Abstracts tagged "Surveys"

Abstract Number: 2537 • ACR Convergence 2025
Variation in Treatment Approaches in IgA-Vasculitis Among Pediatricians and Pediatric rheumatologists: A Cross-Sectional International Survey
Merav Heshin Bekenstein¹, Tali Elbaz², Yael Illous² and Barak Kandell³, ¹Tel Aviv Medical Center Israel, Binyamina, Tel Aviv, Israel, ²School of Medicine, Faculty of Medical and Health Sciences, Tel Aviv, Israel, ³The Academic College of Tel Aviv-Yafo, Tel Aviv, Israel
Background/Purpose: IgA Vasculitis (IgAV) is the most common small-vessel vasculitis in children. Although there is no evidence-based recommendations for treating IgAV, the European SHARE recommendations…
Abstract Number: 1923 • ACR Convergence 2025
A Real-World Survey On Physicians’ Perspectives Of Uncontrolled Gout And Gout Management Practices.
John Botson¹, Menaka Bhor², Nathan Meyer², Molly Edwards³, Emily Goddard³, Victoria Barton⁴ and Jeff Peterson⁵, ¹Orthopedic Physicians of Alaska, Anchorage, AK, ²Sobi Inc, Waltham, MA, ³Adelphi Real World, Bollington, United Kingdom, ⁴Adelphi Real World, Macclesfield, United Kingdom, ⁵Western Washington Arthritis Clinic, Bothell, WA
Background/Purpose: Managing uncontrolled gout (UG) can involve a multi-disciplinary approach involving physicians of different specialities, all of whom may have differing perspectives or approaches for…
Abstract Number: 0738 • ACR Convergence 2025
Real World Steroid Burden, Treatment Patterns, and Rheumatologists’ Perceptions on Advanced Therapy in Giant Cell Arteritis
Anisha Dua¹, Aditi Kadakia², Patrick Zueger³, Simran Marwaha⁴, Nathaniel Zerad³, Arathi Setty³, William Jones⁴ and Valerie Devauchelle⁵, ¹Northwestern University Feinberg School of Medicine, Chicago, IL, ²AbbVie Inc, Woburn, MA, ³AbbVie Inc, North Chicago, IL, ⁴Adelphi Real World, Bollington, United Kingdom, ⁵UBO, Brest, France
Background/Purpose: Giant cell arteritis (GCA) is the most common vasculitis in patients 50 years and older. Glucocorticoids (GC) are the mainstay of treatment for GCA…
Abstract Number: 2318 • ACR Convergence 2025
Practice Patterns and Barriers in the Referral, Management and Monitoring of Axial Spondyloarthritis: Insights from an Online Survey of Rheumatologists
Khalid Alnaqbi¹, Mohammed Alaswad², Tariq Al Araimi³, Amr Mahmoud⁴, Samar Al emadi⁵, Hanan Al Rayyes⁶, Khuloud Mohammed⁷ and Xenofon Barliakos⁸, ¹Sheikh Tahnoon Medical city, Al Ain, United Arab Emirates, ²Faculty of Human Medicine, University of Hama, Hama, Syria, ³Royal Hospital, Muscat, Oman, ⁴Department of Pharmacology, Pharmacy Program, Oman College of Health Sciences, Muscat, Oman, ⁵Hamad medical corporation, Doha, Qatar, ⁶Department of Medicine, Prince Sultan Military Medical City, Riyad, Saudi Arabia, ⁷Farwaniya Hospital, Kuwait, Kuwait, ⁸Ruhr-University Bochum, Rheumazentrum Ruhrgebiet, Herne, Germany
Background/Purpose: There is a dearth of literature exploring challenges faced by rheumatologists in the referral, diagnosis, management, and monitoring of patients with suspected axial spondyloarthritis…
Abstract Number: 1915 • ACR Convergence 2025
Innovative Clinical Trial Recruitment Approaches in Lupus Research: LuCIN Site Perspectives on Use of Social Media and Artificial Intelligence
