Abstracts tagged "SLE and patient outcomes"

Abstract Number: 2551 • 2019 ACR/ARP Annual Meeting
Validity and Reliability of Patient Reported Outcomes Measurement Information System (PROMIS) Computerized Adaptive Tests (CAT) in a Canadian Cohort of Patients with Systemic Lupus Erythematosus
Mitra Moazzami¹, Lisa Engel ², Nicole Anderson ³, Jiandong Su ³, Dennisse Bonilla ³, Pooneh Akhavan ⁴, Patricia Katz ⁵, Dorcas Beaton ⁶ and Zahi Touma ⁷, ¹George Washington University, Washington, DC, ²University of Manitoba, Winnipeg, MB, Canada, ³University Health Network, University of Toronto, Toronto, ON, Canada, ⁴University of Toronto, Toronto, Canada, ⁵University of California, San Francisco, san francisco, CA, ⁶St. Michael's Hospital, Toronto, ON, Canada, ⁷University Health Network, University of Toronto, Toronto, Canada
Background/Purpose: Patient-reported outcome measures are invaluable tools in clinical practice and are central in providing patient-centered care. There has been minimal research on the use…
Abstract Number: 1674 • 2018 ACR/ARHP Annual Meeting
Lupus Impact Tracker Validation in a Large European Spanish Lupus Registry Cohort
Meenakshi Jolly¹, Desiree R Azizoddin², Iñigo Rúa-Figueroa³, Hervé Devilliers⁴, Raúl Menor Almagro⁵, Francisco Javier López Longo⁶, Juan Gabriel Ovalles-Bonilla⁷, Alejandro Olivé-Marqués⁸, Paula Rubio-Muñoz⁸, María Galindo⁹, Antonio Fernandez-Nebro¹⁰, Jaime Calvo-Alen¹¹, Rosario García-Vicuña¹², Eva Tomero¹³, Esther Uriarte Isacelaya¹⁴, Angela Pecondon-Español¹⁵, Ricardo Blanco¹⁶, Mercedes Freire¹⁷, Marian Gantes¹⁸, Monica Ibanez Barcelo¹⁹, Carlos Alberto Montilla-Morales²⁰, José Rosas²¹, Jesús García-Villanueva²², Paloma Vela²³, Esther Ruiz Lucea²⁴, Francisco Toyos²⁵, José Hernández Beiraín²⁶, Elvira Diez Alvarez²⁷, María Gema Bonilla Hernán²⁸, Francisco Javier Narváez²⁹, José Andréu-Sánchez³⁰, Mireia Moreno-Martínez-Losa³¹, Ana Sánchez Atrio³², Maria Loreto Horcada³³, Tatiana Cobo-Ibáñez³⁴, Carlos Marras Fernandez-Cid³⁵, Tomas Ramón Vazquez Rodriguez³⁶, Eva Salgado-Pérez³⁷, Vicente Torrente³⁸, Juan Alegre-Sancho³⁹, Coral Mouriño-Rodriguez⁴⁰, Joel A. Block⁴¹ and JM Pego-Reigosa⁴², ¹Rush University Medical Center, Chicago, IL, ²Department of Anesthesiology, Stanford University School of Medicine, Palo Alto, CA, ³Rheumatology Division, Hospital Doctor Negrin, Las Palmas GC, Spain, ⁴Department of Internal Medicine and Systemic Diseases, Hôpital François Mitterrand, CHU de Dijon, Dijon, France, ⁵Rheumatology, Hospital de Jerez de la Frontera, Jerez, Spain, ⁶Rheumatology Department, Hospital General Universitario Gregorio Marañón, Madrid, Spain, ⁷Instituto de Investigación Sanitaria Gregorio Marañón, Madrid, Spain, ⁸Rheumatology, Hospital Universitari Germans Trias i Pujol, Badalona, Spain, ⁹Servicio de Reumatología, Hospital 12 de Octubre, Madrid, Spain, ¹⁰UGC de Reumatología, Instituto de Investigación Biomédica de Málaga (IBIMA) Hospital Regional Universitario de Málaga Departamento de Medicina y Dermatología, Universidad de Málaga, MÁLAGA, Spain, ¹¹Rheumatology, Txagorritxu Hospital, Araba, Vitoria, Vitoria, Spain, ¹²Rheumatology, Hospital Universitario de La Princesa. IIS La Princesa, Madrid, Spain, ¹³HOSPITAL DE LA PRINCESA, spain, Spain, ¹⁴Rheumatology, Hospital Universitario de Donosti, San Sebastian, Spain, ¹⁵Rheumatology, Hospital Miguel Servet, Zaragoza, Spain, ¹⁶Rheumatology, Hospital Universitario Marqués de Valdecilla. IDIVAL. Santander. Universidad de Cantabria. Spain, Santander, Spain, ¹⁷Servicio de Reumatología. Instituto