Abstracts tagged "Support and Education Groups"

Abstract Number: PP01 • 2018 ACR/ARHP Annual Meeting
Physician, Patient, Person. Success in Balancing Multiple Roles Takes Support
Brandi Stevens¹ and Katharine Moore², ¹Pediatrics, Riley Hospital for Children at Indiana University, Indianapolis, IN, ²Pediatric Rheumatology, Children's Hospital Colorado, Aurora, CO
Background/Diagnosis: It was the most important conference of the year, and I could barely walk. With a slow limping gait, there is no hiding it…
Abstract Number: PP10 • 2018 ACR/ARHP Annual Meeting
Using a Mobile App to Facilitate Patient-Doctor Discussions to Make Informed Decisions Regarding ‘Painsomnia’
Shelley Fritz¹, Kristine Carandang² and Dawn Gibson³, ¹ArthritisPower Patient Partner: CreakyJoints/Global Healthy Living Foundation, Tampa, FL, ²Chan Division of Occupational Science & Occupational Therapy, University of Southern California, Los Angeles, CA, ³Founder #SpoonieChat; CreakyJoints/Global Healthy Living Foundation Patient Partner, Upper Nyack, NY
Background/Diagnosis: As a patient with AS, Dawn founded #SpoonieChat to provide a space on twitter for people living with chronic diseases to support each other.…
Abstract Number: PP13 • 2018 ACR/ARHP Annual Meeting
Support Groups and Patient Centred Care; Making a Difference in the Lives of People with Autoimmune and Rheumatic Conditions in Ghana
Paulina Padiki Narh¹, Abdul Aziz A. Adodo Can-Tamakloe¹ and Ida Dzifa Dey², ¹The Rheumatology Initiative tRi, Accra, Ghana, ²Department of Medicine, Rheumatology Unit, School of Medicine and Dentistry,University of Ghana, Accra, Ghana
Background/Diagnosis: I felt relieved when my diagnosis was confirmed, but upon hearing Lupus and Nephritis and no cure, I felt shattered. I was referred to…
Abstract Number: 1949 • 2018 ACR/ARHP Annual Meeting
Implementation of a Health Diary for Patients with Fibromyalgia
Verónica De Cillis¹, Ayelen Semerano², Adriana Pérez Dávila², Analía Bohr³, Sandra Pelaez⁴ and E. Scheines⁵, ¹Occupational Therapist Service, Hospital de Rehabilitación Manuel Rocca., Buenos Aires, Argentina, ²Hospital de Rehabilitación Manuel Rocca, Buenos Aires, Argentina, ³Rheumatology Section, Hospital de Rehabilitación Manuel Rocca, Buenos Aires, Argentina, ⁴Research Centre of the St.Justine Hospital, Montreal, QC, Canada, ⁵Reumatology, Instituto de Rehabilitación Psicofísica, CABA, Argentina
Background/Purpose: Fibromyalgia (FM) is a syndrome of central sensitization that encompasses many disorders where the central nervous system amplifies sensory input across many organ systems…
Abstract Number: 118 • 2017 ACR/ARHP Annual Meeting
Experiences and Perceptions of Patients with Rheumatoid Arthritis Participating in an Online Support Group: The Use of Social Media
Jude K. A. des Bordes¹, Jessica Foreman¹, Susan K. Peterson², Maria A. Lopez-Olivo³, Tiffany Westrich-Robertson⁴, Catherine Hofstetter⁵, Anne Lyddiatt⁶, Amye L. Leong⁷ and Maria Suarez-Almazor³, ¹Section of Rheumatology and Clinical Immunology, Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, Texas, USA, Houston, TX, ²Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Houston Texas, USA, Houston, TX, ³Section of Rheumatology and Clinical Immunology, Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, Houston, TX, ⁴International Foundation for Autoimmune and Autoinflammatory Arthritis, Saint Louis, Missouri, USA, St Louis, MO, ⁵Canadian Arthritis Patients Alliance (CAPA), Toronto Ontario, Canada, Toronto, ON, Canada, ⁶Musculoskeletal Group, Cochrane Collaboration, Hamilton, ON, Canada, ⁷Spokesperson; Strategic Relations, Bone and Joint Decade, Santa Barbara, CA
Background/Purpose: Providing social support is an important component in the management of chronic diseases. In rheumatoid arthritis (RA), peer support is particularly important for coping…
Abstract Number: 1861 • 2017 ACR/ARHP Annual Meeting
Evaluation of a Longstanding Telephone Peer Counseling Service on People with Systemic Lupus Erythematosus and Their Loved Ones
Priscilla Toral¹, Melissa T. Flores¹, Roberta Horton¹ and Jillian Rose², ¹Social Work Programs, Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, New York, NY
Background/Purpose: Studies show telephone peer support has been used to address a range of health concerns in people living with chronic illness. A phone evaluation…
Abstract Number: 92 • 2016 ACR/ARHP Annual Meeting
Is Patient Support Program (PSP) Participation Associated with Longer Persistence and Greater Adherence Among New Users of Adalimumab?
