Abstracts tagged "Surveys"

Abstract Number: 2208 • ACR Convergence 2023
Awareness and Attitudes Regarding Axial Spondyloarthritis Among Non-Rheumatology Physicians in the United States
William Odell¹, Swetha Ann Alexander², Nicolas Page³, Narinder Maheshwari⁴ and Abhijeet Danve⁵, ¹Yale University, Wethersfield, CT, ²University of Utah Health, Salt Lake City, UT, ³Yale University, New Haven, CT, ⁴UCONN Health, Farmington, CT, ⁵Yale University School of Medicine, Glastonbury, CT
Background/Purpose: Average diagnostic delay for axial spondyloarthritis (axSpA) is 7 to 10 years. Lack of timely referral of inflammatory back pain (IBP) patients by non-rheumatology…
Abstract Number: 0162 • ACR Convergence 2023
Assessing Reproductive Health Counseling and Provider Attitudes in Rheumatology Post Roe v. Wade in Houston, Texas
Ruhani Desai and Meera Subash, University of Texas Health Science Center at Houston, Houston, TX
Background/Purpose: Many rheumatic diseases disproportionately affect women of childbearing age. Advances in the field of rheumatology have led to an increase in targeted treatment agents.…
Abstract Number: 1178 • ACR Convergence 2023
Self-Perceived Knowledge of Myositis Among Social Media Respondents- a Pilot Study on Twitter
Srijan Mittal¹, Vanshita Batra¹, Parikshit Sen², Saadia Sasha Ali³, Arpit Mago⁴, Mark Russell⁵, Eugenia Gkiaouraki⁶ and Rohit Aggarwal⁶, ¹Maulana Azad Medical College, New Delhi, India, ²Maulana Azad Medical College, 2-Bahadurshah Zafar Marg, New Delhi, Delhi-110002, India., Dalhi, India, ³King's College Hospital, Epsom, United Kingdom, ⁴Jawaharlal Nehru Medical College, Belgaum, India, ⁵King's College Hospital, London, United Kingdom, ⁶University of Pittsburgh, Pittsburgh, PA
Background/Purpose: Myositis is a rare complex autoimmune disease that is less known and poorly understood, with increased effort required for education of practitioners, students, educators,…
Abstract Number: 2296 • ACR Convergence 2023
Association Between EQ-5D-5L and SLEDAI Scores in Patients with Systemic Lupus Erythematosus in the United States and Europe: A Real-world Survey
Ebuwa Igho-Osagie¹, Rezaul Khandker¹, Jack Milligan², Emily Goddard² and Sophie Barlow², ¹Merck & Co. Inc., Rahway, NJ, ²Adelphi Real World, Bollington, United Kingdom
Background/Purpose: The EQ-5D-5L is validated for estimating health related quality of life (HRQoL) across a variety of different disease areas, including rheumatic diseases. However, its…
Abstract Number: 0170 • ACR Convergence 2023
Gender Equity Amongst Rheumatology Professionals: Preliminary Findings of the Coalition for Health and Gender Equity E-survey (CHANGE Group)
Lisa Traboco¹, Pavel Ovseiko², Sarah Dyball³, Tayyeba Khursheed⁴, ALEJANDRA BABINI⁵, Asgar Ali Kalla⁶, Catherine Hill⁷, Debashish Danda⁸, Dzifa Dey⁹, Elena Nikiphorou¹⁰, Ghita Harifi¹¹, Ho SO¹², Humeira Badshah¹³, Ihsane Hmamouchi¹⁴, Joan Marie Von Feldt¹⁵, Júlia Boechat Farani¹⁶, Mariana Peixoto Guimarães¹⁷, Kanon Jatuworapruk¹⁸, Laura Andreoli¹⁹, Nelly Ziade²⁰, PENELOPE PALOMINOS²¹, Qian Wang²², Ran Nakashima²³, Syed Haq²⁴, Wilson Bautista-Molano²⁵, Yoshiya Tanaka²⁶, Grace Wright²⁷, Vikas Agarwal²⁸, Laura Coates²⁹ and Latika Gupta³⁰, ¹University of the Philippines - Manila, St Luke's Medical Center - Bonifacio Global City, Paranaque, Manila, Philippines, ²Radcliffe Department of Medicine, University of Oxford, Oxford, United Kingdom, ³University of Manchester, Stockport, United Kingdom, ⁴Pakistan institute of Medical Sciences, Islamabad, Pakistan, ⁵Hospital Italiano Cordoba, Cordoba, Argentina, ⁶Department of Medicine, University of Cape Town, Cape Town, South Africa, ⁷The Queen Elizabeth Hospital, Woodville, Australia, ⁸Christian Medical College & Hospital, Vellore, India, ⁹University of Ghana Medical School, Rheumatology Unit Department of Medicine and Therapeutics, Korle bu Teaching Hospital, Accra, Ghana, ¹⁰King's College London, London, United Kingdom, ¹¹HBMC, Dubai, United Arab Emirates, ¹²The Chinese University of Hong Kong, Hong Kong, China, ¹³Dr Humeira Badsha Medical Center, Dubai, United Arab Emirates, Dubai, United Arab Emirates, ¹⁴Rheumatology Unit, Lalla