Abstracts tagged "Transition"

Abstract Number: 1726 • 2019 ACR/ARP Annual Meeting
Disease Activity and Health Care Utilization Among Young Adults with Childhood-onset Lupus Transitioning to Adult Care: Follow-Up Data from the Pediatric Lupus Outcomes Study
Sara Haro¹, Erica Lawson ² and Aimee Hersh ³, ¹University of California San Francisco, San Francisco, CA, ²University of California San Francisco Benioff Children’s Hospital, San Francisco, CA, ³University of Utah, Salt Lake City, UT
Background/Purpose: Individuals with childhood-onset systemic lupus erythematosus (cSLE) must transfer from pediatric to adult health care as they enter adulthood. Previous analyses of the Pediatric…
Abstract Number: 1727 • 2019 ACR/ARP Annual Meeting
Worsening Disease Activity and Inability to Taper Corticosteroids in an Ethnically Diverse Cohort of Pediatric-Onset Lupus Patients After Transition to Adult Care
Marla Guzman¹, B.Anne Eberhard ¹ and Joyce Hui-Yuen ¹, ¹Cohen Children's Medical Center, New Hyde Park, NY
Background/Purpose: Transition of pediatric lupus (pSLE) patients from pediatric to adult rheumatology care is historically difficult and challenging. Although our division routinely assesses for transition…
Abstract Number: 1755 • 2019 ACR/ARP Annual Meeting
Improving Adolescent Health Care Transition: Piloting the Transition Readiness Assessment Questionnaire
Meghan Foster¹, Matthew Hollander ², Amanda Kennedy ³, Laura Lewis ⁴, Olivia Thompson ³, Bradley Tompkins ³ and Constance Van Eeghen ⁴, ¹UVMMC, Jericho, VT, ²UVMMC, Burlington, VT, ³UVMMC, Burlington, ⁴UVM, Burlington
Background/Purpose: Successful adolescent health care transition (HCT) is a vital process in providing developmentally appropriate care and minimizing negative outcomes, especially in adolescents with special…
Abstract Number: 2078 • 2019 ACR/ARP Annual Meeting
Transitions in Lumbar Spine Osteoarthritis: The Johnston County Osteoarthritis Project
Adam Goode¹, David Hu ², Rebecca Cleveland ³, Steven George ⁴, Virginia Byers Kraus ⁵, Todd Schwartz ⁶, Richard Gracely ⁷, Joanne Jordan ⁸ and Yvonne Golightly ⁹, ¹Duke University, Department of Orthopedic Surgery, Duke Clinical Research Institute, and Department of Population Health Sciences, Durham, NC, ²Thurston Arthritis Center, University of North Carolina - Chapel Hill, Chapel Hill, NC, ³Thurston Arthritis Research Center, Chapel Hill, NC, ⁴Duke University, Department of Orthopedic Surgery and Duke Clinical Research Institute, Durham, NC, ⁵Duke University, Department of Orthopedic Surgery, Duke Molecular Physiology Laboratory, Durham, NC, ⁶University of North Carolina at Chapel Hill Department of Biostatistics, Chapel Hill, NC, ⁷Department of Endodontics, Adams School of Dentistry, University of North Carolina, Chapel Hill, Chapel Hill, NC, ⁸University of North Carolina at Chapel Hill Thurston Arthritis Research Center, Chapel Hill, NC, ⁹University of North Carolina at Chapel Hill Department of Epidemiology and Thurston Arthritis Research Center, Chapel Hill, NC
Background/Purpose: Spine osteoarthritis (SOA) has been defined by the presence of: 1) disc space narrowing (DSN) and vertebral osteophytes (OST), or 2) facet joint OA…
Abstract Number: 2720 • 2019 ACR/ARP Annual Meeting
Implementation of an Evidence-based Transition Clinic in a Pediatric Rheumatology Academic Institution
Rebecca Overbury¹, John Bohnsack ², CJ Inman ³, Sara Stern ³, Karen James ³, Daniel Clegg ³, Tracy Frech ⁴ and Aimee Hersh ³, ¹Assisstant Professor, University of Utah, Salt Lake City, UT, ²University of Utah School of Medicine, Salt Lake City, UT, ³University of Utah, Salt Lake City, UT, ⁴Division of Rheumatology, University of Utah and Salt Lake VAMC, Salt Lake City, UT
Background/Purpose: Transition from pediatric to adult rheumatology care is more likely to be successful if a transition program is in place. Previously successful interventions to…
Abstract Number: 2795 • 2019 ACR/ARP Annual Meeting
Patterns of Ambulatory Health Care Utilization and Medication Adherence Among Transition-Age Youth with Systemic Lupus Erythematosus
Joyce Chang¹, Andrea Knight ² and Erica Lawson ³, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²Division of Rheumatology, The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Toronto, ON, Canada, ³University of California San Francisco Benioff Children’s Hospital, San Francisco, CA
