Abstracts tagged "Shared dicision making"

Abstract Number: 003 • 2020 Pediatric Rheumatology Symposium
Implementing Treat to Target Approach in the Care of Juvenile Idiopathic Arthritis Across a Network of Pediatric Rheumatology Centers
Julia Harris¹, Esi Morgan ², Janalee Taylor ², Tingting Qiu ³, Nancy Griffin ³, Anne Paul ⁴, C. April Bingham ⁵, Danielle Bullock ⁶, Kerry Ferraro ⁷, Mileka Gilbert ⁸, Y. Ingrid Goh ⁹, Olha Halyabar ¹⁰, Karla Jones ¹¹, Melanie Kohlheim ¹², Daniel J. Lovell ¹³, Emily Smitherman ¹⁴, Anjie Vago ⁷, Jennifer Weiss ¹⁵, Cagri Yildirim-Toruner ¹¹, Angela Young ⁷, Michelle Batthish ¹⁶, Beth Gottlieb ¹⁷, Melissa Hazen ¹⁸, Ronald Laxer ¹⁹, Tzielan Lee ²⁰, Melissa Mannion ¹⁴, Judyann Olson ²¹, Michael Shishov ²², Salma Siddique ²³, Charles Spencer ²⁴, Mary Toth ²⁵, Sheetal Vora ²⁶ and Jon Burnham ²⁷, ¹Children's Mercy Kansas City, Overland Park, ²Cincinnati Children's Hospital, Cincinnati, ³Cincinnati Children's Hospital Medical Center, Cincinnati, ⁴Cincinnati Children's Hospital Medical Centre, Cincinnati, ⁵Penn State Children's Hospital, Allentown, ⁶University of Minnesota, Minneapolis, ⁷Pediatric Rheumatology Care and Outcomes Improvement Network, Cincinnati, ⁸Medical University of South Carolina, Charleston, South Carolina, ⁹The Hospital for Sick Children, Toronto, Canada, ¹⁰Children's Hospital/Boston Medical Center, Boston, ¹¹Nationwide Children's Hospital, Columbus, ¹², ¹³Cincinnati, ¹⁴University of Alabama at Birmingham, Birmingham, ¹⁵Hackensack University Medical Center, Hackensack, ¹⁶McMaster University, Hamilton, Canada, ¹⁷Cohen Children's Medical Center, Lake Success, ¹⁸Boston, ¹⁹The Hospital for Sick Children and University of Toronto, Toronto, Canada, ²⁰Stanford Children's, Palo Alto, ²¹Medical College of Wisconsin: Children's Wisconsin, Wauwatosa, Wisconsin, ²²Phoenix Children's Hospital, Phoenix, ²³Nemours/A.I.duPont Hospital for Children, Wilmington, ²⁴Jackson, ²⁵Nemours Foundation, Orlando, ²⁶Atrium Health Levine Children's Hospital, Charlotte, ²⁷Children's Hospital of Philadelphia, Philadelphia
Background/Purpose: In 2018, an international task force published a recommended Treat to Target (T2T) approach to JIA treatment. This treatment paradigm involves setting a treatment…
Abstract Number: 053 • 2020 Pediatric Rheumatology Symposium
Acceptability and Usability Testing of a Preliminary Version of the JIA Option Map, an Electronic Decision Aid for Pain Management Options in Juvenile Idiopathic Arthritis
Karine Toupin April¹, Adam Huber ², Ciaran Duffy ³, Deema Couchman ¹, Laurie Proulx ⁴, Esi Morgan ⁵, Fjolla Berbatovci ¹, Andrea Boyd ¹, Hannah Sachs ¹, Alexandra Sirois ⁶, Lucie Brosseau ³, Janice Cohen ⁷, Margaret Bisch ³, Aditi Sivakumar ¹, Marco Ragusa ¹, Tania El Hindi ⁸, Isabelle Gaboury ⁹, Linda Li ¹⁰, Elizabeth Stringer ¹¹, France Legare ¹², Sabrina Cavallo ¹³, Michele Gibbon ¹⁴, Paul Fortin ¹⁵, William Brinkman ⁵, Mark Connelly ¹⁶, Jennifer Weiss ¹⁷, Sabrina Gmuca ¹⁸, Peter Tugwell ¹⁹ and Jennifer Stinson ²⁰, ¹Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada, ²IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, ³Ottawa, Canada, ⁴Canadian Arthritis Patient Alliance, Ottawa, Canada, ⁵Cincinnati Children's Hospital, Cincinnati, ⁶Outremont, Canada, ⁷Children's Hospital of Eastern Ontario, Ottawa, Canada, ⁸Statistics Canada, Ottawa, Canada, ⁹University of Sherbrooke, Sherbrooke, Canada, ¹⁰University of British Columbia, Vancouver, Canada, ¹¹IWK Health Centre, Halifax, Canada, ¹²Laval University, Quebec City, Canada, ¹³University of Montreal, Montreal, Canada, ¹⁴Children's Hospital of Eastern Ontario RI, Ottawa, Canada, ¹⁵CHU de Quebec - Universite Laval, Quebec, Canada, ¹⁶Kansas City, ¹⁷Hackensack University Medical Center, Hackensack, ¹⁸Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, ¹⁹University of Ottawa - Ottawa, Ottawa, Canada, ²⁰University of Toronto & The Hospital for Sick Children, Toronto, Ontario, Canada
Background/Purpose: Although juvenile idiopathic arthritis (JIA) is one of the most common causes of chronic musculoskeletal pain among youth, families’ decision-making for pain management is…
Abstract Number: 2370 • 2018 ACR/ARHP Annual Meeting
Physician and Patient Preferences for Treating SLE: Insights into the Choice of Intravenous Infusion and Subcutaneous Injection
Matthew Lau¹, Christopher F Bell¹, Christine Poulos² and Ameya Benegal³, ¹GlaxoSmithKline, Research Triangle Park, NC, ²RTI Health Solutions, Research Triangle Park, NC, ³RTI Health Solutions, RTP, NC
Background/Purpose: Systemic lupus erythematosus (SLE) is a chronic, multisystem autoimmune disease characterized by diverse clinical manifestations, chronic inflammation, and significant morbidity that can be fatal1.…
Abstract Number: 516 • 2016 ACR/ARHP Annual Meeting
Development of RA Patient Preference Phenotypes
Liana Fraenkel^1,2, Carole Wiedmeyer³, Gayathri Herath², George Michel⁴ and Ben Nowell³, ¹Medicine, Yale University School of Medicine, New Haven, CT, ²Yale University School of Medicine, New Haven, CT, ³CreakyJoints/Global Health Living Foundation, Upper Nyack, NY, ⁴Yale University, New Haven, CT
Background/Purpose: Many important treatment decisions for patients with RA are conditional on patient preferences and according to the Institute of Medicine mandate a shared decision…

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