ACR Meeting Abstracts

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Abstracts tagged "quality of life"

  • Abstract Number: 0683 • ACR Convergence 2023

    Remission, Glucocorticoid Toxicity, Health-Related Quality of Life, and Safety Outcomes in Patients with Renal Involvement in the Phase 3 Trial of Avacopan for the Treatment of ANCA-Associated Vasculitis

    Duvuru Geetha1, Frank Cortazar2, Annette Bruchfeld3, alexandre Karras4, Peter Merkel5 and David Jayne6, 1Johns Hopkins University, Baltimore, MD, 2New York Nephrology, Watervliet, NY, 3Karolinska Institutet, Stockholm, Sweden, 4HEGP - APHP, Paris, France, 5University of Pennsylvania, Philadelphia, PA, 6University of Cambridge, Cambridge, United Kingdom

    Background/Purpose: In the Phase 3 ADVOCATE trial comparing avacopan to a prednisone taper, 81% of patients with ANCA-associated vasculitis (AAV) had renal involvement based on…
  • Abstract Number: 1354 • ACR Convergence 2023

    The Impact of Pregnancy Intention on Depression and Quality of Life in Women with Lupus

    Ceshae Harding1, Amanda Eudy2, Catherine Sims1, Cuoghi Edens3, Mehret Birru Talabi4, Rosalind Ramsey-Goldman5, Laura Neil1 and Megan Clowse6, 1Duke University, Durham, NC, 2Duke University, Raleigh, NC, 3University of Chicago, Chicago, IL, 4University of Pittsburgh, Pittsburgh, PA, 5Northwestern University, Chicago, IL, 6Duke University, Chapel Hill, NC

    Background/Purpose: Mental health conditions are the leading cause of maternal mortality across most of the United States. Among individuals with SLE, pregnancy intention has been…
  • Abstract Number: 1993 • ACR Convergence 2023

    Impact of Metabolic Syndrome on Ultrasonographic Findings and Quality of Life in Patients with Early Osteoarthritis

    Maria Fernanda Gonzalez-Hernandez1, Rolando Espinosa-Morales2, Carlos Pineda2, Angelica Peña3, Araceli Bernal1 and Alejandra Alabarda1, 1Instituto Nacional de Rehabilitación "Luis Guillermo Ibarra Ibarra", Mexico City, Mexico, 2Instituto Nacional de Rehabilitacion, Mexico City, Mexico, 3Instituto Mexicano del Seguro Social, Querétaro, Mexico

    Background/Purpose: Osteoarthritis (OA) is a common disorder with increased incidence with age. Metabolic syndrome (MS) is frequently associated with OA, although other factors are considered…
  • Abstract Number: 2471 • ACR Convergence 2023

    Higher Pain and Functional Impairment in Erosive Hand Osteoarthritis Than in Treated Rheumatoid Arthritis: A Comparative Study Between DIGICOD and ESPOIR Cohorts

    Sabryne Berkani1, Ainhoa Aparicio Monforte2, Sophie tuffet2, alexandra rousseau2, nathalie rincheval3, emmanuel maheu4, bernard combe3, Alain SARAUX5, Bruno Fautrel6, Laure Gossec7, Francis Berenbaum4, Jeremie SELLAM6 and alice courties4, 1Sorbonne Université, Rheumatology department, (AP-HP) Saint-Antoine Hospital, Paris, France, 2Department of Clinical Pharmacology and Clinical Research Platform Paris-East (URCEST-CRC-CRB), APHP, Hôpital St Antoine, Paris, France, 3Department of Rheumatology, University of Montpellier, Montpellier, France, 4Sorbonne Université Assistance Publique – Hôpitaux de Paris (AP-HP), Saint-Antoine Hospital, Department of Rheumatology, Paris, France, 5CHU Brest, Brest, France, 6Sorbonne Université APHP, Paris, France, 7Sorbonne Université and Pitié Salpêtrière Hospital, Paris, France

    Background/Purpose: Hand osteoarthritis (HOA) is considered as a less severe disease with a better functional prognosis and a lower global burden than rheumatoid arthritis (RA).…
  • Abstract Number: 0337 • ACR Convergence 2023