Brandon Jackson¹, Roberto Caricchio², Saira Sheikh³, Meenakshi Jolly⁴, Jennifer Meriwether⁵, Taylor Irons⁶, Taylor Adjei⁷, Caroline Donovan⁸, Carla Menezes⁷, Courtney Canton⁹, Aimee Williams¹⁰, Maya Merrell⁹ and Stacie Bell¹¹, ¹Lupus Therapeutics, Miami, FL, ²University of Massachusetts Chan Medical School, Worcester, MA, ³University of North Carolina at Chapel Hill, Chapel Hill, NC, ⁴Rush University, Chicago, IL, ⁵Lupus Therapeutics, Westminster, CO, ⁶Lupus Therapeutics, Houston, TX, ⁷Lupus Therapeutics, New York, NY, ⁸Lupus Therapeutics, Charlottesville, VA, ⁹Lupus Therapeutics, Charleston, SC, ¹⁰Lupus Therapeutics, Raleigh, NC, ¹¹Lupus Therapeutics, Lakewood, CO
Background/Purpose: Lupus disproportionately impacts racial and ethnic minorities, yet these groups remain underrepresented in clinical trials. Lupus Therapeutics, overseeing the Lupus Clinical Investigators Network (LuCIN),…
Abstract Number: 0375 • ACR Convergence 2025
Association of Glucocorticoid Toxicity Index Scores with Quality-of-Life and Healthcare Resource Utilization at 6 Months in a Real-World Cohort of Individuals Receiving Glucocorticoids
Naomi Patel¹, Jiaqi Wang¹, Isha Jha², Grace McMahon¹, Tania Chiha³, Hyon K. Choi⁴ and John Stone⁵, ¹Massachusetts General Hospital, Boston, MA, ²Massachusetts General Hospital, Boston, ³Mount Auburn Hospital, Boston, ⁴MASSACHUSETTS GENERAL HOSPITAL, Lexington, MA, ⁵Massachusetts General Hospital , Harvard Medical School, Concord, MA
Background/Purpose: Glucocorticoids (GCs) are used long-term by approximately 1% of the adult population and contribute to excess morbidity and mortality. We prospectively assessed Glucocorticoid Toxicity…
Abstract Number: 2216 • ACR Convergence 2025
Expanding Reproductive Health Assessments in Rheumatic Diseases: A Comparative Analysis of Demographic and Disease-Specific Factors
Krista Topalsky¹, Chelsea Guan², Lindsay Frumker³, Dana Nachawati², Areeb Tiwana⁴, Meghan Gump², Omer Pamuk⁵ and Marina Magrey⁶, ¹University Hospitals, Shaker Heights, OH, ²University Hospitals Cleveland Medical Center/Case Western Reserve University, Cleveland, OH, ³University hospitals Cleveland medical center, Highland Heights, OH, ⁴Canton Medical Education Foundation, Canton, OH, ⁵University Hospitals Cleveland Medical Center/ Case Western Reserve University, Cleveland, OH, ⁶Case Western Reserve University School of Medicine/University Hospitals Cleveland, Richfield, OH
Background/Purpose: Building on our 2024 ACR study (Topalsky et al.) that described broad knowledge gaps and interest in reproductive health education among women with rheumatic…
Abstract Number: 1419 • ACR Convergence 2025
Effectivenss of an educational program on non-radiographic axial spondyloarthritis
Hideto Kameda¹, Toshihide Shuto², Akimichi Morita³, Yasuharu Nakashima⁴, Kiyoshi Matsui⁵, Masaaki Mori⁶ and Masahiro Yamamura⁷, ¹Department of Internal Medicine, Toho University, Tokyo, Japan, ²Chiyoda Hospital, Hyuga, Japan, ³Department of Geriatric and Environmental Dermatology, Graduate School of Medical Sciences, Nagoya City University, Nagoya, Japan, ⁴Kyushu University, Fukuoka, Japan, ⁵Amagasaki Chuo Hospital, Amagasaki, Japan, ⁶Institute of Science Tokyo, Tokyo, Japan, ⁷Okayama Saiseikai General Hospital, Okayama, Japan
