Abstracts tagged "Surveys"

Abstract Number: 1241 • ACR Convergence 2024
Optimizing Communication of Methotrexate (MTX) Side Effects: A Patient-Centered Approach Focused on Learning Styles and Preferred Language
Veena Patel¹, Sophia Dove² and Veronica Chavez³, ¹Dell Medical School - UT Health Austin, Austin, TX, ²Moody College of Communication, The University of Texas at Austin, Austin, TX, ³University of Texas - Dell Medical School, Austin, TX
Background/Purpose: Methotrexate (MTX) remains the first-line treatment for RA due to its effectiveness and affordability, but communicating its complex regimen and instructions can be challenging,…
Abstract Number: 1740 • ACR Convergence 2024
Performance of Large Language Models in Rheumatology Board-Like Questions: Accuracy, Quality, and Safety
Jaime Flores Gouyonnet¹, Mariana Gonzalez-Trevino¹, Cynthia Crowson¹, Ryan Lennon¹, Alain Sanchez-Rodriguez², Gabriel Figueroa-Parra³, Elena Joerns⁴, Bradly Kimbrough⁵, Maria Cuellar-Gutierrez¹, Erika Navarro-Mendoza¹ and Ali Duarte-Garcia¹, ¹Mayo Clinic, Rochester, MN, ²Mayo Clinic College of Medicine and Science, Rochester, MN, ³Division of Rheumatology, University Hospital "Dr. Jose Eleuterio Gonzalez", Universidad Autonoma de Nuevo Leon, Monterrey, Mexico, ⁴Mayo Clinic, Rochester, ⁵Mayo Clinic Rochester, Rochester, MN
Background/Purpose: Large language models (LLMs) are increasingly becoming a common source of information for clinicians. We aimed to evaluate the accuracy, quality, and safety of…
Abstract Number: 1244 • ACR Convergence 2024
Creation of a New Patient-reported Outcome for a Combined Response Index for Limited Cutaneous SSc Using the FDA Guidance on Patient Reported Outcome Measures: The CRISTAL PRO
Alain Lescoat¹, Yen Chen², Rosemary Gedert², Neda Kortam², Nadia Vann², David Cella³, Sara Shaunfield⁴, Susan Murphy⁵ and Dinesh Khanna², ¹CHU Rennes - University Rennes 1, Rennes, France, ²University of Michigan, Ann Arbor, MI, ³Northwestern University, Chicago, IL, ⁴Northwestern University, Chicago, ⁵University of Michigan, Plymouth, MI
Background/Purpose: Limited cutaneous systemic sclerosis (lcSSc) is the most frequent subset of scleroderma, yet there is a paucity of outcome measures to assess symptoms that…
Abstract Number: 2111 • ACR Convergence 2024
An International Patient Survey to Identify Candidate Items for Classifying Early-Stage Symptomatic Knee Osteoarthritis
Lauren King¹, Armaghan Mahmoudian², Jean Liew³, Quike Wang⁴, Ian Stanaitis⁵, Dieuwke Schiphof⁶, Leigh Callahan⁷, David Hunter⁸, Tom Appleton⁹, Aleksandra Turkiewicz¹⁰, Martin Englund¹¹, Stefan Lohmander¹¹, Ida Kristin Haugen¹², Tuhina Neogi¹³, Gillian Hawker¹ and Jos Runhaar⁶, and OARSI Early-stage Symptomatic Knee Osteoarthritis Initiative, ¹University of Toronto, Toronto, ON, Canada, ²University of West Florida, Pensacola, FL, ³Boston University, Boston, MA, ⁴Shanghai Sixth People's Hospital, Shanghai, China (People's Republic), ⁵Women's College Hospital, Toronto, ON, Canada, ⁶Erasmus MC University Medical Center Rotterdam, Rotterdam, Netherlands, ⁷University of North Carolina Thurston Arthritis Research Center, Chapel Hill, NC, ⁸Sydney Musculoskeletal Health, University of Sydney, St Leonards, New South Wales, Australia, ⁹The University of Western Ontario, London, ON, Canada, ¹⁰,Lund University, Lund, Sweden, ¹¹Lund University, Lund, Sweden, ¹²Diakonhjemmet Hospital, Oslo, Norway, ¹³Boston University Chobanian & Avedisian School of Medicine, Boston, MA