    Impact of Photosensitivity on Quality of Life in Dermatomyositis

    Kirubel Gebre1, Rachita Pandya2, Julianne Kleitsch2, Darosa Lim3, Rui Feng3 and victoria werth4, 1Perelman School of Medicine at the University of Pennsylvania, Lancaster, PA, 2Philadelphia VAMC, Philadelphia, PA, USA and Department of Dermatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, 3University of Pennsylvania, Philadelphia, PA, 4University of Pennsylvania, Wynnewood, PA

    Background/Purpose: Photosensitivity (PS) has been documented in dermatomyositis (DM) with symptoms including aggravation of preexisting cutaneous lesions and abnormal transient erythemal responses (Cheong WK et…
  • Abstract Number: 0819 • ACR Convergence 2023

    Regression to the Mean for Physical Function and Quality of Life in Trials for Symptomatic Knee Osteoarthritis

    Martin Englund and Aleksandra Turkiewicz, Lund University, Lund, Sweden

    Background/Purpose: Improvement in pain reported in clinical trials for osteoarthritis (OA) is typically strongly depending on the regression-to-the-mean phenomenon. Regression to the mean has been…
  • Abstract Number: 1368 • ACR Convergence 2023

    Development of the Sjögren’s-related Quality of Life (SRQoL) to Assess Health-related Quality of Life (HRQoL) in Sjögren’s

    Benjamin A Fisher1, Linda Stone2, Jessica Marvel3, Pushpendra Goswami4, Monia Steenackers4, Gayle Kenney4, Chiara Perella5, Wolfgang Hueber4, Chloe Howse6, Elizabeth Gargon6, Aishwarya Chohan6, Megan Mayhew6 and Nicola Williamson6, 1University of Birmingham, Birmingham, United Kingdom, 2The British Sjogren’s Syndrome Association, Birmingham, United Kingdom, 3Novartis Pharmaceuticals Corporation, East Hanover, NJ, 4Novartis Pharma AG, Basel, Switzerland, 5Novartis Pharma AG, Riehen, Switzerland, 6Adelphi Values Patient-Centered Outcomes, Bollington, United Kingdom

    Background/Purpose: Sjögren's is a heterogenous chronic auto-immune disease, characterized by excessive dryness of the eyes and mouth, as well as systemic complications which can significantly…
  • Abstract Number: 2022 • ACR Convergence 2023

    Development of an mHealth App for Lupus: Insights from a Human-Centered Design Approach

    Anna Deck1, Kiran Singh2, Lucas Dantas3, Amy LeClair2, Lisa Mandl4, Timothy McAlindon5, Faye Chiu6, Monique Gore-Massy7 and Shanthini Kasturi2, 1Tufts University School of Medicine, Boston, MA, 2Tufts Medical Center, Boston, MA, 3Ambulomics, Boston, MA, 4Hospital for Special Surgery, Weill Cornell Medicine, New York, NY, 5Tufts Medical Center, Arlington, MA, 6N/A, New York, NY, 7Covid-19 GRA, West Orange, NJ

    Background/Purpose: Mobile health (mHealth) technology offers promising tools to facilitate the self-management of chronic diseases, including systemic lupus erythematosus (SLE). However, currently available mHealth applications…
  • Abstract Number: 2556 • ACR Convergence 2023

    End-of-Life in Systemic Lupus Erythematosus Beset by Increased Flares and Higher Treatment Burden: Data from a Prospective Large Multinational Cohort

