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Abstracts tagged "quality of life"

  • Abstract Number: 0373 • ACR Convergence 2021

    Self-monitoring of Disease Activity with a Smartphone App Is Feasible in Routine Clinical Management of Patients with Axial Spondyloarthritis – a Proof of Concept Study

    Uta Kiltz1, Robin Kempin1, Jutta Richter2, Anna Schlegel1, Xenofon Baraliakos1, Styliani Tsiami1, Bjoern Buehring1, David Kiefer3 and Juergen Braun1, 1Rheumazentrum Ruhrgebiet Herne, Ruhr-Universität Bochum, Herne, Germany, 2Rheumatology and Hiller Research Unit, Heinrich-Heine-University Duesseldorf, Medical Faculty, Duesseldorf, Germany, 3Rheumazentrum Ruhrgebiet Herne, Ruhr-Universität Bochum, Essen, Germany

    Background/Purpose: Assessment and monitoring of disease activity and functioning is of major importance for qualified management of patients with axial spondyloarthritis (axSpA). This includes tight…
  • Abstract Number: 0891 • ACR Convergence 2021

    Quality of Life Assessment in an Indian Inception Cohort (INSPIRE) of SLE Using Lupus QoL Questionnaire

    Liza Rajasekhar1, Dhundra Bhavani1, Sneha Tota2, Vishnupriya Vijayalekshmi3, Ranjan Gupta4, Chengappa Kavadichanda5, Vineeta Shobha6, VirSingh Negi7 and Amita Aggarwal2, 1NIMS, Hyderabad, India, 2Sanjay Gandhi Post Graduate Institute of Medical Sciences, Lucknow, India, 3AIIMS, New delhi, delhi, India, 4AIIMS, New delhi, Ne Delhi, India, 5JIPMER, Pondicherry, India, 6Saint Johns Medical college, Bengaluru, Bengaluru, India, 7Jawaharlal Institute of Postgraduate Medical Education and Research (JIPMER), Puducherry, India

    Background/Purpose: Lupus quality of life (Lupus QoL) questionnaire is a disease specific patient reported outcome that is available in multiple languages1. Indian SLE inception cohort…
  • Abstract Number: 1392 • ACR Convergence 2021

    Assessment of a Patient Self-Report Frailty Tool in Patients with Polymyalgia Rheumatica

    Sebastian Sattui, Deanna Jannat-Khah, Lindsay Lally, Sarah Lieber, Lisa Mandl and Robert Spiera, Hospital for Special Surgery, New York, NY

    Background/Purpose: Frailty, a syndrome characterized by decreased physiologic reserve, is associated with chronic inflammation. We have shown a high prevalence of frailty in patients with…
  • Abstract Number: PP10 • ACR Convergence 2021

    Discovering ‘I’ Through Interaction with Support Group Members: A Place of Empathy That Transcends the Limitations of Words

    Noriko Okochi1, Eiji Oishi2 and Mika Ishiguro1, 1Rheumatic Disease and Vasculitis Support Network Japan, Tokyo, Japan, 2Rheumatic Disease and Vasculitis Support Network Japan, Yamaguchi, Japan

    Background/Purpose: Since 5-year-old, I have had unexplained symptoms. At the age of 13, my whole body became inflamed. The pain was so intense that I…
  • Abstract Number: 0376 • ACR Convergence 2021

    Impact of Patient and Disease Characteristics on Global Functioning and Health in Patients with Axial Spondyloarthritis: A Bayesian Network Analysis of Data from an Early axSpA Cohort

    Imke Redeker1, Robert Landewé2, Désirée van der Heijde3, Sofia Ramiro4, Annelies Boonen5, Maxime Dougados6, Juergen Braun7 and Uta Kiltz7, 1German Rheumatism Research Centre (DRFZ), Berlin, Germany, 2Amsterdam Rheumatology & Clinical Immunology Center, Amsterdam, Netherlands; Zuyderland MC, Heerlen, Netherlands, 3Department of Rheumatology, Leiden University Medical Center, Meerssen, Netherlands, 4Leiden University Medical Center, Leiden, Netherlands, 5Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Centre+ (MUMC+), Maastricht, Limburg, Netherlands, 6Université de Paris . Department of Rheumatology - Hôpital Cochin. Assistance Publique - Hôpitaux de Paris . INSERM (U1153): Clinical epidemiology and biostatistics, PRES Sorbonne Paris-Cité. Paris, France., Paris, France, 7Rheumazentrum Ruhrgebiet Herne, Ruhr-Universität Bochum, Herne, Germany

    Background/Purpose: Current knowledge on the health status of patients (pts.) with axial spondyloarthritis (axSpA) mainly focusses on physical function and disease activity. Using a generic…
  • Abstract Number: 0925 • ACR Convergence 2021

    Impact of Achieving ASDAS LDA on Disease Activity and Patient-Reported Outcome Measures Among Patients with Ankylosing Spondylitis Treated with Biologic DMARDs

