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Abstract Number: 2341

A Link between Quality of Patient–Rheumatologist Communication and Patient Healthcare Needs in Psoriatic Arthritis: An Online Survey of US-Based Patients and Rheumatologists

Ana-Maria Orbai1, Laura C. Coates2, Valderilio F Azevedo3, Amit Garg4, Amar Majjhoo5, Christopher E M Griffiths6, Pamela Young7, Joseph C Cappelleri8, Jade Moser9 and Lara Fallon10, 1Johns Hopkins University School of Medicine, Baltimore, MD, 2University of Oxford, Oxford, United Kingdom, 3Universidade Federal do Paraná, Curitiba, Brazil, 4Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Hempstead, NY, 5Shores Rheumatology, St Clair Shores, MI, 6Dermatology Centre, University of Manchester, Manchester, United Kingdom, 7Pfizer Inc, Collegeville, PA, 8Pfizer Inc, Groton, CT, 9The Harris Poll, Rochester, NY, 10Pfizer Canada, Montreal, QC, Canada

Meeting: 2018 ACR/ARHP Annual Meeting

Keywords: Communication, patient questionnaires and psoriatic arthritis

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Session Information

Date: Tuesday, October 23, 2018

Session Title: Patient Outcomes, Preferences, and Attitudes Poster II: Patient Perspectives

Session Type: ACR Poster Session C

Session Time: 9:00AM-11:00AM

Background/Purpose: Patient (pt)–rheumatologist (rheum) communication may influence symptom reporting and disease control in psoriatic arthritis (PsA). This online survey evaluated pt–rheum communication and assessed PsA symptoms/life impact and satisfaction in pts who reported good/suboptimal communication.

Methods: The survey was conducted in the USA from Nov 2 to Dec 1 2017 (pts) and Dec 11 2017 to Jan 25 2018 (rheums). Eligible pts (≥18 years) self-reported having had PsA for >1 year, had visited a rheum or dermatologist in the past year, and reported using ≥1 synthetic(s)/biologic(b) DMARD for PsA. Rheums saw ≥10 PsA pts/month with ≥50% of pts receiving a s/b DMARD. Differences in pt-reported PsA impacts are evaluated by pt–rheum communication status (Table). Analyses are based on descriptive statistics and two-tailed tests for proportions.

Results: In total, 301 pts with PsA responded, mean (SD) age 45 (14.2) years, 61% female, 89% self-reported moderate/severe PsA. 256 pts (85%) were managed by a rheum and are the focus of this analysis. Most pts (93%) and rheums (88%) were satisfied with their current communication. Over 40% of pts reported aspects of suboptimal pt–rheum communication that may impact satisfaction (Table). Overall, 93% of pts were comfortable raising concerns/fears (acknowledged by 94% of rheums) while pts with suboptimal communication were less comfortable doing so (Table). Rheums generally demonstrated good understanding of PsA-related pt worries, and rheums and pts (50% and 52%, respectively) identified ability to perform activities of daily living and/or live independently as a key concern. The negative impact of PsA on physical activity, emotional/mental well-being, work productivity, and romantic relationships/intimacy was considered major/moderate by most rheums (88%, 79%, 75%, 59%, respectively) in alignment with pt reports (80%, 66%, 61%, 55%, respectively). In suboptimal communication pt groups, the impact of PsA on aspects of HRQoL was greater than in good communication groups (Table; p<0.05). Overall, rheums expressed a desire for greater pt understanding of PsA symptoms (86%) and consequences of untreated PsA (88%) and pts expressed a desire to discuss PsA and treatment goals; however, pts with suboptimal communication were less likely to share PsA symptoms with their rheum (Table).

Conclusion: The majority of pts and rheums were satisfied with communication, and rheums were generally aware of pts’ worries and impact of PsA on HRQoL. Over 40% of pts reported communication gaps. Pts who reported suboptimal communication were more reluctant to discuss symptoms, ask questions, or share concerns/fears and experienced a greater impact of PsA on HRQoL. Pts reported that rheums did not devote sufficient time to discuss treatment goals. Communication tools may facilitate shared decision-making.



Disclosure: A. M. Orbai, AbbVie, Eli Lilly, Horizon, Janssen, Novartis, 2,Eli Lilly, Novartis, Pfizer Inc, 5; L. C. Coates, AbbVie, Celgene, Janssen, Novartis, Pfizer Inc, 2,AbbVie, Amgen, Bristol-Myers Squibb, Celgene, Eli Lilly, Galapagos, Janssen, MSD, Novartis, Pfizer Inc, Prothena, Sun Pharma, UCB, 5; V. F. Azevedo, AbbVie, Pfizer Inc, 2,AbbVie, Celltrion, Janssen, Novartis, Pfizer Inc, Sandoz, 5,AbbVie, Celltrion, Janssen, Novartis, Pfizer Inc, Sandoz, 8; A. Garg, AbbVie, UCB, 2,AbbVie, Asana Biosciences, Pfizer Inc, UCB, 5; A. Majjhoo, AbbVie, Amgen, Celgene, Crescendo, Eli Lilly, Janssen, Novartis, Pfizer Inc, 5,AbbVie, Amgen, Celgene, Crescendo, Eli Lilly, Janssen, Novartis, Pfizer Inc, 8,Clinical trials work - AbbVie, Amgen, Celgene, Crescendo, Eli Lilly, Janssen, Novartis, Pfizer Inc, 9; C. E. M. Griffiths, AbbVie, Celgene, Eli Lilly, Janssen, LEO, Novartis, Pfizer Inc, Sandoz, UCB, 2,AbbVie, Almirall, Bristol-Myers Squibb, Celgene, Janssen, LEO, Novartis, Pfizer Inc, 5; P. Young, Pfizer Inc, 1,Pfizer Inc, 3; J. C. Cappelleri, Pfizer Inc, 1,Pfizer Inc, 3; J. Moser, None; L. Fallon, Pfizer Inc, 1,Pfizer Inc, 3.

To cite this abstract in AMA style:

Orbai AM, Coates LC, Azevedo VF, Garg A, Majjhoo A, Griffiths CEM, Young P, Cappelleri JC, Moser J, Fallon L. A Link between Quality of Patient–Rheumatologist Communication and Patient Healthcare Needs in Psoriatic Arthritis: An Online Survey of US-Based Patients and Rheumatologists [abstract]. Arthritis Rheumatol. 2018; 70 (suppl 9). https://acrabstracts.org/abstract/a-link-between-quality-of-patient-rheumatologist-communication-and-patient-healthcare-needs-in-psoriatic-arthritis-an-online-survey-of-us-based-patients-and-rheumatologists/. Accessed March 28, 2023.
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