Abstracts tagged "systemic sclerosis and outcome measures"

Abstract Number: 795 • 2019 ACR/ARP Annual Meeting
Is the Presentation and Severity Different of the Juvenile Diffuse and Limited Subtype Systemic Sclerosis? Results of Juvenile Scleroderma Inception Cohort
Ivan Foeldvari¹, Jens Klotsche ², Ozgur Kasapcopur ³, Amra Adrovic ⁴, Kathryn Torok ⁵, Valda Stanevicha ⁶, Maria Teresa Terreri ⁷, Flavio Sztajnbok ⁸, Ekaterina Alexeeva ⁹, Jordi Antón ¹⁰, Brian Feldman ¹¹, Maria Katsicas ¹², Vanessa Smith ¹³, Tadej Avcin ¹⁴, Rolando Cimaz ¹⁵, Mikhail Kostik ¹⁶, Thomas Lehman ¹⁷, Walter Sifuentes-Giraldo ¹⁸, Natalia Vasquez-Canizares ¹⁹, Simone Appenzeller ²⁰, Mahesh Janarthanan ²¹, Monika Moll ²², Dana Nemcova ²³, Maria José Santos ²⁴, Dieneke Schonenberg ²⁵, Christina Battagliotti ²⁶, Lillemor Berntson ²⁷, Blanca Bica ²⁸, Juergen Brunner ²⁹, Patricia Costa Reis ³⁰, Despina Eleftheriou ³¹, Liora Harel ³², Gerd Horneff ³³, Tilmann Kallinich ³⁴, Dragana Lazarevic ³⁵, Kirsten Minden ³⁶, Susan Nielsen ³⁷, Farzana Nuruzzaman ³⁸, Anjali Patwardhan ³⁹, Yosef Uziel ⁴⁰, Daniela Kaiser ⁴¹ and Nicola Helmus ¹, ¹Hamburg Centre for Pediatric and Adolescence Rheumatology, Hamburg, Germany, ²German Rheumatism Research Center, Berlin, Germany, ³Department of Pediatric Rheumatology, Istanbul University-Cerrahpasa, Istanbul, Turkey, Istanbul, Turkey, ⁴Cerrahpaşa Tıp Fakültesi, Istanbul, Turkey, ⁵UPMC Children's Hospital of Pittsburgh, Pittsburgh, ⁶Riga Stradins University, Riga, Latvia, ⁷Pediatric Rheumatology Unit, Universidade Federal de São Paulo, São Paulo, Brazil, ⁸Universidade do Estado do Rio de Janeiro, Rio de Janeiro, Brazil, ⁹National Medical Research Center of Children`s Health, Moscow, Russia, ¹⁰Hospital Sant Joan de Déu, Barcelona, Spain, ¹¹University of Toronto & The Hospital for Sick Children, Toronto, ON, Canada, ¹²Hospital de Pediatria, Buenos Aires, Argentina, ¹³Dept. of Rheumatology, Ghent University Hospital, Ghent, Belgium; Dept. of Internal Medicine, Ghent University, Ghent, Belgium; Unit for Molecular Immunology and Inflammation, VIB Inflammation Research Center (IRC), Ghent, Belgium, Gent, Belgium, ¹⁴Ljubljana University Medical Centre, Ljubljana, Slovenia, ¹⁵University Hospital Meyer, Florence, Italy, ¹⁶Saint-Petersburg State Pediatric Medical University, Saint-Petersburg, Russia, ¹⁷Hospital for Special Surgery, New York, ¹⁸Hospital Universitario Ramón y Cajal, Madrid, Spain, ¹⁹Children’s Hospital at Montefiore, Bronx NY, ²⁰UNICAMP Universidade Estadual de Campinas, Sao Paulo, Brazil, ²¹Sri Ramachandra University, Chennai, India, ²²University of Tuebingen, Tuebingen, Germany, ²³General University Hospital, Prague, Czech Republic, ²⁴Rheumatology department, Hospital Garcia de Orta, Almada, Portugal, ²⁵Amsterdam UMC, Amsterdam, Netherlands, ²⁶Children's Hospital Dr. Orlando Alassia, Santa Fee, Argentina, ²⁷Uppsala University Hospital, Uppsala, Sweden, ²⁸Hospital Universitário Clementino Fraga Filho (HUCFF/UFRJ), Rio de Janeiro, Brazil, ²⁹Tirol Kliniken, Innsbruck, Austria, ³⁰Hospital de Santa Maria, Lisbon, Portugal, ³¹Great Ormond Street Hospital, London, United Kingdom, ³²Tel Aviv University, Tel Aviv, Israel, ³³Asklepios Clinic Sankt Augustin, Sankt Augustin, Germany, ³⁴Charite, Berlin, Germany, ³⁵KC Niš, Niš, Serbia, ³⁶German Rheumatism Research Center and Charité University Medicine, Berlin, Germany, ³⁷Department of Pediatrics, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark., Copenhavn, Denmark, ³⁸Stony Brook Children's Hospital, Stony Brook, NY, ³⁹University of Missouri, Columbia, ⁴⁰Meir Medical Center, Kfar Saba, Israel, ⁴¹Luzerner Kantonsspital | Kinderspital, Luzern, Switzerland
Background/Purpose: Juvenile systemic scleroderma (jSSc) is an orphan disease with an estimated prevalence of 1 in 1 000 000 children. In the adult systemic scleroderma…

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