    Philip Mease1, Robert McLean2, Taylor Blachley2, Maya Marchese2, Laura Anatale-Tardiff3, Christopher Saffore4, Danny Quach5, Ana Biljan6 and Alexis Ogdie7, 1Swedish Medical Center/Providence St. Joseph Health and University of Washington, Seattle, WA, 2CorEvitas, LLC, Waltham, MA, 3CorEvitas, Waltham, MA, 4AbbVie, North Chicago, IL, 5AbbVie Inc., North Chicago, IL, 6Abbvie Inc., Chicago, IL, 7University of Pennsylvania, Philadelphia, PA

    Background/Purpose: Although Ankylosing Spondylitis Disease Activity Score (ASDAS) low disease activity (LDA) is a common treatment target for disease control when managing AS, real-world research…
  • Abstract Number: 1451 • ACR Convergence 2021

    Improving Health Outcomes and Social Connectedness Through Virtual Exercise Programs in Community Members with Musculoskeletal Conditions

    Titilayo Ologhobo1, Bertilia Trieu2, Claudia Zurlini1, Bonnie McGrath1, Linda Roberts1, Vilma Briones1, Pamela Sanchez-Villagomez2, Robyn Wiesel1, Sandra Goldsmith1 and Laura Robbins1, 1Hospital for Special Surgery, New York, NY, 2Hospital of Special Surgery, New York

    Background/Purpose: According to the 2020 American Health Ranking System, 26% of adults are physically inactive with a higher prevalence found in adults ages ≥65 years.…
  • Abstract Number: PP13 • ACR Convergence 2021

    CreakyKitchen: How the Online Cooking Show I Started is Building Community and Encouraging Better Food Choices for Me and Others Living with Rheumatic and Chronic Disease

    Chantelle Marcial, Boston, MA

    Background/Purpose: At 19, I was mis-diagnosed with Lupus as it was a common condition in my family. My treatment at that time was mainly DMARDs,…
  • Abstract Number: 0402 • ACR Convergence 2021

    What Is the Patient’s Perspective on Symptoms Experience in Limited Cutaneous Systemic Sclerosis?

    Alain Lescoat1, Susan Murphy2, Yen Chen3, Nadia Vann1, David Cella4 and Dinesh Khanna3, 1Michigan Scleroderma Program, University of Michigan, Ann Arbor, MI, 2University of Michigan, Grosse Ile, MI, 3University of Michigan, Ann Arbor, MI, 4Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL

    Background/Purpose: Limited cutaneous SSc (lcSSc) affects approximately 60-70% of SSc patients but drug development and therapeutic research has largely focused on the more severe diffuse…
  • Abstract Number: 0955 • ACR Convergence 2021

    The Effect of Treatment with the Complement C5a Receptor Inhibitor Avacopan on Health-Related Quality of Life in ANCA-Associated Vasculitis

    Vibeke Strand1, Pirow Bekker2, Huibin Yue2, David R.W. Jayne3 and Peter Merkel4, 1Stanford University School of Medicine, Portola Valley, CA, 2ChemoCentryx, San Carlos, CA, 3University of Cambridge, Cambridge, United Kingdom, 4University of Pennsylvania, Philadelphia, PA

    Background/Purpose: Avacopan, an oral C5a receptor inhibitor, was evaluated in ANCA-associated vasculitis (AAV). Efficacy and safety results were reported previously. Health-related quality of life (HRQoL)…
  • Abstract Number: 1591 • ACR Convergence 2021

    Impact of the COVID-19 Pandemic and Lockdown on Wellbeing on Patients with Rheumatic Diseases. Results from the REUMAVID Study (Phase 1)

    Marco Garrido-Cumbrera1, Helena Marzo-Ortega2, Laura Christen3, José Correa-Fernández4, Sergio Sanz-Gomez4, Pedro Plazuelo-Ramos5, Laurent Grange6, Dale Webb7, Shantel Irwin8, Clare Jacklin9, Souzi Makri10, Elsa Frazão Mateus11, Serena Mingolla12, Katy Antonopoulou13 and Victoria Navarro-Compán14, 1Health & Territory Research (HTR), University of Seville, Sevilla, Spain, 2NIHR Leeds Biomedical Research Centre and University of Leeds, Leeds, United Kingdom, 3Novartis Pharma AG, Basel, Switzerland, 4Health & Territory Research (HTR), Universidad de Sevilla, Seville, Spain, 5Spanish Federation of Spondyloarthritis Associations (CEADE), Madrid, Spain, 6French League Against Rheumatism (AFLAR), Echirolles, France, 7National Axial Spondyloarthritis Society (NASS), London, United Kingdom, 8Arthritis Action, London, United Kingdom, 9National Rheumatoid Arthritis Society (NRAS), London, United Kingdom, 10Cyprus League Against Rheumatism (CYPLAR), Limassol, Cyprus, 11Liga Portuguesa Contra as Doenças Reumáticas (LPCDR), Lisbon, Portugal, 12Italian National Association of People with Rheumatic and Rare Diseases (APMARR), Bari, Italy, 13Hellenic League Againts Rheumatism (ELEANA), Athens, Greece, 14Rheumatology service, Hospital Universitario La Paz-IdiPaz, Madrid, Spain