    Jiacai Cho1, Liang Shen2, Rangi Kandane-Rathnayake3, Vera Golder3, Worawit Louthrenoo4, Yi-Hsing Chen5, Laniyati Hamijoyo6, Shue-Fen Luo7, Yeong-Jian J Wu8, Leonid Zamora9, Zhanguo Li10, Sargunan Sockalingam11, Yasuhiro Katsumata12, Masayoshi Harigai12, Yanjie Hao13, Zhuoli Zhang14, BMDB Basnayake15, Madelynn Chan16, Jun Kikuchi17, Tsutomu Takeuchi18, Sang-Cheol Bae19, Shereen Oon20, Sean O’Neill21, Fiona Goldblatt22, Kristine Ng23, Annie Law24, Nicola Tugnet25, Sunil Kumar26, Cherica Tee27, Michael Tee27, Naoaki Ohkubo28, Yoshiya Tanaka28, Sandra Navarra9, Chak Sing Lau29, Alberta Hoi30, Mandana Nikpour31, Eric Morand32 and Aisha Lateef33, 1National University Hospital, Singapore, Singapore, 2National University of Singapore, Singapore, Singapore, 3Monash University, Department of Medicine, Sub-faculty of Clinical and Molecular Medicine, Clayton, Australia, 4Chiang Mai University Hospital, Division of Rheumatology, Department of Internal Medicine, Faculty of Medicine, Chiang Mai, Thailand, 5Taichung Veterans General Hospital, Taichung, Taiwan, 6Padjadjaran University/Hasan Sadikin General Hospital, Division of Rheumatology, Department of Internal Medicine, Faculty of Medicine, Bandung, Indonesia, 7Chang Gung University, Department of Rheumatology, Allergy and Immunology, Chang Gung Memorial Hospital, Taoyuan, Taiwan, 8Chang Gung University, Department of Rheumatology, Allergy and Immunology, Chang Gung Memorial Hospital, Keelung, Taiwan, 9University of Santo Tomas Hospital, Joint and Bone Center, Manila, Philippines, 10Peking University People’s Hospital, Beijing, China, 11University of Malaya, Department of Medicine, Faculty of Medicine Building, Kuala Lumpur, Malaysia, 12Tokyo Women's Medical University, Division of Rheumatology, Department of Internal Medicine, Tokyo, Japan, 13The University of Melbourne Department of Medicine at St Vincents Hospital Melbourne, Melbourne, Australia, 14Peking University First Hospital, Rheumatology and Immunology Department, Beijing, China, 15Division of Nephrology, Teaching Hospital Kandy, Adelaide, Australia, 16Tan Tock Seng Hospital, Department of Rheumatology, Allergy & Immunology, Singapore, Singapore, 17Keio University, Keio, Japan, 18Keio University School of Medicine and Saitama Medical University, Tokyo, Japan, 19Hanyang University Hospital for Rheumatic Diseases and Hanyang University Institute for Rheumatology Research, Department of Rheumatology, Seoul, South Korea, 20Department of Medicine, The University of Melbourne at St Vincent’s Hospital, Melbourne, Australia, 21Department of Medicine, University of New South Wales, Kensington, Australia, 22Royal Adelaide Hospital and Flinders Medical Centre, Adelaide, Australia, 23Waitemata DHB, Auckland, New Zealand, 24Singapore General Hospital; Duke-NUS Medical School, Singapore, Singapore, 25Auckland District Health Board, Auckland, New Zealand, 26Middlemore Hospital, Auckland, New Zealand, 27University of the Philippines, Manila, Philippines, 28University of Occupational and Environmental Health, Kitakyushu, Japan, 29University of Hong Kong, Division of Rheumatology & Clinical Immunology, Department of Medicine, Queen Mary Hospital, Hong Kong, Hong Kong, 30Monash University, Department of Medicine, Sub-faculty of Clinical and Molecular Medicine, Melbourne, Australia, 31The University of Melbourne at St. Vincent’s Hospital Melbourne, Departments of Medicine and Rheumatology, Melbourne, Australia, 32Monash University, Centre for Inflammatory Diseases, Melbourne, Australia, 33National University Hospital, Rheumatology Division, Department of Medicine, Singapore, Singapore

    Background/Purpose: SLE patients suffer high symptom burden at the end-of-life. However, the course of disease and treatment burden in the last year of life have…
  • Abstract Number: 026 • 2023 Pediatric Rheumatology Symposium

    Performance of the UCLA Scleroderma Clinical Trials Consortium Gastrointestinal Tract 2.0 Instrument in a Juvenile Systemic Sclerosis Cohort

    Sophie Stefancic, Amanda Robinson, Haley Havrilla, Samantha Branton, Vibha Sood and Kathryn Torok, University of Pittsburgh, Pittsburgh, PA

    Background/Purpose: Gastrointestinal (GI) manifestations in juvenile onset systemic sclerosis (jSSc) reflect adult disease with a range of involvement along the GI tract, including oropharyngeal dysphagia…
  • Abstract Number: 030 • 2023 Pediatric Rheumatology Symposium

    International Validation of the Total Morbidity Score for Juvenile Localized Scleroderma: 2023 Update

    Christina ZIgler1, Debra Henke2, Clare Pain3, Hanna Lythgoe3, Kaveh Ardalan2, Kathryn Torok4 and Suzanne Li5, 1Duke, Durham, NC, 2Duke University School of Medicine, Durham, NC, 3Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom, 4University of Pittsburgh, Pittsburgh, PA, 5Hackensack Meridian School of Medicine, Joseph M. Sanzari Children's Hospital, Hackensack, NJ