Background/Purpose: Osteoarthritis Research Society International (OARSI) has launched an initiative to develop classification criteria for early-stage symptomatic knee osteoarthritis (EsSKOA). The goal is to establish…
Abstract Number: 0157 • ACR Convergence 2024
Knowledge and Attitudes About Delta-9-tetrahydrocannabinol (THC) Impact Real-world Practice in an International Group of Rheumatologists
Joanna Zeiger¹, Patti Katz², Mary-Ann Fitzcharles³, Stuart Kassan⁴, Teresa Simon⁵ and Kaleb Michaud⁶, ¹Canna Research Foundation, Boulder, CO, ²UCSF, San Rafael, CA, ³McGill University, Montreal-West, Canada, ⁴National Jewish Health, Denver, CO, ⁵Physicians Research Center Consultant to ForWard, Toms River, NJ, ⁶University of Nebraska Medical Center, Omaha, NE
Background/Purpose: Rheumatologists care for difficult to manage chronic diseases, necessitating adjustments to new treatments and evolving patient views. When making treatment decisions, rheumatologists incorporate clinical…
Abstract Number: 1251 • ACR Convergence 2024
Current Disease Management and Treatment Satisfaction in Axial Spondyloarthritis (axSpA) in Europe: Patient and Rheumatologist Perspectives
Xenofon Baraliakos¹, Victoria Navarro Compán², Elena Nikiphorou³, Thao Pham⁴, Francesco Ciccia⁵, Megan Hughes⁶, Bruno Kranz⁶, Anna Jus⁷, Chris Watson⁷, Jo Lowe⁸ and Sofia Ramiro⁹, ¹Rheumazentrum Ruhrgebiet Herne, and Ruhr-University Bochum, Bochum, Germany, ²La Paz University Hospital, Hospital La Paz Institute for Health Research (IdiPAZ), Madrid, Spain, ³King's College London, London, United Kingdom, ⁴Assistance Publique-Hôpitaux de Marseille, Marseille, France, ⁵Università degli studi della Campania Luigi Vanvitelli, Naples, Italy, ⁶Adelphi Real World, Bollington, United Kingdom, ⁷Alfasigma S.p.A., Bologna, Italy, ⁸Axial Spondyloarthritis International Federation, London, United Kingdom, ⁹Leiden University Medical Center, Bunde, Netherlands
Background/Purpose: A survey was conducted to better understand the characteristics and management of axSpA and patient and physician perspectives on current treatment.Methods: In March 2024,…
Abstract Number: 2162 • ACR Convergence 2024
Exploring Barriers to Rheumatoid Arthritis Treatment Changes: Insights into Patient Concerns
Nicholas McCormick¹, Jeffrey Curtis², Amy Mudano³, Shilpa Venkatachalam⁴, Kelly Gavigan⁵, Fenglong xie⁶, Patrick Stewart⁷ and Kimberly Garza¹, ¹Auburn University, Auburn, AL, ²Illumination Health, Birmingham, AL, ³Illumination Health, Hoover, AL, ⁴Global Healthy Living Foundation, New York, NY, ⁵Global Healthy Living Foundation, Upper Nyack, NY, ⁶University of Alabama at Birmingham; Illumination Health, Birmingham, AL, ⁷Illumination Health, Vero Beach, AL
Background/Purpose: People with rheumatoid arthritis (RA) often hesitate to adjust their treatment due to concerns about medication risks and benefits. This study investigates RA patients'…
Abstract Number: 0164 • ACR Convergence 2024
Sleep Quality Is Associated with Perceived Memory Performance in Females with Osteoarthritis: A Population-based Cross-sectional Study
Linda Li¹, Hui Xie², Leo Lu³, Helen Prlic³, Diane Lacaille⁴, J. Antonio Avina-Zubieta⁴, Jolanda Cibere⁵ and John Esdaile³, and PRECISION Team, ¹Arthritis Research Canada & University of British Columbia, Vancouver, BC, Canada, ²Arthritis Research Canada, Simon Fraser University, Vancouver, BC, Canada, ³Arthritis Research Canada, Vancouver, BC, Canada, ⁴Arthritis Research Canada, University of British Columbia, Vancouver, BC, Canada, ⁵University of British Columbia, Vancouver, BC, Canada