    Background/Purpose: The COVID-19 pandemic has impacted wellbeing of patients with Rheumatic and Musculoskeletal Diseases (RMDs). The aim is to assess wellbeing its associated factors in…
  • Abstract Number: 0326 • ACR Convergence 2020

    Flares Among Patients with Psoriatic Arthritis (PsA) – Frequency and Impact on Patient Outcomes: Real-world Survey in the US and Europe

    Ana-Maria Orbai1, William Tillett2, Suzann Grieb3, James Piercy4, Steven Peterson5, Elizabeth Holdsworth4, Sophie Meakin4, Soumya Chakravarty6, Nicola Booth4 and Laure Gossec7, 1Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, 2Royal National Hospital for Rheumatic Diseases, Bath, UK; Department of Pharmacy and Pharmacology, University of Bath, Bath, UK, Bath, United Kingdom, 3John Hopkins University School of Medicine, Baltimore, 4Adelphi Real World, Bollington, United Kingdom, 5Janssen Immunology Global Commercial Strategy Organization, Horsham, PA, 6Janssen Scientific Affairs, LLC, Horsham, PA, USA and Drexel University College of Medicine, Horsham, PA, 7Sorbonne University, INSERM; Pitié-Salpêtrière Hospital, Paris, Ile-de-France, France

    Background/Purpose: Flares in PsA, presenting as periods of acute disease activity, are thought to negatively impact patients’ lives. This has not been extensively studied in…
  • Abstract Number: 1081 • ACR Convergence 2020

    Patient-reported Outcomes in Early Autoimmune Inflammatory Myopathies

    Valérie Leclair1, Brett Thombs2, Mianbo Wang3, Evelyne Vinet4, Alexandra Albert5 and Marie Hudson6, 1Division of Rheumatology, Jewish General Hospital, Montreal, QC, Canada, 2Department of Psychology, McGill University, Montreal, QC, Canada, 3Lady Davis institute for Medical Research, Montreal, QC, Canada, 4McGill University Health Center, Montreal, QC, Canada, 5Division of Rheumatology, Centre Hospitalier de l’Université Laval, Québec, QC, Canada; Department of Medicine, Université Laval, Québec, QC, Canada., Neuville, Canada, 6Division of Rheumatology, Jewish General Hospital, Montréal, QC, Canada

    Background/Purpose: Patient-reported outcomes (PROs) are increasingly used in rheumatology. Such outcomes are under-reported in autoimmune inflammatory myopathies (AIM) especially in incident cohorts. The objective of…
  • Abstract Number: 1494 • ACR Convergence 2020

    Patient-Reported Adverse Events, Quality of Life and Treatment Adherence in Juvenile Idiopathic Arthritis: Analysis of Two Large International Cohorts

    Alessandra Alongi1, Maria Trachana2, Valda Stanevicha3, Laura Marinela Ailioaie4, Elena Tsitsami5, Angelo Ravelli6, Alessandro Consolaro6 and Nicolino Ruperto7, 1IRCCS Istituto Giannina Gaslini, Genoa, Italy, 2Aristotle University of Thessaloniki, Thessaloníki, Greece, 3Riga Stradins University, Riga, Latvia, 4Alexandru Ioan Cuza University of Iasi, Iasi, Romania, 5Aghia Sophia Childrens Hospital, Athens, Greece, 6Università degli Studi di Genova, Genoa, Italy, 7Istituto Giannina Gaslini, Genova, Italy

    Background/Purpose: Juvenile idiopathic arthritis (JIA) patients may experience significant medication-related adverse effects (AEs), which may adversely affect health-related quality of life (HRQOL), daily activities and…
  • Abstract Number: 0336 • ACR Convergence 2020

    Anxiety and Depression in Psoriatic Arthritis (PsA) – Prevalence and Impact on Patient Reported Outcomes: Real-World Survey in the US and Europe

    Laure Gossec1, Jessica Walsh2, Kaleb Michaud3, Elizabeth Holdsworth4, Steven Peterson5, Sophie Meakin4, Nicola Booth4, Soumya Chakravarty6, James Piercy4 and Alexis Ogdie7, 1Sorbonne Université and Hôpital Universitaire Pitié Salpêtrière, Paris, France, 2University of Utah School of Medicine, George E. Wahlen Veteran Affairs Medical Center, Salt Lake City, UT, 3University of Nebraska Medical Center, Omaha, NE, 4Adelphi Real World, Bollington, United Kingdom, 5Janssen Immunology Global Commercial Strategy Organization, Horsham, PA, 6Janssen Scientific Affairs, LLC, Horsham, PA, USA and Drexel University College of Medicine, Horsham, PA, 7Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA

    Background/Purpose: Anxiety and depression are comorbidities among PsA patients. The impact of anxiety and depression on outcomes in PsA patients has not been characterized in…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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