Abstracts tagged "quality of life"

Abstract Number: 1762 • 2016 ACR/ARHP Annual Meeting
Systemic Lupus Erythematosus and the Evaluation of Poor Sleep
Philip Chu¹, Alicia Hinze², Nancy Mathis³, Lacey Feigl⁴, Noor Al-Hammadi⁵, Seth Eisen⁶, Yo-El Ju⁷ and Alfred Kim⁸, ¹Internal Medicine, Washington University School of Medicine, St Louis, MO, ²Johns Hopkins University, Baltimore, MD, ³Rheumatology, Washington University School of Medicine, Saint Louis, MO, ⁴Washington University School of Medicine, St Louis, MO, ⁵Division of Biostatistics, Washington University School of Medicine, St Louis, MO, ⁶Division of Rheumatology, Washington University School of Medicine, St Louis, MO, ⁷Neurology, Washington University School of Medicine, Saint Louis, MO, ⁸IM/Div of Rheumatology, Washington University School of Medicine, St. Louis, MO
Background/Purpose: Poor sleep quality is an underappreciated complaint commonly observed in patients with SLE. We hypothesize that poor sleep quality contributes to worsening lupus disease…
Abstract Number: 1969 • 2016 ACR/ARHP Annual Meeting
Peer Approaches to Lupus Self-Management (PALS): A Novel Lupus Peer Mentorship Intervention
Edith M. Williams¹, Leonard Egede², Jim Oates³, Delia Voronca² and Mulugeta Gebregziabher², ¹Public Health Sciences, Medical University of South Carolina, Charleston, SC, ²Medical University of South Carolina, Charleston, SC, ³Medicine/Rheumatology & Immunology, Medical University of South Carolina, Charleston, SC
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that is associated with increased morbidity, mortality, health care costs and decreased quality of life.…
Abstract Number: 2192 • 2016 ACR/ARHP Annual Meeting
Association Between Quality of Sleep and Quality of Life Among Japanese Systemic Lupus Erythematosus Outpatients
Mitsuyo Inoue¹, Kiyoko Makimoto¹, Kazuko Shiozawa², Ryosuke Yoshihara², Takashi Yamane³, Yoshihito Shima⁴ and Toru Hirano⁵, ¹Graduate School of Medicine, Division of Health Sciences, Osaka University, Suita, Japan, ²Rheumatic Diseases Center, Konan Kakogawa Hospital, Kakogawa, Japan, ³Kakogawa City Hospital, Kakogawa, Japan, ⁴Respinatory Medicine, Allergy and Rhematic Diseases, Osaka University Graduate School of Medicine, Suita, Japan, ⁵Respiratory Medicine, Allergy and Rheumatic Diseases, Osaka University Graduate School of Medicine, Suita, Japan
Background/Purpose: SLE outpatients at in Western Japan were included in this cross-sectional study. The consented participants completed Japanese versions of the following questionnaires: the Pittsburgh…
Abstract Number: 2458 • 2016 ACR/ARHP Annual Meeting
Erectile Dysfunction in Men with Rheumatic Diseases: A Systematic Review
Omid Zahedi Niaki¹, Christian A. Pineau², Sasha Bernatsky^3,4 and Evelyne Vinet³, ¹Université de Montréal, Montreal, QC, Canada, ²McGill University Health Centre, Montreal, QC, Canada, ³Divisions of Rheumatology and Clinical Epidemiology, McGill University Health Centre, Montreal, QC, Canada, ⁴Clinical Epidemiology, Research Institute of the McGill University Health Centre, Montreal, QC, Canada
Background/Purpose: Given the obvious female predominance of rheumatic diseases, significant attention has already been drawn to the impact of these conditions on female sexual function.…
Abstract Number: 2515 • 2016 ACR/ARHP Annual Meeting
Patient-Reported Outcomes in Two Randomized, Controlled Trials (RCTs) in Patients with Rheumatoid Arthritis (RA) Treated with Tocilizumab (TCZ) Monotherapy Compared with Methotrexate (MTX) or Adalimumab (ADA)
Vibeke Strand¹, Kathy Lampl², Christine Birchwood³, Jinglan Pei², Katie Tuckwell⁴, Rebecca Finch⁴, Cem Gabay⁵, Arthur Kavanaugh⁶ and Graeme Jones⁷, ¹Stanford University School of Medicine, Palo Alto, CA, ²Genentech, Inc., South San Francisco, CA, ³1 DNA Way, MS# 304, Genentech, Inc., South San Francisco, CA, ⁴Roche Products Ltd., Welwyn Garden City, United Kingdom, ⁵Rheumatology, Department of Rheumatology, Geneva University Hospital, Geneva, Switzerland, ⁶University of California San Diego, La Jolla, CA, ⁷Menzies Institute for Medical Research, University of Tasmania, Hobart, Australia
Background/Purpose: Patient-reported outcomes (PROs) are important measures when determining response to therapy in patients with RA. Previous RCTs have shown that TCZ monotherapy is superior…
Abstract Number: 2911 • 2016 ACR/ARHP Annual Meeting
