arthritis (RA)

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Session Information

Title: Education (ARHP): Education/Community Programs

Session Type: Abstract Submissions (ARHP)

Background/Purpose

The purpose of our study was to develop and perform usability testing of Multimedia Patient Education Tools (MM-PtET) for patients with knee osteoarthritis, osteoporosis and rheumatoid Arthritis.

Methods

We developed three MM-PtETs following an Edutainment Model (one for each disease). The goals were designed to make the programs both didactic and entertaining and the navigation and graphical user interface as simple as possible. Entertainment education was provided via a storyline with several episodes linked to the consecutive learning modules which emphasized the content of the episodes.  Learning objectives were drafted for each MM-PtET topic. After segments of the scenes were developed, we pre-tested them to ascertain that the stories had the appropriate cultural context and lifestyle. Refinements were made to the program after pre-testing to ensure accuracy. Ten cognitive interviews per disease were conducted to identify potential language and imagery issues in the MM-PtDA. Once the MM-PtET was finalized patients (20 per disease) were shown the tool and were interviewed. Their disease knowledge was tested with a self-report questionnaire (before and after viewing the MM-PtET).

Results

The general sequence of content was: (i) overview of the disease, (ii) description of treatments, (iii) testimonial I, (iii) description of the harms and benefits of each option (iv) testimonial II, (v) review of key facts and suggestions for questions to ask of the patient’s doctor, and vi) testimonial III. Both the content and the instructions were narrated, and visual cues were provided to reach patients who are poor readers or who cannot read. We created both English and Spanish-language versions. After cognitive interviewing, 4 of the 10 patients suggested adding more content: for knee osteoarthritis, information on knee replacement and rehabilitation after surgery; for osteoporosis, providing more information on the difference between osteoporosis and osteoarthritis; and for rheumatoid arthritis: (i) including more information on nutrition to prevent anemia and bone decalcification and (ii) exercises to help with the stiffness.  In the pilot testing, 60 participants were interviewed and in terms of acceptability, most patients in all disease groups found the length and amount of information presented in the MM-PtETs to be “just right”, and the presentation as ‘balanced”. In terms of comprehension, all participants provided a favorable evaluation of the MM-PtET; all found the video easy to use, the vocabulary easy to understand and the material to be well organized. All participants felt they: 1) gained “clarity” on disease duration, symptoms, and time medication takes to start acting, 2) were “encouraged to see their doctor regularly”, and 3) were more aware about taking their medications. Statistically significant differences were observed in pre-post knowledge questionnaire scores (OA, p=0.03; OP, p=0.001; RA, p<0.0001).

Conclusion

Multimedia tools that incorporate video modeling can help patients better understand and manage their disease. Patient involvement in the development process is essential to ensure relevant content and usability.


Disclosure:

M. A. Lopez-Olivo,
None;

A. Ingleshwar,
None;

R. Volk,
None;

A. Barbo,
None;

M. Jibaja-Weiss,
None;

M. E. Suarez-Almazor,
None.

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