Background/Purpose: Non-radiographic axial spondyloarthritis (nr-axSpA) is a relatively new disease concept. We developed an educational program to promote early and appropriate referral to specialists based…
Abstract Number: 0374 • ACR Convergence 2025
Assessing Attitudes and Barriers to Vaccination in Pediatric Rheumatic
Merav Heshin Bekenstein¹, Rebecca Hetrick², Vidya Sivaraman³, Beth Rutstein⁴, Albert Chow⁵, Peter Chiraseveenuprapund⁶, Vincent Del Gaizo⁷, Melanie Kohlheim⁸, guy Brock⁹, Sapuni Chandrasena⁹, Chloé Janse van Rensburg¹⁰ and Marina Gad El Sayed¹¹, ¹Tel Aviv Medical Center Israel, Binyamina, Tel Aviv, Israel, ²Indiana University School of Medicine, Indianapolis, IN, ³Nationwide Children's Hospital/ The Ohio State University, Columbus, OH, ⁴The Children's Hospital of Philadelphia, Wynnewood, PA, ⁵Loma Linda University, Loma Linda, CA, ⁶University of Utah, Salt Lake City, UT, ⁷Childhood Arthritis & Rheumatology Research Alliance (CARRA), Whitehouse Station, NJ, ⁸CARRA, Granville, OH, ⁹The Ohio State University Wexner Medical Center, Columbus, OH, ¹⁰Max Rady College of Medicine, University of Manitoba, Winnipeg, MB, Canada, ¹¹University of California, Riverside School of Medicine, Riverside, CA
Background/Purpose: Vaccine-preventable diseases pose greater risk to children with rheumatic diseases treated with immunosuppressive therapies and to those with underlying immune dysregulation. Despite the importance…
Abstract Number: 2201 • ACR Convergence 2025
Adherence to Reproductive Health Guidelines in Lupus Care: Insights from Patient and Physician Surveys
Akhil Sood¹, Leanna Wise², Sadaf Sediqi¹, Alyssa Howren¹, Amanda Moyer¹, Ellie Diamond¹, Yashaar Chaichian³ and Julia F Simard⁴, ¹Stanford University, Palo Alto, CA, ²LAGMC/Keck Medicine of USC, Los Angeles, ³Stanford University, Stanford, CA, ⁴Stanford Medicine, Stanford, CA
Background/Purpose: The American College of Rheumatology has established guidelines for managing reproductive health in patients with rheumatic diseases. We assessed contraception use and counseling of…
Abstract Number: 1265 • ACR Convergence 2025
Patient Portal Awareness and Utilization Across Diverse Rheumatology Populations
Emily Gutowski¹, Joshua Novack², Allyson Covello², Philip Carlucci³, Scott Goldberg¹, Mary Guan⁴, Marcus Hines², Elliot Philips², Michael Pillinger⁵ and Sara Stream⁶, ¹New York University Grossman School of Medicine, Brooklyn, NY, ²New York University Grossman School of Medicine, New York, NY, ³New York University School of Medicine, New York, NY, ⁴NYU Grossman SOM, Brooklyn, NY, ⁵New York University Grossman School of Medicine, New York,, NY, ⁶New York University Grossman School of Medicine, Great Neck, NY
Background/Purpose: Patients with rheumatic diseases face complex and chronic diagnoses that require close monitoring and frequent communication with their providers. Given increasing challenges to in-person…
Abstract Number: 0367 • ACR Convergence 2025
Differences in Self-Reported Medication Nonadherence and its Drivers in Young Adults versus Older Adults with Systemic Lupus Erythematosus
