Abstracts tagged "young adults"

Abstract Number: 129 • 2020 Pediatric Rheumatology Symposium
Reproductive Health Concerns in Young Adults with Pediatric Onset Rheumatic Diseases
Brittany Huynh¹ and Cuoghi Edens ², ¹Indiana University School of Medicine Pediatric Residency, Fishers, ²University of Chicago, Chicago
Background/Purpose: While patients and families of those with pediatric onset rheumatic diseases have keen interest and unaddressed worry about the impact of their rheumatic disease…
Abstract Number: 139 • 2020 Pediatric Rheumatology Symposium
Ongoing Disease Activity in Juvenile Idiopathic Arthritis (JIA) 18 Years After Disease Onset: A Population-based Nordic Study
Mia Glerup¹, Ellen D Arnstad ², Veronika Rypdal ³, Suvi Peltoniemi ⁴, Kristiina Aalto ⁵, Marite Rygg ⁶, Susan Nielsen ⁷, Anders Fasth ⁸, Lillemor Berntson ⁹, Ellen Nordal ³ and Troels Herlin ¹⁰, ¹Department of Pediatrics, Aarhus University Hospital, Aarhus, Denmark, Aarhus, Denmark, ²Department of Clinical and Molecular Medicine, NTNU - Norwegian University of Science and Technology, and Department of Pediatrics, Levanger Hospital, Nord-Trøndelag Hospital Trust, Levanger, Norway., Tromheim, Norway, ³Department of Pediatrics, University Hospital of North Norway, and Department of Clinical Medicine, UiT The Arctic University of Norway, Tromsø, Norway., Tromsø, Norway, ⁴Department of Pediatrics, New Children's Hospital, Helsinki University Hospital, Pediatric Research Center, University of Helsinki, Helsinki, Finland., Helsinki, Finland, ⁵Department of Pediatrics, New Children's Hospital, Helsinki University Hospital, Pediatric Research Center, University of Helsinki, Helsinki, Finland., HUS, Finland, ⁶Department of Clinical and Molecular Medicine, NTNU - Norwegian University of Science and Technology and Department of Pediatrics, St. Olavs Hospital, Trondheim, Norway., Trondheim, Norway, ⁷Department of Pediatrics, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark., Copenhagen, Denmark, ⁸Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Gothenburg, Sweden, ⁹Department of Womens and Childrens Health, Uppsala University, Uppsala, Sweden., Uppsala, Sweden, ¹⁰Department of Pediatrics, Aarhus University Hospital, Aarhus, Denmark., Aarhus N, Denmark
Background/Purpose: Previously, we showed that ILAR JIA categories defined at disease onset change considerably during the first 8 years of disease course. Whether achieved remission…
Abstract Number: 187 • 2020 Pediatric Rheumatology Symposium
Perspectives of Adolescents and Young Adults Around Implementing Rheumatology Healthcare Transition: Preliminary Qualitative Findings
Kristine Carandang¹, Courtney Wells ² and Peter Chiraseveenuprapund ³, ¹University of California, San Diego, San Diego, ²St Paul, ³University of California - San Diego, San Diego
Background/Purpose: Nationwide initiatives call for improved healthcare services that empower adolescents to become independent in their health management and remain engaged in healthcare through young…
Abstract Number: 2719 • 2019 ACR/ARP Annual Meeting
Predictors of Health Care Transition Practices Among North American Pediatric Rheumatology Providers
Rebecca Sadun¹, Amanda Eudy ¹, Peter Chiraseveenuprapund ², Cuoghi Edens ³, Aimee Hersh ⁴, Kiana Johnson ⁵ and Erica Lawson ⁶, ¹Duke University, Durham, ²UCSD, San Diego, CA, ³University of Chicago, Chicago, IN, ⁴University of Utah, Salt Lake City, UT, ⁵East Tennessee, Johnson City, TN, ⁶University of California San Francisco Benioff Children’s Hospital, San Francisco, CA
Background/Purpose: The transition from pediatric to adult-oriented health care represents a vulnerable period for young adults with chronic rheumatic diseases. In spite of this, a…
Abstract Number: 1467 • 2019 ACR/ARP Annual Meeting
Clinical Characteristics of Primary Sjögren’s Syndrome in Adult Patients Diagnosed at Age Less Than or Equal to 35 Years versus Those over 35 Years of Age
