Abstracts tagged "Transition"

Abstract Number: 1755 • 2019 ACR/ARP Annual Meeting
Improving Adolescent Health Care Transition: Piloting the Transition Readiness Assessment Questionnaire
Meghan Foster¹, Matthew Hollander ², Amanda Kennedy ³, Laura Lewis ⁴, Olivia Thompson ³, Bradley Tompkins ³ and Constance Van Eeghen ⁴, ¹UVMMC, Jericho, VT, ²UVMMC, Burlington, VT, ³UVMMC, Burlington, ⁴UVM, Burlington
Background/Purpose: Successful adolescent health care transition (HCT) is a vital process in providing developmentally appropriate care and minimizing negative outcomes, especially in adolescents with special…
Abstract Number: 2078 • 2019 ACR/ARP Annual Meeting
Transitions in Lumbar Spine Osteoarthritis: The Johnston County Osteoarthritis Project
Adam Goode¹, David Hu ², Rebecca Cleveland ³, Steven George ⁴, Virginia Byers Kraus ⁵, Todd Schwartz ⁶, Richard Gracely ⁷, Joanne Jordan ⁸ and Yvonne Golightly ⁹, ¹Duke University, Department of Orthopedic Surgery, Duke Clinical Research Institute, and Department of Population Health Sciences, Durham, NC, ²Thurston Arthritis Center, University of North Carolina - Chapel Hill, Chapel Hill, NC, ³Thurston Arthritis Research Center, Chapel Hill, NC, ⁴Duke University, Department of Orthopedic Surgery and Duke Clinical Research Institute, Durham, NC, ⁵Duke University, Department of Orthopedic Surgery, Duke Molecular Physiology Laboratory, Durham, NC, ⁶University of North Carolina at Chapel Hill Department of Biostatistics, Chapel Hill, NC, ⁷Department of Endodontics, Adams School of Dentistry, University of North Carolina, Chapel Hill, Chapel Hill, NC, ⁸University of North Carolina at Chapel Hill Thurston Arthritis Research Center, Chapel Hill, NC, ⁹University of North Carolina at Chapel Hill Department of Epidemiology and Thurston Arthritis Research Center, Chapel Hill, NC
Background/Purpose: Spine osteoarthritis (SOA) has been defined by the presence of: 1) disc space narrowing (DSN) and vertebral osteophytes (OST), or 2) facet joint OA…
Abstract Number: 2720 • 2019 ACR/ARP Annual Meeting
Implementation of an Evidence-based Transition Clinic in a Pediatric Rheumatology Academic Institution
Rebecca Overbury¹, John Bohnsack ², CJ Inman ³, Sara Stern ³, Karen James ³, Daniel Clegg ³, Tracy Frech ⁴ and Aimee Hersh ³, ¹Assisstant Professor, University of Utah, Salt Lake City, UT, ²University of Utah School of Medicine, Salt Lake City, UT, ³University of Utah, Salt Lake City, UT, ⁴Division of Rheumatology, University of Utah and Salt Lake VAMC, Salt Lake City, UT
Background/Purpose: Transition from pediatric to adult rheumatology care is more likely to be successful if a transition program is in place. Previously successful interventions to…
Abstract Number: 2795 • 2019 ACR/ARP Annual Meeting
Patterns of Ambulatory Health Care Utilization and Medication Adherence Among Transition-Age Youth with Systemic Lupus Erythematosus
Joyce Chang¹, Andrea Knight ² and Erica Lawson ³, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²Division of Rheumatology, The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Toronto, ON, Canada, ³University of California San Francisco Benioff Children’s Hospital, San Francisco, CA
Background/Purpose: Youth with child-onset systemic lupus erythematosus (SLE) transitioning from pediatric to adult health care systems may be at higher risk for poor outcomes than…
Abstract Number: 536 • 2019 ACR/ARP Annual Meeting
PERFUSE: A French Prospective/Retrospective Non-interventional Cohort Study of Infliximab-naïve and Transitioned Patients Receiving Infliximab Biosimilar SB2; An Interim Analysis
Bruno Fautrel¹, Yoram Bouhnik ², Guillaume Desjeux ³, Ulrich Freudensprung ⁴, Janet Addison ⁵ and Amira Brigui ⁶, ¹Pitié-Salpêtrière Hospital, Department of Rheumatology, AP-HP, Sorbonne University, UPMC university, Paris, Ile-de-France, France, ²Beaujon Hospital, Department of Gastroenterology, AP-HP, Paris Diderot University, Clichy, France, ³E-health Services Sanoïa, Digital CRO, Gémenos, France, ⁴Biogen International GmbH, Zug, Switzerland, ⁵Biogen UK, Maidenhead, United Kingdom, ⁶Biogen France SAS, Paris, France
Background/Purpose: SB2 is approved in the EU as an infliximab (IFX) biosimilar, having demonstrated bioequivalence and similar efficacy, safety and immunogenicity as the reference. There…
Abstract Number: 542 • 2019 ACR/ARP Annual Meeting
‘BENEFIT’ Pan-European Observational Study to Evaluate the Real-world Effectiveness of SB4 Transition from Originator Etanercept (ETN) in Patients with Rheumatoid Arthritis or Axial Spondyloarthritis: A Switch Success Story