Aicha Temara Hospital, Temara, Morocco, ¹⁵University of Pennsylvania, Pennsylvania, PA, ¹⁶Division of Rheumatology, Hospital Santa Casa de Misericórdia de Juiz de Fora, Juiz de Fora, Brazil, ¹⁷Santa Casa de Misericórdia de Belo Horizonte, Belo Horizonte, MG, Brazil, ¹⁸Thammasat University, Pathumthani, Thailand, ¹⁹University of Brescia, Brescia, Italy, ²⁰Saint-Joseph University, Beirut, Lebanon, ²¹Hospital de Clinicas de Porto Alegre, Porto Alegre, Brazil, ²²Department of Rheumatology and Clinical Immunology, Chinese Academy of Medical Sciences (CAMS), Peking Union Medical College Hospital, The Ministry of Education Key Laboratory, National Clinical Research Center for Dermatologic and Immunologic Diseases, Beijing, China, ²³Department of Rheumatology and Clinical Immunology, Graduate School of Medicine, Kyoto University, Kyoto, Japan, ²⁴BSM Medical University, Dhaka, Bangladesh, ²⁵University Hospital Fundación Santa Fe de Bogotá, Bogotá, Colombia, ²⁶University of Occupational and Environmental Health, Kitakyushu, Japan, ²⁷Grace C Wright MD PC, New York, NY, ²⁸Sanjay Gandhi Postgraduate Institute of Medical Sciences (SGPGIMS), Lucknow, India, ²⁹University of Oxford, Oxford, United Kingdom, ³⁰Royal Wolverhampton Trust, Wolverhampton/University of Manchester, United Kingdom
Background/Purpose: There is growing attention to gender inequity within rheumatology with persistent challenges in achieving pay parity, career progression, & access to leadership roles. In…
Abstract Number: 1385 • ACR Convergence 2023
Where Are We with Implementing Axial Spondyloarthritis Treatment Recommendations and Disease Activity Monitoring in Clinical Practice – Results of an Online Survey Amongst Rheumatology Care Providers
Joerg Ermann¹, Stephanie Sinnappan² and Alexandra Forte³, ¹Division of Rheumatology, Inflammation and Immunity, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, ²Brigham and Women's Hospital, Boston, MA, ³Memorial Sloan Kettering Cancer Center, New York, NY
Background/Purpose: Several sets of treatment recommendations for axial spondyloarthritis and ankylosing spondylitis (axSpA/AS) have been published. Clinical practice guidelines are not followed consistently by health…
Abstract Number: 2457 • ACR Convergence 2023
Ageism in Rheumatology: The Health Care Professional’s Perspective
Aaron Smith¹, Pooja Achanta¹ and Una Makris², ¹UT Southwestern, Dallas, TX, ²UT Southwestern Medical Center and Dallas VA, Dallas, TX
Background/Purpose: Ageism (stereotypes, prejudice or discrimination based on age) is highly prevalent and has been linked to reduced lifespan, prolonged disability, and accelerated cognitive decline…
Abstract Number: 0192 • ACR Convergence 2023
Demographic and Clinical Factors That Contribute to Clinical Study Enrollment in Systemic Lupus Erythematosus
Sean Inzerillo¹, Noa Schwartz², Leila Khalili¹, Wai Yan April Fu², Wei Tang¹, Laura Geraldino-Pardilla¹, Yevgeniya Gartshteyn³, Nancyanne Schmidt¹, Peter Izmirly⁴ and Anca Askanase⁵, ¹Division of Rheumatology, Columbia University Irving Medical Center, New York, NY, ²Division of Rheumatology, Albert Einstein College of Medicine, New York, NY, ³Columbia University Medical Center, New York, NJ, ⁴New York University School of Medicine, New York, NY, ⁵Columbia University Medical Center, New York, NY
Background/Purpose: Participation in clinical trials is part of treatment for many patients with chronic diseases. However, patients with systemic lupus erythematosus (SLE), especially those of…
Abstract Number: 1453 • ACR Convergence 2023
Musculoskeletal Involvement in Systemic Lupus Erythematosus: Insights from a Survey of Lupus Experts
Rashmi Dhital¹, Maria Dall'Era² and Kenneth Kalunian³, ¹UC San Diego, San Diego, CA, ²University of California San Francisco, San Francisco, CA, ³University of California San Diego, La Jolla, CA
Background/Purpose: Musculoskeletal manifestations of systemic lupus erythematosus (SLE) are common, consisting ofarthralgia and arthritis (95%), myalgia/myositis (17%), tenosynovitis, and bursitis (12%). Joint involvement is a…
Abstract Number: 0194 • ACR Convergence 2023
