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Abstract Number: 46

Feasibility Study of Smartphone Data Collection for Cloudy with a Chance of Pain: Sustained Engagement for Daily Self-Reporting of Disease Severity in Rheumatoid Arthritis over Two Months

Samuel Reade1, Jamie C Sergeant2,3, Matthew Sperrin4, David M. Schultz5, Karen Spencer6, Caroline Sanders6 and William G Dixon7, 1The University of Manchester, Manchester, United Kingdom, 2NIHR Manchester Musculoskeletal Biomedical Research Unit, Manchester, United Kingdom, 3Arthritis Research UK Centre for Epidemiology, Centre for Musculoskeletal Research, Manchester Academic Health Science Centre, University of Manchester, Manchester, United Kingdom, 4Institute of Population Health, Health e-Research Centre, The University of Manchester, Manchester, United Kingdom, 5Faculty of Engineering and Physical Sciences, School of Earth, Atmospheric and Environmental Sciences, The University of Manchester, Manchester, United Kingdom, 6Institute of Population Health, Centre for Primary Care, The University of Manchester, Manchester, United Kingdom, 7Manchester Academic Health Sciences Centre, Arthritis Research UK Centre for Epidemiology, The University of Manchester, Manchester, United Kingdom

Meeting: 2015 ACR/ARHP Annual Meeting

Date of first publication: September 29, 2015

Keywords: Disease Activity, Environmental factors, Epidemiologic methods, mHealth and rheumatoid arthritis (RA)

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Session Information

Date: Sunday, November 8, 2015

Title: Epidemiology and Public Health Poster I: Comorbidities and Outcomes of Systemic Inflammatory Diseases

Session Type: ACR Poster Session A

Session Time: 9:00AM-11:00AM

Background/Purpose: Previous research has attempted to study the association between weather and joint pain. Inconclusive results may be due, in part, to infrequent measures of pain and poor quality weather data. Patients’ own smartphones present an opportunity for frequent data collection with parallel usage of global positioning satellite (GPS) technology to pull local weather data. This pilot study aimed to assess the feasibility and acceptability of symptom and weather data collection using a smartphone application (app).

Methods: Twenty adult patients with rheumatoid arthritis were recruited from a single rheumatology centre. The app was co-designed with 14 participants in conjunction with a pre-existing platform by uMotif. Patients were asked to report six symptom scores every evening (pain, morning stiffness, tiredness on waking, fatigue, wellbeing and overall disease severity) on a 1–5 scale for the past 24 hours, for 60 consecutive days. In addition, they reported four other factors (mood, physical activity, time spent outside and perceived influence of the weather). All ten scores were collected on a single screen using a visual ‘motif’ (figure). GPS data was collected hourly and weather data was pulled from the closest Met Office weather station. Weather variables were summarised for each patient-day.

Ongoing engagement was measured as: the number of study withdrawals; mean completion rate (mean proportion of days with at least one score out of time in study); and the proportion of eligible patients who completed 0–1, 2–4 or 5–7 entries per week. The completeness of weather data was measured as the proportion of days any weather data was collected.

Results: 5 male and 15 female patients were recruited (mean age 54.7). Dropout rate was 30%, (weeks 0, 1, 4, 4, 5 and 6) and reasons given were personal, technical and health issues. At the time of reporting, full eight week follow-up data were available for 11/14 patients. Mean completion rate was 73%. Patients reported scores ≥ 5 days per week 64% of the time and 86% of the time patients reported scores ≥ 2 times per week. Weather data were available for 80% of symptom reports.

Conclusion: Patient engagement with the app was high. Although six patients withdrew from the study, the remainder regularly reported symptoms over a two-month period.Weather data were successfully extracted from GPS data. This pilot study is proof of concept that this novel mode of data collection can be used for research and will inform a future larger study. Concurrent qualitative work will assess reasons for dropout and motivators for ongoing engagement.

Table Proportion of patients with regular data entry, by week

Week number

Number of patients in study

Number of participants entering data (percentage)

0–1 times per week

2–4 times per week

5–7 times per week

1

19

0 (0%)

4 (21%)

15 (79%)

2

18

1 (6%)

3 (17%)

14 (78%)

3

18

3 (17%)

4 (22%)

11 (61%)

4

18

4 (22%)

3 (17%)

11 (61%)

5

16

3 (19%)

4 (25%)

9 (56%)

6

14

4 (29%)

4 (29%)

6 (43%)

7

12*

2 (17%)

3 (25%)

7 (58%)

8

11*

1 (9%)

2 (18%)

8 (73%)

* Shows incomplete follow-up for two and three patients respectively

Figure uMotif app


Disclosure: S. Reade, None; J. C. Sergeant, None; M. Sperrin, None; D. M. Schultz, None; K. Spencer, None; C. Sanders, None; W. G. Dixon, None.

To cite this abstract in AMA style:

Reade S, Sergeant JC, Sperrin M, Schultz DM, Spencer K, Sanders C, Dixon WG. Feasibility Study of Smartphone Data Collection for Cloudy with a Chance of Pain: Sustained Engagement for Daily Self-Reporting of Disease Severity in Rheumatoid Arthritis over Two Months [abstract]. Arthritis Rheumatol. 2015; 67 (suppl 10). https://acrabstracts.org/abstract/feasibility-study-of-smartphone-data-collection-for-cloudy-with-a-chance-of-pain-sustained-engagement-for-daily-self-reporting-of-disease-severity-in-rheumatoid-arthritis-over-two-months/. Accessed .
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