Background/Purpose: Youth with child-onset systemic lupus erythematosus (SLE) transitioning from pediatric to adult health care systems may be at higher risk for poor outcomes than…
Abstract Number: 2410 • 2018 ACR/ARHP Annual Meeting
Determining the Need for Fatigue Management Resources for Young Adults with Rheumatic Disease
Kristine Carandang¹ and Janet L. Poole², ¹Chan Division of Occupational Science & Occupational Therapy, University of Southern California, Los Angeles, CA, ²Health Sciences Ctr OT Program, University of New Mexico, Albuquerque, NM
Background/Purpose: Fatigue is a multi-faceted symptom of rheumatic disease that has high priority among patients due to its far-reaching effects on roles and relationships. There…
Abstract Number: 2961 • 2018 ACR/ARHP Annual Meeting
Differences in Healthcare Transition Views, Practices, and Barriers Among North American Pediatric Rheumatology Providers from 2010 to 2018
Kiana Johnson¹, Cuoghi Edens², Peter Chira³, Aimee O. Hersh⁴, Y. Ingrid Goh⁵, Joyce Hui-Yuen⁶, Rebecca E. Sadun⁷, Nora G. Singer⁸, Lynn R. Spiegel⁹, Jennifer N. Stinson¹⁰, Patience H. White¹¹ and Erica Lawson¹², ¹Department of Pediatrics, East Tennessee State University, Johnson City, TN, ²Division of Pediatric Infectious Diseases and Rheumatology and Division of Rheumatology, Rainbow Babies and Children's Hospital and University Hospitals Cleveland Medical Center, Cleveland, OH, ³Pediatric Rheumatology, Rady Children's Specialists of San Diego, San Diego, CA, ⁴Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT, ⁵Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada, ⁶Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY, ⁷Adult and Pediatric Rheumatology, Duke University Medical Center, Durham, NC, ⁸Departments of Medicine and Pediatrics, Division of Rheumatology, MetroHealth Medical Center, Cleveland, OH, Cleveland, OH, ⁹Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada, ¹⁰Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada, ¹¹Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC, ¹²Pediatrics/Rheumatology, University of California, San Francisco, San Francisco, CA
Background/Purpose: Healthcare transition is the “purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult-oriented health care…
Abstract Number: 976 • 2018 ACR/ARHP Annual Meeting
Transitioning from Paediatric to Adult Health Services: Development of an Integrated Programme Incorporating Patient and Provider Values
Fiona Niddrie¹, Gabor Major^2,3, Angela Myles^4,5, Davinder Singh-Grewal^6,7 and Jeffery Chaitow^6,7, ¹Rheumatology, Bone and Joint Institute, John Hunter Hospital, Hunter New England Local Health District, Newcastle, Australia, ²Rheumatology, Bone and Joint Institute, John Hunter Hospital, Newcastle, Australia, ³University of Newcastle, Newcastle, Australia, Newcastle, Australia, ⁴HNEkidshealth, Hunter New England Local Health District, Newcastle, Australia, ⁵Transition Care Network, Agency for Clinical Innovation, Sydney, Australia, ⁶Paediatric Rheumatology, John Hunter Hospital, Newcastle, Australia, ⁷Rheumatology, Sydney Children's Hospital Network, Randwick and Westmead, Australia
Background/Purpose: The transfer from the supportive and guided environment of paediatric to adult care with its increased emphasis on autonomy and self reliance poses challenges…
Abstract Number: 1428 • 2018 ACR/ARHP Annual Meeting
Parental Involvement and Adolescents/Young Adults Self-Management during the Transition Period: A Cross-Sectional Survey in Childhood Onset Rheumatic Diseases
Pauline Yi¹, Hana Conlon², Jae Hee Yun³, Kayla Neville², George Danias², Anca Askanase⁴ and Lisa F. Imundo⁵, ¹Rheumatology, Columbia University College of Physicians & Surgeons, New York, NY, ²Rheumatology, Columbia University Medical Center, New York, NY, ³Medicine/Rheumatology, Columbia University, College of Physicians & Surgeons, New York, NY, ⁴Columbia University, College of Physicians & Surgeons, New York, NY, ⁵Pediatrics, Columbia University Medical Center, New York, NY
Background/Purpose: A NIH focus group study found that adolescents and young adults (AYA) with active disease relied heavily on their parents for disease management. It…