Reproductive Health Conversations with a Primarily Hispanic Systemic Lupus Erythematosus Population: Influences and Barriers
Zarmeen Zaheer¹, Martha Delgado², Jack Rodman³, Julia Simard⁴, Sandy Lee⁵ and Leanna Wise⁶, ¹Huntington Health, Tampa, FL, ²LAC+USC/Keck School of Medicine, Los Angeles, CA, ³University of Southern California, Los Angeles, CA, ⁴Department of Epidemiology & Population Health, Stanford University School of Medicine, Stanford, CA, ⁵University of Southern California, Walnut, CA, ⁶LAC+USC/Keck Medicine of USC, Pasadena, CA
Background/Purpose: Systemic lupus erythematosus (SLE) is an autoimmune disease most commonly seen in women of childbearing age, with a greater burden in non-Caucasian populations. The…
Abstract Number: 1656 • ACR Convergence 2023
Nothing About Us Without Us: Top 10 Research Priorities from Patients – A James Lind Alliance Project for Public and Patient Involvement (PPI)
anna Fryxelius¹, Amy Martinsen², Ida Løchting³, Linda Aimee Hartford Kvæl⁴, Astrid Lunestad², Astrid Bergland⁴ and Kjersti Storheim², ¹Norwegian Rheumatism Association / REMEDY - Center for Treatment of Rheumatic and Musculoskeletal Diseases, Oslo, Norway, ²Oslo University Hospital, Oslo, Norway, ³REMEDY - Center for Treatment of Rheumatic and Musculoskeletal Diseases, Oslo, Norway, ⁴OsloMET, Oslo, Norway
Background/Purpose: Patient and public involvement (PPI) is gaining increasing recognition as important to ensure research is relevant and to reduce avoidable research waste. Active collaboration…
Abstract Number: 0285 • ACR Convergence 2023
Patient Reported Physical Function, Mental Health, and Treatment Patterns in Dermatomyositis
Lisa Christopher-Stine¹, Julie Paik¹, Brendan M. Johnson², Taryn Smith², Jolie Feldman² and Paul N. Mudd Jr.², ¹Johns Hopkins University, Baltimore, MD, ²Priovant Therapeutics, Durham, NC
Background/Purpose: Dermatomyositis (DM) is a rare, debilitating, idiopathic inflammatory myopathy characterized by painful, itchy skin rash and proximal muscle weakness that can significantly impact daily…
Abstract Number: 1686 • ACR Convergence 2023
Adolescent and Young Adult Rheumatology Patient Reports of Reproductive Health Screening and Counseling in the Clinical Setting
Brittany Huynh¹, Mary Ott¹ and Stacey Tarvin², ¹Indiana University School of Medicine, Indianapolis, IN, ²Riley Hospital for Children at Indiana University Health, Indianapolis, IN
Background/Purpose: Adolescents and young adults (AYAs) with rheumatic disease are at high risk of poor reproductive health outcomes due to disease-related risks and teratogen use.…
Abstract Number: 0328 • ACR Convergence 2023
From Patient Needs to Platform Design: Using Patient Preference to Guide the Development of a Post-Viral Fibromyalgia Management App
Marc Blanchard¹, Pedro Ming Azevedo², Tiffany Prétat², Cinja Koller² and Thomas Hügle³, ¹Dept. of Rheumatology, University Hospital Lausanne (CHUV) and University Lausanne, Lausanne, Switzerland, ²Lausanne University Hospital, Lausanne, Switzerland, ³Dept. of Rheumatology, University Hospital Lausanne (CHUV) and University of Lausanne, Lausanne, Switzerland
Background/Purpose: Post-viral fibromyalgia is a chronic condition that can develop in individuals following a viral infection, such as COVID-19. Recent studies have shown that approximately…
Abstract Number: 1904 • ACR Convergence 2023
Treat-to-Target in RA Clinical Practice: Global Evidence of Practice Gaps and Educational Needs
Douglas White¹, Maya Buch², Suzanne Murray³, Diane Caballero⁴, Orsolya Nagy⁵ and Tsutomu Takeuchi⁶, ¹Waikato Clinical School, University of Auckland, Hamilton, New Zealand, ²University of Manchester and NIHR Manchester Biomedical Research Centre, Manchester, United Kingdom, ³AXDEV Group Inc, Brossard, QC, Canada, ⁴AbbVie, Inc., Chicago, IL, ⁵AbbVie, Inc., Budapest, Hungary, ⁶Keio University School of Medicine and Saitama Medical University, Tokyo, Japan
Background/Purpose: Treat-to-target (T2T) is a widely established and accepted approach in RA management, but its real-world implementation is suboptimal1. Further primary research is required to…

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