ACR Meeting Abstracts

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Abstracts tagged "registry"

  • Abstract Number: 115 • 2023 Pediatric Rheumatology Symposium

    Development of an Electronic Clinical Phenotype to Identify Potential Study Subjects with Juvenile Arthritis

    Alysha Taxter1, Marc Natter2, Min-Lee Chang2, Laura Schanberg3, Valarie Morrow4, Eveline Wu5, Tedryl Bumpass4, Alex Fist4, Meg Waite6, Vincent Del Gaizo7, Melanie Kohlheim7 and CARRA Registry Investigators7, 1Nationwide Children's Hospital, Columbus, OH, 2Boston Children's Hospital, Boston, MA, 3Duke University Medical Center, Durham, NC, 4Duke University, Durham, NC, 5UNC Chapel Hill, Chapel Hill, NC, 6Boston Children's Hospital, Boston, MA, 7CARRA, Washington, DC

    Background/Purpose: The LIMIT-JIA trial is the first study of the use of biologic therapy to prevent disease extension in children with newly diagnosed, uncomplicated, oligo-articular…
  • Abstract Number: 120 • 2023 Pediatric Rheumatology Symposium

    The Brazilian Registry of Juvenile Dermatomyositis (JDM): I- Onset Clinical Features and Disease Activity Scores by DAS-20 over 2-Years-Follow Up

    Beatriz Carneiro1, Adriana Elias1, Teresa Robazzi2, Ana Julia Moraes3, Sheila Oliveira4, Flavio Sztajnbok5, Luciana Carvalho6, Luciana Marques7, Silvana Sacchetti8, Maria Teresa Terreri9, Simone Appenzelle10, Roberto Marini11, Andre Cavalcante12, Marcia Bandeira13, Cristina Magalhaes14, Melissa Fraga15, Iloite Scheibel16, Isabela Daud1, Darcisio Antonio17, Claudio Len18, Clovis Silva19, Taciana Fernandes17 and Claudia Magalhaes20, 1Instituto da Criança - Universidade de São Paulo (USP), São Paulo, Brazil, 2Universidade Federal da Bahia, Brazil, 3Universidade Federal do Para, Brazil, 4Universidade Federal do Rio de janeiro, Rio de Janeiro, 5Universidade Estadual do Rio de Janeiro, Rio de Janeiro, Brazil, 6Universidade de Sao Paulo- Ribeirao Preto, São Paulo, Brazil, 7Hospital Albert Sabin, Brazil, 8Santa Casa de Sao Paulo, Brazil, 9UNIFESP, São Paulo, Brazil, 10University of Campinas, Campinas, Sao Paulo, Brazil, 11UNICAMP, São Paulo, Brazil, 12Hospital Materno-Infantil de Goiania, Brazil, 13Hospital Pequeno Principe- Curitiba, Brazil, 14Hospital Jose de Alencar - Brasilia, Brazil, 15Hospital Darcy Vargas, Brazil, 16Hospital Conceição de Porto Alegre, Brazil, 17Universidade Estadual Paulista (UNESP) Botucatu, Brazil, 18Universidade Federal de São Paulo - Unifesp, São Paulo, Brazil, 19Universidade de São Paulo, São Paulo, Brazil, 20São Paulo State University, Pediatric Rheumatology Division, Botucatu, Brazil

    Background/Purpose: A national registry was set up, enrolling new onset JDM cases in 18 hospitals, during 3-years (2015-2018) with 2-years follow up, in a low…
  • Abstract Number: 025 • 2023 Pediatric Rheumatology Symposium

    Patient- and Center-level Risk Factors for Research Lost to Follow-up Using the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry

    Monica Aswani, Livie Huie, Kristine Hearld, Melissa Mannion and Emily Smitherman, University of Alabama at Birmingham, Birmingham, AL

    Background/Purpose: Clinical registries are typically envisioned to be representative of a target patient population and reflective of health care delivery practices for said population. Variation…
  • Abstract Number: 059 • 2023 Pediatric Rheumatology Symposium

