Abstracts tagged "Validity"

Abstract Number: 2252 • 2017 ACR/ARHP Annual Meeting
Initial Validation of Patient-Reported Outcomes Measurement Information System (PROMIS®) in Children with Juvenile Myositis
Kaveh Ardalan^1,2, David Cella³, Lauren M. Pachman⁴, Elizabeth L. Gray⁵, Julia (Jungwha) Lee⁵, Kyle Fahey^6,7, Madison Wolfe^6,7, Megan L. Curran^7,8, Mariana C. Marques^6,7 and Rowland W. Chang⁹, ¹Departments of Pediatrics and Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, ²Division of Rheumatology, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ³Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁴Cure JM Program of Excellence in Juvenile Myositis Research, Stanley Manne Children’s Research Institute, affiliated with Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ⁵Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁶Division of Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, ⁷Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁸Division of Rheumatology, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, ⁹Preventive Medicine, Medicine, and Physical Medicine & Rehabilitation, Northwestern University Feinberg School of Medicine, Chicago, IL
Background/Purpose: Juvenile myositis (JM) can worsen quality of life (QoL) via proximal weakness, rashes, and treatments side effects. QoL legacy instruments may be limited by…
Abstract Number: 352 • 2017 ACR/ARHP Annual Meeting
Psychometric Features of a New Methotrexate (MTX)-Specific Adherence Tool for Use in the Management of Patients with Rheumatoid Arthritis (RA): Preliminary Results from an Online Patient Community
Elodie de Bock¹, Corrado Bernasconi², Tan P. Pham¹, Ana Maria Rodriguez³, Khaled Sarsour⁴, J. Michael Nebesky² and Christine de la Loge¹, ¹Mapi, Lyon, France, ²F. Hoffmann-La Roche, Basel, Switzerland, ³Patients Like Me (PLM), Cambridge, MA, ⁴Genentech, South San Francisco, CA
Background/Purpose: F. Hoffmann-La Roche Ltd. and Mapi collaborated to develop a medication adherence measure among RA patients taking MTX—the Methotrexate Experience Questionnaire (MEQ). The MEQ…
Abstract Number: 1284 • 2017 ACR/ARHP Annual Meeting
The Localized Scleroderma Quality of Life Instrument (LoSQI): Initial Validation in Pediatric Localized Scleroderma
Christina K. Zigler¹, Kaveh Ardalan², Kaila Schollaert-Fitch³, Heidi Jacobe⁴ and Kathryn S. Torok³, ¹Physical Medicine & Rehabilitation, University of Pittsburgh, Pittsburgh, PA, ²Division of Rheumatology, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ³Pediatric Rheumatology, University of Pittsburgh Med Ctr, Pittsburgh, PA, ⁴Department of Dermatology, University of Texas Southwestern Medical Center, Dallas, TX
Background/Purpose: There is a current need to integrate health related quality of life (HRQoL) into outcomes for clinical trials (Chang & Reeve, 2005). For pediatric…
Abstract Number: 94 • 2016 ACR/ARHP Annual Meeting
Performance of the Patient Reported Outcomes Measurement Information System (PROMIS) Measure for Physical Function in Early RA
Till Uhlig, Inge C Olsen, Anna-Birgitte Aga, Siri Lillegraven, Tore K Kvien and Espen A. Haavardsholm, Dept. of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway
Background/Purpose: The Patient Reported Outcomes Measurement Information System (PROMIS) initiative has developed and calibrated item banks for the assessment of physical function and other domains…
Abstract Number: 451 • 2016 ACR/ARHP Annual Meeting
Cross-Sectional and Longitudinal Construct Validity for the Improved Health Assessment Questionnaire Among Adults with Knee Osteoarthritis
Mei Chung¹, Augustine C. Lee², John B. Wong³, Xingyi Han⁴ and Chenchen Wang², ¹Department of Public Health and Community Medicine, Tufts University School of Medicine, Boston, MA, ²Rheumatology, Tufts Medical Center, Boston, MA, ³Tufts Medical Center, Boston, MA, ⁴Public Health and Community Medicine, Tufts University, Boston, MA
Background/Purpose: The improved Health Assessment Questionnaire (iHAQ) is a novel version of the HAQ (ACR-recommended metric of physical function for RA) based on Item…
Abstract Number: 453 • 2016 ACR/ARHP Annual Meeting
Adaptation and Validation the Systemic Sclerosis Quality of Life Questionnaire into Spanish Using Rasch Analysis
Mwidimi Ndosi¹, Silvia Garcia-Diaz², Begonya Alcacer-Pitarch³, Francesco Del Galdo⁴, Vicenç Torrente-Segarra² and Anthony C. Redmond⁴, ¹Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom, ²Rheumatology, Hospital Sant Joan Despí Moisès Broggi-CSI-, Barcelona, Spain, ³Leeds Institute of Rheumatic and Musculoskeletal medicine, University of Leeds, Leeds, United Kingdom, ⁴Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom
Background/Purpose: Systemic Sclerosis (SSc) represents a group of heterogeneous autoimmune disorders of connective tissue characterized by progressive fibrosis of the skin and internal organs [1].…
Abstract Number: 455 • 2016 ACR/ARHP Annual Meeting
Validity, Reliability and Sensitivity to Change of Four Different Patient-Reported Outcomes (PROs) to Measure the Domains Pain, Fatigue, Experienced Disease Activity and General Well-Being in Patients with Rheumatoid Arthritis
Lisanne Renskers¹, Piet L.C.M. van Riel^2,3 and Ron J.J.C. van Uden¹, ¹IQ healthcare, Radboud university medical center, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, Netherlands, ²Radboud university medical center, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, Netherlands, ³Bernhoven, Department of Rheumatology, Uden, Netherlands
Background/Purpose: With Patient-Reported Outcomes (PROs), the patient's perspective can be assessed. Several forms can be used; Verbal Rating Scale (VRS), Numerical Rating Scale (NRS), Visual…
Abstract Number: 680 • 2016 ACR/ARHP Annual Meeting
Development and Preliminary Validation of the Computed Tomography Sacroiliac Structural Score for Assessment of Structural Lesions in Axial Spondyloarthritis
Walter Maksymowych¹, Marie Raynal², Damien Loeuille³, Maria Antonietta D'Agostino⁴, Joel Paschke⁵ and Robert G Lambert⁶, ¹Medicine, University of Alberta, Edmonton, AB, Canada, ²Rheumatology, CHRU Nancy, Nancy, France, ³Rheumatology, CHRU Vandoeuvre les Nancy, Nancy, France, ⁴Rheumatology, Versailles-Saint Quentin en Yvelines University, Boulogne-Billancourt, France, ⁵CaRE Arthritis, Edmonton, AB, Canada, ⁶Radiology, University of Alberta, Edmonton, AB, Canada
Background/Purpose: Computed tomography (CT) is considered the imaging benchmark for the assessment of certain structural lesions in the sacroiliac joints (SIJ) of patients with axial…
Abstract Number: 1400 • 2016 ACR/ARHP Annual Meeting
Preliminary Validation of the Turkish Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY) in a Single Center
Gozde Yucel¹, Sezgin Sahin², Amra Adrovic², Kenan Barut², Ela Tarakci³, Ahmet Arvas⁴, Nandini Moorthy⁵ and Ozgur Kasapcopur⁶, ¹Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, ²Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, ³Istanbul University, Faculty of Health Science, Division of Physiotherapy and Rehabilitation, Istanbul, Turkey, ⁴Istanbul University, Cerrahpasa Medical School, Department of Pediatrics, Istanbul, Turkey, ⁵Robert Wood Johnson Medcal School, Department of Pediatric Rheumatology, New Brunswick, NJ, ⁶Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey
Background/Purpose: Juvenile systemic lupus erythematosus (SLE) is a chronic multisystemic disease with an episodic course which is prevalent in all cultures with wide-ranging effects on…
Abstract Number: 1425 • 2016 ACR/ARHP Annual Meeting
Validation of a Patient Reported Experience Measure (PREM) in Patients with Axial Spondyloarthropathies (AxSpA)
Clare Longton¹, Marco Massarotti² and Marwan Bukhari³, ¹Rheumatology, Royal Lancaster Infirmary, University Hospitals of Morecambe Bay NHS Foundation Trust, Lancaster, United Kingdom, ²Rheumatology, Royal Lancaster Infirmary, University Hospital of Morecambe Bay NHS Foundation Trust, Lancaster, United Kingdom, ³Royal Lancaster Infirmary, Lancaster, United Kingdom
Background/Purpose: Improving patient experience is important in all diseases, but most important in patients with chronic rheumatic diseases like the axial spondyloarthropathies (AxSpa). The Commissioning…
Abstract Number: 2349 • 2016 ACR/ARHP Annual Meeting
Longitudinal Construct Validity for Four Patient-Reported Outcomes Measurement Information System (PROMIS) Short Forms: Physical Function, Pain Interference, Depression, and Anxiety Among Adults with Knee Osteoarthritis
Augustine C. Lee¹, Lori Lyn Price², Jeffrey B. Driban¹, William F. Harvey¹, Timothy E. McAlindon³, Angie Mae Rodday⁴, Hans E. Knopp⁵ and Chenchen Wang¹, ¹Rheumatology, Tufts Medical Center, Boston, MA, ²Biostatistics Research Center, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, ³Division of Rheumatology, Tufts Medical Center, Boston, MA, ⁴Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, ⁵Physical Medicine and Rehabilitation, Tufts Medical Center, Boston, MA
Background/Purpose: Patient-Reported Outcomes Measurement Information System (PROMIS) provides clinicians and researchers access to reliable, valid measures of health status to resolve many challenges associated…
Abstract Number: 2765 • 2016 ACR/ARHP Annual Meeting
Practicing What We Preach? Do Psoriatic Arthritis Patients Treated at an Academic Medical Center Meet Caspar Criteria?