Carlo Selmi ¹, Klaus Krüger², Alain Cantagrel ³, Abad Hernández ⁴, Ulrich Freudensprung ⁵, Mourad Farouk Rezk ⁵ and Janet Addison ⁶, ¹Humanitas Research Hospital, University of Milan, Milan, Italy, ²Medical Centre of Rheumatology, Munich, Germany, ³Center of Rheumatology of CHU, Toulouse, France, ⁴FEA Reumatología, Hospital Virgen del Puerto, Cáceres, Spain, ⁵Biogen International GmbH, Zug, Switzerland, ⁶Biogen UK, Maidenhead, United Kingdom
Background/Purpose: SB4, a biosimilar to the reference ETN, received EU marketing authorisation in January 2016, based on the totality of evidence from pre-clinical and clinical…
Abstract Number: 976 • 2018 ACR/ARHP Annual Meeting
Transitioning from Paediatric to Adult Health Services: Development of an Integrated Programme Incorporating Patient and Provider Values
Fiona Niddrie¹, Gabor Major^2,3, Angela Myles^4,5, Davinder Singh-Grewal^6,7 and Jeffery Chaitow^6,7, ¹Rheumatology, Bone and Joint Institute, John Hunter Hospital, Hunter New England Local Health District, Newcastle, Australia, ²Rheumatology, Bone and Joint Institute, John Hunter Hospital, Newcastle, Australia, ³University of Newcastle, Newcastle, Australia, Newcastle, Australia, ⁴HNEkidshealth, Hunter New England Local Health District, Newcastle, Australia, ⁵Transition Care Network, Agency for Clinical Innovation, Sydney, Australia, ⁶Paediatric Rheumatology, John Hunter Hospital, Newcastle, Australia, ⁷Rheumatology, Sydney Children's Hospital Network, Randwick and Westmead, Australia
Background/Purpose: The transfer from the supportive and guided environment of paediatric to adult care with its increased emphasis on autonomy and self reliance poses challenges…
Abstract Number: 1428 • 2018 ACR/ARHP Annual Meeting
Parental Involvement and Adolescents/Young Adults Self-Management during the Transition Period: A Cross-Sectional Survey in Childhood Onset Rheumatic Diseases
Pauline Yi¹, Hana Conlon², Jae Hee Yun³, Kayla Neville², George Danias², Anca Askanase⁴ and Lisa F. Imundo⁵, ¹Rheumatology, Columbia University College of Physicians & Surgeons, New York, NY, ²Rheumatology, Columbia University Medical Center, New York, NY, ³Medicine/Rheumatology, Columbia University, College of Physicians & Surgeons, New York, NY, ⁴Columbia University, College of Physicians & Surgeons, New York, NY, ⁵Pediatrics, Columbia University Medical Center, New York, NY
Background/Purpose: A NIH focus group study found that adolescents and young adults (AYA) with active disease relied heavily on their parents for disease management. It…
Abstract Number: 1429 • 2018 ACR/ARHP Annual Meeting
A Quality Update: Improved Transfer Time Among Rheumatology Patients Transferring from Pediatric to Adult Care at an Academic Medical Center
Kimberly DeQuattro¹, Michael Evans¹, Aimee O. Hersh², Jinoos Yazdany¹, Emily von Scheven³ and Erica Lawson³, ¹Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, ²Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT, ³Pediatrics/Rheumatology, University of California, San Francisco, San Francisco, CA
Background/Purpose: Transfer from pediatric- to adult-oriented health care is challenging for patients with childhood-onset rheumatologic disease, and may be associated with treatment non-adherence, disease flares…
Abstract Number: 2410 • 2018 ACR/ARHP Annual Meeting
Determining the Need for Fatigue Management Resources for Young Adults with Rheumatic Disease
Kristine Carandang¹ and Janet L. Poole², ¹Chan Division of Occupational Science & Occupational Therapy, University of Southern California, Los Angeles, CA, ²Health Sciences Ctr OT Program, University of New Mexico, Albuquerque, NM
Background/Purpose: Fatigue is a multi-faceted symptom of rheumatic disease that has high priority among patients due to its far-reaching effects on roles and relationships. There…
Abstract Number: 2961 • 2018 ACR/ARHP Annual Meeting
Differences in Healthcare Transition Views, Practices, and Barriers Among North American Pediatric Rheumatology Providers from 2010 to 2018