Noel Agustin Callahuara Goiburu¹, Patricia Sasaki ¹, Anastasia Secco ², Catalan Pellet ³, Nadia Riscanevo ⁴, Janet Flores ⁵, Francisco Caeiro ⁵, cristina Amitrano ⁶, Cecilia Asnal ⁷, Alejandro Nitsche ⁸, Carolina Segura Escobar ⁹, Julia Demarchi ¹⁰, Damian Duartes ¹⁰, Lida santiago ¹¹, Laura Raiti ¹², Vanesa Cruzat ¹³, Carla Gobbi ¹⁴, Paula Alba ¹⁵, Silvia Papasidero ¹⁶, Sofia Velez ¹⁷, Vicente Juarez ¹⁸ and Gabriela Salvatierra ¹⁹, ¹Rivadavia, CABA, Ciudad Autonoma de Buenos Aires, Argentina, ²Hospital Rivadavia, Caba, Buenos Aires, Argentina, ³Rivadavia, CABA, Argentina, ⁴Hospital Privado de Córdoba, Cordoba, Cordoba, Argentina, ⁵Hospital Privado de Córdoba, Cordoba, Argentina, ⁶Hospital Aleman, CABA, Argentina, ⁷Instituto Centenario, Buenos Aires, Buenos Aires, Argentina, ⁸Hospital Aleman, Ciudad Autonoma de Buenos Aires, Ciudad Autonoma de Buenos Aires, Argentina, ⁹Hospital Británico, Buenos Aires, Buenos Aires, Argentina, ¹⁰Hospital Británico, Ciudad Autonoma de Buenos Aires, Ciudad Autonoma de Buenos Aires, Argentina, ¹¹OMI, Ciudad Autonoma de Buenos Aires, Argentina, ¹²Clinica Bessone, Buenos Aires, Buenos Aires, Argentina, ¹³Clinica Bessone, Buenos Aires, Argentina, ¹⁴CÁTEDRA DE CLÍNICA MÉDICA I, HOSPITAL CÓRDOBA, FACULTAD DE CIENCIAS MÉDICAS, UNIVERSIDAD NACIONAL DE CÓRDOBA, ARGENTINA, Cordoba, Cordoba, Argentina, ¹⁵UNIDAD DE REUMATOLOGÍA, CÁTEDRA DE SEMIOLOGÍA, HOSPITAL CÓRDOBA, FACULTAD DE CIENCIAS MÉDICAS, UNIVERSIDAD NACIONAL DE CÓRDOBA, ARGENTINA, Cordoba, Cordoba, Argentina, ¹⁶Hospital General de Agudos Dr. E. Tornú, Ciudad Autónoma de Buenos Aires, Buenos Aires, Argentina, ¹⁷Consultorio Privado S.V, Buenos Aires, Buenos Aires, Argentina, ¹⁸Hospital Milagros de Salta, Salta, Salta, Argentina, ¹⁹IPRI, Santiago del estero, Santiago del Estero, Argentina
Background/Purpose: Although there is little information, the debut of primary Sjögren's syndrome in adult patients aged less than or equal to 35 years, would be…
Abstract Number: 2080 • 2019 ACR/ARP Annual Meeting
It Starts at Work: The Relationship Between Workplace Supports and Presenteeism Among Young Adults with Rheumatic Disease
Arif Jetha¹, Lori Tucker ², Julie Bowring ³, Catherine L. Backman ⁴, Laurie Proulx ⁵, Vicki Kristman ⁶, Elizabeth M. Hazel ⁷, Louise Perlin ⁸ and Monique A.M. Gignac ³, ¹Institute for Work & Health, Toronto, ON, Canada, ²British Columbia Children’s Hospital, Vancouver, Canada, ³Institute for Work & Health, Toronto, Canada, ⁴University of British Columbia, Vancouver, Canada, ⁵Canadian Arthritis Patient Alliance, Ottawa, Canada, ⁶Lakehead University, Thunder Bay, Canada, ⁷McGill University Health Centre, Montreal, Canada, ⁸St. Michael’s Hospital, Toronto, ON, Canada
Background/Purpose: Young adults with rheumatic disease who are employed frequently report presenteeism (i.e., working while unwell). Workplace supports including extended health benefits, job accommodations and…
Abstract Number: 2411 • 2019 ACR/ARP Annual Meeting
Casting a Wide Net: Comparing Strategies for Recruiting 18-35-year-olds with Rheumatic Disease as Study Participants
Arif Jetha¹, Lori Tucker ², Julie Bowring ³, Catherine L. Backman ⁴, Laurie Proulx ⁵, Vicki Kristman ⁶ and Monique A.M. Gignac ³, ¹Institute for Work & Health, Toronto, ON, Canada, ²British Columbia Children’s Hospital, Vancouver, Canada, ³Institute for Work & Health, Toronto, Canada, ⁴University of British Columbia, Vancouver, Canada, ⁵Canadian Arthritis Patient Alliance, Ottawa, Canada, ⁶Lakehead University, Thunder Bay, Canada
Background/Purpose: Young adulthood is a unique life phase that spans 18-35 years, and is characterized by healthcare, educational, vocational and social transitions. Experiences in young…
Abstract Number: 2575 • 2019 ACR/ARP Annual Meeting
Electronic Monitoring of Medication Adherence in Young Adults with Childhood-Onset Systemic Lupus Erythematosus over 12 Weeks
Onengiya Harry¹, Tracy Ting ² and Jennifer Huggins ², ¹Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, ²Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Young adults with childhood-onset lupus (cSLE) are 20 times more likely to die compared to healthy age- and gender-matched counterparts. Their clinical course is…

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