Background/Purpose: Osteoarthritis (OA) is associated with increased risks of cognitive impairment. Cognitive health is affected by an interplay of lifestyle, metabolic, and biological factors; however,…
Abstract Number: 1252 • ACR Convergence 2024
Rheuminating About Drugs, Sex, and Alcohol? Assessing the Informational Needs of Adolescents and Young Adults with Rheumatic Disease
Matthew Sholdice¹, Meghan Pancucci², gauri gupta³, Simran Heera⁴, KAREN BEATTIE⁵ and Michelle Batthish⁶, ¹McMaster University, London, ON, Canada, ²McMaster University, Hamilton, Canada, ³McMaster Univeresity, Hamilton, Canada, ⁴McMaster University, Mississauga, ON, Canada, ⁵McMaster University, Hamilton, ON, Canada, ⁶McMaster Children's Hospital, Hamilton, ON, Canada
Background/Purpose: Adolescents and young adults (AYA) with chronic rheumatic disease (RD) often engage in behaviours, such as alcohol consumption, recreational drug use, and sexual activity,…
Abstract Number: 2164 • ACR Convergence 2024
Boosting Adherence to “Sick Day Rules”: A Quality Improvement Study in Rheumatology Outpatients on Immunosuppressive Medications, Results of Post-intervention Phase
Merve Aksoy*, Pamela Gonzalez Manrique, Heinrich-Karl Greenblatt and Katarzyna Gilek-Seibert, Roger Williams Medical Center, Providence, RI
Background/Purpose: Acute infections are common among rheumatology outpatients receiving immunosuppressive medications (IS). Expert guidance advises pausing IS during acute infection, resuming only when clinically improved,…
Abstract Number: 0203 • ACR Convergence 2024
Agreement of Administrative Pharmacy Dispensing with Patient-Reported Use of Oral Glucocorticoids in a Rheumatoid Arthritis Cohort
Beth Wallace¹, Bryant England², Joshua Baker³, Sauer brian⁴, Jorge Rojas⁵, Punyasha Roul⁶, Michael George⁷, Katherine Wysham⁸, Hannah Brubeck⁹, Isaac Smith¹⁰, Liron Caplan¹¹, Paul Monach¹², Gail Kerr¹³, Gary Kunkel¹⁴, Tawnie Braaten¹⁵, Ted Mikuls² and grant Cannon¹⁶, ¹Michigan Medicine, VA Ann Arbor Healthcare System, Ann Arbor, MI, ²University of Nebraska Medical Center, Omaha, NE, ³Department of Medicine, Perelman School of Medicine University of Pennsylvania, Philadelphia, PA, ⁴Salt Lake City VA/University of Utah, Salt Lake City, UT, ⁵Seattle VA, Mexico, Mexico, ⁶UNMC, Omaha, NE, ⁷University of Pennsylvania, Philadelphia, PA, ⁸VA PUGET SOUND/UNIVERSITY OF WASHINGTON, Seattle, WA, ⁹VA Puget Sound Health Care System, Seattle, WA, ¹⁰Duke Department of Medicine; VA Durham Healthcare System, Durham, NC, ¹¹Univ of Colorado School of Medicine/Rocky Mtn Regional Veterans Affairs Medical Center, Aurora, CO, ¹²VA Boston Healthcare System, Boston, MA, ¹³Washington DC VAMC/Georgetown and Howard Universities, Washington, DC, ¹⁴University of Utah/VA Salt Lake City Health Care, Salt Lake City, UT, ¹⁵UNIVERSITY OF UTAH, Salt Lake City, UT, ¹⁶University of Utah and Salt Lake City VA, Salt Lake City, UT
Background/Purpose: Administrative claims are often used to evaluate oral glucocorticoid (GC) use in RA for clinical and research purposes, despite limited evidence to support their…
Abstract Number: 1265 • ACR Convergence 2024
Approach to Janus Kinase Inhibition for Juvenile Dermatomyositis Among Childhood Arthritis and Rheumatology Research Alliance (CARRA) and Paediatric Rheumatology European Society (PReS) Providers