Einav Srulovici^1,2, Vishvas Garg³, Adi Ghilai², Becca Feldman², Moshe Hoshen², Ran Balicer², Martha Skup⁴ and Maya Leventer-Roberts², ¹School of Nursing, University of Haifa, Haifa, Israel, ²Clalit Research Institute, Clalit Health Services, Tel Aviv, Israel, ³AbbVie Inc, North Chicago, IL, ⁴AbbVie Inc., North Chicago, IL
Background/Purpose: In Israel, patients treated with adalimumab (ADA) can enroll in a patient support program (PSP) provided by AbbVie, which includes a home visit by…
Abstract Number: 1054 • 2016 ACR/ARHP Annual Meeting
Self-Reported Psychological Impact and Coping Strategies of Men with RA
Caroline Flurey¹, Sarah Hewlett², Karen Rodham³, Alan White⁴, Robert Noddings⁵ and John Kirwan⁶, ¹Faculty of Health and Life Sciences, University of the West of England, Bristol, United Kingdom, ²Academic Rheumatology, University of West of England, Bristol, United Kingdom, ³Psychology, Sport and Exercise, Staffordshire University, Stoke on Trent, United Kingdom, ⁴Centre for Men's Health, Leeds Beckett University, Leeds, United Kingdom, ⁵Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, United Kingdom, ⁶University of Bristol, Bristol, United Kingdom
Background/Purpose: Current RA research reflects the preponderance of women with the condition (30% male). Research in other conditions suggests men need their own health strategy.…
Abstract Number: 3016 • 2014 ACR/ARHP Annual Meeting
Measuring the Impact of an Early RA Support and Education Program Using a Program Evaluation with Patient Identified Outcomes
Adena Batterman¹, Kathryn Klingenstein¹, Roberta Horton¹, Linda Leff², Theodore R. Fields³ and Vivian P. Bykerk⁴, ¹Social Work Programs, Hospital for Special Surgery, New York, NY, ²Nursing, Hospital for Special Surgery, New York, NY, ³Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, New York, NY, ⁴Rheumatology, Hospital for Special Surgery, New York, NY
Background/Purpose The Early RA Support and Education Program addresses the unique psycho-educational needs of people recently diagnosed (
Abstract Number: 2211 • 2013 ACR/ARHP Annual Meeting
Hospital For Special Surgery’s Charla De Lupus ( Lupus Chat)® Teen/Young Adult/ Parent Group: Holistic Support For Lupus Patients and Their Families
Erica Sandoval¹, Lillian Mendez², Roberta Horton³, Josephine Isgro⁴ and Shawn Rose⁵, ¹Social Work Programs, Hospital For Special Surgery, New York, NY, ²Social Work Programs, Hospital for Speical Surgery, New York, NY, ³Department of Social Work Programs, Hospital for Special Surgery, New York, NY, ⁴Pediatric Rheumatology, Morgan Stanley Children's Hospital of New-York Presbyterian, Columbia University Medical Center, New York, NY, ⁵Cardiovascular and Pulmonary Branch, NIAMS, NHLBI, Bethesda, MD
Background/Purpose: Teens with chronic illnesses are faced with challenges to their identity, peer relationships, self-esteem, and developmental milestones, which can have a lasting impact on…

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