    Update of Clinical and Laboratory Features of the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Systemic Juvenile Idiopathic Arthritis-Associated Lung Disease (SJIA-LD) Cohort

    Esraa Eloseily1, Min-Lee Chang2, Mary Ellen Riordan3, allan Russell4, Marc Natter2, Yukiko Kimura5 and Grant Schulert1, 1Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2Boston Children's Hospital, Boston, MA, 3Hackensack Meridian Health/ Joseph M. Sanzari Children's Hospital, Hackensack, NJ, 4Duke Clinical Research Institute, Durham, NC, 5Hackensack Meridian School of Medicine, Hackensack, NJ

    Background/Purpose: Systemic juvenile idiopathic arthritis (SJIA) associated lung disease (SJIA-LD) is an emerging and life-threatening clinical problem. Despite recent advances, there remain key unanswered questions…
  • Abstract Number: 062 • 2023 Pediatric Rheumatology Symposium

    Assessment of Barriers and Facilitators in Implementation of the Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans

    Cagri Yildirim-Toruner1, Daniel Glaser2, Timothy Beukelman3, Stacy Ardoin4, Ahmar Hashmi5, Rajdeep Pooni6, Maria Fernandez5, Vincent Del Gaizo7, Leslie Hanrahan7, Mary Ellen Riordan8, Stacey Tarvin9 and CARRA Registry Investigators7, 1Baylor College of Medicine, Texas Children's Hospital, Houston, TX, 2Yale University School of Medicine, New Haven, CT, 3University of Alabama at Birmingham, Birmingham, AL, 4Nationwide Children's Hospital, Columbus, OH, 5The University of Texas Health Sciences Center at Houston, Institute for Implementation Science, Houston, TX, 6Stanford University, Palo Alto, CA, 7CARRA, Washington, DC, 8Hackensack Meridian Health/ Joseph M. Sanzari Children's Hospital, Hackensack, NJ, 9Riley Hospital for Children at Indiana University Health, Indianapolis, IN

    Background/Purpose: Since 2010, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) has developed 12 consensus treatment plans (CTP) with the aim of reducing treatment variability…
  • Abstract Number: 109 • 2023 Pediatric Rheumatology Symposium

    Long-term Safety of Biologics versus Conventional Synthetic Treatments in Systemic Juvenile Idiopathic Arthritis Patients

    Ana Isabel Rebollo-Giménez1, Luca Carlini2, Yulia Vyzhga3, Silvia Rosina4, Ekaterina Alexeeva5, Charlotte Myrup6, Silvia Magni Manzoni7, Maria Trachana8, Valda Stanevicha9, Constantin Ailioaie10, Elena Tsitsami11, Alexis-Virgil Cochino12, Chiara Pallotti13, Silvia Scala13, Angela Pistorio14, Sebastiaan Vastert15, Joost F. Swart16 and Nicolino Ruperto17, 1IRCCS Istituto Giannina Gaslini, UOC Reumatologia e Malattie Infiammatorie, Genova, Italy, 2IRCCS Istituto Giannina Gaslini, UOC Reumatologia e Malattie Autoinfiammatorie, Genova, Italy, 3IRCCS Istituto Giannina Gaslini, UOC Reumatologia e Malattia Infiammatorie, Genova, Italy, 4IRCCS Istituto Giannina Gaslini, Genova, Italy, 5Federal State Autonomous Institution “National Medical Research Center of Children's Health”, Ministry of Health of the Russian Federation, Moscow, Russia, 6Rigshospitalet, Pediatric rheumatology unit 4272, Copenhagem, Denmark, 7IRCCS Ospedale Pediatrico Bambino Gesù, Division of Rheumatology, Roma, Italy, 8Hippokration General Hospital, Thessaloniki University School of Medicine, First Department of pediatrics, Pediatric Immunology and Rheumatology Referral Center, Thessaloniki, Greece, 9Riga Stradins University, Children University Hospital, Riga, Latvia, 10Alexandru Ioan Cuza University of Iasi, Iasi, Romania, 11Aghia Sophia Childrens Hospital, First Department of Pediatrics, University of Athens Medical School, Athens, Greece, 12Institute for Mother and Child Care, Pediatrics, Bucharest, Romania, 13IRCCS Istituto Giannina Gaslini, U.O.C. Pediatric and Rheumatology Clinic, PRINTO, Genova, Italy, 14IRCCS Istituto Giannina Gaslini, Direzione Scientifica, Genova, Italy, 15Wilhelmina Children’s Hospital, Department of Pediatric Immunology and Rheumatology, Utrecht, The Netherlands, Utrecht, Netherlands, 16Wilhelmina Children’s Hospital, Department of Pediatric Immunology and Rheumatology, Utrecht, Netherlands, 17IRCCS Istituto Giannina Gaslini, UOSID Centro Trial, PRINTO, Genova, Italy