Hannah Concannon¹, Kai Sun², Jennifer Rogers³, Megan Clowse⁴, Rachel Randell², Mithu Maheswaranathan⁵, Lisa Criscione-Schreiber⁵, Nathaniel Harris⁶, Amanda Eudy⁷ and Rebecca Sadun², ¹Duke University School of Medicine, Chapel Hill, NC, ²Duke University, Durham, NC, ³Duke, Durham, NC, ⁴Duke University, Chapel Hill, NC, ⁵Duke University School of Medicine, Durham, NC, ⁶Duke University Medical Center, Durham, NC, ⁷Duke University, Raleigh, NC
Background/Purpose: Medication adherence poses a challenge for patients with SLE, especially younger patients, who often experience both more active disease and more intensive treatments than…
Abstract Number: 2199 • ACR Convergence 2025
Disparities in Reproductive Health Counseling Among Hispanic Women with Autoimmune Rheumatic Diseases: Insights from a Patient-Reported Survey in an Urban Safety-Net Setting
Eaman Alhassan¹, Laura Kobashigawa², Vanessa Ramos², Jack Rodman² and Leanna Wise³, ¹University of Pittsburgh Medical Center, Pittsburgh, PA, ²University of Southern California, Los Angeles, ³LAGMC/Keck Medicine of USC, Los Angeles
Background/Purpose: Reproductive-age Hispanic women with rheumatoid arthritis, juvenile idiopathic arthritis (combined, inflammatory arthritis; IA), and systemic lupus erythematosus (SLE) often bear a higher disease burden…
Abstract Number: 1259 • ACR Convergence 2025
Patient and Caregiver Perspectives on the Burden of Disease in Uncontrolled Gout: A Cross-Sectional Survey Study
Angelo Gaffo¹, Bhavisha Desai², Abiola Oladapo³, Nana Kragh⁴, Rebekah Zincavage⁵, Brad Padilla⁵ and Naomi Schlesinger⁶, ¹Division of Rheumatology and Clinical Immunology, University of Alabama, Birmingham, AL, USA; Birmingham VA Medical Center, Birmingham, AL, USA, Birmingham, AL, ²Sobi, Glastonbury, CT, ³Sobi INC, Waltham, MA, ⁴Sobi, Kongens Lyngby, Denmark, ⁵Stratevi, Boston, ⁶Spencer Fox Eccles School of Medicine, University of Utah, Salt Lake City, UT, USA, Salt Lake City, UT
Background/Purpose: Many patients with uncontrolled gout (UG) experience symptoms despite being on urate-lowering therapy (ULT), often requiring support from informal caregivers. UG impacts patients and…
Abstract Number: 0295 • ACR Convergence 2025
Multidimensional Analysis of Fatigue in Idiopathic Inflammatory Myopathies: Clinical, Psychological, and Sociodemographic Determinants
Manali Sarkar¹, Meera Shah², Vincenzo Venerito³, Vikas Agarwal⁴ and Latika Gupta⁵, ¹Sir H. N. Reliance Foundation Hospital and Research Centre, Mumbai, Maharashtra, India., Mumbai, Maharashtra, India, ²Indraprastha Apollo Hospital, New Delhi, Mumbai, Maharashtra, India, ³Univeristy of Bari "Aldo Moro", Italy, Bari, Bari, Italy, ⁴Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, Uttar Pradesh, India, ⁵School of Infection, Inflammation and Immunology, College of Medicine and Health, University of Birmingham; Royal Wolverhampton NHS Trust; Centre for Musculoskeletal Research, School of Biological Sciences, The University of Manchester, Manchester; Francis Crick Institute, London, Birmingham, UK, United Kingdom
Background/Purpose: Fatigue significantly impacts quality of life in idiopathic inflammatory myopathies (IIM) but remains poorly understood. This study aimed to identify the key determinants of…

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