Session Type: Abstract Submissions
Session Time: 5:30PM-7:00PM
Methods: We included patients between 15 and 23 years old, transferred from Pediatric Rheumatology with diagnosis of a rheumatic condition of childhood onset. These patients were included in the Program between March 2015 and January 2017. First evaluation of all adolescents was in presence of the parent or the responsible adult, in next visits at least part of the interview was just between the young adult and the doctor. In some cases before the complete transfer, one alternate adult and pediatric clinic was scheduled. In every transition clinic the HEADDSS interview for adolescents was applied, besides address the particular issues concern to the specific disease. The time between controls was determined based on diagnosis and activity of the disease. Pharmacologic adherence treatment was defined as the follow up of instructions, asking parents and patients. Clinic adherence was defined as if the patients assist or not to their appointments at Transition Clinic.
Results: Mean age of patients was 18 years old (15-23 yo), 35/40 female gender and most of them form urban areas. 21/40 teenagers has Juvenile Idiopathic Arthritis, 9/40 Pediatric Systemic Lupus Erythematosus, 3/40 Undifferentiated connective tissue disease, 2/40 Uveitis, 1/40 Fibromyalgia, 2/40 Sjögren´s Syndrome, 1/40 Morphea and 1/40 Recurrent Polychondritis. 9/40 patients had active disease at the moment of transition, 4/40 was transfer to the adult team as inpatients because of the age at the moment of admission. The mean follow up time was 9,25 months (1 – 22 months). At first interview 8/40 adolescents were seen alone by the adult rheumatologist, in last visit of each adolescent, 14/40 came alone to the meeting. 10/40 could be seen in alternate way by the pediatric rheumatologist and the adult one at the Transition Clinic. Just 3/40 teenagers didn´t continue their attention at Transition Clinic and 4/40 were non adherent to therapy at some time during follow up.
This is the first report of adolescents with rheumatic conditions at Transition Clinic in our Center and shows how a planned process to move teenagers and their parents from pediatric care to the adult care has allowed the continuity of treatment and attention in most of our patients.
To cite this abstract in AMA style:Armstrong M, Talesnik E, Diaz PA, Borzutzky A, Morales P. Description of first 40 patients from a Rheumatologic Transition Clinic in Chile [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4). https://acrabstracts.org/abstract/description-of-first-40-patients-from-a-rheumatologic-transition-clinic-in-chile/. Accessed March 19, 2019.
« Back to 2017 Pediatric Rheumatology Symposium
ACR Meeting Abstracts - https://acrabstracts.org/abstract/description-of-first-40-patients-from-a-rheumatologic-transition-clinic-in-chile/