Session Type: Abstract Submissions
Session Time: 5:30PM-7:00PM
Methods: Practicing pediatric rheumatologists registered in the Brazilian Society of Rheumatology were surveyed using a modified Childhood Arthritis and Rheumatology Research Alliance (CARRA) SurveyMonkey® questionnaire that had been used previously to evaluate transition practices of pediatric rheumatologists in the USA and Canada.
Results: Seventy-six of 112 (68%) pediatric rheumatologists responded. Only 13% of the respondents reported that they had a well-established transition program and only 14% were satisfied with their current transition process. 80% did not use any specific tools to assess transition readiness. 43% of respondents considered 18 as the ideal transition age, but only a third of patients transitioned at that age while 48% transitioned later. Major hurdles for a successful transition included emotional attachment to the patients (95%) insufficient knowledge about a transition team (87%), lack of devoted time for transition preparation and process (80%), lack of assistance by pediatric generalists (77%), and lack of available adult subspecialists (75%). 67% of respondents stated that their program would need more tools/resources to facilitate transition and 59% believed that the development of specific guidelines would be useful to standardize and help with the transition process.
Conclusion: Our study demonstrates that the identified challenges pertaining to transition in Brazilian patients are similar to those reported by American and Canadian pediatric rheumatologists. A comprehensive understanding of transition issues will support the development of transition guidelines and ensure better outcomes of adolescents transitioning patients.
To cite this abstract in AMA style:Sakamoto AP, Anelli C, Amorim AL, Osaku F, Terreri MT, Len CA, Reiff A. Challenges in Transitioning Adolescents with Rheumatologic Diseases to Adult Care – The Brazilian Experience [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4). https://acrabstracts.org/abstract/challenges-in-transitioning-adolescents-with-rheumatologic-diseases-to-adult-care-the-brazilian-experience/. Accessed May 21, 2019.
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ACR Meeting Abstracts - https://acrabstracts.org/abstract/challenges-in-transitioning-adolescents-with-rheumatologic-diseases-to-adult-care-the-brazilian-experience/