Abstract Number: 1429 • 2018 ACR/ARHP Annual Meeting
A Quality Update: Improved Transfer Time Among Rheumatology Patients Transferring from Pediatric to Adult Care at an Academic Medical Center
Kimberly DeQuattro¹, Michael Evans¹, Aimee O. Hersh², Jinoos Yazdany¹, Emily von Scheven³ and Erica Lawson³, ¹Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, ²Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT, ³Pediatrics/Rheumatology, University of California, San Francisco, San Francisco, CA
Background/Purpose: Transfer from pediatric- to adult-oriented health care is challenging for patients with childhood-onset rheumatologic disease, and may be associated with treatment non-adherence, disease flares…
Abstract Number: 204 • 2017 ACR/ARHP Annual Meeting
Healthcare Utilization Among Young Adults Transitioning from Pediatric to Adult Care in a Safety Net Population
Nicole Bitencourt¹, Una E. Makris^1,2, Tracey Wright^3,4 and E. Blair Solow¹, ¹UT Southwestern Medical Center, Dallas, TX, ²Department of Medicine, VA North Texas Health Care System, Dallas, TX, ³Pediatrics/Rheumatology, UT Southwestern Medical Center, Dallas, TX, ⁴Texas Scottish Rite Hospital for Children, Dallas, TX
Background/Purpose: The transition from pediatric to adult care for young adults with chronic illness is a vulnerable period especially among socioeconomically disadvantaged populations. As part…
Abstract Number: 339 • 2017 ACR/ARHP Annual Meeting
Patients’ Attitudes and Experiences of Transitional Care in Paediatric Rheumatology: A Systematic Review of Qualitative Studies
Ayano Kelly^1,2,3,4, Fiona Niddrie⁵, David Tunnicliffe^4,6, Camilla Hanson^4,7, Gabor Major^8,9, Davinder Singh-Grewal^10,11,12 and Allison Tong⁴, ¹Rheumatology, The Canberra Hospital, Canberra, Australia, ²School of Medicine, Australian National University, Canberra, Australia, ³Canberra Rheumatology, Canberra, Australia, ⁴Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia, ⁵Rheumatology, Bone and Joint Institute,John Hunter Hospital, Newcatle, Australia, ⁶Sydney School of Public Health, University of Sydney, Sydney, Australia, ⁷Sydney School of Pubic Health, University of Sydney, Sydney, Australia, ⁸Medicine, University of Newcastle, Newcastle, Australia, ⁹Rheumatology, Bone and Joint Institute, John Hunter Hospital NSW Australia, Newcastle, Australia, ¹⁰Faculty of Medicine, University of New South Wales, Sydney, Australia, ¹¹Department of Rheumatology, The Sydney Children's Hospital Network, Sydney, Australia, ¹²Sydney Medical School, University of Sydney, Sydney, Australia
Background/Purpose: Despite the increasing number of transition programs available for rheumatology patients moving from paediatric to adult care, transition continues to pose challenges for patients…
Abstract Number: 910 • 2017 ACR/ARHP Annual Meeting
Training Adult Rheumatology Fellows in Young Adult Transition and Transfer Skills
Rebecca Sadun¹, Gary Maslow², Richard Chung³ and Lisa Criscione-Schreiber⁴, ¹Rheumatology Adult and Pediatric, Duke University Medical Center, Durham, NC, ²Psychiatry and Pediatrics, Duke University Medical Center, Durham, NC, ³Internal Medicine and Pediatrics, Duke University Medical Center, Durham, NC, ⁴Internal Medicine, Duke University Medical Center, Durham, NC
Background/Purpose: The transition from pediatric to adult healthcare is a vulnerable time for adolescents and young adults (AYA) with chronic conditions. EULAR and the Pediatric…
Abstract Number: 1242 • 2017 ACR/ARHP Annual Meeting
Impact of Social Support and Illness Perception on the Transition of Pediatric SLE Patients to Adult Care
Mary Beth Son¹, David Zurakowski², David J. Kreps³, Siobhan Case⁴ and Karen H. Costenbader³, ¹Division of Immunology, Boston Children's Hospital, Boston, MA, ²Departments of Anesthesia and Surgery, Boston Children’s Hospital, Boston, MA, ³Division of Rheumatology, Immunology and Allergy, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, ⁴Boston Children's Hospital, Boston, MA
Background/Purpose : We surveyed adult patients with a history of pediatric systemic lupus erythematosus (pSLE) regarding their process of transition from pediatric to adult care…

All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].