    Background/Purpose: The better understanding of systemic Juvenile Idiopathic Arthritis (sJIA) pathogenesis and availability of new drugs, such as biologic disease-modifying anti-rheumatic drugs (bDMARDs) specifically dedicated…
  • Abstract Number: L09 • ACR Convergence 2022

    Impact on Access to Methotrexate in the Post-Roe Era

    Kristin Wipfler1, Adam Cornish1, Rebecca Schumacher2, Yomei Shaw3, Patricia Katz4 and Kaleb Michaud5, 1FORWARD, The National Databank for Rheumatic Diseases, Omaha, NE, 2FORWARD, The National Databank for Rheumatic Diseases, Wichita, KS, 3FORWARD, The National Databank for Rheumatic Diseases, Santa Fe, NM, 4UCSF, San Rafael, CA, 5University of Nebraska Medical Center, Omaha, NE

    Background/Purpose: Methotrexate is the first line therapy for RA and is used to treat several other rheumatic and non-rheumatic disorders. In high doses, it can…
  • Abstract Number: 0306 • ACR Convergence 2022

    Maintenance of Disease Activity and Treatment Persistence in Patients with Rheumatoid Arthritis Who Switched from Combination to TNF Inhibitor Monotherapy: Results from the Rheumatology Informatics System for Effectiveness (RISE) Registry

    Gabriela Schmajuk1, Nevin Hammam2, Jing Li3, David Collier4, Greg Kricorian5 and Scott Stryker6, 1UCSF / SFVA, San Francisco, CA, 2Rheumatology Department, Faculty of Medicine, Assiut University, Assiut, Egypt, PASADENA, CA, 3University of California, San Francisco, San Francisco, CA, 4Amgen Inc., Simi Valley, CA, 5Amgen, Inc., Thousand Oaks, CA, 6Amgen Inc., San Francisco, CA

    Background/Purpose: Data regarding the maintenance of disease activity (DA) and treatment persistence in patients (pts) who switched from combination therapy to monotherapy for the management…
  • Abstract Number: 1423 • ACR Convergence 2022

    Long-Term Treatment with Golimumab Is a Safe Treatment Option Regardless of Risk Factors in Patients with Rheumatoid Arthritis, Psoriatic Arthritis, and Axial Spondyloarthritis: Results from a Real-World Canadian Setting

    Regan Arendse1, Proton Rahman2, Philip Baer3, Derek Haaland4, Dalton Sholter5, Odalis Asin-Milan6, Meagan Rachich7, Emmanouil Rampakakis8, A. Marilise Marrache9 and Allen J. Lehman10, 1Community Rheumatology Care, Saskatoon, Canada, 2Memorial University, St. John's, NL, Canada, 3Baer Weinberg MPC, Scarborough, ON, Canada, 4The Waterside Clinic, Oro Medonte, ON, Canada, 5University of Alberta, Edmonton, AB, Canada, 6Janssen Canada, Laval, QC, Canada, 7Janssen Inc., Guelph, ON, Canada, 8McGill University, Department of Pediatrics and JSS Medical Research, Montréal, QC, Canada, 9Janssen Inc., Dollard-des-Ormeaux, QC, Canada, 10Janssen Inc., Toronto, ON, Canada