Sergio Schwartzman, Rima Abhyankar, Margaret Bogardus and Lisa Mandl, Hospital for Special Surgery, New York, NY
Background/Purpose: Psoriatic arthritis (PsA) is an autoimmune musculoskeletal disease with protean manifestations, and therefore can be difficult to diagnose. Although no diagnostic criteria are available, the…
Abstract Number: 2263 • 2015 ACR/ARHP Annual Meeting
Construct and Convergent Validity of Four Global Measures of at-Work Productivity Loss in Patients with Rheumatic Diseases
Sarah Leggett¹, Diane Lacaille², Carina Mihai³, Mihai Bojinca⁴, Brendan van As⁵, Suzanne M. Verstappen⁶ and EULAR-PRO worker productivity group, ¹Arthritis Research UK Centre for Epidemiology, Manchester Academic Health Science Centre,The University of Manchester, Manchester, United Kingdom, ²Arthritis Research Centre, University of British Columbia, Vancouver, BC, Canada, ³Internal Medicine and Rheumatology, Ion Cantacuzino Hospital, Bucharest, Romania, ⁴Carol Davila University of Medicine and Pharmacy, Internal Medicine and Rheumatology, Cantacuzino Hospital, Bucharest, Romania, ⁵Arthritis Research Canada, Richmond, BC, Canada, ⁶Arthritis Research UK Centre for Epidemiology, The University of Manchester, Manchester, United Kingdom
Background/Purpose: Several global measures are available to assess at-work productivity loss in rheumatic diseases. Paucity in research exploring the construct validity of such measures contributes…
Abstract Number: 2393 • 2015 ACR/ARHP Annual Meeting
Validation of a Web-Based Overlay for Sectoral Scoring of Active Lesions on MRI in Hip Osteoarthritis: Femoral Bone Marrow Lesions Predict Response to Intra-Articular Hyaluronate
Damien Loeuille¹, Nicolas Deseyne², Jacob Jaremko³, Ulrich Weber⁴, Thierry Conrozier⁵, Joel Paschke⁶, Walter Maksymowych⁷, Bernard Maillet⁸ and Henri Lellouche⁹, ¹Rheumatology, Department of Rheumatology, CHRU Vandoeuvre les Nancy, Vandoeuvre les Nancy, France, ²Department of Rheumatology, CHRU Vandoeuvre les Nancy,, Vandoeuvre, France, ³Radiology, Radiology, University of Alberta, Edmonton, AB, Canada, ⁴Department of Research, King Christian 10th Hospital for Rheumatic Diseases, Graasten, Denmark, ⁵Service de Rhumatologie,CHU de NANCY- Brabois, Vandoeuvre, France, ⁶CaRE Arthritis, Edmonton, AB, Canada, ⁷Medicine, University of Alberta, Edmonton, AB, Canada, ⁸Rheumatology, Clinique Saint Odilon, Moulins, France, ⁹Rheumatology, Hôpital Lariboisière, Paris, France
Background/Purpose: Bone marrow lesions (BML) and synovitis are MRI features that have been associated with symptoms and disease progression in patients with osteoarthritis. The Hip…
Abstract Number: 2474 • 2015 ACR/ARHP Annual Meeting
Psychometric Properties of the Social Appearance Anxiety Scale in Patients with Limited and Diffuse Systemic Sclerosis: Analysis from the Scleroderma Patient-Centered Intervention Network Cohort
Sarah D. Mills¹, Shadi Gholizadeh¹, Rina S. Fox¹, Lisa R. Jewett^2,3, Marie-Eve Carrier³, Linda Kwakkenbos^2,3, Karen Gottesman⁴, Scott C. Roesch^1,5, Brett D. Thombs^2,3, Vanessa L. Malcarne^1,5 and SPIN Investigators⁶, ¹SDSU/UC San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, ²McGill University, Montreal, QC, Canada, ³Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada, ⁴Scleroderma Foundation, Los Angeles, CA, ⁵Psychology, San Diego State University, San Diego, CA, ⁶Scleroderma Patient-centered Intervention Network, Montreal, QC, Canada
Background/Purpose: Despite the common appearance changes in patients with systemic sclerosis (SSc), and the potential adverse psychosocial impact of such changes, research in this area…

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