    Background/Purpose: Juvenile localized scleroderma (jLS) is a rare condition causing inflammation and fibrosis that may impair health-related quality of life (HRQoL). Recent studies demonstrate extracutaneous…
  • Abstract Number: 042 • 2023 Pediatric Rheumatology Symposium

    Prevalence of Chronic Pain in Childhood-onset Systemic Lupus Erythematosus and Juvenile Dermatomyositis

    Sara Patrizi1, Susmita Kashikar-Zuck2, CARRA Registry Investigators3, Mekibib Altaye4 and Jennifer Weiss5, 1Stanford Medicine, Children's Health, Palo Alto, CA, 2University of Cincinnati College of Medicine; Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3CARRA, Washington, DC, 4Cincinnati Children's Hospital, Cincinnati, OH, 5Pediatric Rheumatology, Hackensack Meridian School of Medicine, Hackensack University Medical Center, Hackensack, New Jersey, Hackensack, NJ

    Background/Purpose: The prevalence, severity and impact of chronic pain in pediatric patients with autoimmune diseases such as childhood onset SLE (cSLE) and juvenile dermatomyositis (JDM)…
  • Abstract Number: 052 • 2023 Pediatric Rheumatology Symposium

    Extreme Periodic Fever, Aphthous Stomatitis, Pharyngitis, Adenitis (PFAPA): A Discrete Group of Patients

    Yoel Levinsky1, Rotem Tal2, Liora Harel2, Shoval Shoham3, Sabreen Abu Ahmad4, Yonatan Butbul Aviel5, Gil Amarilyo2 and Mor Broide3, 1Schneider Children's Medical Center of Israel, Petach Tikva, Israel, 2Pediatric rheumatology clinic, Schneider children's medical center of Israel, Petach Tikva, Israel, 3Schneider Children's Medical Center of Israel, Petach Tikva, Israel, 4Ruth Rappaport Children's Hospital, Rambam Health Care, Haifa, Israel, 5Rambam Medical center, Haifa, Israel

    Background/Purpose: Periodic fever, aphthous stomatitis, pharyngitis, and cervical adenitis (PFAPA) syndrome is the most common periodic fever syndrome in children; by definition, episodes occur every…
  • Abstract Number: 0444 • ACR Convergence 2022

    Prevalence of Frailty and Associated Factors in Patients with Vasculitis

    Sebastian Sattui1, John Stadler2, Cristina Burroughs3, Kalen Larson2, Christine Yeung4, Peter Merkel5 and Robert Spiera6, 1University of Pittsburgh, Pittsburgh, PA, 2Vasculitis Foundation, Kansas City, MO, 3University of South Florida, Tampa, FL, 4University of Pennsylvania, Philadelphia, 5University of Pennsylvania, Philadelphia, PA, 6Hospital for Special Surgery, New York, NY

    Background/Purpose: Frailty is a syndrome characterized by an increased vulnerability to stressors and is associated with disability and early mortality. Frailty may be accelerated in…
  • Abstract Number: 1495 • ACR Convergence 2022

    How Does Body Mass Index Affect Secukinumab Treatment Outcomes and Safety in Patients with Ankylosing Spondylitis? – Real World Data from a German Observational Study

    Uta Kiltz1, Jan Brandt-Juergens2, Peter Kästner3, Elke Riechers4, Daniel Peterlik5, Christina Budden5 and Hans-Peter Tony6, 1Rheumazentrum Ruhrgebiet, Herne, Germany, 2Rheumatologische Schwerpunktpraxis, Berlin, Germany, 3Ambulantes Rheumazentrum, Medizinisches Versorgungszentrum, Erfurt, Germany, 4Medizinische Hochschule Hannover, Hannover, Germany, 5Novartis Pharma GmbH, Nürnberg, Germany, 6Medizinische Klinik II - Rheumatologie/Immunologie, Universitätsklinikum Würzburg, Würzburg, Germany

    Background/Purpose: Obesity is a risk factor for worse overall health in people with ankylosing spondylitis (AS)1. The German non-interventional study AQUILA provides real-world data in…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. Academic institutions, private organizations and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part a scientific presentation or presentation of additional new information that will be available at the time of the meeting) is under embargo until Saturday, November 11, 2023.

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying financial and other sponsors about this policy. If you have questions about the abstract embargo policy, please contact the public relations department at [email protected].

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