    Background/Purpose: Golimumab (GLM), a tumor necrosis factor inhibitor (TNFi), has demonstrated efficacy and a favorable safety profile in inflammatory rheumatic diseases. Recent safety studies with…
  • Abstract Number: 0350 • ACR Convergence 2022

    Spanish National Registry of Belimumab in Patients with Systemic Lupus Erythematosus

    Vicente Aldasoro1, María Laiño1, Monica Enguita1, Santos Castañeda2, Javier Loricera3, Carmen Lasa-Teja4, Clara Moriano5, Vanesa Calvo Río6, Ivette Casafont-Solé7, Judit Font Urgelles7, Patricia Quiroga-Colina8, Samuel Hernandez9, Sergi Heredia10, A. Garcia-Aparicio11, Joaquin Maria Belzunegui Otano12, Aaron Fariña13, Francisco Javier Navarro Blasco14, Patricia Fanlo Mateo1, Adela Gallego15, Juan M Blanco Madrigal16, María Ángeles Matías17, Cilia Peralta18, Jordi Camins-Fàbregas19, Marcos Paulino20, Ana Urruticoechea21, Piter Jose Cossio Jimenez22, Miguel Medina Malone23, Eva Perez Pampin24, Rafaela Ortega-Castro25, Blanca varas de Dios26, Jose Ramon Lamua Riazuelo27 and Emilio Jose Giner28, 1Hospital Universitario de Navarra, Pamplona, Spain, 2Division of Rheumatology, Hospital Universitario de La Princesa, IIS-Princesa, Madrid, Spain, 3Hospital Universitario Marqués de Valdecilla, IDIVAL, Santander, Spain, 4Hospital Universitario Marqués de Valdecilla, Santander, Spain, 5Complejo Asistencial Universitario de León, León, Spain, 6Valdecilla Hospital, Santander, Spain, 7Hospital Universitari Germans Trias i Pujol, Badalona, Spain, 8Division of Rheumatology, Hospital Universitario de La Princesa, Madrid, Spain, 9Hospital Son Llàtzer, Palma de Mallorca, Spain, 10Hospital de Sant Joan Despí Moisès Broggi, Sant Joan Despi, Spain, 11Hospital Universitario de Toledo, Toledo, Spain, 12Hospital Universitario de Donostia, Donostia-San Sebasti, Spain, 13Complejo Asistencial Universitario de Palencia, Palencia, Spain, 14Hospital General Universitario de Elche, Elche, Spain, 15Complejo Hospitalario Universitario de Badajoz, Badajoz, Spain, 16Basurto University Hospital, Bilbao, Spain, 17Hospital Universitario Infanta Leonor, Madrid, Spain, 18Hospital Clínico Universitario Lozano Blesa, Zaragoza, Spain, 19Hospital General de Granollers, Granollers, Spain, 20Hospital General Universiario de Ciudad Real, Ciudad Real, Spain, 21Hospital Can Misses, Ibiza, Spain, 22Hospital Reina Sofia, Tudela, Spain, 23Hospital Calahorra, Calahorra, Spain, 24Experimental and Observational Rheumatology and Rheumatology Unit, Instituto de Investigacion Sanitaria-Hospital Clínico Universitario de Santiago, Cordoba, Spain, 25IMIBIC/University of Cordoba/Reina Sofia Hospital, Cordoba, Spain, 26Santa Cristina Hospital, Madrid, Spain, 27Hospital Universitario del Henares, Madrid, Spain, 28Hospital Royo Villanova, Zaragoza, Spain

    Background/Purpose: To describe demographic characteristics, efficacy and safety of BLM since its approval in SLE patients in a real-world setting. Methods: Descriptive, retrospective, multicenter study…
  • Abstract Number: 1431 • ACR Convergence 2022