A Comparison of Gastrointestinal Disease Severity in African American and Caucasian Scleroderma Patients
Carolyn Fridley¹ and Virginia D. Steen², ¹Rheumatology, Georgetown University, Washington, DC, ²Rheumatology, Georgetown University Medical Center, Washington, DC
A Comparison of Gastrointestinal Disease Severity in African American and Caucasian Scleroderma Patients Background/Purpose: Systemic sclerosis (SSc) is a multisystem autoimmune disease. After skin involvement…
Abstract Number: 717 • 2015 ACR/ARHP Annual Meeting
Systemic Lupus Erythematosus and the Evaluation of Poor Sleep: The Sleeps Pilot Study
Alicia Hinze¹, Philip Chu¹, Dany Thekkemuriyil¹, Yo-El Ju², Deepali Sen³, Seth Eisen¹ and Alfred Kim¹, ¹Rheumatology, Washington University School of Medicine, Saint Louis, MO, ²Neurology, Washington University School of Medicine, Saint Louis, MO, ³Division of Rheumatology, Washington University School of Medicine, Saint Louis, MO
Background/Purpose: Sleep disturbances occur in many autoimmune diseases and are ranked highly as an unmet need in patients with SLE. We hypothesized that poor sleep…
Abstract Number: 790 • 2015 ACR/ARHP Annual Meeting
An Intervention to Improve Quality of Life for African-American Lupus Patients
Edith M. Williams¹, Johnese Bostic², Alyssa Adkins³, Larisa Bruner², Jiajia Zhang², Diane L. Kamen⁴ and Jim Oates⁴, ¹Institute for Partnerships to Eliminate Health Disparities, University of South Carolina, Columbia, SC, ²University of South Carolina, Columbia, SC, ³University of South Carolina, Greenville, SC, ⁴Medicine, Medical University of South Carolina, Charleston, SC
Background/Purpose: The Intervention to Improve Quality of life for African-AmericaN lupus patients (IQAN) Project is designed to examine whether a uniquely tailored intervention program can…
Abstract Number: 2277 • 2015 ACR/ARHP Annual Meeting
Working Harder to Stay in Control: Patient Reports of Flare in Early RA Are Associated with Higher Disease Activity and More Intensive Self Management
Susan J. Bartlett^1,2, Clifton O. Bingham III³, Daming Lin⁴, Kathleen Andersen⁵, Gilles Boire⁶, Carol Hitchon⁷, Boulos Haraoui⁸, Edward C. Keystone⁹, Diane Tin¹⁰, J Carter Thorne¹¹, Janet E. Pope¹², VP Bykerk⁴ and CATCH Investigators and OMERACT Flare Group, ¹Clinical Epidemiology, McGill University, Montreal, QC, Canada, ²Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, ³Rheumatology, Johns Hopkins University, Baltimore, MD, ⁴Rheumatology, Mount Sinai Hospital, University of Toronto, Toronto, ON, Canada, ⁵Hospital for Special Surgery, New York, NY, ⁶Department of Medicine/Division of Rheumatology, Université de Sherbrooke, Sherbrooke, QC, Canada, ⁷Department of Rheumatology, University of Manitoba, Winnipeg, MB, Canada, ⁸Institut de Rhumatologie, Montreal, QC, Canada, ⁹Mount Sinai Hospital, University of Toronto, Toronto, ON, Canada, ¹⁰The Arthritis Program, Southlake Regional Health Centre, Newmarket, ON, Canada, ¹¹University of Toronto, Toronto, ON, Canada, ¹²University of Western Ontario, London, ON, Canada
Background/Purpose: Early rheumatoid arthritis (ERA) patients attending office visits often report being in a disease flares. We evaluated patient reports of flare in relation to…
Abstract Number: 2313 • 2015 ACR/ARHP Annual Meeting
Responder Rates and Numbers Needed to Treat Based on Clinically Meaningful Improvements in Patient Reported Outcomes (PROs) Including Health-Related Quality of Life (HRQoL) after Sarilumab Treatment during a Phase III Randomized Controlled Trial (RCT)
Vibeke Strand¹, Regina Rendas-Baum², George J. Joseph³, Chieh-I Chen⁴, Hubert van Hoogstraten⁵, T. W. J. Huizinga⁶ and Mark C. Genovese⁷, ¹Biopharmaceutical Consultant, Portola Valley, CA, ²QualityMetric Inc, Lincoln, RI, ³Global Health Economics & Outcomes Research (HEOR), Sanofi, Bridgewater, NJ, ⁴Regeneron Pharmaceuticals, Inc., Tarrytown, NY, ⁵Sanofi, Bridgewater, NJ, ⁶Rheumatology, Leiden University Medical Center, Leiden, Netherlands, ⁷Division of Rheumatology, Stanford University Medical Center, Palo Alto, CA
Background/Purpose: Sarilumab is a human monoclonal antibody (mAb) directed against the soluble IL-6 receptor (sIL-6R), administered subcutaneously (SC) every 2 weeks (q2w). In the phase…
Abstract Number: 2330 • 2015 ACR/ARHP Annual Meeting
The Turkish Validity and Reliability of the Systemic Lupus Erythematosus Quality of Life Questionnaire (L-QoL)