Emily Datyner¹, Rebecca Nicolai², Silvia Rosina³, Angela Hamilton⁴, Kaveh Ardalan⁵, Brigitte Bader-Meunier⁶, Amanda Brown⁷, Raquel Campanilho-Marques⁸, Marc Jansen⁹, Susan Kim¹⁰, Bianca Lang¹¹, Liza McCann¹², Helga Sanner¹³, Meredyth Wilkinson¹⁴, Belina Yi¹⁵, Hanna Kim¹⁶, Matthew Sherman¹⁷, Stacey Tarvin⁴ and Charalampia Papadopoulou¹⁸, and the CARRA and PReS investigators, ¹Monroe Carell Jr. Children's Hospital at Vanderbilt, Nashville, TN, ²Division of Rheumatology, IRCCS Ospedale Pediatrico Bambino Gesù, Rome, Italy, ³IRCCS Istituto Giannina Gaslini, Genoa, Italy, ⁴Indiana University School of Medicine, Indianapolis, IN, ⁵Duke University School of Medicine, Durham, NC, ⁶Necker Hospital, Assistance Publique Hopitaux de Paris, Paris, France, ⁷University of Arkansas for Medical Sciences, Little Rock, AR, ⁸Lisbon Academic Medical Centre, Lisboa, Portugal, ⁹University Medical Center Utrecht, Utrecht, Netherlands, ¹⁰University of California, San Francisco, CA, ¹¹Dalhousie University and IWK Health, Halifax, NS, Canada, ¹²Alder Hey Children's NHS Foundation Trust, Liverpool, England, United Kingdom, ¹³Oslo University Hospital, Oslo, Norway, ¹⁴Great Ormond Street Institute of Child Health, London, United Kingdom, ¹⁵Johns Hopkins University School of Medicine, Baltimore, MD, ¹⁶National Institute of Arthritis Musculoskeletal and Skin Diseases, National Institutes of Health, Bethesda, MD, ¹⁷DAIT/NIAID/NIH, Washington, DC, ¹⁸Great Ormond Street Hospital for Children, NHS Foundation Trust, London, United Kingdom
Background/Purpose: Janus kinase inhibitors (JAKi) have been proposed as a treatment for idiopathic inflammatory myopathies to target increased interferon signaling. Predominantly retrospective reports have demonstrated…
Abstract Number: 2165 • ACR Convergence 2024
Fertility Concerns in Adolescents and Young Adults Receiving Gonadotoxic Medications for Rheumatic Disease
SHAHD FARAJALLAH¹, Katie Dunnock², Qing Yu³, Sangeeta Sule⁴ and Tova Ronis⁴, ¹Children's national hospital, Washington DC, ²George Washington University, washington dc, ³George Washington University, washington dc, DC, ⁴Children's National Hospital, Washington, DC
Background/Purpose: Adolescents and young adults diagnosed with rheumatic diseases often require treatment with teratogenic and cytotoxic medications to effectively manage their conditions. While these therapies…
Abstract Number: 0204 • ACR Convergence 2024
Making Rheum for Palliative Care in Rheumatology: Perspectives of Rheumatology and Palliative Care Clinicians
Shannon Herndon¹, Jack Kimball¹, Christopher Jones¹ and David Leverenz², ¹Duke University Medical Center, Durham, NC, ²Duke University, Durham, NC
Background/Purpose: Palliative care is underutilized in patients with severe rheumatic disease. We sought to describe the perspectives of rheumatology and palliative care clinicians on the…
Abstract Number: 1290 • ACR Convergence 2024
Examining the Quality of Surveys Used in Rheumatology Health Professions Education Research
Madeline O’Sullivan¹, Andrea Barker², Naomi Schlesinger¹ and Michael Battistone², ¹University of Utah, Salt Lake City, UT, ²Salt Lake City VA, Salt Lake City, UT
Background/Purpose: Health professions education (HPE) is an evolving discipline that frequently utilizes surveys to collect data about abstract concepts. A study of the methodologic rigor…

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