    Impact of Tofacitinib on Fracture Risk in Rheumatoid Arthritis

    Karen E Hansen1, Mahta Mortezavi2, Edward Nagy3, Cunshan Wang4, Carol A Connell4, Zaher Radi5, Heather J Litman6, Giovanni Adami7 and Maurizio Rossini7, 1Rheumatology Division, Department of Medicine, University of Wisconsin School of Medicine and Public Health, Madison, WI, 2Pfizer Inc, New York, NY, 3Pfizer Ltd, Tadworth, United Kingdom, 4Pfizer Inc, Groton, CT, 5Pfizer Inc., Cambridge, MA, 6CorEvitas, LLC, Waltham, MA, 7Rheumatology Unit, Department of Medicine, University of Verona, Verona, Italy

    Background/Purpose: Preclinical data suggest that tofacitinib stimulates osteoblast function and would have a protective effect on bone health and fracture risk in RA.1 We report…
  • Abstract Number: 0422 • ACR Convergence 2022

    Efficacy and Safety of Secukinumab in the Treatment of Axial Spondyloarthritis: Real-Life Data from TURKBIO Cohort

    Semih Gulle1, Ali Karakas1, Gercek Can2, Soner Senel3, Sedat Capar4, Huseyin ediz dalkilic5, Servet Akar6, Suleyman Serdar Koca7, Abdurrahman Tufan8, Ayten Yazici9, Sema Yilmaz10, Nevsun Inanc11, Merih Birlik1, Dilek Solmaz12, Ayse Cefle9, Berna Goker13, Servet Yolbas14, Niels Steen Krough15, Neslihan Yilmaz16, Sukran Erten17, Cemal Bes18, Ozgul Soysal19, Mehmet Akif Ozturk13, Seminur Haznedaroglu13, Sule Yavuz16, Haner Direskeneli20, Fatoş Onen21 and Ismail Sari22, 1Dokuz Eylul University School of Medicine Division of Rheumatology, Izmir, Turkey, 2Dokuz Eylul University School of Medicine Division of Rheumatology, Istanbul, Turkey, 3Erciyes University School of Medicine Division of Rheumatology, Kayseri, Turkey, 4Dokuz Eylul University Faculty of Science Department of Statistics, Izmir, Turkey, 5Uludag University School of Medicine Division of Rheumatology, Bursa, Turkey, 6Izmir Katip Celebi University School of Medicine, Izmir, Turkey, 7Firat University School of Medicine Division of Rheumatology, Elazıg, Turkey, 8Gazi University Medical Faculty Hospital, Istanbul, Turkey, 9Kocaeli University School of Medicine Division of Rheumatology, Kocaeli, Turkey, 10Selcuk University School of Medicine Division of Rheumatology, Konya, Turkey, 11Marmara University School of Medicine, Division of Rheumatology, Istanbul, Turkey, 12Kâtip Celebi University School of Medicine Division of Rheumatology, Izmir, Turkey, 13Gazi University School of Medicine Division of Rheumatology, Ankara, Turkey, 14Inonu University School of Medicine Division of Rheumatology, Malatya, Turkey, 15Zitelab Aps, Kopenhag, Denmark, 16Demiroglu Bilim University School of Medicine Division of Rheumatology, Istanbul, Turkey, 17Yildirim Beyazit University School of Medicine Division of Rheumatology, Ankara, Turkey, 18Basaksehir Cam and Sakura ospital, Division of Rheumatology, Istanbul, Turkey, 19Celal Bayar University, School of Medicine Division of Rheumatology, Manisa, Turkey, 20Marmara University School of Medicine Division of Rheumatology, Istanbul, Turkey, 21Dokuz Eylul University, Faculty of Medicine, Rheumatology, İzmir, Turkey, 22Dokuz Eylul University School of Medicine Division of Rheumatology, İzmir, Turkey

    Background/Purpose: In this study, we aimed to evaluate the results of secukinumab treatment in patients with Axial Spondyloarthritis (AxSpA) who were enrolled in the TURKBIO…
  • Abstract Number: 1522 • ACR Convergence 2022