M Tuncay Duruoz¹, Canan Sanal Top², Ilhan Sezer³, Figen Yılmaz⁴, Cagri Ünal², Hatica Sule Baklacioglu⁵, Firat Ulutatar⁶ and Pamir Atagunduz⁷, ¹Dept of PM&R, Rheumatology Clinic, Marmara University Medical School, Istanbul, Turkey, ²PM&R, Marmara University Medical School, Istanbul, Turkey, ³Rheumatology, Physical Medicine and Rheabilitation, Antalya Education and Research Hospital, Antalya, Turkey, ⁴PM&R, Sisli Hamidiye Etfal Training and Research Hospital, Istanbul, Turkey, ⁵Rheumatology, Marmara University Medical School, Istanbul, Turkey, ⁶Physical Medicine and Rehabilitation Department, Marmara University Medical School, Istanbul, Turkey, ⁷Department of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey
Background/Purpose: The Systemic Lupus Erythematosus Quality of Life Questionnaire (L-QoL) is a disease-specific measure of needs-based quality of life developed in the United Kingdom (1).…
Abstract Number: 2639 • 2015 ACR/ARHP Annual Meeting
Towards Patient-Centeredness of the Treat-to-Target Paradigm: Development of a Framework for Evaluation of Patients with Rheumatoid Arthritis in the Setting of Patient-Physician Discordance
John M. Davis III¹, Tim Bongartz², Zoran Kvrgic², Melissa M. Plagge¹, Cynthia S. Crowson³, Eric L. Matteson⁴, Thomas G. Mason II², Scott T. Persellin⁵, Clement J. Michet Jr.², Theresa Wampler Muskardin¹ and Kerry Wright², ¹Division of Rheumatology, Mayo Clinic, Rochester, MN, ²Rheumatology, Mayo Clinic, Rochester, MN, ³Division of Rheumatology and Department of Health Sciences Research, Mayo Clinic, Rochester, MN, ⁴Division of Rheumatology, Department of Internal Medicine and Department of Health Sciences Research, Mayo Clinic, Rochester, MN, ⁵Department of Rheumatology, Mayo Clinic Rochester, Rochester, MN
Background/Purpose: A great challenge in managing rheumatoid arthritis (RA) is the scenario of patient-physician discordance, in which despite seeming control of inflammation, patients suffer from…
Abstract Number: 664 • 2015 ACR/ARHP Annual Meeting
Patient Reported Outcomes and Assessment of the Quality of Life in a Cohort of Patients Affected By Enteropathic Spondyloarthritis: Definitive Results of a Monocentric Prospective Observational Study at One Year
Chiara Avellini¹, Laura Bolognini², Alessia Farinelli¹, Monia Ciferri³, Greta Gambacorta³, Devis Benfaremo³, Serena Cedraro³, Matteo Rossini³, William Capeci³, Lucia Manfredi³, Laura Postacchini³, Giammarco Fava², Piergiorgio Mosca², Giovanni Pomponio³, Michele Maria Luchetti³ and Armando Gabrielli³, ¹Scienze Cliniche e Molecolari, Clinica Medica, Università Politecnica delle Marche, Ancona, Italy, ²Gastroenterologia, Azienda "Umberto I-G.M.Lancisi-G.Salesi", Ancona, Italy, ³Clinica Medica, Università Politecnica delle Marche, Ancona, Italy
Background/Purpose: Enteropathic spondyloarthritis (ES) are included in the group of the spondyloarthritis (SpA). Because articular involvement is the most frequent extra-intestinal manifestation in patients with…
Abstract Number: 2975 • 2014 ACR/ARHP Annual Meeting
Residual Large Joint Synovitis By Power Doppler Ultrasonography Is Associated with Higher Disease Activity and Significant Impact of Disease in Multi-Ethnic Asian Patients with Established Rheumatoid Arthritis
Yu Xiao Guo¹, Manjari Lahiri^2,3 and Peter Cheung^2,3, ¹Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore, ²Department of Medicine, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore, ³Division of Rheumatology, National University Hospital, Singapore, Singapore
Background/Purpose Regular monitoring of disease activity with appropriate modification of disease-modifying anti-rheumatic drug (DMARD) therapy results in improved radiographic and functional outcomes in patients with…
Abstract Number: 2721 • 2014 ACR/ARHP Annual Meeting
Patients’ Perspective of Skin Involvement in Systemic Sclerosis
Ada Man¹, Amy Wu¹, Jessica Ziemek², Romy Christmann¹, Robert W. Simms¹, David T. Felson³ and Robert Lafyatis⁴, ¹Rheumatology, Boston University School of Medicine, Boston, MA, ²Rheumatology/Arthritis Center, Boston University School of Medicine, Boston, MA, ³Boston University School of Medicine, Boston, MA, ⁴Arthritis Center, Boston University, Boston, MA
Background/Purpose: Skin tightness and other abnormalities of the skin are the hallmark features of systemic sclerosis (SSc). While skin involvement may significantly impact a…

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