Kiana Johnson¹, Cuoghi Edens², Peter Chira³, Aimee O. Hersh⁴, Y. Ingrid Goh⁵, Joyce Hui-Yuen⁶, Rebecca E. Sadun⁷, Nora G. Singer⁸, Lynn R. Spiegel⁹, Jennifer N. Stinson¹⁰, Patience H. White¹¹ and Erica Lawson¹², ¹Department of Pediatrics, East Tennessee State University, Johnson City, TN, ²Division of Pediatric Infectious Diseases and Rheumatology and Division of Rheumatology, Rainbow Babies and Children's Hospital and University Hospitals Cleveland Medical Center, Cleveland, OH, ³Pediatric Rheumatology, Rady Children's Specialists of San Diego, San Diego, CA, ⁴Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT, ⁵Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada, ⁶Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY, ⁷Adult and Pediatric Rheumatology, Duke University Medical Center, Durham, NC, ⁸Departments of Medicine and Pediatrics, Division of Rheumatology, MetroHealth Medical Center, Cleveland, OH, Cleveland, OH, ⁹Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada, ¹⁰Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada, ¹¹Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC, ¹²Pediatrics/Rheumatology, University of California, San Francisco, San Francisco, CA
Background/Purpose: Healthcare transition is the “purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult-oriented health care…
Abstract Number: 204 • 2017 ACR/ARHP Annual Meeting
Healthcare Utilization Among Young Adults Transitioning from Pediatric to Adult Care in a Safety Net Population
Nicole Bitencourt¹, Una E. Makris^1,2, Tracey Wright^3,4 and E. Blair Solow¹, ¹UT Southwestern Medical Center, Dallas, TX, ²Department of Medicine, VA North Texas Health Care System, Dallas, TX, ³Pediatrics/Rheumatology, UT Southwestern Medical Center, Dallas, TX, ⁴Texas Scottish Rite Hospital for Children, Dallas, TX
Background/Purpose: The transition from pediatric to adult care for young adults with chronic illness is a vulnerable period especially among socioeconomically disadvantaged populations. As part…
Abstract Number: 339 • 2017 ACR/ARHP Annual Meeting
Patients’ Attitudes and Experiences of Transitional Care in Paediatric Rheumatology: A Systematic Review of Qualitative Studies
Ayano Kelly^1,2,3,4, Fiona Niddrie⁵, David Tunnicliffe^4,6, Camilla Hanson^4,7, Gabor Major^8,9, Davinder Singh-Grewal^10,11,12 and Allison Tong⁴, ¹Rheumatology, The Canberra Hospital, Canberra, Australia, ²School of Medicine, Australian National University, Canberra, Australia, ³Canberra Rheumatology, Canberra, Australia, ⁴Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia, ⁵Rheumatology, Bone and Joint Institute,John Hunter Hospital, Newcatle, Australia, ⁶Sydney School of Public Health, University of Sydney, Sydney, Australia, ⁷Sydney School of Pubic Health, University of Sydney, Sydney, Australia, ⁸Medicine, University of Newcastle, Newcastle, Australia, ⁹Rheumatology, Bone and Joint Institute, John Hunter Hospital NSW Australia, Newcastle, Australia, ¹⁰Faculty of Medicine, University of New South Wales, Sydney, Australia, ¹¹Department of Rheumatology, The Sydney Children's Hospital Network, Sydney, Australia, ¹²Sydney Medical School, University of Sydney, Sydney, Australia
Background/Purpose: Despite the increasing number of transition programs available for rheumatology patients moving from paediatric to adult care, transition continues to pose challenges for patients…
Abstract Number: 910 • 2017 ACR/ARHP Annual Meeting
Training Adult Rheumatology Fellows in Young Adult Transition and Transfer Skills
Rebecca Sadun¹, Gary Maslow², Richard Chung³ and Lisa Criscione-Schreiber⁴, ¹Rheumatology Adult and Pediatric, Duke University Medical Center, Durham, NC, ²Psychiatry and Pediatrics, Duke University Medical Center, Durham, NC, ³Internal Medicine and Pediatrics, Duke University Medical Center, Durham, NC, ⁴Internal Medicine, Duke University Medical Center, Durham, NC
Background/Purpose: The transition from pediatric to adult healthcare is a vulnerable time for adolescents and young adults (AYA) with chronic conditions. EULAR and the Pediatric…
Abstract Number: 1242 • 2017 ACR/ARHP Annual Meeting
Impact of Social Support and Illness Perception on the Transition of Pediatric SLE Patients to Adult Care
Mary Beth Son¹, David Zurakowski², David J. Kreps³, Siobhan Case⁴ and Karen H. Costenbader³, ¹Division of Immunology, Boston Children's Hospital, Boston, MA, ²Departments of Anesthesia and Surgery, Boston Children’s Hospital, Boston, MA, ³Division of Rheumatology, Immunology and Allergy, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, ⁴Boston Children's Hospital, Boston, MA
Background/Purpose : We surveyed adult patients with a history of pediatric systemic lupus erythematosus (pSLE) regarding their process of transition from pediatric to adult care…

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