de Investigación Biomédica de A Coruña (INIBIC). Complexo HospitalarioUniversitario de A Coruña (CHUAC), Sergas. Universidade da Coruña (UDC), A Coruña, Spain, ¹⁸Rheumatology, Hospital Universitario de Canarias, La Laguna; Tenerife, Spain, ¹⁹H. Son Llatzer, Palma de Mallorca, Spain, ²⁰Hospital Clínico Universitario de Salamanca. Spain, Salamanca, Spain, ²¹Rheumatology, Hospital Marina Baixa, Villajoyosa (Alicante), Spain, ²²HOSPITAL RAMÓN Y CAJAL, Madrid, Spain, ²³Dpt. Rheumatology, Hospital General Universitario Alicante, Alicante, Spain, ²⁴Rheumatology, Hospital de Basurto, Bilbao, Spain, ²⁵Rheumatology, Hospital Universitario Virgen de la Macarena, Sevilla, Spain, ²⁶Rheumatology, Hospital Insular de Gran Canaria, Las palmas Gran Canarias, Spain, ²⁷Complejo Asistencial Universitario de León, León, Spain, ²⁸Rheumatology Department, Hospital Universitario La Paz, IdiPAZ, Madrid, Spain, ²⁹Rheumatology Department, Hospital de Bellvitge. Barcelona. Spain, L’Hospitalet de Llobregat, Spain, ³⁰HOSPITAL PUERTA DE HIERRO, Madrid, Spain, ³¹HOSPITAL PARC TAULÍ, Barcelona, Spain, ³²University Hospital Príncipe de Asturias, Immune System Diseases, Rheumatology Department, Alcalá de Henares, Madrid, Spain, ³³Rheumatology, Hospital de Navarra, Pamplona, Spain, ³⁴Hospital Universitario Reina Sofía, Universidad Europea de Madrid, Madrid, Spain, ³⁵Rheumatology, Hospital Virgen de la Arrixaca, Murcia, Spain, ³⁶Rheumatology, Hospital Universitario Lucus Augusti, Lugo, Spain, ³⁷COMPLEJO HOSPITALARIO DE OURENSE, Ourense, Spain, ³⁸Hospital Sant Joan de Déu, Esplugues de Llobregat, Spain, ³⁹HOSPITAL DR. PESET, València, Spain, ⁴⁰Rheumatology, Rheumatology Section, Complexo Hospitalario Universitario de Vigo, Pontevedra, Spain, Vigo, Spain, ⁴¹Rheumatology, Rush University Medical Center, Chicago, IL, ⁴²Complexo Hospitalario Universitario de Vigo, Vigo, Spain
Background/Purpose: Lupus Impact Tracker (LIT) is a ten item unidimensional patient reported outcome tool developed from and for patients with systemic lupus erythematosus (SLE). It…
Abstract Number: 1994 • 2015 ACR/ARHP Annual Meeting
Electronic Patient Reported Outcome Measures in Systemic Lupus Erythematosus : A Potential Disease Modifying Impact on the Management of Disease Activity Flares and Damage Accrual
Yasser M. El Miedany¹, Sami Bahlas², Maha El Gaafary³, Sally Youssef⁴ and Ihab Ahmed⁵, ¹Rheumatology, Darent Valley Hospital, Dartford, United Kingdom, ²Medicine, King Abdulaziz University, Jeddah, Saudi Arabia, ³Community, Environmental and Occupational Medicine, Ain Shams University, Abbassia, Egypt, ⁴Rheumatology and Rehabilitation Departmennt, Ain Shams University, Cairo, Egypt, ⁵Medicine, Cairo University, Cairo, Egypt
Background/Purpose: Patient reported outcomes measures (PROMs) are changing the landscape in rheumatology care. Electronic PROMs (ePROMs) is a new patient-centric model of collaboration that fully…
Abstract Number: 785 • 2015 ACR/ARHP Annual Meeting
Further Validation of Simple Index As a Simple Disease Activity Assessment Tool for SLE
Nisarg Gandhi¹, Meenakshi Jolly², Alana Nevares³ and Winston Sequeira¹, ¹Rheumatology, Rush University Medical Center, Chicago, IL, ²Department of Medicine, Section of Rheumatology, Rush University Medical Center, Chicago, IL, ³Internal Medicine, Cook County Hospital, Chicago, IL
Background/Purpose: An easy, quick tool, requiring minimal training or physician input for disease activity (DA) assessment in SLE, would have potentially greater uptake for routine…