    The Collaborative National Quality and Efficacy Registry for Scleroderma: Association of Medication Use on Gastrointestinal Tract Symptoms in Early Disease

    Sarah Luebker1, Tracy Frech1, Shervin Assassi2, Jessica Gordon3, Elana Bernstein4, Virginia Steen5, Ami Shah6, Laura Hummers7, Carrie Richardson8, Dinesh Khanna9, Flavia Castelino10, Lorinda Chung11, Faye Hant12, Vicki Shanmugam13, John VanBuren14, Jessica Alvey14, Monica Harding14, Luke Evnin15 and Nora Sandorfi16, 1Vanderbilt University Medical Center, Nashville, TN, 2McGovern Medical School, University of Texas, Houston, TX, 3Hospital for Special Surgery, New York, NY, 4Columbia University, New York, NY, 5Georgetown University School of Medicine, Washington, DC, 6Johns Hopkins Rheumatology, Baltimore, MD, 7Johns Hopkins Univerisity, Baltimore, MD, 8Northwestern University, Chicago, IL, 9Division of Rheumatology, Department of Internal Medicine, Scleroderma Program, University of Michigan, Ann Arbor, MI, 10Massachusetts General Hospital, Boston, MA, 11Stanford University, Stanford, CA, 12Medical University of South Carolina, Charleston, SC, 13George Washington University, Washington, DC, 14University of Utah, Salt Lake City, UT, 15Scleroderma Research Foundation, Brisbane, CA, 16University of Pennsylvania, Philadelphia, PA

    Background/Purpose: Gastrointestinal tract (GIT) symptoms are common amongst systemic sclerosis (SSc) patients.1 The Scleroderma Clinical Trials Consortium University of California Los Angeles Gastrointestinal Tract Questionnaire…
  • Abstract Number: 0433 • ACR Convergence 2022

    Clustering of Anti-neutrophil Cytoplasmic Antibody-associated Vasculitis – Using a Pre-processed Harmonised Dataset

    Karl Gisslander1, Arthur White2, Mårten Segelmark3, Mark Little2 and Aladdin Mohammad4, 1Lund University, Lund, Sweden, 2Trinity College, Dublin, Ireland, 3Nephrology, Department of Clinical Sciences, Lund University, Lund, Sweden, 4Rheumatology, Department of Clinical Sciences, Lund University, Lund, Sweden

    Background/Purpose: The sub-classification of anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) has been a long-standing debate. Unsupervised learning has previously been used for partitioning of phenotypic…
  • Abstract Number: 1679 • ACR Convergence 2022

    The Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA (STOP-JIA) Study: Three-Year Outcomes

    Yukiko Kimura1, Sarah Ringold2, George Tomlinson3, Laura Schanberg4, Anne Dennos5, MaryEllen Riordan6, Vincent Del Gaizo7, Katherine Murphy8, Pamela Weiss9, Brian Feldman10, Mei Sing Ong11 and Marc Natter12, 1Hackensack Meridian Health, New York, NY, 2Janssen, Seattle, WA, 3University of Toronto, Toronto, ON, Canada, 4Duke University Medical Center, Durham, NC, 5Duke University, Durham, NC, 6Hackensack Meridian Health, Hackensack, NJ, 7CARRA, Inc, Washington, DC, 8CARRA, Inc, New Orleans, LA, 9Children's Hospital of Philadelphia, Glen Mills, PA, 10Division of Rheumatology, The Hospital for Sick Children; Child Health Evaluative Services, SickKids Research Institute; Department of Paediatrics, University of Toronto, Toronto, ON, Canada, 11Harvard Pilgrim Institute, Boston, MA, 12Boston Children's Hospital, Boston, MA

    Background/Purpose: The CARRA STOP-JIA study compared the effectiveness of the CARRA Consensus Treatment Plans (CTPs) in achieving clinically inactive disease (CID) in untreated polyarticular JIA…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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